Other adult RSS

[Guest guest]

Debby - I am going nuts trying to find the email addresses of two women on this

list-serve who were adult RSS, and were exchanging emails. If you go to the

archives, you might be able to find them by scanning historically the subject

lines - I am guessing one of them said something like Adult RSS.

Also, if you check out the website magicfoundation.org (national nonprofit for

people with growth disorders), their membership fee is only $25 a year, and they

have a networking list. I know that there are more than 10, gosh a lot more, of

adult RSS where you could exchange email addresses. You can contact me offline

at MagicRSS@... if you are interested. I am the RSS division

director, and I could do some investigating with corporate office first, to see

if we can sort on Adult RSS or birthyear. But we can only give our names, etc

to members.

So, try searching this list-serve archives, and then try magicfoundation.org,

too. Good luck!

RSS-Support wrote:

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Hi I am Debby. I cant belive I have found a place for adultswith RSS

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to talk to " other adults " with RSS. This is a dream come true for me

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and please anyone contact me I will answer all! I guess i could

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start by telling everyone about me. I am 4'6 " which shocked my doc's.

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I have asthma, short limbs, my right side is bigger then my left side

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even my organs are slightly enlarged. My bone age is 1 year older

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then me. I have learning disabilities (not bad thou) I have trobule

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with my ears (20%in right ear 40% in left. I wear glasses my eyes

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cannot see togeather but can do seperetly. *WHEW* *LOL* The reason I

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am rambbling on here is that I live in Vermont and when I was

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diagnossed at the age of 18 months there were only 2 people in the

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state of Vermont who had RSS me and another little boy. I was lucky

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he wasent. He was severly mentally retarded. So, I just want to know

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is there any adult,child anyone out there who would talk to me? I am

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begging i have always felt so alone and the thought of finding

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someone to chat to who has this stupid thing with me would really

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lift my spirits. So if i have not frightened you please email or post

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a message. Thanks Debby

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