Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 You guys have been super wonderful here and I appreciate all the help you gave me when I joined. I don't know what I would have done without your help and support and answers and advice. But I think 's issues may have outgrown what anyone has answers to here. I've posted twice in the last week or so about his thyroid/pituitary issues wondering if anyone had ideas and have gotten nothing in response (with the exception of the sweet reply reminding me that he is being remembered in prayers). I can only assume this is due to no one having any idea what to say about it (same as the endos), since this group is FAR from quiet or rude - LoL. I hope that, if the day comes when 's issues have simplified a bit, I will be welcome to come back. I'm going to hold off on unsubbing for a bit, just in case we get some kind of answer on his next MRI that I can report back to you guys with, for those who have been following a bit. Blessings and my love to all of you!!! Ami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi Ami, I wish that I could help. I'm just not on line often enough anymore to keep track of what has been suggested or tried or anything more indepth. ?Is it possible that you could post your question again? Realizing that the ones who can best help you are only on-line with this group once or twice a week due to their jobs and families. I know that Topper has been really busy these last few weeks getting the new web site up and running so she may have missed your emails with your questions as well. If you choose not to repost, I understand...This group has gotten busy over this past year. And yes you might be right, it is possible that what with everything that you and have gone through, that really indepth questions are just over most of our understandings of the whole picture, much less our small grasp of the medical side of what is actually happening with . And none of us want to guide you or point you in an erronous direction that might cause more harm than good. God Bless...to you and your family. It is very obvious that has Jesus and his angels with him all the time! Gossimer > > You guys have been super wonderful here and I appreciate all the help > you gave me when I joined. I don't know what I would have done without > your help and support and answers and advice. But I think 's > issues may have outgrown what anyone has answers to here. I've posted > twice in the last week or so about his thyroid/pituitary issues > wondering if anyone had ideas and have gotten nothing in response (with > the exception of the sweet reply reminding me that he is being > remembered in prayers). I can only assume this is due to no one having > any idea what to say about it (same as the endos), since this group is > FAR from quiet or rude - LoL. I hope that, if the day comes when > 's issues have simplified a bit, I will be welcome to come back. > > I'm going to hold off on unsubbing for a bit, just in case we get some > kind of answer on his next MRI that I can report back to you guys with, > for those who have been following a bit. > > Blessings and my love to all of you!!! > > Ami > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi Ami, I wish that I could help. I'm just not on line often enough anymore to keep track of what has been suggested or tried or anything more indepth. ?Is it possible that you could post your question again? Realizing that the ones who can best help you are only on-line with this group once or twice a week due to their jobs and families. I know that Topper has been really busy these last few weeks getting the new web site up and running so she may have missed your emails with your questions as well. If you choose not to repost, I understand...This group has gotten busy over this past year. And yes you might be right, it is possible that what with everything that you and have gone through, that really indepth questions are just over most of our understandings of the whole picture, much less our small grasp of the medical side of what is actually happening with . And none of us want to guide you or point you in an erronous direction that might cause more harm than good. God Bless...to you and your family. It is very obvious that has Jesus and his angels with him all the time! Gossimer > > You guys have been super wonderful here and I appreciate all the help > you gave me when I joined. I don't know what I would have done without > your help and support and answers and advice. But I think 's > issues may have outgrown what anyone has answers to here. I've posted > twice in the last week or so about his thyroid/pituitary issues > wondering if anyone had ideas and have gotten nothing in response (with > the exception of the sweet reply reminding me that he is being > remembered in prayers). I can only assume this is due to no one having > any idea what to say about it (same as the endos), since this group is > FAR from quiet or rude - LoL. I hope that, if the day comes when > 's issues have simplified a bit, I will be welcome to come back. > > I'm going to hold off on unsubbing for a bit, just in case we get some > kind of answer on his next MRI that I can report back to you guys with, > for those who have been following a bit. > > Blessings and my love to all of you!!! > > Ami > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Ami... no no no no... don't leave.... I'm sorry I've been so scarce lately... You're still welcome here... I still want to help.... poor is just such a puzzle... So many things that need attention for the wee guy... and much of it has been on hold as they work on him.... Now that the transplant has taken... and they are able to start running tests and adjusting things again.. we'll have more to work with.... Topper () On Thu, 09 Mar 2006 05:11:56 -0000 "Lilith Armunn" writes: You guys have been super wonderful here and I appreciate all the help you gave me when I joined. I don't know what I would have done without your help and support and answers and advice. But I think 's issues may have outgrown what anyone has answers to here. I've posted twice in the last week or so about his thyroid/pituitary issues wondering if anyone had ideas and have gotten nothing in response (with the exception of the sweet reply reminding me that he is being remembered in prayers). I can only assume this is due to no one having any idea what to say about it (same as the endos), since this group is FAR from quiet or rude - LoL. I hope that, if the day comes when 's issues have simplified a bit, I will be welcome to come back. I'm going to hold off on unsubbing for a bit, just in case we get some kind of answer on his next MRI that I can report back to you guys with, for those who have been following a bit.Blessings and my love to all of you!!!Ami Quote Link to comment Share on other sites More sharing options...
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