question

[Guest guest]

Hi Alice and welcome,

My answer would be yes, the muscles do ache too I used to describe it that

way before I started actually seeing changes in my joints. In answer to your

more recent question, I think most of us would agree that there are times when

the medication doesn't touch the pain. That's when it is " character building "

lol

Glad you could join us.

[Guest guest]

Yes

Suzie

>

>

> I have a question..is it part of PA to have muscle aches along

> with all the other problems?

>

> Thanks Alice

[Guest guest]

Angie: Hi. Welcome. You are on the right track. My son received services

through early intervention (speech and o/t) starting at age 2. He hardly said

anything at 2 years of age, not even Mommy. He'd say words, then never say

them again. Also, he never babbled.

He was diagnosed with mild Apraxia at 3 years of age and he entered the

handicapped preschool program where we live (NJ). He will be 4 in 2 weeks. He

can speak in sentences, although his speech is not clear. He receives speech

and o/t through the school.

He's come a long way from the boy who used to " sign " for things because he

could not say the words.

Get the book, " The Late Talker. " It will help you immensely.

Feel free to email me privately if you like.

Patti

(Mom to , almost 4)

[Guest guest]

Angie,

My son is going to be three in march and has about 10 words that are clearly

understood by us. When he was aprox 12months he said duck, but we only heard

it a few times and then it seemed like he didn't say it again . When he

turned two we decided to EI come and evaluate him, at the time he really was

only

saying " ah ah " for everything and very loudly. He has had speech therapy for

six months, and his therapist told me she thinks he has apraxia. I then told

his doctor, but he feels we're pushing him, so I called around and got him an

appointment at a rehab center, with their speech department. That eval

confirmed that he has apraxia, this was two weeks ago. We are in the process of

changing doctors, and looking into a neuro developmental pediatrician. These

are the steps I have taken, I do feel once they tell you , your child may have

apraxia , there should be a place to go next. I've found you have to find out

where on your own, but this online group has been very helpful. Hopefully

you'll get some answers.

Zoe

[Guest guest]

I don't think it could hurt to see a specialist. This way you have a

starting point. The drooling could be a sign of low tone in the

mouth which could relate to tongue movement as well. Oral motor

activites can help with this.

denise

>

>

> Is it normal for my son 18 months almost 19 to sign only after

being

> told to? You have to ask him to sign before he will sign. Like for

> more you have to ask him more, then tell him to sign more if you

> want more. Also what is all this about tounge movement. The SLP

> wanted to know if he slobbers when he eats a sucker. He does. The

> SLP was going to set him an appointment with a specialist in Jan

or

> Feb now she wants to wait until he is 2 which will be May. I was

> also told by Zach ped that if we took him to the specialist to

early

> they would dx him with something he did not have. I told the SLP

> that & she said that that meant if we wanted a dx that they would

> give me one. I think this is crap. What am I to do? I just want to

> know what is wrong with his speech. Any thoughts would be nice.

> Thanks

>

> Angie

[Guest guest]

> >

> >

> > Is it normal for my son 18 months almost 19 to sign only after

> being

> > told to? You have to ask him to sign before he will sign. Like

for

> > more you have to ask him more, then tell him to sign more if you

> > want more. Also what is all this about tounge movement. The SLP

> > wanted to know if he slobbers when he eats a sucker. He does.

The

> > SLP was going to set him an appointment with a specialist in Jan

> or

> > Feb now she wants to wait until he is 2 which will be May. I was

> > also told by Zach ped that if we took him to the specialist to

> early

> > they would dx him with something he did not have. I told the SLP

> > that & she said that that meant if we wanted a dx that they

would

> > give me one. I think this is crap. What am I to do? I just want

to

> > know what is wrong with his speech. Any thoughts would be nice.

> > Thanks

> >

> > Angie

[Guest guest]

> >

> >

> > Is it normal for my son 18 months almost 19 to sign only after

> being

> > told to? You have to ask him to sign before he will sign. Like

for

> > more you have to ask him more, then tell him to sign more if you

> > want more. Also what is all this about tounge movement. The SLP

> > wanted to know if he slobbers when he eats a sucker. He does.

The

> > SLP was going to set him an appointment with a specialist in Jan

> or

> > Feb now she wants to wait until he is 2 which will be May. I was

> > also told by Zach ped that if we took him to the specialist to

> early

> > they would dx him with something he did not have. I told the SLP

> > that & she said that that meant if we wanted a dx that they

would

> > give me one. I think this is crap. What am I to do? I just want

to

> > know what is wrong with his speech. Any thoughts would be nice.

> > Thanks

> >

> > Angie

[Guest guest]

Thanks for the info hun.

> >

> >

> > Is it normal for my son 18 months almost 19 to sign only after

> being

> > told to? You have to ask him to sign before he will sign. Like

for

> > more you have to ask him more, then tell him to sign more if you

> > want more. Also what is all this about tounge movement. The SLP

> > wanted to know if he slobbers when he eats a sucker. He does.

The

> > SLP was going to set him an appointment with a specialist in Jan

> or

> > Feb now she wants to wait until he is 2 which will be May. I was

> > also told by Zach ped that if we took him to the specialist to

> early

> > they would dx him with something he did not have. I told the SLP

> > that & she said that that meant if we wanted a dx that they

would

> > give me one. I think this is crap. What am I to do? I just want

to

> > know what is wrong with his speech. Any thoughts would be nice.

> > Thanks

> >

> > Angie

[Guest guest]

Yes there are also adults that have good results with Andy's protocol

including Andy.

TK

>

> Hello everyone -

>

> I was perusing Dr. Amy's site and noticed the graph where she

listed

> the results of chelation with DMSA/ALA. The results look rather

> promising for youngsters, but I wonder about adults. The oldest

> patient was 24 years old and it seems there is a trend where adults

> do not see the same progress as kids. However, the number of

> patients treated is much smaller as age progresses. I guess I

would

> like to know if any adults have had or are having a good response

> with the " Andy protocol " . I appreciate your input.

>

> M

[Guest guest]

>

> Hello everyone -

>

> I was perusing Dr. Amy's site and noticed the graph where she

listed

> the results of chelation with DMSA/ALA. The results look rather

> promising for youngsters, but I wonder about adults. The oldest

> patient was 24 years old and it seems there is a trend where

adults

> do not see the same progress as kids. However, the number of

> patients treated is much smaller as age progresses. I guess I

would

> like to know if any adults have had or are having a good response

> with the " Andy protocol " . I appreciate your input.

>

> M

First I'd like to point out that Dr. Amy's patients did not

all use " the Andy protocol " (using your words). For that

matter, I think that many/most people who use the " Andy protocol "

do so " incompletely " . For example, I used his recommended

timing (religiously) but did not use all the supplements he

recommends. This is meant as AN EXAMPLE.

Okay, with that said, let me offer some posts by adults

who have had improvements in health through chelation

BUT NOT NECESSARILY the " Andy protocol " . Here they are:

http://home.earthlink.net/~moriam/LOVE_LETTERS.html

There are lots of adults, you can find them by looking

for " [age: adult] "

I hope this offers some of what you are looking for, in

spite of not being restricted by chelation method.

good wishes,

Moria

[Guest guest]

Hello Moria -

As soon as I sent this message, a light bulb went on in my head to

go search through the love letters for examples. I wish I would

have thought of that first before unnecessarily posting! Anyway, I

do appreciate your response and all the work you do to keep relevant

posts on your site.

Thanks again,

M

> >

> > Hello everyone -

> >

> > I was perusing Dr. Amy's site and noticed the graph where she

> listed

> > the results of chelation with DMSA/ALA. The results look rather

> > promising for youngsters, but I wonder about adults. The oldest

> > patient was 24 years old and it seems there is a trend where

> adults

> > do not see the same progress as kids. However, the number of

> > patients treated is much smaller as age progresses. I guess I

> would

> > like to know if any adults have had or are having a good

response

> > with the " Andy protocol " . I appreciate your input.

> >

> > M

>

> First I'd like to point out that Dr. Amy's patients did not

> all use " the Andy protocol " (using your words). For that

> matter, I think that many/most people who use the " Andy protocol "

> do so " incompletely " . For example, I used his recommended

> timing (religiously) but did not use all the supplements he

> recommends. This is meant as AN EXAMPLE.

>

> Okay, with that said, let me offer some posts by adults

> who have had improvements in health through chelation

> BUT NOT NECESSARILY the " Andy protocol " . Here they are:

> http://home.earthlink.net/~moriam/LOVE_LETTERS.html

> There are lots of adults, you can find them by looking

> for " [age: adult] "

>

> I hope this offers some of what you are looking for, in

> spite of not being restricted by chelation method.

>

> good wishes,

> Moria

[Guest guest]

This graph was done early in her experience of chelating children, and since

older kids take longer, she would not have had as many good results.

My son has gained many benefits from the andy protocol.

Read the files.

Barb

[ ] Question

>

>

> Hello everyone -

>

> I was perusing Dr. Amy's site and noticed the graph where she listed

> the results of chelation with DMSA/ALA. The results look rather

> promising for youngsters, but I wonder about adults. The oldest

> patient was 24 years old and it seems there is a trend where adults

> do not see the same progress as kids. However, the number of

> patients treated is much smaller as age progresses. I guess I would

> like to know if any adults have had or are having a good response

> with the " Andy protocol " . I appreciate your input.

>

> M

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

> > >

> > > Hello everyone -

> > >

> > > I was perusing Dr. Amy's site and noticed the graph where she

> > listed

> > > the results of chelation with DMSA/ALA. The results look

rather

> > > promising for youngsters, but I wonder about adults. The

oldest

> > > patient was 24 years old and it seems there is a trend where

> > adults

> > > do not see the same progress as kids. However, the number of

> > > patients treated is much smaller as age progresses. I guess I

> > would

> > > like to know if any adults have had or are having a good

> response

> > > with the " Andy protocol " . I appreciate your input.

> > >

> > > M

> >

> > First I'd like to point out that Dr. Amy's patients did not

> > all use " the Andy protocol " (using your words). For that

> > matter, I think that many/most people who use the " Andy protocol "

> > do so " incompletely " . For example, I used his recommended

> > timing (religiously) but did not use all the supplements he

> > recommends. This is meant as AN EXAMPLE.

> >

> > Okay, with that said, let me offer some posts by adults

> > who have had improvements in health through chelation

> > BUT NOT NECESSARILY the " Andy protocol " . Here they are:

> > http://home.earthlink.net/~moriam/LOVE_LETTERS.html

> > There are lots of adults, you can find them by looking

> > for " [age: adult] "

> >

> > I hope this offers some of what you are looking for, in

> > spite of not being restricted by chelation method.

> >

> > good wishes,

> > Moria

[Guest guest]

well i dont know if it causes pain or not but sugar is most definately not

something that you want to be putting into your body!! especially if you have a

tumor or any other disease for that matter!! plz reconsider what is in your diet

especially if you want to get better!! I dont mean to be so hyper about it but

sugar is dangerous to your health and a lot of people dont realize that, best

wishes

kellykebby <kellykebby@...> wrote:

I was wondering. Does eating or drinking sugar cause pain anywhere in

the body for anyone here such as the tumor sites? Thanks ,

[Guest guest]

> Can Autism be cured?

For my son, yes.

Here is his story, plus other stories of recovery

http://www.danasview.net/recover.htm

Dana

[Guest guest]

I haven't started treatment yet, will find out beginning of May as that's when my blood tests will be back again. I find it so hard to understand what everyone is talking about at times, but I guess that with time and as it affects me, it will come together.

My sister has been taking pegotron(?) since Sept. and has another 4 months to go. Then that's it... I believe she is a genotype 1...

All I can say for you Rhonda is good luck hon and sorry I can't help you but I'll be here with support. *gentle smiles*

p.s. I love your stationary, may I 'grab' it or is it copywrited?

Anya

[ ] question

Hi group,

I will officially be off treatment for two weeks tomorrow. I swear I feel worse now then I did while on.

Silly as it sounds I'm thinking detox.

Anyone else feel like this?

Thank you,

Rhonda

[Guest guest]

go ahead and grab the stationery Anya I made it from a dingbat font

I just finished 6 months treatment and still get confused about some

things-lol

I'm thinking Terry is right and it's just a matter of a little more time

before things start getting back to normal.

I wish you much luck with your treatment, you're in the right place for

support

Rhonda

[ ] question

Hi group,

I will officially be off treatment for two weeks tomorrow. I swear I feel

worse now then I did while on.

Silly as it sounds I'm thinking detox.

Anyone else feel like this?

Thank you,

Rhonda

[Guest guest]

That would be CRS it is another side effect of

treatment, hepc and many other things.

Sharon

--- rhudson <rhondahudson@...> wrote:

>

> go ahead and grab the stationery Anya I made it from

> a dingbat font

>

> I just finished 6 months treatment and still get

> confused about some

> things-lol

>

> I'm thinking Terry is right and it's just a matter

> of a little more time

> before things start getting back to normal.

>

> I wish you much luck with your treatment, you're in

> the right place for

> support

>

> Rhonda

> [ ] question

>

>

> Hi group,

> I will officially be off treatment for two weeks

> tomorrow. I swear I feel

> worse now then I did while on.

> Silly as it sounds I'm thinking detox.

> Anyone else feel like this?

>

> Thank you,

>

> Rhonda

>

>

>

>

[Guest guest]

well that explains it beautifully - lol

Rhonda

[ ] question

> >

> >

> > Hi group,

> > I will officially be off treatment for two weeks

> > tomorrow. I swear I feel

> > worse now then I did while on.

> > Silly as it sounds I'm thinking detox.

> > Anyone else feel like this?

> >

> > Thank you,

> >

> > Rhonda

> >

> >

> >

> >

[Guest guest]

I did, the last time I did treatment. It took several months for me to feel normal again. Food to taste good, it was a long time. I still had very little hair at Christmas time of that year, altho I finished tx in October.

Sharon

[ ] question

Hi group,

I will officially be off treatment for two weeks tomorrow. I swear I feel worse now then I did while on.

Silly as it sounds I'm thinking detox.

Anyone else feel like this?

Thank you,

Rhonda

[Guest guest]

I wear a bandana on my head- lol

Silly me I had a notion that I would almost immediately start feeling

better.

Ah well. I'm glad I wrote to ask - I feel better now

Rhonda

[ ] question

Hi group,

I will officially be off treatment for two weeks tomorrow. I swear I feel

worse now then I did while on.

Silly as it sounds I'm thinking detox.

Anyone else feel like this?

Thank you,

Rhonda

[Guest guest]

It's not so bad, if you drink the fleet soda. lol I just had one done and here I are!! Alive and well, at least - sorta.......Sharon

RE: [ ] question

Yes, it does take a while. I imagine most of us have suffered some liver damage, but people can live a normal life with 10-15% of their livers functioning. I still blame my CRS symptoms on the treatment, though I’m afraid that’s just old age creeping up on me. I just had a physical Friday, doc says I’m in pretty good shape “for my age”. I think he was referring to my lungs and arteries, he felt along the carotid (sp?) artery. He asked me about smoking and I told him I quit in ’86. He said he is more and more convinced about the benefit of not smoking, I guess his 50 year old smokers start to show wear and tear in that respect. Anyway, I’m waiting with anticipation for my liver panels. I didn’t have the PCR test done this time. From here on out, just the regular physical, unless the other tests start to show abnormalities. Terry, I finally went ahead and scheduled that colonoscopy, much to my chagrin, they have me scheduled already on Friday morning… I was expecting a longer waiting period. I’m more bothered by the night before “emptying out”, than the procedure itself. Should be loads of fun. For those of you who don’t know, a colonoscopy is something they start recommending after you hit 50. Terry and I are within a few days of the same age. I’ve been putting off scheduling this test, cause I’m a chicken. –dz-

[Guest guest]

yuk. Last time, I had to go no food for 3 days and then clear out. THis way is an improvemnet. Sharon

Re: [ ] question

I did the fleet the first time, but it didn't clean me out 100%. So they had to do it again. The next time was some real nasty stuff. TerrySHARON CROSBY <csharonxoxo@...> wrote:

It's not so bad, if you drink the fleet soda. lol I just had one done and here I are!! Alive and well, at least - sorta.......Sharon

[Guest guest]

I can relate. It feels like a terrible violation the first time. I STILL do not like gyn exams and I have had 4 kids. Sharon

RE: [ ] question

there are soooo many medcal tests we have to endureto live. my daughter (17) just had her first gynoexam. (you women can appreciate that). she said thatwas "way too personal for her". she ain't seen nothingyet. sharon--- Terry Long <pawpawto3@...> wrote:

[Guest guest]

yes, I had that happen to me in 1998. It felt like I was being strangled. I too

had all the thyroid tests, all normal. They told me it was " in my head " ....years

later I was diagnosed with PA. Now the neck swelling happens off/on, no idea

why....

deborahburcham <deborahburcham@...> wrote:

Hi, I was wondering if anyone has experienced any swelling around the

neck area with their PA. I occassionally feel like my neck gets

swollen - it feels soft like it could be fluid. I have brought this

to my Rhuemy's attention but couldn't tell from the response if this

is normal (although what is normal with PA) or not. He did say that he

could see the swelling so I know it wasn't my imagination. They are

testing me for thyroid problems. Also, my throut tends to get sore

when this happens. It feels almost like it is swollen as well. Just

wondering if anyone else had this happen to them.