Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 Got it, thanks! ________________________________ From: Jan <mercurybabies2@...> Sent: Tuesday, March 3, 2009 6:57:48 PM Subject: [ ] Re: question From what I experienced. .yes but only at bedtime. I found that when we first began chelating I and the kids had a harder time falling asleep if we were on dmsa. So we used melatonin at bed time on rounds and for a day or two after. As we got up in numbers of rounds...we didn't need it anymore. > > Jan, Dana or TJ is there an added benefit to adding Melatonin to DMSA during the AC Protocol rounds in the beginning?? Thanks so much~ > > stace > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Thanks for noting that. I’ve read what everyone is writing, and I appreciate it, but there doesn’t seem to be a psych in the phoenix area who specializes in autism. I saw the Dev Ped who did, and that was a joke. I called to get the neuropsych appt, which is when I finally got the appt with the child psych. I have to make the most out of this appt since it is one I have. I think I will hit a neurologist next!!! From: [mailto: ] On Behalf Of garnejil Sent: Tuesday, March 03, 2009 4:04 PM Subject: ( ) Re: Question I asked the same question when my son needed a diagnosis. I was referred to a pediatric neurologist. I have found that while psychs know some about ADD/ADHD, they seem to know very little about Asperger's. Just my experience... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 > > Jan, Dana or TJ is there an added benefit to adding Melatonin to DMSA during the AC Protocol rounds in the beginning?? I have never used either melatonin or DMSA, so I can't really comment on this question. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 thank you, do you have any thought about ALA vs. ®-Lipoic Acid the active form I saw on the VRP website, when I asked the person at VRP she said the only difference is ®-Lipoic Acid is more bioavailable. Do you know if the more active version is better for ALA chelation or not recommend for any reason. Your input is sincerely appreciated, Stacee ________________________________ From: Jan <mercurybabies2@...> Sent: Tuesday, March 3, 2009 6:57:48 PM Subject: [ ] Re: question From what I experienced. .yes but only at bedtime. I found that when we first began chelating I and the kids had a harder time falling asleep if we were on dmsa. So we used melatonin at bed time on rounds and for a day or two after. As we got up in numbers of rounds...we didn't need it anymore. > > Jan, Dana or TJ is there an added benefit to adding Melatonin to DMSA during the AC Protocol rounds in the beginning?? Thanks so much~ > > stace > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Onibasu is your friend. Andy on R-ALA: " I have nothing printable to say about the charlatans who try to prey on people by making up stories about R ALA being better for everything.... " http://onibasu.com/archives/am/165114.html http://onibasu.com/archives/am/224731.html http://onibasu.com/archives/fdc/1525.html http://onibasu.com/archives/amc/32792.html http://onibasu.com/archives/am/71182.html >thank you, >do you have any thought about ALA vs. ®-Lipoic Acid the active >form I saw on the VRP website, when I asked the person at VRP she >said the only difference is ®-Lipoic Acid is more bioavailable. Do >you know if the more active version is better for ALA chelation or >not recommend for any reason. >Your input is sincerely appreciated, >Stacee > >________________________________ >From: Jan <<mailto:mercurybabies2%40>mercurybabies2@...> ><mailto: %40> >Sent: Tuesday, March 3, 2009 6:57:48 PM >Subject: [ ] Re: question > >>From what I experienced. .yes but only at bedtime. >I found that when we first began chelating I and the kids had a >harder time falling asleep if we were on dmsa. So we used melatonin >at bed time on rounds and for a day or two after. As we got up in >numbers of rounds...we didn't need it anymore. > > >> >> Jan, Dana or TJ is there an added benefit to adding Melatonin to >>DMSA during the AC Protocol rounds in the beginning?? Thanks so >>much~ >> >> stace >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Even though theoretically the R form is meant to be better there are a number of reasons to stick to the RS form. All of the data from studies we are relying on was based on the RS form. So we don't actually have a study to refer to to show us if we get the same results using the R form. Also R ala is meant to be a lot more expensive than RS ala. Unfortunately some of the shoddy suppliers along the chain will take an RS product and relabel it as R ala, because the RS product is 50% R ala. So they might take a 50mg RS ala and sell it as a 25mg R ala. So you think you are giving 25mg a dose, when in fact you are giving 50. I know of one family that tried using the R-ALA form, again despite my warning. Some well meaning health professional assured them the R form was much better. The rounds did not go very well for them so they stopped. So I think its just another variable that could cause trouble that you don't need. Stacee wrote: > > thank you, > do you have any thought about ALA vs. ®-Lipoic Acid the active form > I saw on the VRP website, when I asked the person at VRP she said the > only difference is ®-Lipoic Acid is more bioavailable. Do you know > if the more active version is better for ALA chelation or not > recommend for any reason. > Your input is sincerely appreciated, > Stacee > > ________________________________ > From: Jan <mercurybabies2@... <mailto:mercurybabies2%40>> > > <mailto: %40> > Sent: Tuesday, March 3, 2009 6:57:48 PM > Subject: [ ] Re: question > > >From what I experienced. .yes but only at bedtime. > I found that when we first began chelating I and the kids had a harder > time falling asleep if we were on dmsa. So we used melatonin at bed > time on rounds and for a day or two after. As we got up in numbers of > rounds...we didn't need it anymore. > > > > > > Jan, Dana or TJ is there an added benefit to adding Melatonin to > DMSA during the AC Protocol rounds in the beginning?? Thanks so much~ > > > > stace > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 What form is the Kirkman's 25mg ALA? > > thank you, > do you have any thought about ALA vs. ®-Lipoic Acid the active form > I saw on the VRP website, when I asked the person at VRP she said the > only difference is ®-Lipoic Acid is more bioavailable. Do you know > if the more active version is better for ALA chelation or not > recommend for any reason. > Your input is sincerely appreciated, > Stacee > > ____________ _________ _________ __ > From: Jan <mercurybabies2 <mailto:mercurybabi es2%40. com>> > > <mailto:Autism- Mercury%40g roups.com> > Sent: Tuesday, March 3, 2009 6:57:48 PM > Subject: [ ] Re: question > > >From what I experienced. .yes but only at bedtime. > I found that when we first began chelating I and the kids had a harder > time falling asleep if we were on dmsa. So we used melatonin at bed > time on rounds and for a day or two after. As we got up in numbers of > rounds...we didn't need it anymore. > > > > > > Jan, Dana or TJ is there an added benefit to adding Melatonin to > DMSA during the AC Protocol rounds in the beginning?? Thanks so much~ > > > > stace > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Kirkmans is RS-ALA. Lots of people are getting good results using Kirkmans ALA. K S wrote: > > What form is the Kirkman's 25mg ALA? > > > > > > thank you, > > do you have any thought about ALA vs. ®-Lipoic Acid the active form > > I saw on the VRP website, when I asked the person at VRP she said the > > only difference is ®-Lipoic Acid is more bioavailable. Do you know > > if the more active version is better for ALA chelation or not > > recommend for any reason. > > Your input is sincerely appreciated, > > Stacee > > > > ____________ _________ _________ __ > > From: Jan <mercurybabies2 <mailto:mercurybabi > es2%40. com>> > > > > <mailto:Autism- Mercury%40g roups.com> > > Sent: Tuesday, March 3, 2009 6:57:48 PM > > Subject: [ ] Re: question > > > > >From what I experienced. .yes but only at bedtime. > > I found that when we first began chelating I and the kids had a harder > > time falling asleep if we were on dmsa. So we used melatonin at bed > > time on rounds and for a day or two after. As we got up in numbers of > > rounds...we didn't need it anymore. > > > > > > > > > > Jan, Dana or TJ is there an added benefit to adding Melatonin to > > DMSA during the AC Protocol rounds in the beginning?? Thanks so much~ > > > > > > stace > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 thanks > > > > thank you, > > do you have any thought about ALA vs. ®-Lipoic Acid the active form > > I saw on the VRP website, when I asked the person at VRP she said the > > only difference is ®-Lipoic Acid is more bioavailable. Do you know > > if the more active version is better for ALA chelation or not > > recommend for any reason. > > Your input is sincerely appreciated, > > Stacee > > > > ____________ _________ _________ __ > > From: Jan <mercurybabies2 <mailto:mercurybabi > es2%40. com>> > > > > <mailto:Autism- Mercury%40g roups.com> > > Sent: Tuesday, March 3, 2009 6:57:48 PM > > Subject: [ ] Re: question > > > > >From what I experienced. .yes but only at bedtime. > > I found that when we first began chelating I and the kids had a harder > > time falling asleep if we were on dmsa. So we used melatonin at bed > > time on rounds and for a day or two after. As we got up in numbers of > > rounds...we didn't need it anymore. > > > > > > > > > > Jan, Dana or TJ is there an added benefit to adding Melatonin to > > DMSA during the AC Protocol rounds in the beginning?? Thanks so much~ > > > > > > stace > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 -- I personally would stick with the R-S form, it does it's job, it's cheaper, it's more established and therefore more dependable and probably less riskier. Kenny - In , Stacee <staceed@...> wrote: > > thank you, > do you have any thought about ALA vs. ®-Lipoic Acid the active form I saw on the VRP website, when I asked the person at VRP she said the only difference is ®-Lipoic Acid is more bioavailable. Do you know if the more active version is better for ALA chelation or not recommend for any reason. > Your input is sincerely appreciated, > Stacee > > > > > ________________________________ > From: Jan <mercurybabies2@...> > > Sent: Tuesday, March 3, 2009 6:57:48 PM > Subject: [ ] Re: question > > > From what I experienced. .yes but only at bedtime. > I found that when we first began chelating I and the kids had a harder time falling asleep if we were on dmsa. So we used melatonin at bed time on rounds and for a day or two after. As we got up in numbers of rounds...we didn't need it anymore. > > > > > > Jan, Dana or TJ is there an added benefit to adding Melatonin to DMSA during the AC Protocol rounds in the beginning?? Thanks so much~ > > > > stace > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 thanks stace ________________________________ From: Ross <mrossgrp@...> Sent: Wednesday, March 4, 2009 2:28:11 PM Subject: Re: [ ] Re: question Onibasu is your friend. Andy on R-ALA: " I have nothing printable to say about the charlatans who try to prey on people by making up stories about R ALA being better for everything.. .. " http://onibasu. com/archives/ am/165114. html http://onibasu. com/archives/ am/224731. html http://onibasu. com/archives/ fdc/1525. html http://onibasu. com/archives/ amc/32792. html http://onibasu. com/archives/ am/71182. html >thank you, >do you have any thought about ALA vs. ®-Lipoic Acid the active >form I saw on the VRP website, when I asked the person at VRP she >said the only difference is ®-Lipoic Acid is more bioavailable. Do >you know if the more active version is better for ALA chelation or >not recommend for any reason. >Your input is sincerely appreciated, >Stacee > >___________ _________ _________ ___ >From: Jan <<mailto:mercurybab ies2%40. com>mercurybabies2> ><mailto:Autism- Mercury%40g roups.com> >Sent: Tuesday, March 3, 2009 6:57:48 PM >Subject: [ ] Re: question > >>From what I experienced. .yes but only at bedtime. >I found that when we first began chelating I and the kids had a >harder time falling asleep if we were on dmsa. So we used melatonin >at bed time on rounds and for a day or two after. As we got up in >numbers of rounds...we didn't need it anymore. > > >> >> Jan, Dana or TJ is there an added benefit to adding Melatonin to >>DMSA during the AC Protocol rounds in the beginning?? Thanks so >>much~ >> >> stace >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2009 Report Share Posted May 17, 2009 > > Dad took his LDN at 1.00am this morning. Can he take it at 6.00pm tonight or does he have to wait a night. I know it is not protocol. I hope we get back to protocol but dad hasn't has a full night sleep since he started. I also think that starting at 1.5mls has not helped the situation. People are better off starting at 4.5 mls and then dealing with the effects. > > Sky >========= Sky, 6pm is way too early. If you are observing Daylight Saving Time in USA he should take LDN no earlier than 10pm to take advantage of the largest endorphin production of the day between 2am and 4am. If he takes it at 6pm the LDN will already be out of his system missing that big peak endorphin boost. If you are in the USA look into Alteril, a natural supplement sleep aid. Alteril http://www.anxiety-and-depression-solutions.com/marketplace/alteril.php Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2009 Report Share Posted May 22, 2009 ,After 's last treatment, she bottomed out and I thought her counts would never come back. It took weeks, but eventually they all came back to normal range and stayed there.I would call just to give you peace of mind. Since this has been this way for 3 years, I can't imagine this is related to the leukemia. If it were, they would be calling you back in. How far from normal are his values? From: Bluyz1966@... <Bluyz1966@...>Subject: [ ] Question Date: Thursday, May 21, 2009, 1:06 PM I just got 's CBC results from his recent visit to CMH for a check up. Do any of you remember how long it took for the CBC counts to return to "normal". They say his CBC is stable, but, all his numbers are "abnormal". They have been since he finished chemo. His platelets are the only thing that is normal. It has been 3 years since he completed chemo. I thought I would pose this question here before I call his Doctor and sound like a worried Mom. Thanks! www.caringbridge. org/visit/ lindadolezan Huge savings on HDTVs from Dell.com! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2009 Report Share Posted May 24, 2009 Welcome- If they do the scan for the band on June 3rd, you should receive the band in about 7-10 days. Four months old is a great time to band. The first four months, the skull is super super soft (then gradually starts to harden from there), and I've been told the shape will probably be at it's worst by 4 months (meaning it most likely won't get any worse from there), which seemed to be the case for my son. Your son's skull is not too hard to correct, it's the rate of growth that is on your side at his age. Cranial Tech is not the only band company, but they are one of the most reputable, as they only do banding (whereas other orthotists sometimes handle other orthotic devices and might not see as many plagio patients), and all their therapists are equally well trained. Which office would you be going to? We went to CT-Charlotte and had a great experience. Also, I think it's fantastic that your ped is recommending the band because MOST do not, and a lot of us have a really hard time even getting the script for it. So it sounds like you're on the right path! Good luck! Jake-2.5 (DOCBand Grad 9/08) Jordan-5 > > Hi there, > > My 4 month old son developed a flat spot on his left side when he was about 2 months. Yesterday, during his check up, his pediatrician suggested that his head gets evaluated and said that he'll probably need a helmet (even though not too long ago he said that it would go away by itself). I made an appointment with Cranial Technologies for June 3rd. I just wanted to ask how long it usually takes since you have your first visit until the treatment starts. I'm really anxious to get all this process started ASAP, since from other postings I get that it's important to get help sooner than later. > > I have noticed that apparently my son's flat spot has not gotten worse for the last month or so... I was wondering if this could mean that his cranium is getting harder and it will be more difficult to take it back to normal... > > Finally, is Cranial Technologies the only company that specializes in treating this condition? > > Thanks in advance for your help!! > > Paloma > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2009 Report Share Posted May 24, 2009 My daughters helmet took two weeks to get from the date of scan. She was eight months old when she stared wearing it so your son has plenty of time. There was a big improvement in just one week so I think you will be happy with the results. Hanger also makes helmets. I chose to to go with cranial technologies as well since that is the only thing they specialize in. It has been a positive experience so far. Also, I don't know if you are going to try to go through insurance by we got a $300 discount for paying for the helmet up front. We will be reinbursed from our insurance company for the amount they allow. Good Luck!! EMAILING FOR THE GREATER GOODJoin me Plagiocephaly From: nwilkens2275@...Date: Sun, 24 May 2009 14:56:09 +0000Subject: Re: Question Welcome-If they do the scan for the band on June 3rd, you should receive the band in about 7-10 days. Four months old is a great time to band. The first four months, the skull is super super soft (then gradually starts to harden from there), and I've been told the shape will probably be at it's worst by 4 months (meaning it most likely won't get any worse from there), which seemed to be the case for my son. Your son's skull is not too hard to correct, it's the rate of growth that is on your side at his age. Cranial Tech is not the only band company, but they are one of the most reputable, as they only do banding (whereas other orthotists sometimes handle other orthotic devices and might not see as many plagio patients), and all their therapists are equally well trained. Which office would you be going to? We went to CT-Charlotte and had a great experience. Also, I think it's fantastic that your ped is recommending the band because MOST do not, and a lot of us have a really hard time even getting the script for it. So it sounds like you're on the right path! Good luck!Jake-2.5 (DOCBand Grad 9/08)Jordan-5>> Hi there,> > My 4 month old son developed a flat spot on his left side when he was about 2 months. Yesterday, during his check up, his pediatrician suggested that his head gets evaluated and said that he'll probably need a helmet (even though not too long ago he said that it would go away by itself). I made an appointment with Cranial Technologies for June 3rd. I just wanted to ask how long it usually takes since you have your first visit until the treatment starts. I'm really anxious to get all this process started ASAP, since from other postings I get that it's important to get help sooner than later.> > I have noticed that apparently my son's flat spot has not gotten worse for the last month or so... I was wondering if this could mean that his cranium is getting harder and it will be more difficult to take it back to normal... > > Finally, is Cranial Technologies the only company that specializes in treating this condition? > > Thanks in advance for your help!!> > Paloma> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2009 Report Share Posted May 25, 2009 Hi, if your first appointment is a consultation, you'll have to follow up with a scan appointment to get the band. You'll need a prescription for that (do you have one now)? Also you may want to see what your insurance will cover. Insurance varies widely, ranging from 100% to 0%, and the band is over $3000. At 4 mo you're in good shape, so no need to go crazy rushing things. If possible try repositioning to keep him off the flat spot, and have him rest on the prominent side - this will keep it from getting worse, and may even help correct it. If your baby has torticollis (tight neck muscles) repositioning can be difficult, and stretches may be needed to loosen up the neck. Head tilting ot one side or always looking to one side are indications of tort - this is a big contributor to plagio. welcome to the group and keep us posted on your progress. -christine sydney, 3 yrs, starband grad > > Hi there, > > My 4 month old son developed a flat spot on his left side when he was about 2 months. Yesterday, during his check up, his pediatrician suggested that his head gets evaluated and said that he'll probably need a helmet (even though not too long ago he said that it would go away by itself). I made an appointment with Cranial Technologies for June 3rd. I just wanted to ask how long it usually takes since you have your first visit until the treatment starts. I'm really anxious to get all this process started ASAP, since from other postings I get that it's important to get help sooner than later. > > I have noticed that apparently my son's flat spot has not gotten worse for the last month or so... I was wondering if this could mean that his cranium is getting harder and it will be more difficult to take it back to normal... > > Finally, is Cranial Technologies the only company that specializes in treating this condition? > > Thanks in advance for your help!! > > Paloma > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 Thanks so much to all of you for your answers, this really helps... My son's appointment is at the Paramus NJ office of Cranial Technologies, and we do have a prescription from our pediatrician, so hopefully everything will go smoothly... I'll defenitely keep you guys posted on how things go... Thank you SO much! Paloma > > > > Hi there, > > > > My 4 month old son developed a flat spot on his left side when he was about 2 months. Yesterday, during his check up, his pediatrician suggested that his head gets evaluated and said that he'll probably need a helmet (even though not too long ago he said that it would go away by itself). I made an appointment with Cranial Technologies for June 3rd. I just wanted to ask how long it usually takes since you have your first visit until the treatment starts. I'm really anxious to get all this process started ASAP, since from other postings I get that it's important to get help sooner than later. > > > > I have noticed that apparently my son's flat spot has not gotten worse for the last month or so... I was wondering if this could mean that his cranium is getting harder and it will be more difficult to take it back to normal... > > > > Finally, is Cranial Technologies the only company that specializes in treating this condition? > > > > Thanks in advance for your help!! > > > > Paloma > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2009 Report Share Posted May 26, 2009 Hi Paloma, You can also go to Cranial Remolding in town. They use the Starband. That is who I'm using for my daughter. I called on Friday and had an appt. on Monday morning and now we are waiting for the helmet. They were very nice there and they use a scanner. I chose them because it is only a 20 minute drive from my home and Paramus would be 45 minutes plus. Let me know if you want the phone number. Good Luck, Kara > > > > > > Hi there, > > > > > > My 4 month old son developed a flat spot on his left side when he was about 2 months. Yesterday, during his check up, his pediatrician suggested that his head gets evaluated and said that he'll probably need a helmet (even though not too long ago he said that it would go away by itself). I made an appointment with Cranial Technologies for June 3rd. I just wanted to ask how long it usually takes since you have your first visit until the treatment starts. I'm really anxious to get all this process started ASAP, since from other postings I get that it's important to get help sooner than later. > > > > > > I have noticed that apparently my son's flat spot has not gotten worse for the last month or so... I was wondering if this could mean that his cranium is getting harder and it will be more difficult to take it back to normal... > > > > > > Finally, is Cranial Technologies the only company that specializes in treating this condition? > > > > > > Thanks in advance for your help!! > > > > > > Paloma > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 are you ready to suffer because you are afraid what might happen.you can use braclet ,where you write that you use ldn.by the morning the the ldn is out by the most of the people > > I've been reading messages on the list for a while > now. LDN sounds so wonderful. I mean I realize > it may not work for everyone but it does seem to > do wonders for some people and I wonder if I could > be one of those people. > > One thing has me holding back and I thought to tell > you about it and see what kind of feedback I got. > That is, for example, what if a person is in an > accident or some other event and they cannot tell > anyone they are on LDN. Or, even if they say they > are taking LDN; I am not aware of any pain killer > that is not opiate based which is sufficient to > address serious pain in injury and illness. > > Some years ago before I ever head of use of LDN in > this way I knew of someone who was given it in error > and who was using opiates, he had to be hospitalized > and it was awful. > > So, obviously, that is what I am thinking. I mean > to be in a position of being given LDN because > medical professionals don't know you are on it, or > not having anything else that will kill pain if > needed is scary. > > Comments? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Agree 100%!! Take it when you go to bed and it is out of your system by morning. Of course if you plan on hurting yourself falling out of bed you could be in trouble, though I assume then even if you somehow managed to knock yourself unconscious somebody else would be able to inform the medicos anyway! (Else you'd still be lying there!) As zahavi suggested, I have a medical bracelet around my neck that has never been off since I got it years ago and the accompanying card in my wallet (always with me except in the shower and bed where it is right nearby) details my use of LDN and the fact that it MAY (depending on time) impact the effectiveness of opiate based painkillers. I'm certainly not going to willingly let my condition progress on the extremely remote possibility I may need serious painkillers in the hours after I've gone to bed! zahavi wrote: > are you ready to suffer because you are afraid what might happen.you can use braclet ,where you write that you use ldn.by the morning the the ldn is out by the most of the people > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 2009 Report Share Posted June 5, 2009 Generally you are asleep in bed when LDN does its blocking, during the pre-dawn hours. You could wear a silicone medical bracelet listing Low Dose Naltrexone for_______(list illness in blank) and give address for the Low Dose Naltrexone Wikipedia website page that is easiest to read in an emergency situation instead of the big official LDN site. ============ > > I've been reading messages on the list for a while > now. LDN sounds so wonderful. I mean I realize > it may not work for everyone but it does seem to > do wonders for some people and I wonder if I could > be one of those people. > > One thing has me holding back and I thought to tell > you about it and see what kind of feedback I got. > That is, for example, what if a person is in an > accident or some other event and they cannot tell > anyone they are on LDN. Or, even if they say they > are taking LDN; I am not aware of any pain killer > that is not opiate based which is sufficient to > address serious pain in injury and illness. > > Some years ago before I ever head of use of LDN in > this way I knew of someone who was given it in error > and who was using opiates, he had to be hospitalized > and it was awful. > > So, obviously, that is what I am thinking. I mean > to be in a position of being given LDN because > medical professionals don't know you are on it, or > not having anything else that will kill pain if > needed is scary. > > Comments? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 I don't see how this could possibly happen. Given LDN by accident?? How?-- Warmest Regards,Robin LittleSome years ago before I ever head of use of LDN in this way I knew of someone who was given it in error and who was using opiates, he had to be hospitalized and it was awful. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2009 Report Share Posted June 6, 2009 I was wondering the same thing! Sounds very suss to me!! Most people couldn't even get LDN in hospital, let alone be given it accidentally! If anything I suggest they were given full dose naltrexone, not LDN and that is a totally different scenario. Robin Little wrote: > I don't see how this could possibly happen. Given LDN by accident?? How? > > -- > Warmest Regards, > Robin Little > > Some years ago before I ever head of use of LDN in > this way I knew of someone who was given it in error > and who was using opiates, he had to be hospitalized > and it was awful. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2009 Report Share Posted July 2, 2009 You will be able to find EFAs without the A and D (that would be in cod liver oil naturally but not in fish oil) but I'll bet all EFAs contain added Vitamin E since it protects the oil from oxidation/spoilage. My Nordic Naturals contains no A or D but has 30 IU of E added. All of my varieties (have several!) contain added E. Not a silly question. You could look in to flax seed or another vegetable source. Much more will be needed to get the same amount of EPA/DHA as the fish source but maybe they don't add the E? Pam > > probably a silly question but is there an essential fatty acid that has no vitaminins in it? like the A, D and E... > > I am wanting to try everything seperately because cod liver oil, flaxseed oil and shark oil all make her really focused, but she gets impulsive with it. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2009 Report Share Posted July 2, 2009 > > probably a silly question but is there an essential fatty acid that has no vitaminins in it? like the A, D and E... > > I am wanting to try everything seperately because cod liver oil, flaxseed oil and shark oil all make her really focused, but she gets impulsive with it. > Flax oil, some fish oils, canola oil you can buy in the store. Walnut oil (NOT spectrum brand) or walnuts. I'd suggest some relatively good, packaged under nitrogen brand like Spectrum. Andy <a href= " http://www.noamalgam.com/index.html " >Amalgam Illness: Diagnosis and Treatment</a > <a href= " http://www.noamalgam.com/hairtestbook.html " >Hair Test Interpretation: Finding Hidden Toxicities</a > <a href= " http://www.noamalgam.com/nourishinghope.html " >Nourishing Hope for Autism: Nutrition Intervention for Healing Our Children</a > <a href= " http://www.noamalgam.com/biologicaltreatments.html " >Biological Treatments for Autism and PDD</a > Quote Link to comment Share on other sites More sharing options...
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