Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Gee that makes me angry............WHEN WILL THESE DOCTORS WAKE UP TO THE FACT THAT THEY ARE NOT, REPEAT,NOT GOD!!!!!!! Re: new member - question Hi Lynn, My name is Tina and I am a person that has been diagnosed as hashimotos thyroditis disease but as yet I am not being treated. I have not as yet seen a endo cause of course my Family Dr thinks he can treat me for everything and "HIS" opinion is that at this time my TSH is not bad enough to be treated . I had my thyroid tests done in I think Nov of last year or Oct anyway My TPO was 951.5 and the range is 35 needless to say I have hashi's. I am still working on getting a refferal for the Endo so I can finally get somekind of relief . I was on the Phone to lots of sources today I spoke to a Nurse( a Dear Friend) and a Health Coach from my insurance provider and to an herbalist Dr. All of which have told me the same thing YOU NEED TO GET THAT THYROID TAKEN CARE OF NOW!!!!!! As of Tomarrow my Family Dr might just be my ex family DR cause if he don't give me the referal I am to call my health coach back and they will find get me the Refferal and i will be seeing the Endo and my Family Dr will be fired by the insurance company not me. So you hang in there it can be done. TinaLynn with Poochi's Tailor wrote: Sue,You said you had been concerns about some groups only advocating ONE type of thyroid med. I had that exact same concern in other discussion groups. My sis is on Synthroid only, and has been for over 10 years happily. I understand that only T4 being that effective is unusual. My thought is that there isn't a one-size-fits-all medicine, or even a one-size-fits-all med combo out there. If something works for you - that is the important part :)Spoken by a yet untreated probably hypo person,-Lynnjytdtp wrote:> Hi --- sounds like it works for you and that’s encouraging. On > another board it seems they are very “anti” Cytomel aka T3 and only > “advocate” the Armour Thyroid natural combo and I was beginning to > wonder if I should switch or try to based on all the negative feedback I > was getting about synthetic T3. I am also perimenopausal so I have > those overlapping symptoms as well. I have plent of energy but what I > don’t seem to have is a metabolism that will work right – in that I > exercise and eat healthy and low calories but it’s near-impossible to > lose weight. I finally stopped the scale from moving upward in late > January and am hoping that with the added T3 it will also boost my > metabolism... My Free T3 has been just above the lowest end of the range.> > Thanks for you input!> Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Sue, I think it's wonderful that you are trying the T3, as I'm even considering it myself. Armour is a good product, I am on the 45 mgs of it myself, in addition to the 100 mcgs of Eltroxin (European brand of T4), but I may take a dive before long, we'll see. I was solely on Armour for quite awhile, but couldn't tolerate the high T3 ratios, so this was my solution. Labs didn't look TOO bad last time, but I think that the T3 was too low in comparison to that T4. My problem with a lot of meds, including some thyroid meds, is the allergies to fillers in some of them, though I haven't really figured out but one allergy, and that was to the acacia in the Synthroid. I was on 2 grains of Armour for about 3 months or so, and had been gradually bringing it up over many months, but the 2 grains is when I hit a wall. Everyone has to find what their own sweet spot is. The itching that I was having all over my body seems to be coming back, and I'm not sure what that's about, but upping the Armour 15 mgs is the only change I've made in anything lately, so I just don't know. What's weird is that my Free T3 showed much higher (just a tenth of a point, I think, over range on it, when I was on the 2 grains) on one of my testings during that time, and I don't THINK I was having that itching then. I haven't kept a log of it all, so I'm now not sure. I have allergies out the cazoo. I would hope that there would be nothing in the Cytomel that I would be allergic to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Brain fog is my number 1 enemy followed closely by fatigue........I hate it!! It's like there's a connection missing between the scramble in my head and what is in front of me................I know what I mean!!..............Meleese xxx Re: new member - question Hi Lynn, My name is Tina and I am a person that has been diagnosed as hashimotos thyroditis disease but as yet I am not being treated. I have not as yet seen a endo cause of course my Family Dr thinks he can treat me for everything and "HIS" opinion is that at this time my TSH is not bad enough to be treated . I had my thyroid tests done in I think Nov of last year or Oct anyway My TPO was 951.5 and the range is 35 needless to say I have hashi's. I am still working on getting a refferal for the Endo so I can finally get somekind of relief . I was on the Phone to lots of sources today I spoke to a Nurse( a Dear Friend) and a Health Coach from my insurance provider and to an herbalist Dr. All of which have told me the same thing YOU NEED TO GET THAT THYROID TAKEN CARE OF NOW!!!!!! As of Tomarrow my Family Dr might just be my ex family DR cause if he don't give me the referal I am to call my health coach back and they will find get me the Refferal and i will be seeing the Endo and my Family Dr will be fired by the insurance company not me. So you hang in there it can be done. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Brain fog is my number 1 enemy followed closely by fatigue........I hate it!! It's like there's a connection missing between the scramble in my head and what is in front of me................I know what I mean!!..............Meleese xxx Re: new member - question Hi Lynn, My name is Tina and I am a person that has been diagnosed as hashimotos thyroditis disease but as yet I am not being treated. I have not as yet seen a endo cause of course my Family Dr thinks he can treat me for everything and "HIS" opinion is that at this time my TSH is not bad enough to be treated . I had my thyroid tests done in I think Nov of last year or Oct anyway My TPO was 951.5 and the range is 35 needless to say I have hashi's. I am still working on getting a refferal for the Endo so I can finally get somekind of relief . I was on the Phone to lots of sources today I spoke to a Nurse( a Dear Friend) and a Health Coach from my insurance provider and to an herbalist Dr. All of which have told me the same thing YOU NEED TO GET THAT THYROID TAKEN CARE OF NOW!!!!!! As of Tomarrow my Family Dr might just be my ex family DR cause if he don't give me the referal I am to call my health coach back and they will find get me the Refferal and i will be seeing the Endo and my Family Dr will be fired by the insurance company not me. So you hang in there it can be done. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 I read an article somewhere a few years ago that ahlzheimers patients sometimes were being misdiagnosed and they just had really bad hypo. From years of being misdiagnosed and non treatment... weird huh? Anyone else have a thought on that? Re: new member - question Hi Lynn, My name is Tina and I am a person that has been diagnosed as hashimotos thyroditis disease but as yet I am not being treated. I have not as yet seen a endo cause of course my Family Dr thinks he can treat me for everything and "HIS" opinion is that at this time my TSH is not bad enough to be treated . I had my thyroid tests done in I think Nov of last year or Oct anyway My TPO was 951.5 and the range is 35 needless to say I have hashi's. I am still working on getting a refferal for the Endo so I can finally get somekind of relief . I was on the Phone to lots of sources today I spoke to a Nurse( a Dear Friend) and a Health Coach from my insurance provider and to an herbalist Dr. All of which have told me the same thing YOU NEED TO GET THAT THYROID TAKEN CARE OF NOW!!!!!! As of Tomarrow my Family Dr might just be my ex family DR cause if he don't give me the referal I am to call my health coach back and they will find get me the Refferal and i will be seeing the Endo and my Family Dr will be fired by the insurance company not me. So you hang in there it can be done. Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Before I was diagnosed as HypoT I was quite convinced that I had early onset ahlzheimers. I couldn't remember the content of a paragraph in a book. I'd put the phone down and not be able to remember who I had been talking to or what about. One day I drove myself to the hospital (25miles distant) because my mother had been admitted following a heart attack. I hardly had the strength to hold the accelerator down, but worse than that I got lost twice. The second time I was in town, at night, in the rain, on a busy road with lots of traffic signals and I had to pull into a side street because I couldn't remember where I was or how to get to the hospital. I remember crying with helpless rage and misery because I was sure I was about to lose my mind. My memory had been very poor for a long time but I hadn't realised how bad it was until I was taking thryoid replacement hormone and back at work. My colleagues told me some alarming stories of my memory lapses and the school photograph album holds pictures of myself taking part in events of which I have no memory at all! My poor old mother (who recovered from the heart attack) has been diabetic for over 40 years (she is now 82 years old). At one time she was treated for HypoT but the treatment was stopped after a while when her tests showed normal. I only remember her as tired; she was and is always tired. Her favourite responce when asked how she feels is " Tired dear, I was born tired and I've been tired ever since " . This saying used to annoy me enormously but of course I now know how she feels. Poor woman, what a wasted life. She became very forgetful when I was a child and I have many memories of looking for things she had lost or misplaced. For several years now her mental functioning has been slowly deteriorating, and at times she forgets who I am. I insisted that the doc test her hormone levels last time she was in hospital but was told 'normal' and you try persuading a consultant to hand over hospital test results. Of course for 20 years mine showed normal too. Even after starting on T4 I couldn't persuade a doc to test T3 until last year. Taking T3 has made an enormous difference to my cognitive functioning; I imagine my mother might have the same problem with conversion. She is so frail that no-one would dare risk starting her on that kind of treatment now; it makes me mad to think that my mother has been robbed of so much. --- Teague wrote: > I read an article somewhere a few years ago that > ahlzheimers patients sometimes were being > misdiagnosed and they just had really bad hypo. > From years of being misdiagnosed and non > treatment... weird huh? Anyone else have a thought > on that? > > > Re: new > member - question > > > Hi Lynn, > My name is Tina and I am a person that > has been diagnosed as hashimotos thyroditis disease > but as yet I am not being treated. I have not as > yet seen a endo cause of course my Family Dr thinks > he can treat me for everything and " HIS " opinion is > that at this time my TSH is not bad enough to be > treated . I had my thyroid tests done in I think Nov > of last year or Oct anyway My TPO was 951.5 and the > range is 35 needless to say I have hashi's. I am > still working on getting a refferal for the Endo so > I can finally get somekind of relief . I was on the > Phone to lots of sources today I spoke to a Nurse( a > Dear Friend) and a Health Coach from my insurance > provider and to an herbalist Dr. All of which have > told me the same thing YOU NEED TO GET THAT THYROID > TAKEN CARE OF NOW!!!!!! As of Tomarrow my Family > Dr might just be my ex family DR cause if he don't > give me the referal I am to call my health coach > back and they will find get me the Refferal and i > will be seeing the Endo and my Family Dr will be > fired by the insurance company not me. So you hang > in there it can be done. > > > Tina > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Before I was diagnosed as HypoT I was quite convinced that I had early onset ahlzheimers. I couldn't remember the content of a paragraph in a book. I'd put the phone down and not be able to remember who I had been talking to or what about. One day I drove myself to the hospital (25miles distant) because my mother had been admitted following a heart attack. I hardly had the strength to hold the accelerator down, but worse than that I got lost twice. The second time I was in town, at night, in the rain, on a busy road with lots of traffic signals and I had to pull into a side street because I couldn't remember where I was or how to get to the hospital. I remember crying with helpless rage and misery because I was sure I was about to lose my mind. My memory had been very poor for a long time but I hadn't realised how bad it was until I was taking thryoid replacement hormone and back at work. My colleagues told me some alarming stories of my memory lapses and the school photograph album holds pictures of myself taking part in events of which I have no memory at all! My poor old mother (who recovered from the heart attack) has been diabetic for over 40 years (she is now 82 years old). At one time she was treated for HypoT but the treatment was stopped after a while when her tests showed normal. I only remember her as tired; she was and is always tired. Her favourite responce when asked how she feels is " Tired dear, I was born tired and I've been tired ever since " . This saying used to annoy me enormously but of course I now know how she feels. Poor woman, what a wasted life. She became very forgetful when I was a child and I have many memories of looking for things she had lost or misplaced. For several years now her mental functioning has been slowly deteriorating, and at times she forgets who I am. I insisted that the doc test her hormone levels last time she was in hospital but was told 'normal' and you try persuading a consultant to hand over hospital test results. Of course for 20 years mine showed normal too. Even after starting on T4 I couldn't persuade a doc to test T3 until last year. Taking T3 has made an enormous difference to my cognitive functioning; I imagine my mother might have the same problem with conversion. She is so frail that no-one would dare risk starting her on that kind of treatment now; it makes me mad to think that my mother has been robbed of so much. --- Teague wrote: > I read an article somewhere a few years ago that > ahlzheimers patients sometimes were being > misdiagnosed and they just had really bad hypo. > From years of being misdiagnosed and non > treatment... weird huh? Anyone else have a thought > on that? > > > Re: new > member - question > > > Hi Lynn, > My name is Tina and I am a person that > has been diagnosed as hashimotos thyroditis disease > but as yet I am not being treated. I have not as > yet seen a endo cause of course my Family Dr thinks > he can treat me for everything and " HIS " opinion is > that at this time my TSH is not bad enough to be > treated . I had my thyroid tests done in I think Nov > of last year or Oct anyway My TPO was 951.5 and the > range is 35 needless to say I have hashi's. I am > still working on getting a refferal for the Endo so > I can finally get somekind of relief . I was on the > Phone to lots of sources today I spoke to a Nurse( a > Dear Friend) and a Health Coach from my insurance > provider and to an herbalist Dr. All of which have > told me the same thing YOU NEED TO GET THAT THYROID > TAKEN CARE OF NOW!!!!!! As of Tomarrow my Family > Dr might just be my ex family DR cause if he don't > give me the referal I am to call my health coach > back and they will find get me the Refferal and i > will be seeing the Endo and my Family Dr will be > fired by the insurance company not me. So you hang > in there it can be done. > > > Tina > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Before I was diagnosed as HypoT I was quite convinced that I had early onset ahlzheimers. I couldn't remember the content of a paragraph in a book. I'd put the phone down and not be able to remember who I had been talking to or what about. One day I drove myself to the hospital (25miles distant) because my mother had been admitted following a heart attack. I hardly had the strength to hold the accelerator down, but worse than that I got lost twice. The second time I was in town, at night, in the rain, on a busy road with lots of traffic signals and I had to pull into a side street because I couldn't remember where I was or how to get to the hospital. I remember crying with helpless rage and misery because I was sure I was about to lose my mind. My memory had been very poor for a long time but I hadn't realised how bad it was until I was taking thryoid replacement hormone and back at work. My colleagues told me some alarming stories of my memory lapses and the school photograph album holds pictures of myself taking part in events of which I have no memory at all! My poor old mother (who recovered from the heart attack) has been diabetic for over 40 years (she is now 82 years old). At one time she was treated for HypoT but the treatment was stopped after a while when her tests showed normal. I only remember her as tired; she was and is always tired. Her favourite responce when asked how she feels is " Tired dear, I was born tired and I've been tired ever since " . This saying used to annoy me enormously but of course I now know how she feels. Poor woman, what a wasted life. She became very forgetful when I was a child and I have many memories of looking for things she had lost or misplaced. For several years now her mental functioning has been slowly deteriorating, and at times she forgets who I am. I insisted that the doc test her hormone levels last time she was in hospital but was told 'normal' and you try persuading a consultant to hand over hospital test results. Of course for 20 years mine showed normal too. Even after starting on T4 I couldn't persuade a doc to test T3 until last year. Taking T3 has made an enormous difference to my cognitive functioning; I imagine my mother might have the same problem with conversion. She is so frail that no-one would dare risk starting her on that kind of treatment now; it makes me mad to think that my mother has been robbed of so much. --- Teague wrote: > I read an article somewhere a few years ago that > ahlzheimers patients sometimes were being > misdiagnosed and they just had really bad hypo. > From years of being misdiagnosed and non > treatment... weird huh? Anyone else have a thought > on that? > > > Re: new > member - question > > > Hi Lynn, > My name is Tina and I am a person that > has been diagnosed as hashimotos thyroditis disease > but as yet I am not being treated. I have not as > yet seen a endo cause of course my Family Dr thinks > he can treat me for everything and " HIS " opinion is > that at this time my TSH is not bad enough to be > treated . I had my thyroid tests done in I think Nov > of last year or Oct anyway My TPO was 951.5 and the > range is 35 needless to say I have hashi's. I am > still working on getting a refferal for the Endo so > I can finally get somekind of relief . I was on the > Phone to lots of sources today I spoke to a Nurse( a > Dear Friend) and a Health Coach from my insurance > provider and to an herbalist Dr. All of which have > told me the same thing YOU NEED TO GET THAT THYROID > TAKEN CARE OF NOW!!!!!! As of Tomarrow my Family > Dr might just be my ex family DR cause if he don't > give me the referal I am to call my health coach > back and they will find get me the Refferal and i > will be seeing the Endo and my Family Dr will be > fired by the insurance company not me. So you hang > in there it can be done. > > > Tina > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2006 Report Share Posted March 10, 2006 Oh Lord, Tina, know what I did way back there, before I knew I had this disease? I was already having symptoms, beginning phase, Hashi's hyper. I took my 11 yr old son (now 27) in the grocery store with me, he went to the magazine stand, I shopped for 30 minutes. Went out, got in the car, drove off, and went home. Thank God he carried a little money on him, as he called the house and said MOM, YOU FORGOT ME MOM!! I burst into tears. This was a full hr after I had gotten home, and I remember thinking how strange it was that my son wasn't at home. Sheesh!! I had lost weight, down from 140 lbs to 113 lbs, was skinny as a rail, nervous as a gazelle and ran everywhere I went and was constantly feeling like something was going to "get me". I now weigh around 157-57 lbs. I did that # for two or three yrs before beginning the slide into hypo. Noone had ever diagnosed me at that point, except to give me antidepressants and tranquilizers of the day, and I was eating everything in sight. So it can have a very far reaching effect even on family members. Re: new member - question Before I was diagnosed as HypoT I was quite convincedthat I had early onset ahlzheimers. > > Tina Quote Link to comment Share on other sites More sharing options...
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