Re: Deb Re: polyps & IV's for sinus

[Guest guest]

Jen,

Neither of the 2 CF centers we have been with have done IV antibiotics for

sinus infections. Our old ENT would, then she got the bad end of the stick

when was on IV tobra for 6 weeks and ended up with kidney damage. It

really wasn't her fault as the cf docs were monitoring her levels and

changing doses, but they blamed her for starting on them in the

first place. What a mess, are you surprised we changed centers after that

happened?(along with a bunch of other crap).

Anyway, so here they do the sinus surgery and the bronch, then decide if she

needs IV's based on how her lungs look. They can't tell by listening or

chest x-rays, only by a bronch and I guess a chest CT...she has had one of

those and it was when she was sick so it showed the areas of infection I

guess. I don't know how much a chest CT costs but they aren't done

routinely. oh and by the way, I called everyone about our new insurance and

so the date for her surgery isn't set yet, we have to wait for them to

reauthorize the CT scan with InstantTrac, the surgery, and the bronch. It

should be done before school starts again I hope. (It better be!)

love,

M