Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Regarding the AV - if you go to the AV website (go to auditory verbal international) and sign up for the next workshop for parents that you see. The workshop will provide you with a lot of tips and will be fun besides. I'm not convinced that you have to go with strictly one methodology in order for your son to learn to use his voice. Good Luck >Tyler's most recent mapping was in Nov. I use sign with him but always pair >it with speech. Sometimes I just speak to him so that he will concentrate >on my face and voice and not my hands. I do not know of any A/V therapists >in NH but have recently been in contact with one in Mass. _________________________________________________________________ Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 3, 2004 Report Share Posted December 3, 2004 Regarding the AV - if you go to the AV website (go to auditory verbal international) and sign up for the next workshop for parents that you see. The workshop will provide you with a lot of tips and will be fun besides. I'm not convinced that you have to go with strictly one methodology in order for your son to learn to use his voice. Good Luck >Tyler's most recent mapping was in Nov. I use sign with him but always pair >it with speech. Sometimes I just speak to him so that he will concentrate >on my face and voice and not my hands. I do not know of any A/V therapists >in NH but have recently been in contact with one in Mass. _________________________________________________________________ Is your PC infected? Get a FREE online computer virus scan from McAfee® Security. http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 Welcome -- This list is a wonderful site for learning and sharing. The issue of ABR accuracy for infants is a topic of concern for many of us with babies/toddlers. It might be helpful to read some of the discussions from Fall 2004 under " abr accuracy. " I know I learned a lot. Also, the list mates here can be an incredible source of support. I often think of a post I read on Listen-Up, when I feel sad about my daughter's hearing loss. A mom on the list shared a story about her daughter--I paraphrase --when our list mate's daughter was asked by a classmate why she wore hearing aids, she answered that they help her hear better and they make her more beautiful. I love that story. Best, (Mom to Kate 7 mos mild/mod bilateral flat loss) > > Hello everyone~ > > My name is and I have an almost 16 month old daughter, > Maggie, who has bilateral moderate to severe HL of unknown cause. I > am 33 (for a few more weeks!) and live in West Tennessee. Maggie was > diagnosed at birth from the newborn screen and has had 3 ABR's and > TONS of booth testing. She's been aided since 5 mos and in aural hab > since 7 mos. Her testing has run the gamut, to be quite honest, and > we've gotten pure tones unaided at 20 db at 4000 hz and then turn > around and get 65 db at 2000 hz. It's quite puzzling for us all. > > We've thought all along that her HL was sensorineural, but the little > bit of bone conduction we've been able to do indicates there might be > a conductive component to some of her loss. Hopefully, we'll get a > CAT scan done soon to determine that. > > I have a 4 year old daughter as well who hears more than I want her > too. : ) It's been a very trying year for all of us, but one that I > really wouldn't have traded for anything. Maggie is an incredible, > busy, spunky baby and her HL doesn't seem to slow her down one > bit. > > I'm really looking forward to getting to know some of you - it's such > a huge group - but we seem to have issues every day, so I'm hoping to > find a great group of resources in all of you. > > Thanks for reading my " me " post and I'm sure I'll be back quite a bit. > > > Mom to (9/00) and Maggie (9/03) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2005 Report Share Posted January 20, 2005 Welcome -- This list is a wonderful site for learning and sharing. The issue of ABR accuracy for infants is a topic of concern for many of us with babies/toddlers. It might be helpful to read some of the discussions from Fall 2004 under " abr accuracy. " I know I learned a lot. Also, the list mates here can be an incredible source of support. I often think of a post I read on Listen-Up, when I feel sad about my daughter's hearing loss. A mom on the list shared a story about her daughter--I paraphrase --when our list mate's daughter was asked by a classmate why she wore hearing aids, she answered that they help her hear better and they make her more beautiful. I love that story. Best, (Mom to Kate 7 mos mild/mod bilateral flat loss) > > Hello everyone~ > > My name is and I have an almost 16 month old daughter, > Maggie, who has bilateral moderate to severe HL of unknown cause. I > am 33 (for a few more weeks!) and live in West Tennessee. Maggie was > diagnosed at birth from the newborn screen and has had 3 ABR's and > TONS of booth testing. She's been aided since 5 mos and in aural hab > since 7 mos. Her testing has run the gamut, to be quite honest, and > we've gotten pure tones unaided at 20 db at 4000 hz and then turn > around and get 65 db at 2000 hz. It's quite puzzling for us all. > > We've thought all along that her HL was sensorineural, but the little > bit of bone conduction we've been able to do indicates there might be > a conductive component to some of her loss. Hopefully, we'll get a > CAT scan done soon to determine that. > > I have a 4 year old daughter as well who hears more than I want her > too. : ) It's been a very trying year for all of us, but one that I > really wouldn't have traded for anything. Maggie is an incredible, > busy, spunky baby and her HL doesn't seem to slow her down one > bit. > > I'm really looking forward to getting to know some of you - it's such > a huge group - but we seem to have issues every day, so I'm hoping to > find a great group of resources in all of you. > > Thanks for reading my " me " post and I'm sure I'll be back quite a bit. > > > Mom to (9/00) and Maggie (9/03) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 , you are going to get lots of answers to your questions. This is a very talkative group. I chose TOPS because I had tried just about everything else. I went to WW for three weeks and knew I couldn't afford to keep that up. Besides, at the end of the third meeting, not one person had spoken to me and no one knew my name. I could see that I would get no support there. (I know it works for some people, just not for me.) I went to Overeaters An. for a year and even went to the convention that year. Really enjoyed that, but didn't care for the meetings. Actually left after a year, weighing more than when I joined. Never could get anyone to sponsor me either. I couldn't afford, Craig and the others like that. I was familiar with TOPS because a friend had been in it years ago. The first time I walked in the room, I knew I was home. I left that first meeting knowing I had just met the best friends I would ever have. I got off to a slow start on losing, but did have a loss every month. After two years, I reached my goal and have been a KOPS for almost seven years. My anniversary is next month. I have found that the more I put into TOPS, the more I get out of it. I have been leader several times and treasurer one year. The more I encourage my fellow members, the more encouraged I get. Seeing their successes keeps me motivated. Stick with it, . You'll see those pound melt away. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 , you are going to get lots of answers to your questions. This is a very talkative group. I chose TOPS because I had tried just about everything else. I went to WW for three weeks and knew I couldn't afford to keep that up. Besides, at the end of the third meeting, not one person had spoken to me and no one knew my name. I could see that I would get no support there. (I know it works for some people, just not for me.) I went to Overeaters An. for a year and even went to the convention that year. Really enjoyed that, but didn't care for the meetings. Actually left after a year, weighing more than when I joined. Never could get anyone to sponsor me either. I couldn't afford, Craig and the others like that. I was familiar with TOPS because a friend had been in it years ago. The first time I walked in the room, I knew I was home. I left that first meeting knowing I had just met the best friends I would ever have. I got off to a slow start on losing, but did have a loss every month. After two years, I reached my goal and have been a KOPS for almost seven years. My anniversary is next month. I have found that the more I put into TOPS, the more I get out of it. I have been leader several times and treasurer one year. The more I encourage my fellow members, the more encouraged I get. Seeing their successes keeps me motivated. Stick with it, . You'll see those pound melt away. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2005 Report Share Posted October 18, 2005 , you are going to get lots of answers to your questions. This is a very talkative group. I chose TOPS because I had tried just about everything else. I went to WW for three weeks and knew I couldn't afford to keep that up. Besides, at the end of the third meeting, not one person had spoken to me and no one knew my name. I could see that I would get no support there. (I know it works for some people, just not for me.) I went to Overeaters An. for a year and even went to the convention that year. Really enjoyed that, but didn't care for the meetings. Actually left after a year, weighing more than when I joined. Never could get anyone to sponsor me either. I couldn't afford, Craig and the others like that. I was familiar with TOPS because a friend had been in it years ago. The first time I walked in the room, I knew I was home. I left that first meeting knowing I had just met the best friends I would ever have. I got off to a slow start on losing, but did have a loss every month. After two years, I reached my goal and have been a KOPS for almost seven years. My anniversary is next month. I have found that the more I put into TOPS, the more I get out of it. I have been leader several times and treasurer one year. The more I encourage my fellow members, the more encouraged I get. Seeing their successes keeps me motivated. Stick with it, . You'll see those pound melt away. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 This is happing on one of my other groups ,a menopause group...I no longer post on ..but I have had someone break in on my messanger first I thought it was a woman with a womans issues but then into the convesation it came out he was a man and a pervert at that,can anyone read our posts on this message board or do they need to join ....now I am almost afraid to post some of the things and let my feelings out ...about my breast cancer knowing he is out thier snooping around ..... & nne Svihlik wrote: Thanks for the compliment Angel :-) I KNOW we are the best group on the internet :-) I like to know a bit about my members but not full names, addresses, phone numbers, etc. I believe that is private info and its not necessary for it to be told to me or anyone else. Especially when you don't even know the moderators etc of the group you are trying to join. I know of one group for sure, 4BCSURVIVORS that requires this and more. Maybe more are out there like this. If a person wants to share their info with individuals AFTER they get to know them thats one thing. Maybe some of you remember Ronda from a few yrs back. Some of us, at her request had her address, as some of us sent her little gifts, we got phone calls etc. Even though she gave her TRUE info address etc. She was a fake. So all that info proves nothing and if Calvin had asked for all of that I would have never joined the group. Thank God he didn't cause I sure love all " my ladies " :-) Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com CinDWood Crafts http://www.cindwoodcrafts.com Re: New here Hi Gals: it sure is scary.. being Dx I have not forgotten posted above.. am a 6.5 yr thriver and known nne almost 5 yrs must be Best club on the net.. )) Im in and out.. that doesnt mean a thng just cant keep up always.. but family commitments lots of great help .. best to all Angel )) > > > > Hi everyone > > Im new ,im from the UK where im afraid cancer treatment isnt as > advanced as > > yours , ive read a lot of posts and wish you all well and good luck > > especially those newly diagnosed. > > I was diagnosed 3 years ago stage 11 and a couple of bad nodes > ,surgery and > > treatment finished and so far breast is showing ok on mammogram s, had > > another 2 days ago so fingers crossed all is still well there , I do > have > > problems with raised liver enzymes which are being investigated and am > > awaiting a biopsy on my thyroid . > > I recognise all those feelings ive read ,anger,bitterness,sadness > ,etc and > > can empathize with you all, I remember as clear as anything the day > I was > > told , the devastating effect it had not only on me but close > friends and > > family, its been a difficult road but im so positive in my outlook > .like you > > all here , so many strong people . > > I wish everyone well and keep your chins up . > > Hugs to you all > > > > Sharon > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 This is happing on one of my other groups ,a menopause group...I no longer post on ..but I have had someone break in on my messanger first I thought it was a woman with a womans issues but then into the convesation it came out he was a man and a pervert at that,can anyone read our posts on this message board or do they need to join ....now I am almost afraid to post some of the things and let my feelings out ...about my breast cancer knowing he is out thier snooping around ..... & nne Svihlik wrote: Thanks for the compliment Angel :-) I KNOW we are the best group on the internet :-) I like to know a bit about my members but not full names, addresses, phone numbers, etc. I believe that is private info and its not necessary for it to be told to me or anyone else. Especially when you don't even know the moderators etc of the group you are trying to join. I know of one group for sure, 4BCSURVIVORS that requires this and more. Maybe more are out there like this. If a person wants to share their info with individuals AFTER they get to know them thats one thing. Maybe some of you remember Ronda from a few yrs back. Some of us, at her request had her address, as some of us sent her little gifts, we got phone calls etc. Even though she gave her TRUE info address etc. She was a fake. So all that info proves nothing and if Calvin had asked for all of that I would have never joined the group. Thank God he didn't cause I sure love all " my ladies " :-) Hugs nne Breast Cancer Patients Soul Mates for Life http://www.geocities.com/chucky5741/breastcancerpatients.html Check out my other ornaments at www.geocities.com/chucky5741/bcornament.html Lots of info and gifts at: www.cancerclub.com CinDWood Crafts http://www.cindwoodcrafts.com Re: New here Hi Gals: it sure is scary.. being Dx I have not forgotten posted above.. am a 6.5 yr thriver and known nne almost 5 yrs must be Best club on the net.. )) Im in and out.. that doesnt mean a thng just cant keep up always.. but family commitments lots of great help .. best to all Angel )) > > > > Hi everyone > > Im new ,im from the UK where im afraid cancer treatment isnt as > advanced as > > yours , ive read a lot of posts and wish you all well and good luck > > especially those newly diagnosed. > > I was diagnosed 3 years ago stage 11 and a couple of bad nodes > ,surgery and > > treatment finished and so far breast is showing ok on mammogram s, had > > another 2 days ago so fingers crossed all is still well there , I do > have > > problems with raised liver enzymes which are being investigated and am > > awaiting a biopsy on my thyroid . > > I recognise all those feelings ive read ,anger,bitterness,sadness > ,etc and > > can empathize with you all, I remember as clear as anything the day > I was > > told , the devastating effect it had not only on me but close > friends and > > family, its been a difficult road but im so positive in my outlook > .like you > > all here , so many strong people . > > I wish everyone well and keep your chins up . > > Hugs to you all > > > > Sharon > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2006 Report Share Posted August 21, 2006 hi - my name is marisa. I've been lurking for a bit, and thought i would say hi. It's interesting---the only other email list i belong to is parent-l - a breastfeeding support list, which i joined 7 years ago when i first went back to work full time and was delerious with sleep deprevation because my son was reverese cycling...( when my doc told me i had breast cancer i said - but I nursed for 3 years!! - and she said, " it's a crap shoot, marisa--no one is immune...) anyway, it seems now i am a member of another sisterhood (i kinda like being a member of the sisterhood of nursing moms - not sure about how i feel about belonging to *this* particular sisterhood...)--I was diagnosed with breast cancer on April 25, 2006 (the 2nd anniversary of my husband's death)...and have just finished my 4th, and last cycle of A/C. in three weeks time i start with taxotere/herceptin. I've tolerated everything pretty well so far...what's been most difficult for me has been the sudden onslaught of menapause (i went from a 28 day sysle to nothing - except hot flashes and night sweats) as well as incredible irritability! and GAS! Gosh! i could probably fuel a car on how much i burp! one burp behind another...(sorry if it's too much information) Honestly, it's been hard for me - and the mood swings...sheesh! My tumor was stage 1, er/pr+, no sentinal node involvement, no lympho/vascular involvement, clear margins...but her2+...I've been off all summer (i had ALOT of sick time saved up), but will going back on september 6th (the same day my son starts school..I have an 8 year old, beautiful boy, who i love more than anything on this planet ) that's it - i'm glad i found this group... Marisa NYC __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2006 Report Share Posted August 22, 2006 Dear Marisa, Welcome to a wonderful group of incredible women, of which YOU are now a part of! = ) Sounds like you have had quite a bit to deal with on your own; I'm so sorry to hear you lost your husband so young. May your son bring you " light " on your darkest days and may you find everything you are looking for here from all of us. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2010 Report Share Posted April 16, 2010 Hi everyone,I have had symptoms of hypothyroid for awhile and been taking my temp everyday, and it is anywhere from 95.6-97.5 in the morning. It never goes above 97.5 during the day. My dr keep saying my labs are normal and my thyroid is fine. Here is my last labs about 2 months ago, and I would like to know what you think.TSH 1.370 Range 0.450-4.500> T4 8.1 Range: 4.5-12.0> Reverse T3 306 Range; 90-350> TBO 10 Range 0-34> Free T3 2.6 Range 2.0-4.4Thanks, Liz Quote Link to comment Share on other sites More sharing options...
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