Guest guest Posted August 24, 2001 Report Share Posted August 24, 2001 Hello everyone. I haven't posted for some time, but I have been reading the many posts. We have so many things in common. Have any of you ever had your trypsinogen level tested? It is supposed to be more accurate then amylase and lipase since an elevated amylase level can also be part salivary too. I had my trypsinogen level tested and it came back indicating chronic pancreatitis according to the doctors. I am not doing that well. The last two weeks have been rough. I have been vomiting. I'm having alot of abdominal/back pain and I'm very nauseous. Today I tried to eat a full meal because the last couple of days I was basically eating very small portions of food due to the pain and nausea. I didn't have any success. I only got sicker. I take Pancrease tablets, but I'm still sick. It was mentioned in the posts about hypoglycemia. I have been shaking the last few days. Insulin dependent diabetes runs on both sides of my family. I don't know if that is what's causing my shaking. My husband, children, and I were in a car accident last month. My husband, son, and I received whiplash injuries from the car accident. We were rearended. The pain that I'm having in the back feels like it's coming from my left kidney. It's hard to tell if it's the pancreas or kidney. I can't seem to get rid of this nausea. The doctors won't give me pain medicine either because my labs have been slightly elevated only and that isn't " textbook " pancreatitis according to them. My GI doctor told me recently that I have chronic pancreatitis and that my enzyme levels will not become extremely elevated because my pancreas is " burned out " according to him. The ER doctors don't seem to understand. They still keep looking for very elevated enzymes " textbook pancreatitis " . They believe that if your enzymes aren't extremely elevated then you can't be in pain. I know that alot of you have gone through what I have gone through concerning ER docs etc. It is so frustrating. This year I have had medical residents, whom had something against me, blame my pain, nausea, retching, vomiting bile, white floating stool etc. on psychological reasons. They have told me it's in my head and that nothing is wrong with me. I was having diarrhea for a long time. The same medical residents said that I developed diarrhea after reading about others having it on the website. Isn't that bizarre? This is even after all of the extensive documentation that I have on file documenting over 15 attacks of acute and chronic pancreatitis with the enzymes in the thousands. I had medical residents tell me that my symptoms were in my head before running any further test such as the trysinogen which is a pancreas specific test, tryglyceride test etc. Finally my trypsinogen levels and tryglyceride levels were tested and came back abnormal. My tryglyceride level was very elevated and my trysinogen level was abnormal indicating chronic pancreatitis. If the medical residents would have taken the time to run these other tests instead of being so judgemental from the beginning, then they would have found out that my symptoms were due to my pancreas problems and not in my head. Have any of you gotten copies of your medical residents? I finally got copies of my medical residents. I could not believe some of the negative things said by the medical residents, etc. If I wouldn't have gotten copies of my medical records then I would not have known the negative things said about me. If you haven't done so already, please get a copy of your medical records. I went to the store today to get some groceries. I got out of my car and the pain hit me so bad deep in my left part of my back that I had to return to my car immediately. The pain was so bad that it hurt to move. I was too scared to proceed to the store due to the pain. I didn't want the store manager to have to call 911. I have also been getting very deep abdominal pain in the mid-epigastric part of my abdomen. It hurts so bad at times. All I have to take right now is Tylenol. I don't have anything stronger to take. The doctors here also are afraid to prescribe stronger medication for pain due to the " oxycontin " scare. Well I have to go for now. You all take care of yourselves. I'll keep you in my prayers. Pray for me. I really need it. Quote Link to comment Share on other sites More sharing options...
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