Guest guest Posted February 12, 2001 Report Share Posted February 12, 2001 My name is Kim and my son Jordan was diagnosed with RSS at age 1 1/2 he is now 3 1/2. He is in a size 18mos. clothing and just had his Gtube removed before Thanksgiving. We also started the GH shots in October, and that is going, well, as good as 3 yr. olds like shots!! Since having the Gtube removed, he is such a happier child, it's hard to be active and sleep hooked up to that pump!! He has short stature of course, but the left side is smaller from head to toe(webbed of course)the worst of the asymetry is in his legs. His feet are different sized, that makes purchasing shoes fun!! His fifth fingers are turned in and the one on the left is bractydactly? very short! But, he is wonderful and keeps us busy!!! Thanks for being there, I didn't know you existed!!! Kim Lenhart Quote Link to comment Share on other sites More sharing options...
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