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Hi , YES, that is the one ERIN had. It is no

longer in business anymore. However one similar to

it is GS-5 and it is a very good one too.

LOVE & HUGS, grandmomBEV

Physical therapy

Hi there...i've been a lurker for a couple of

years...don't like to

stick my nose in too much...my son, , is 27

years old with CF...he

was diagnosed at 9 years old and we did go through

a lot of heartache as

he was growing, particularly with his weight, but

he weighs 172 pounds

right now...he's in love and planning to be

married in October...so, a

lot of love and patience and work really made it

all worthwhile...

what i'm really writing about is that i have

noticed a lot of young

parents with very little ones have a difficult

time with the physical

therapy and because they're so small, the vest

isn't really helpful

right now....we had a Vibrator/Percussor for

for years, way before

we even heard of the vest, and it helped a great

deal...so, i'm thinkin'

that you guys should ask your docs to prescribe

something like that for

the " wee ones " ...it'll save your arms and it

doesn't hurt their little

bodies....

the name of the one that we had (and still

uses it, by the way,

along with the vest) is Puritan Bennet

Vibrator/Percussor

Model 9000...don't know if they are still in

existence but you may get

something close to it and...your insurance should

cover it...

Lots of luck and love to you all...hope this

helps...

maureen (or as i am frequently called.. " moey " ) van

ness

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this

list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

MEDICATIONS OR TREATMENTS.

--------------------------------------------------

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Guest guest

Hi , YES, that is the one ERIN had. It is no

longer in business anymore. However one similar to

it is GS-5 and it is a very good one too.

LOVE & HUGS, grandmomBEV

Physical therapy

Hi there...i've been a lurker for a couple of

years...don't like to

stick my nose in too much...my son, , is 27

years old with CF...he

was diagnosed at 9 years old and we did go through

a lot of heartache as

he was growing, particularly with his weight, but

he weighs 172 pounds

right now...he's in love and planning to be

married in October...so, a

lot of love and patience and work really made it

all worthwhile...

what i'm really writing about is that i have

noticed a lot of young

parents with very little ones have a difficult

time with the physical

therapy and because they're so small, the vest

isn't really helpful

right now....we had a Vibrator/Percussor for

for years, way before

we even heard of the vest, and it helped a great

deal...so, i'm thinkin'

that you guys should ask your docs to prescribe

something like that for

the " wee ones " ...it'll save your arms and it

doesn't hurt their little

bodies....

the name of the one that we had (and still

uses it, by the way,

along with the vest) is Puritan Bennet

Vibrator/Percussor

Model 9000...don't know if they are still in

existence but you may get

something close to it and...your insurance should

cover it...

Lots of luck and love to you all...hope this

helps...

maureen (or as i am frequently called.. " moey " ) van

ness

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this

list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

MEDICATIONS OR TREATMENTS.

--------------------------------------------------

Link to comment
Share on other sites

Guest guest

Hi , YES, that is the one ERIN had. It is no

longer in business anymore. However one similar to

it is GS-5 and it is a very good one too.

LOVE & HUGS, grandmomBEV

Physical therapy

Hi there...i've been a lurker for a couple of

years...don't like to

stick my nose in too much...my son, , is 27

years old with CF...he

was diagnosed at 9 years old and we did go through

a lot of heartache as

he was growing, particularly with his weight, but

he weighs 172 pounds

right now...he's in love and planning to be

married in October...so, a

lot of love and patience and work really made it

all worthwhile...

what i'm really writing about is that i have

noticed a lot of young

parents with very little ones have a difficult

time with the physical

therapy and because they're so small, the vest

isn't really helpful

right now....we had a Vibrator/Percussor for

for years, way before

we even heard of the vest, and it helped a great

deal...so, i'm thinkin'

that you guys should ask your docs to prescribe

something like that for

the " wee ones " ...it'll save your arms and it

doesn't hurt their little

bodies....

the name of the one that we had (and still

uses it, by the way,

along with the vest) is Puritan Bennet

Vibrator/Percussor

Model 9000...don't know if they are still in

existence but you may get

something close to it and...your insurance should

cover it...

Lots of luck and love to you all...hope this

helps...

maureen (or as i am frequently called.. " moey " ) van

ness

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this

list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY

MEDICATIONS OR TREATMENTS.

--------------------------------------------------

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Guest guest

Maureen

You and your family must be so proud of your son. He's happy in love and getting

married. I wish him all the best!

Stein

Physical therapy

Hi there...i've been a lurker for a couple of years...don't like to

stick my nose in too much...my son, , is 27 years old with CF...he

was diagnosed at 9 years old and we did go through a lot of heartache as

he was growing, particularly with his weight, but he weighs 172 pounds

right now...he's in love and planning to be married in October...so, a

lot of love and patience and work really made it all worthwhile...

what i'm really writing about is that i have noticed a lot of young

parents with very little ones have a difficult time with the physical

therapy and because they're so small, the vest isn't really helpful

right now....we had a Vibrator/Percussor for for years, way before

we even heard of the vest, and it helped a great deal...so, i'm thinkin'

that you guys should ask your docs to prescribe something like that for

the " wee ones " ...it'll save your arms and it doesn't hurt their little

bodies....

the name of the one that we had (and still uses it, by the way,

along with the vest) is Puritan Bennet Vibrator/Percussor

Model 9000...don't know if they are still in existence but you may get

something close to it and...your insurance should cover it...

Lots of luck and love to you all...hope this helps...

maureen (or as i am frequently called.. " moey " ) van ness

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  • 8 months later...

Hi

's child study team is very interested in learning about what type

of physical therapy and general physical issues RSS kids tend to have.

A speech therapist observing him during gym class feels that his

inability to skip or alternate steps on the stairs is indicative of a

bigger issue. She also sees assymetry. Dr. H. has not seen any physical

problems or assymetry, so it will be interesting to see what the school

professionals observe during their evaluations.

Anyway, can anyone sum up for me what type of physical therapy their

kids need? I'm sure you guys have talked about it here, but I probably

skimmed over those emails because Dr. H. didn't think needed it.

Maybe now he does. , are there any articles pertaning to long

term physical issues RSS kids face?

THANKS!

Katy

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