question

[Guest guest]

Congratulations, Dave!With best wishes for continued improvement,Dudley Delany

dudley_delanyFrom: Finlinson

Sent: Tuesday, January 8, 2008 12:52 PM

low dose naltrexone

Subject: Re: [low dose naltrexone] Re: Question

I hope this does not discourage anybody who is having a hard time seeing a difference in taking LDN but I had my first dose (3 mg) last night at 10 pm and didn't expect any differences because I don't consider that I have many problems but I startled from sleep at 4 am with feeling in my hand. I immediately noticed there was NO numbness in my right hand that has been numb since Jan/Feb 2005. It seemed so hard to believe that I laid there feeling my hand for about 20-30 minutes to be certain I wasn't crazy. There is now slight numbness this morning but it is markedly less than before last night's first dose. I also noticed the lack of urgency that I always have when I wake up during the night. I also noticed sensations in my right forearm that I didn't believe had any issues. I of course am anxious to see that these are only the first signs of a long pattern of proof but I'm very impressed so far. Than

ks to all of you and your testimonials and inquiries that have helped me take this path.

Dave

On 1/7/08, brian.little <brian.little@...> wrote:

,LDN does not give everyone noticable results, just like the CRAB drugs do not. I have been on LDN for over three years and my results showed on my MRIs. NO DISEASE PROGRESSION!. That is good enough for me. You might want to read up on CAP at www.cpnhelp.org. >> Hello > > I have ms and started ldn awhile back i seen some minor results and > then nothing so i gave up/ Im ready to try again. How long does it take> to see results in mobility ? any testimonals would be great. I also > have chrones diease and am hoping it will help everything > > >

[Guest guest]

Dudley,

I've been following this list for a while and want to thank you for the links

you always

have handy. They are quite useful.

And if you run across any information about LDN / autoimmune thyroid disorders /

autoimmune eye disease, please post it. I hope to be trialling LDN in March or

April, after

a thyroidectomy. I am leery of introducing anything new while I'm in the hyper

phase of

Graves Disease and also I'm treated with PTU, which is an immunosuppressant, and

now

and then with prednisone for eye inflammation.

I've seen no literature about LDN for thyroid so appreciate any feedback from

anyone on

it.

Best

a

>

> Congratulations, Dave!

>

> With best wishes for continued improvement,

>

> Dudley Delany

[Guest guest]

Hi a,

A number of group members are using LDN for Graves disease and Sjorgen's

syndrome and they periodically post their progress. Maybe some will share their

insights for you now.

If anything additional comes along about LDN and autoimmune eye and/or thyroid

disorders (that isn't first posted by someone else), I will post it here.

Best regards,

Dudley

[low dose naltrexone] Re: Question

Dudley,

I've been following this list for a while and want to thank you for the links

you always

have handy. They are quite useful.

And if you run across any information about LDN / autoimmune thyroid disorders /

autoimmune eye disease, please post it. I hope to be trialling LDN in March or

April, after

a thyroidectomy. I am leery of introducing anything new while I'm in the hyper

phase of

Graves Disease and also I'm treated with PTU, which is an immunosuppressant, and

now

and then with prednisone for eye inflammation.

I've seen no literature about LDN for thyroid so appreciate any feedback from

anyone on

it.

Best

a

>

> Congratulations, Dave!

>

> With best wishes for continued improvement,

>

> Dudley Delany

[Guest guest]

Hi Amber,

Do a google search for it. Dr. Bihari recommended Solaray brand. It is over the counter.

Aletha

[low dose naltrexone] Question

I have read many times that DLPhenylalamime is known to increase the effects of LDN. Can anyone tell me where to get this from? I mean do I need a script or can I buy from GNC or other herbal stores?Amber

[Guest guest]

Hi Amber,Dr. Bihari recommended the Solaray brand of DLPA. It is available at a discount from Amazon.com through this link:http://tinyurl.com/yqgsxzBest regards,Dudley Delany

dudley_delanyFrom: nicknamedjaylo

Sent: Thursday, February 7, 2008 7:33 PM

low dose naltrexone

Subject: [low dose naltrexone] Question

I have read many times that DLPhenylalamime is known to increase the

effects of LDN. Can anyone tell me where to get this from? I mean do I

need a script or can I buy from GNC or other herbal stores?

Amber

[Guest guest]

DLPA destroys the enzyme that causes endorphins to self-destruct, and

so extends their life.

No script necessary to purchase DLPA. I take 500mgs 10AM, 3PM and

sometimes with my LDN at 11PM, all on an empty stomach.

I get my Solaray brand through Amazon.com. Around $10.00 for a bottle

of 60 capsules.

-Art

--

>

> I have read many times that DLPhenylalamime is known to increase

the

> effects of LDN. Can anyone tell me where to get this from? I mean

do I

> need a script or can I buy from GNC or other herbal stores?

>

> Amber

>

[Guest guest]

FYI.

At the beginning of last week I went to to order DLPA. I was

filling out the order and there was a note to allow a couple extra

days for shipping, because the product had to be shipped from

HerbsMD.

I went to HerbsMd and found Solaray DLPA for 9.29/ 60 cap bottle.

This is a little bit cheaper than . The shipping was free, with

a catch. There is a minimum order. I think it was about $90.00. I

ordered 10 bottles to get the free shipping.

I had purchased one bottle, through the health food store, to make

sure I was not going to react badly to the DLPA.

While I ordered 10 bottles, I only received 8, with the notation (Out

of Stock) please reorder. Even though only getting 8 bottles made

the order less than the minimum, the shipping was still free.

Now, does the out of stock mean that will also be delayed and

how long does out of stock mean? I think having received 8 bottles,

they will have replenished their stock by the time I need to reorder.

Virginia

>

> Hi Amber,

>

> Dr. Bihari recommended the Solaray brand of DLPA. It is available

at a discount from Amazon.com through this link:

>

> http://tinyurl.com/yqgsxz

>

> Best regards,

>

> Dudley Delany

>

> dudley_delany

>

>

> [low dose naltrexone] Question

>

> I have read many times that DLPhenylalamime is known to increase

the

> effects of LDN. Can anyone tell me where to get this from? I mean

do I

> need a script or can I buy from GNC or other herbal stores?

>

> Amber

>

[Guest guest]

Well Virginia, I think you are set for quite a while. I think in 3 years that we have only used 8 bottles for . You are good to go.

Aletha

[low dose naltrexone] Question> > I have read many times that DLPhenylalamime is known to increase the > effects of LDN. Can anyone tell me where to get this from? I mean do I > need a script or can I buy from GNC or other herbal stores?> > Amber>

[Guest guest]

Oral Dmsa ---- www.vrp.com

Oral Dmps ---- only by prescription

[ ] Question

Where can I find oral dmsa or dmps? Our regular pharmacy only has

tablet and suppositories

[Guest guest]

I think it's completely normal to have a hard time looking up (at

least that is the case with my son). When they look up, the bottom of

the back of the helmet touches their neck/shoulders and gets pushed

forward into their eyes. My poor little guy loves airplanes, and he

tries so hard to look up at them from under his band that he sometimes

leans too far back and topples over. And he has a DocBand, which I'm

pretty certain doesn't come as far down in the back as StarBand and

Hanger, so that makes it worse for your daughter.

A couple of adjustments at the beginning isn't unusual either to get

the fit just right. Our therapist had to shave around my son's ear

hole a couple of times to get it just right and keep it from pushing

down on his ear. Does the fit seem better after the two adjustments?

Does she have any red spots that don't fade after an hour with the

helmet off?

Jake-18m (tort resolved/rt plagio/DocBand 2/11/08)

Jordan-4

>

> My daughter, Molly, just got her helmet from the Hanger company. I

am

> having trouble with it fitting right and have had to get an

adjustment

> two times already. I noticed that she has trouble looking up, is

this

> normal? What are some things that I should expect? Thanks for your

> help.

>

[Guest guest]

My husband has been taking protocel since July Œ07 for Hodgkin¹s Lymphoma,

stage 2. The lysing that he has exerienced have been bubbly urine, more

bowel movements, oily scalp, night sweats, rash in the area of the large

tumor, and runny nose.

He had a PET scan done in Dec. and the tumor had gone from a 15 SUV level

down to an 8 SUV level. We haven¹t had a scan done since Dec., but he seems

to be feeling better these past couple of weeks, so we hope there has been

more improvement made.

There is a site at www.protocelforum.com where you can go for information.

Another website is www.elonnamckibbon.com. She survived a GBM taking only

Protocel.

Amy

" Ellen " wrote:

> Anyone on this list ever used Protocel? Does anyone know about lysing?

[Guest guest]

>

> I have a question. My son is in the starband. He is very fair and

> does not have a lot of hair. I want to prevent sunburn on the part of

> his head that is open. Does anyone have any suggestions?

>

My son also has VERY fine light hair and fair skin. If we were to go

for a walk or be outside for an extended period of time I would either

put suntan lotion on the scalp (pain in the butt) or have him wear one

of my husbands hats so it would fit over the helmet. Otherwise if we

were just running into a store or something he was fine.

[Guest guest]

I used a sunscreen spray - it was made for babies scalps - It was a light mist and was 50+ spf.

I don't remember the name - but I got it at Babies R Us. Make sure you spray it on and rub it in a bit and let it dry before putting on the band.

Jen and Luli - 28 months

Left tort - Right Plagio - Hanger Band Grad - CA

http://www.babiesonline.com/babies/j/jens5th/

question

I have a question. My son is in the starband. He is very fair and

does not have a lot of hair. I want to prevent sunburn on the part of

his head that is open. Does anyone have any suggestions?

Get the MapQuest Toolbar, Maps, Traffic, Directions More!

[Guest guest]

I would take his band off and rub the sunscreen on his head, trying to keep

as little as possible going where the band covers his head. Make sure that

it is dried all the way before putting the band back on. You can also buy a

sunhat in a larger size, say a 2T, and put that on over the band.

Molly

Novato, California

Nicolas, 2, tort & plagio, STARband (CIRS Oakland) 4/24/06-9/12/06,

Graduate!

, 5

, 8

question

I have a question. My son is in the starband. He is very fair and

does not have a lot of hair. I want to prevent sunburn on the part of

his head that is open. Does anyone have any suggestions?

------------------------------------

For more plagio info

[Guest guest]

" CELIA DANKS " wrote:

> Can you tell me if posts are moderated on this group?

> Thanks

> Celia, Scotland.

>

Posts by new members and some ongoing members are moderated based on

these guidelines which are listed on the homepage of the group.

PLEASE FOLLOW THESE IMPORTANT GUIDELINES WHEN POSTING A MESSAGE:

- Refrain from personal judgment and argumentative comments;

- In replying to a message trim message of irrelevant information; if

new topic, change the subject line to reflect the new topic;

- Avoid initiating off-topic subjects;

- Avoid soliciting and self-promoting ads.

Celia, if you have a specific question or comment about the moderation

of this group, feel free to send it to me.

Moderator

[Guest guest]

You need to see a dermatologist. The can look at it and immediately tell

you whether its something that should be removed and whether it looks

suspicious. If they remove, they will always get a biopsy regardless or

whether they think its malignant or benign, that's standard practice.

The fact that is brown, black and red sounds suspicious to me. I know

because I had 2 removed that were malignant (sqaumous cell carcinoma), while

I had many removed that were benign. Don't procrastinate

Here's a site that explains the main types of skin cancer

http://www.umm.edu/skincancer/typesof.htm

Good luck

Dan

From: bk4529@...

I'm wondering if anyone here can help me to decide what to do about this

spot on my head. I have a spot that started out as a red spot that itched a

lot.

Now, I can't see it and only know what the kids have told me. It stayed this way

for a long time only itching a lot. Now they tell me that it's changed

colors and is brown, black and red. I found something here on the Internet

about melanoma and am wondering if this is what it is.

What is your advice on this, Can it seed from being taken off? Should it be

cut out? It's about the size of a a small pea. Any suggestions would be

greatly appreciated before I call the Dr.

Barbara

[Guest guest]

based upon your description it may very well be a melanoma. These are

VERY DANGEROUS and should be removed ASAP. Escharotics are the only

safe way to remove them. Surgical extirpation is risky as it can

spread. You will know when you apply it if it is malignant as it

crusts up and turns white around the edges. Anything else will not

react to the escharotic. Escharotics burn like he..! The pain goes on

and on until the eschar forms and falls off. If there is a thread

hanging towards the end of the process DO NOT CUT IT! It is a nerve

and plucking it will cause so much pain that you may pass out.

http://www.cancersalves.com/introduction/treatment.html

bk4529 wrote:

>I'm wondering if anyone here can help me to decide what to do about

this spot on my head. I have a spot that started out as a red spot that itched a

lot. Now, I can't see it and only know what the kids have told me. It stayed

this way for a long time only itching a lot. Now they tell me that it's changed

colors and is brown, black and red. I found something here on the Internet

about melanoma and am wondering if this is what it is..........

Barbara

[Guest guest]

bk4529 writes:

I'm wondering if anyone here can help me to decide what to do about this

spot on my head

Put a vit c paste on it and see what happens.

[Guest guest]

If I use the black salve and should see this thread hanging what am I

supposed to do about it, let it hang or follow this thread with the

black salve or where I think the thred is headed?

This spot now has a crust type feel to it, it feels hard and crusty.

Barbara

>

> based upon your description it may very well be a melanoma. These

are

> VERY DANGEROUS and should be removed ASAP. Escharotics are the only

> safe way to remove them. Surgical extirpation is risky as it can

> spread. You will know when you apply it if it is malignant as it

> crusts up and turns white around the edges. Anything else will not

> react to the escharotic. Escharotics burn like he..! The pain goes

on

> and on until the eschar forms and falls off. If there is a thread

> hanging towards the end of the process DO NOT CUT IT! It is a nerve

> and plucking it will cause so much pain that you may pass out.

>

> http://www.cancersalves.com/introduction/treatment.html

>

> bk4529 wrote:

> >I'm wondering if anyone here can help me to decide what to do about

> this spot on my head. I have a spot that started out as a red spot

that itched a lot. Now, I can't see it and only know what the kids

have told me. It stayed this way for a long time only itching a lot.

Now they tell me that it's changed colors and is brown, black and

red. I found something here on the Internet about melanoma and am

wondering if this is what it is..........

> Barbara

>

[Guest guest]

> bk4529 writes:

>

> I'm wondering if anyone here can help me to decide what to do about

> this

> spot on my head

Have you looked into black salve?

[Guest guest]

Guys,it has been a very informative and lively forum. I now want to quit the

group and move on.Please send my mails to other cancerfighters. May your tribe

increase!

" CELIA DANKS " wrote:

Can you tell me if posts are moderated on this group?

Thanks

Celia, Scotland.

Posts by new members and some ongoing members are moderated based on

these guidelines which are listed on the homepage of the group.

PLEASE FOLLOW THESE IMPORTANT GUIDELINES WHEN POSTING A MESSAGE:

- Refrain from personal judgment and argumentative comments;

- In replying to a message trim message of irrelevant information; if

new topic, change the subject line to reflect the new topic;

- Avoid initiating off-topic subjects;

- Avoid soliciting and self-promoting ads.

Celia, if you have a specific question or comment about the moderation

of this group, feel free to send it to me.

Moderator

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Mobile. Try it now.

http://mobile./;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

LDN_4_cancer

LDN_4_cancer/

>

> May I have the complete web site for LDN4cancer?.I have colon

> cancer(metastisized to the liver) and peripheral neuropathy.

>

> Any help will be very much appreciated

>

>

>

> Sanford Demain

>

> poochartz@...

> office 818.902.1661

> fax 818.709.5303

>

>

>

>

> **************Wondering what's for Dinner Tonight? Get new twists

on family

> favorites at AOL Food.

> (http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

>

[Guest guest]

>

> Is there any way to tell exactly how long you may have had the lyme

> disease? Like a blood test or do people just date it back to when

> they first get symptoms?

>

>

There's no exact way to know that I'm aware of other than looking

back to when your symptoms started. Blood tests can give you an idea

though: the western blot IgM is positive earlier on, and the western

blot IgG is positive later on with prolonged involvement (by this

time the IgM is usually back to negative as it peaks, then wanes).

The OspA and OspB (of the western blot) are the ones that show up if

there is arthritic involvement.

If you're not one who keeps records or a " medical diary " , you could

probably look over your medical records and see a pattern emerging.

I'm sure one of our more brain-functioning members can give you much

more detailed info, but that's my simplistic take on it.

in Oregon

[Guest guest]

My child had a normal MRI and he has Apraxia. Our Neurologist diagnosed

Apraxia for us. Our SLP said he had Apraxia as well although she cannot

diagnose it like a medical doctor can for our insurance company to

accept.

>

> hi I was just wondering HOW do I find out if she has apraxia thats

what are dev ped says but she doesnt seem to know about any causes or

much else. Alyssa had a MRI in jan that showed white matter (small)

inthe right basal gangila does anyone else have abnormal mri? see 2nd

neuro in 2wks 1st blew us off basic to genetics. she also has strabimus

atrial sdefect,mitrovalve prolapse and soft signs lots.

>

[Guest guest]

If there's something on the MRI, it would not be due to the

Apraxia/Dyspraxia, because it doesn't show on the CAT or MRI tests (one of the

reasons they

call it a " hidden disability "

so it must be due to something else-- and I would seek out that reason and

what it is til you feel satisified by the Dr's answer

bek

In a message dated 9/15/2008 9:27:25 A.M. Eastern Daylight Time,

debjward@... writes:

hi I was just wondering HOW do I find out if she has apraxia thats

what are dev ped says but she doesnt seem to know about any causes or

much else. Alyssa had a MRI in jan that showed white matter (small)

inthe right basal gangila does anyone else have abnormal mri? see 2nd

neuro in 2wks 1st blew us off basic to genetics. she also has strabimus

atrial sdefect,mitrovalve prolapse and soft signs lots.

>

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