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Hi everyone. I just joined. I'm searching for a good support group

for parents of CF children and this looked like the best.

My 8 week old son was diagnosed with CF last Monday..a total shock to

us, as we thought he had a whole different problem. We spent most of

the week in the hospital with him getting his enzymes worked out.

He's still not feeling well..has really fussy times and tummy aches.

We're still having problems adjusting to all this. I just don't know

how I'll ever get over the heartache. How have the rest of you dealt

with the initial adjustment?

He takes enzymes with fruit 4 times a day, another med to flush his

liver twice a day, plus vitamins. He hates taking any of it, so it's

always a real fight.

We also have a 2 1/2 year old son who isn't dealing with the changes

and our absence very well. We didn't know they would be admiting the

baby, so our older one kind of got shunted around all week, and

really missed us. He's going to have to get used to it, because I

know it won't be the last time we have to leave him. OUr Children's

Hospital and CF team is over 100 miles away, so coming home to see

him isn't possible.

Anyways, that's my story. I hope to get really involed around here,

because I've found the best support to be from those who've

experienced it. Others mean well, but just don't understand.

Sad but hopefull,

Carla