Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Thanks for the support, Debby. Sometimes when I write a message to the group that is along the more general opinion lines, I worry that I will make someone angry or offend someone or do something to stir someone up. That's " funny " about Adam sleeping with the TV on...Max sleeps with his on, too. He has had some terrible nightmares and the TV seems to help him calm down and get himself back to sleep. I used to think I was not doing the right thing, but then I realized that there is not right thing - it's whatever works as long as no one is being hurt in the process. As a matter of fact, I am the one being helped. I don't get the screams of " Mommy!!!! " in the middle of the night anymore. Jodi Re: Not for RSS only > Good post Jodi > I second the thoughts. For whatever reason the child is not growing, we parents face so many of the same problems. School, friends, family, > clothes, frustrations with feeding times etc. etc. etc. > Adam, I have learned, is really lucky in that he didn't have g-tubes or special formula etc. (not saying it wouldn't have helped--LOL--but > no one suggested it) and yet, we share so many other facets of having children who are smaller than they should be. > The more input on this group, the more we learn. Someone may have a nifty idea that once shared will help us all (hey that idea about Adam > sleeping with the TV on has been a life saver, and that, folks has nothing to do with RSS or XYZ or GHD or anything!!!!) > > Here here Jodi, well said. > > Debby > > z4all wrote: > > > Hi, everyone. I read the email from Pamela, Anabelle's mom, and then I > > received and email from Dr. H. and I thought that maybe I should put out a > > general post to all who read and/or participate on this list serve. Ken, > > forgive me if I am overstepping my bounds, but I don't think you will mind > > what I have to say... > > > > Just because this list is called RSS-Support, it does not mean that your > > child HAS to have RSS in order to participate in our discussions. There are > > many parents whose children are SGA or IUGR and they don't have a label for > > their child, but they feel drawn to our list because they face some of the > > same challenges that we do. I fear, however, that they are afraid to put in > > their two cents or add to a discussion or even post a question because they > > don't feel they " fit in. " But that is not true. We are all here to help > > each other. A g-tube is a g-tube whether it's put in for RSS or for failure > > to thrive or whatever. I would hate to think that a parent is left feeling > > alone and without support just because he/she does not have that RSS label. > > > > So...if there is anyone reading this whose child is not yet diagnosed, > > please don't feel afraid to participate. We welcome everyone. > > > > Jodi > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 Good post Jodi I second the thoughts. For whatever reason the child is not growing, we parents face so many of the same problems. School, friends, family, clothes, frustrations with feeding times etc. etc. etc. Adam, I have learned, is really lucky in that he didn't have g-tubes or special formula etc. (not saying it wouldn't have helped--LOL--but no one suggested it) and yet, we share so many other facets of having children who are smaller than they should be. The more input on this group, the more we learn. Someone may have a nifty idea that once shared will help us all (hey that idea about Adam sleeping with the TV on has been a life saver, and that, folks has nothing to do with RSS or XYZ or GHD or anything!!!!) Here here Jodi, well said. Debby z4all wrote: > Hi, everyone. I read the email from Pamela, Anabelle's mom, and then I > received and email from Dr. H. and I thought that maybe I should put out a > general post to all who read and/or participate on this list serve. Ken, > forgive me if I am overstepping my bounds, but I don't think you will mind > what I have to say... > > Just because this list is called RSS-Support, it does not mean that your > child HAS to have RSS in order to participate in our discussions. There are > many parents whose children are SGA or IUGR and they don't have a label for > their child, but they feel drawn to our list because they face some of the > same challenges that we do. I fear, however, that they are afraid to put in > their two cents or add to a discussion or even post a question because they > don't feel they " fit in. " But that is not true. We are all here to help > each other. A g-tube is a g-tube whether it's put in for RSS or for failure > to thrive or whatever. I would hate to think that a parent is left feeling > alone and without support just because he/she does not have that RSS label. > > So...if there is anyone reading this whose child is not yet diagnosed, > please don't feel afraid to participate. We welcome everyone. > > Jodi > > > > > Quote Link to comment Share on other sites More sharing options...
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