Re: symptom comparison and questions

[Guest guest]

You're not a loon... they are...

Going up and down the stairs a few times should not wipe you out... arrrggghhhhhh

You're not crazy... stand up as tall as you can, take a deep breath and tell them to shut up!

I've been through all the stages as I've 'done my time' with this... you do have a good day, then the next day you're shot... you can have a day where you go great guns with sit down projects.. then get up to do something and fall flat on your face, for me, at times, that was literally....

Now that my meds are up.. I don't have that anymore... so I'm years older (now 48) and I'm improving over time? I doubt it... it's all about the hormones.. if they are not right and your body isn't working right... simple mundane everyday insignificant tasks can land you flat on your back..

I'm happy for your sister, she's one that responded well to meds and is feeling great.. just cuz she is of the chosen few makes your symptoms non existent?

C'mon.....

It don't work that way....

Don't give up.... push, prod, yell, threaten.. do what you have to do to be heard. It's too easy for them to ignore us because one of our symptoms is 'non confrontation' they can ignore us and let us rot cuz we won't make a fuss... Make a fuss.. .don't be ignored..

.... and I'm quietly putting my soap box back in the corner....

*blush*

Topper ()

On Sat, 11 Mar 2006 19:40:02 -0600 Lynn with Poochi's Tailor writes:

Just comparing notes, if you don't mind.I have been remembering back, and I think fatigue has stolen over my life over the last several years so slowly that I didn't recognize it. I just kept doing less, because I felt less able, but I didn't recognize it happening. My family thinks I'm just lazy, but when I try to do things, I get exhausted. I even hate taking my shower and doing my hair every day because I just feel wipe out afterwards.Just this week, I had two days where I felt pretty good. I wasn't tired, I didn't have symptoms to speak of, but I also did nothing other than sit and work at the computer, or sit and work on my jewelry. I felt so average that I wondered if maybe I was actually crazy considering whether I have hypo or not.Then, today came.Today, I left the house to take care of a friends house while they're out of town. Going up and down the stairs a few times left me feeling like a 120 year old woman instead of a 37 yr old woman. I couldn't muster the energy a few times to do some of my chores there, and actually laid down on the bed and had to rest - more than once! I got so sleepy, and my limbs just felt heavy-ish. Is that what you all get with this?Last week was really bad. I exerted myself on Saturday, and on Sunday I was almost completely out of commission. A normal person would not feel that tired from what little I did!I'm frustrated too that I've gained 20 pounds in 4-1/2 months. Only one pair of my extra fat jeans fit. My temps are generally between 97.4 and 98.2, but in the afternoons I can go up to 98.6. (One week I was spiking up to 99.1 and 99.4 in the afternoons, but still dropped to 97.4 or 97.7 at night) On my last doctor visit, the nurse took my temp and it was 97.8. She exlaimed, "that's good!" We disagreed on that, I think it is bad.My sister, who is hypo and happily takes only synthroid said she doesn't think I could be hypo, because she never had symptoms or felt sick at all when she was diagnosed. So, now I feel sort of crazy again. (She was fluke diagnosed when a specialist felt her throat and recognized the swelling of her thyroid)The nurse at my last visit said, "your hair looks fine" and "you have eyebrows - if you didn't have eyebrows, THEN you'd be hypo." Well, she didn't even let me tell her that my very long hair used to be very much thicker! It seems to be thinning for the first time in my life. Yes, it is waist length, but something is suddenly going wrong with it seeming less thick and full. She didn't look closely at my eyebrows to see that the outer 1/3 is very thin. My brother I've just noticed doesn't seem to have his outer 1/3 at all! (He's 18 yrs older than me)Am I nuts about this - isn't this hypo sort of stuff? Sometimes I just feel like a loon. There are more symtpoms, but how much do you want to read?Thanks for listening,-Lynn

[Guest guest]

Dear ,

Seeing as I'm sorta new here, I didn't know your story. You sure are a

beacon of hope for what can be done against this illness! I'm sitting

here typing as I listen to Naomi's New Morning on the Hallmark channel

and I can't help thinking how you'd make a great guest for them to give

hope to other people!

> ... digestion is back to normal...

This makes me wonder if I can get mine to normal. I've had heartburn

issues for years that I keep pretty much under control through watching

what I eat and eating real peppermint mints a couple times a day. I go

between not being able to " go " and having every week or two a total

" clear out " (not by my choice). I am lactose intolerant and am sick to

death of this all.

>

> That's why the group is here, why we are always pushing to not give up..

> to not just sit and 'wait and see' the sooner that you get the hormone

> levels CORRECT and not just 'in normal range' or 'close enough' the

> sooner your body gets back to living again.... it can repair a LOT of

> damage.. but if it's been too long.. or too bad... it can't fix some of

> that stuff.

Well, I think my course of action is going to be to go to healthcheckusa

and get a panel of tests done for about $80. I'll bring my results here

and ask for you folks to help me understand them. If you all thing I

truly am hypo at that point, I'll write a letter to my regular doc (he's

not bad - i stole my mother's doc who normally treats old folks - he's

better than some others I've seen). I'd like to write all my symptoms,

my test results, and tell him what I'd like for him to do. I " ll ask him

if he'll treat me accordingly - and if we can make it as cheap and quick

of an appointment as possible, because I'm going to have to pay for it

all myself. If he says he doesn't like my ideas, I guess I'll keep

writing to docs until I find one who will see me and treat reasonably.

I'll try to do this within a month - as soon as I have enough money to

cover it.

>

> ... I don't have free run

> of the house when others are home and often stay in my office all

> weekend and weeknights... Sitting at the puter... It's during the week

> that I get to be up and around and such...

Are you sure you're not me? This sounded like me at my house with my

family.

>

> Remember, and this part is hard... don't compare yourself with others

> when you are trying to decide how much you've improved... only judge how

> you are doing today over how you were doing yesterday, or last week, or

> last month or last year...... Be happy and proud of improvements that

> you've made and dont' be discouraged when you can't do something that

> someone else can.

>

> I can't run around the block and we have folks here that can run a mile,

> or more.... but I don't need crutches to go pee... to me that is profound.

>

> Make up your own yardstick.. and be proud!

Bless your heart for being so kind. Please see my letter to for

more info about where I'd like to be. I'm glad I found this group. I

tried a few others first, but I didn't fit in them, or they were so

large that my messages got lost and I couldn't keep up. At least I have

a snowball's chance in heck of keeping up with the pace here, at least

somewhat.

Thank you thank you thank you!

Hugs,

-Lynn