question

[Guest guest]

I'm glad to know that it's not just in my head. I know several women have

brought up the issue of PA and hormones. I am 47 and starting to go through

menopause and I was only recently diagnosed. I have also noticed the last two

months that the neck swelling and other PA symptons were in conjuntion with the

PMS symptons. I am going to keep an eye on this next month to see what happens.

My last visit to the rhuemotologist I asked the nurse practitioner about

hormones and PA. She stated that she had not previously heard anything about

the link between the two until she read something on it very recently.

Definitely something for us women to think about. I know I am going to monitor

it to see if there is a link in my life between the two.

nne Godwin <magnoliagirly@...> wrote:

yes, I had that happen to me in 1998. It felt like I was being strangled. I too

had all the thyroid tests, all normal. They told me it was " in my head " ....years

later I was diagnosed with PA. Now the neck swelling happens off/on, no idea

why....

deborahburcham <deborahburcham@...> wrote:

Hi, I was wondering if anyone has experienced any swelling around the

neck area with their PA. I occassionally feel like my neck gets

swollen - it feels soft like it could be fluid. I have brought this

to my Rhuemy's attention but couldn't tell from the response if this

is normal (although what is normal with PA) or not. He did say that he

could see the swelling so I know it wasn't my imagination. They are

testing me for thyroid problems. Also, my throut tends to get sore

when this happens. It feels almost like it is swollen as well. Just

wondering if anyone else had this happen to them.

[Guest guest]

I have not experienced any noticable swelling in my neck but it does get very

stiff. The

tendon on the left side of my neck is always very tight and the joints in my

neck " catch " .

During one of my worst flares, I felt as if my throat was affected and I had

trouble

swallowing. Food would get caught in my throat. It was not much fun.

>

>

> Hi, I was wondering if anyone has experienced any swelling around the

> neck area with their PA. I occassionally feel like my neck gets

> swollen - it feels soft like it could be fluid. I have brought this

> to my Rhuemy's attention but couldn't tell from the response if this

> is normal (although what is normal with PA) or not. He did say that he

> could see the swelling so I know it wasn't my imagination. They are

> testing me for thyroid problems. Also, my throut tends to get sore

> when this happens. It feels almost like it is swollen as well. Just

> wondering if anyone else had this happen to them.

[Guest guest]

:

I can't speak for others, but I have had nothing but throat/tonsil problems

for a while now. Earlier this year, my tonsils had swollen up so badly that

they were touching at the back of my throat. I had them removed 4 weeks

ago because swallowing was becoming difficult. Another problem with my

throat is that I have developed a nodule or node on my voice box and my

voice is very raspy and cuts in and out when I talk. The more I flare, the

worse it becomes.

Hope this helps...

-- In , " kelly donovan " <jamymad@c...>

wrote:

>

> When you all go into a flare up does anyones throat swell up and close?

> Thanks for any info

>

> ---NJ

>

>

>

[Guest guest]

I don;t have dr supervision but I do have a tame one that orders blood

monitoring for me. We did DMSA/ALA 70 rounds and now TD DMPS. Spend a few weeks

reading and you'll probably know more than the Dr

MAndi in UK

Are a lot of you chelating your children on your own without any

doctor's supervision or do you absolutely have to have a doctor?

[Guest guest]

> Are a lot of you chelating your children on your own without any

> doctor's supervision or do you absolutely have to have a doctor?

My kids are fully chelated with ALA, and I have never used a doctor

for any biomedical interventions related to autism, except if you

count reading the messages of doctors who participate on public

message boards.

Dana

[Guest guest]

Is this the Elveera from the Apraxia group? Hi! I am going to start chelating

Eve on my own within a few weeks. Contact me offline!

julieobradovic@...

[ ] Question

Are a lot of you chelating your children on your own without any

doctor's supervision or do you absolutely have to have a doctor?

Thanks. Elveera

=======================================================

[Guest guest]

Really late on response here. Sorry. My throat does swell when my neck

goes into a flare. It doesn't completely close up but enough for me to

notice, plus I need to take a muscle relaxer during these times or the

neck pain with make my shoulder and head really bad. . I have found

that I must be careful when chewing and not be in a rush which I do

sometimes when I have other things on my mind. I choked once, that was

enough for me to learn my lesson. If your throat is closing up, you may

want to check with your dr about it.

in Ct.

kelly donovan wrote:

>

> When you all go into a flare up does anyones throat swell up and close?

> Thanks for any info

>

> ---NJ

>

[Guest guest]

,

For myself, we needed the dx for the insurance company to pay. They would not

pay for speech therapy if we did not have a medical diagnosis. Hope this

helps.

Take care,

Teri & , 4.5, dx with motor planning apraxia

> Does having a Dx of oral or verbal apraxia really make a important

> difference in regard to the kind of therapy he will recieve? Or

> does it really not matter if we Have the DX if we are getting the

> right therapy?

>

>

[Guest guest]

hi kelly-traditional speech therapy will not work with my apraxic son. we use

prompt and the kaufman apraxic treatment kit at home and therapy . we are

also using ot and physical exercise to provide a outlet to express his emotions.

it is working well. charlotte henry- mom to josh-4,5 with apraxia

[Guest guest]

hi kelly- tradition speech therapy usually doesnt work with a child with a

motor planning disorder. charlotte henry

[Guest guest]

hi charlotte,

your son sounds like my son sooo much. what do you mean you use physical

excerise to express emotion? My son is getting so frustrated and angry more

that he is older. Its scaring me.

chris

stehn4@... wrote:

hi kelly-traditional speech therapy will not work with my apraxic son. we use

prompt and the kaufman apraxic treatment kit at home and therapy . we are

also using ot and physical exercise to provide a outlet to express his emotions.

it is working well. charlotte henry- mom to josh-4,5 with apraxia

[Guest guest]

I'm two weeks into it and don't feel anything yet.

> Can't remember if I asked this already, Losing it. When you take

> Androgel, do you get a quick bang or do you feel better over a few

> weeks. I guess I am asking if it continues to raise your blood levels

> over time, like Thyroid med does.

>

> Thanks

> Greg

[Guest guest]

Hi ,

My son 4yrs is recieving the same exact services now

that he has a dx of apraxia as when he was 2 and

diagnosed with mental retardation. Unfortunately our

school system does not feel as strongly about him

recieving more speech, even though this is his biggest

issue, the school concentrates on " school environment "

kinda like saying he doesn't need to know how to speak

to be in a classroom setting. However, having a dx of

apraxia you stand a better chance of recieving

services from your insurance if you can find a doctor

that will clasify it as a neorological disorder. No I

couldn't make that one happen, our group of doctors

still say it is developmental, therefore they will not

cover anything.

Faneesha

--- chatthisway <chatthisway@...> wrote:

> Does having a Dx of oral or verbal apraxia really

> make a important

> difference in regard to the kind of therapy he will

> recieve? Or

> does it really not matter if we Have the DX if we

> are getting the

> right therapy?

>

>

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

My experience = it was the slowest poke-along stuff I ever saw. I had no

patience for it. I complained bitterly to my doctor who then put me on

compounding pharmacy testosterone cream at 25G -- that WORKS!

bradtace1 <ace1965@...> wrote:I'm two weeks into it and don't feel

anything yet.

> Can't remember if I asked this already, Losing it. When you take

> Androgel, do you get a quick bang or do you feel better over a few

> weeks. I guess I am asking if it continues to raise your blood levels

> over time, like Thyroid med does.

>

> Thanks

> Greg

---------------------------------

[Guest guest]

Hi Greg,

Time it takes to notice results varies from man to man. My guess is 3-4 weeks,

YMMV.

Bruce

> Can't remember if I asked this already, Losing it. When you take

> Androgel, do you get a quick bang or do you feel better over a few

> weeks. I guess I am asking if it continues to raise your blood levels

> over time, like Thyroid med does.

>

> Thanks

> Greg

[Guest guest]

I've been taking it for 1 1/2 weeks and I've already started to notice

improvement. I started T for lose of penile sensitivity, and

unexpectedly I've begun to come out of my long standing fog and

depression.

It hasn't helped with the sensitivity issue yet. But my untreatable

" depression " , " narcolepsy " and " ADHD " have improved dramatically.

Three years of my life wasted on SSRI's, speed and therapy, and I've

gotten more results from a visit to a urologist to check that my heart

medicine wasn't causing ED problems.

Good luck

> Can't remember if I asked this already, Losing it. When you take

> Androgel, do you get a quick bang or do you feel better over a few

> weeks. I guess I am asking if it continues to raise your blood levels

> over time, like Thyroid med does.

>

> Thanks

> Greg

[Guest guest]

Hi,

Nice news on your improvement!

Often an initial boost from AndroGel will drop off, but don't let that

discourage you. You

might need a dosage adjustment and some estradiol control around your 6th week.

Ask

your uro for follow-up tests of T, free T & estradiol (E2) at about 6-8 weeks

after starting

AG.

Peace,

Bruce

> > Can't remember if I asked this already, Losing it. When you take

> > Androgel, do you get a quick bang or do you feel better over a few

> > weeks. I guess I am asking if it continues to raise your blood levels

> > over time, like Thyroid med does.

> >

> > Thanks

> > Greg

[Guest guest]

I'm new here - looking for bio-identical hormones in gel form. I'm a VA patient

and they won't even give me the lab testing for testosterone. Does this have to

be Rx?

I'm sure I'm low on testosterone, or out completely (I'm 76 yrs. old) and I want

to get some vitality back and I don't want to try to learn needles.

Any help is appreciated.

Best, meyerflyer

Re: Question

Hi,

Nice news on your improvement!

Often an initial boost from AndroGel will drop off, but don't let that

discourage you. You

might need a dosage adjustment and some estradiol control around your 6th

week. Ask

your uro for follow-up tests of T, free T & estradiol (E2) at about 6-8 weeks

after starting

AG.

Peace,

Bruce

> > Can't remember if I asked this already, Losing it. When you take

> > Androgel, do you get a quick bang or do you feel better over a few

> > weeks. I guess I am asking if it continues to raise your blood levels

> > over time, like Thyroid med does.

> >

> > Thanks

> > Greg

------------------------------------------------------------------------------

[Guest guest]

Thanks for the advice and the heads up re: the drop off.

> > > Can't remember if I asked this already, Losing it. When you take

> > > Androgel, do you get a quick bang or do you feel better over a few

> > > weeks. I guess I am asking if it continues to raise your blood

levels

> > > over time, like Thyroid med does.

> > >

> > > Thanks

> > > Greg

[Guest guest]

Hi Bill:

I guess I've joined the Androgel crew as of yesterday. I'm looking

forward to some good results!

Doesn't TRICARE cover you for labs?

-

> > > Can't remember if I asked this already, Losing it. When you take

> > > Androgel, do you get a quick bang or do you feel better over a few

> > > weeks. I guess I am asking if it continues to raise your blood

levels

> > > over time, like Thyroid med does.

> > >

> > > Thanks

> > > Greg

>

>

>

>

>

------------------------------------------------------------------------------

>

[Guest guest]

This is ONE GREAT GROUP !

Can you help me with TRICARE ? I never heard of it.

Best, meyerflyer

Re: Question

Hi Bill:

I guess I've joined the Androgel crew as of yesterday. I'm looking

forward to some good results!

Doesn't TRICARE cover you for labs?

-

> > > Can't remember if I asked this already, Losing it. When you take

> > > Androgel, do you get a quick bang or do you feel better over a few

> > > weeks. I guess I am asking if it continues to raise your blood

levels

> > > over time, like Thyroid med does.

> > >

> > > Thanks

> > > Greg

>

>

>

>

>

------------------------------------------------------------------------------

>

[Guest guest]

Hi Bill,

The VA pharmacy is limited, what you can get is what they stock.

You or Your VA doc might benefit contacting this VA endocrinologist with a good

reputation for male hormone issues:

Bradley D. Anawalt, M.D.

Associate Professor of Medicine

Staff Physician, General Internal Medicine and

     Endocrinology, VA Puget Sound Health Care System

Assistant Care Line Manager, Primary and Specialty

     Care of VA Puget Sound

Division of General Internal Medicine

OFFICE ADDRESS

VA Puget Sound Health Care System (111M)

1660 South Columbian Way

Campus Box 358280

Seattle, WA 98108

Email: Bradley.Anawalt@...

Academic Office: (206) 764-2551

Fax: (206) 764-2849

Good luck,

Bruce

> > > Can't remember if I asked this already, Losing it. When you take

> > > Androgel, do you get a quick bang or do you feel better over a few

> > > weeks. I guess I am asking if it continues to raise your blood levels

> > > over time, like Thyroid med does.

> > >

> > > Thanks

> > > Greg

>

>

>

>

>

----------------------------------------------------------------------------

--

>

[Guest guest]

This is a GREAT list.

Now if I can get my Doc off his high horse - - - -

Blessings, Bill

Re: Question

Hi Bill,

The VA pharmacy is limited, what you can get is what they stock.

You or Your VA doc might benefit contacting this VA endocrinologist with a

good

reputation for male hormone issues:

Bradley D. Anawalt, M.D.

Associate Professor of Medicine

Staff Physician, General Internal Medicine and

Endocrinology, VA Puget Sound Health Care System

Assistant Care Line Manager, Primary and Specialty

Care of VA Puget Sound

Division of General Internal Medicine

OFFICE ADDRESS

VA Puget Sound Health Care System (111M)

1660 South Columbian Way

Campus Box 358280

Seattle, WA 98108

Email: Bradley.Anawalt@...

Academic Office: (206) 764-2551

Fax: (206) 764-2849

Good luck,

Bruce

> > > Can't remember if I asked this already, Losing it. When you take

> > > Androgel, do you get a quick bang or do you feel better over a few

> > > weeks. I guess I am asking if it continues to raise your blood levels

> > > over time, like Thyroid med does.

> > >

> > > Thanks

> > > Greg

>

>

>

>

>

----------------------------------------------------------------------------

--

>

[Guest guest]

Bill,

I had poor luck with treatment at the VA for hypogonadism. I'd

strongly recommend contacting the endo Bruce posted - the endos I saw

at the VA were worthless.

Mark

[Guest guest]

It will take some time for your levels to stablize then your body needs to

repair it's self for the damage that was done being to low. So when your levels

stablize you will start healing. And start to feel better. The first thing

that came back for me was morning wood very hard morning wood.

Phil

Greg Kevorkian <grekkevork@...> wrote:

I read where the androgel will raise serum blood levels in 2 days.

Will it get to a steady state after 2 days or will it continue to go

higher.

Like I stated, I started on 2 packs andro about 8 days ago. I will

take blood on Tuesday that will be 11 days. Will the level on the test

be what it will be or will it continue to rise for a while.

Am I making sense?

Thanks

Greg

---------------------------------