Re: Connor Update - and The Wiggles!!!!

[Guest guest]

Kristy,

Im glad everything is going well. Eilish has her

antibiotics every 8hours. She's never managed to see

and of the people that have come. Once they had

LLyeton Hewitt and we were shopping and then another

time they had the people from the bookplace and

because Eilish was in a single room she couldn't go

down to the end with the others. It will be good to

get home. Even if they want you back for night at

least you can spend the day at home.

--- Kristy van Donderen

wrote:

> Guess who we had at the hospital today....yes, the

> Wiggles!!!!(Aussies will know who I'm talking about)

> It's just a shame that Connor didn't care less and

> Jayden wasn't there. Oh well, I enjoyed them!

> As for Connor, his PICC line went in really well

> yesterday. The poor thing hadn't eaten from 4:30am

> till when he came out of theatre at 5pm!! He's only

> having one lot of iv antibiotics a day which is

> hopefully going to work out really well. He has that

> in the morning and I've asked if we can go home

> after physio and come back early the next morning.

> It will be so much better being able to sleep at

> home and Connor will get more sleep here than in the

> noisy hospital. I'll hear tomorrow whether the big

> bosses approve of my suggestion.

> That's about all for now. Fingers crossed this cough

> is going to start clearing up soon and I'll keep

> everyone updated.

> Kristy,who only has an hour left before I take over

> from hubby back at the hospital.

>

>

__________________________________________________

[Guest guest]

What, pray tell are the Wiggles?

Rosemary in NY with 3 kids with CF

ages 10, 8 and 4!

e-mail : Rosemary3for3wCF@...

[Guest guest]

Dear All,

What a week!!

We aren't allowed to come home on night leave despite most of the doctors

agreeing it was a good idea. Sorry , but I dont think much of Dr at

the moment. He was the one who said no but the way he went about it and the way

he spoke to us on ward rounds didn't make me think much of him. Since then he's

been okay when I've seen him but I'm still fuming about the way he mentioned all

these things to the other doctors with him but didn't explain any of it to me. I

asked some questions but of course I thought of so many more after he left.

Basically he waltzed into the room, told the other Dr's Connor would need 2-3

weeks (!!) iv's, then 2-3 months inhaled Cipro(?) and then probably a

bronchosocpy and more iv's. I was horrified at hearing all these things aswell

as him dismissing night leave as though I'd asked for home iv's, that I didn't

get the chance for him to clarify everything. Since then I've spoken to other

Dr's and gotten more information. And Connor might not even have to have all

these other things but Dr never said they were only possibilities.

They'll be a new Dr in charge in a few days so I wonder what they'll say????

Anyway, Connor is doing really well. Because a bronch wasnt done they are

treating him as though he has cultuered PA. I guess it's a good thing but it's

also a pain if we have to go through all this for nothing. Hopefully his cough

will be fully gone by the end of his two weeks and he'll only need the inhaled

antibiotic and nothing more unless he gets sick again.

That's about all from down here. I've had a break today and been out to lunch

with some friends. Back in there tonight and not to many breaks this week as

is off to Bali for five days on Wednesday.

Kristy

[Guest guest]

I am torn with different feelings from your post. I think the doc must be a

real " ---- " How dare he not talk to you about all the info on your son and

just to the other docs. Did he think you were part of the furniture there. I

cant stand docs who do that. EVEN IF THEY ARE GOOD!!...It is nice you did

have the other docs to explain and sort out some of your frustrations or

lack of info, whichever. It is scary when you hear all that about your child

& it sure helps to know that they are just options or possiblities----that

way, you would know there are more they one way to help fix Connor up .Then

,- they would have been a comfort. What a dunce he is .He must have missed

all his psychology classes. Anyway. the break came and helped you thru that

storm.

I know it will be all up stream getting better now. Hopefully , the new crew

will be smoother. Hospital address,etc please...........

LOVE & HUGS to you all

GrandmomBEV

Re: Connor Update - and The Wiggles!!!!

Dear All,

What a week!!

We aren't allowed to come home on night leave despite most of the doctors

agreeing it was a good idea. Sorry , but I dont think much of Dr

at the moment. He was the one who said no but the way he went about it and

the way he spoke to us on ward rounds didn't make me think much of him.

Since then he's been okay when I've seen him but I'm still fuming about the

way he mentioned all these things to the other doctors with him but didn't

explain any of it to me. I asked some questions but of course I thought of

so many more after he left. Basically he waltzed into the room, told the

other Dr's Connor would need 2-3 weeks (!!) iv's, then 2-3 months inhaled

Cipro(?) and then probably a bronchosocpy and more iv's. I was horrified at

hearing all these things aswell as him dismissing night leave as though I'd

asked for home iv's, that I didn't get the chance for him to clarify

everything. Since then I've spoken to other Dr's and gotten more

information. And Connor might not even have to have all these other things

but Dr never said they were only possibilities. They'll be a new Dr

in charge in a few days so I wonder what they'll say????

Anyway, Connor is doing really well. Because a bronch wasnt done they are

treating him as though he has cultuered PA. I guess it's a good thing but

it's also a pain if we have to go through all this for nothing. Hopefully

his cough will be fully gone by the end of his two weeks and he'll only need

the inhaled antibiotic and nothing more unless he gets sick again.

That's about all from down here. I've had a break today and been out to

lunch with some friends. Back in there tonight and not to many breaks this

week as is off to Bali for five days on Wednesday.

Kristy

PLEASE do not post religious emails to the list.

-------------------------------------------

The opinions and information exchanged on this list should

IN NO WAY

be construed as medical advice.

PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS.

--------------------------------------------------

[Guest guest]

Bev,

Just incase Kristy doesn't;t get to you before she gets home the hsp addy

is; Womens & Childrens Hsp.

1 Kermode Street

NORTH ADELAIDE S.A. 5006

Re: Connor Update - and The Wiggles!!!!

>

>

> Dear All,

> What a week!!

> We aren't allowed to come home on night leave despite most of the doctors

> agreeing it was a good idea. Sorry , but I dont think much of Dr

> at the moment. He was the one who said no but the way he went about it and

> the way he spoke to us on ward rounds didn't make me think much of him.

> Since then he's been okay when I've seen him but I'm still fuming about

the

> way he mentioned all these things to the other doctors with him but didn't

> explain any of it to me. I asked some questions but of course I thought of

> so many more after he left. Basically he waltzed into the room, told the

> other Dr's Connor would need 2-3 weeks (!!) iv's, then 2-3 months inhaled

> Cipro(?) and then probably a bronchosocpy and more iv's. I was horrified

at

> hearing all these things aswell as him dismissing night leave as though

I'd

> asked for home iv's, that I didn't get the chance for him to clarify

> everything. Since then I've spoken to other Dr's and gotten more

> information. And Connor might not even have to have all these other things

> but Dr never said they were only possibilities. They'll be a new Dr

> in charge in a few days so I wonder what they'll say????

> Anyway, Connor is doing really well. Because a bronch wasnt done they are

> treating him as though he has cultuered PA. I guess it's a good thing but

> it's also a pain if we have to go through all this for nothing. Hopefully

> his cough will be fully gone by the end of his two weeks and he'll only

need

> the inhaled antibiotic and nothing more unless he gets sick again.

> That's about all from down here. I've had a break today and been out to

> lunch with some friends. Back in there tonight and not to many breaks this

> week as is off to Bali for five days on Wednesday.

> Kristy

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>

[Guest guest]

Thanks a bunch. I had her home addy But know kids like mail call in the

club(:):)

your a luv,

LOVE & HUGS, grandmomBEV

Re: Connor Update - and The Wiggles!!!!

Bev,

Just incase Kristy doesn't get to you before she gets home the hasp addy

is; Women's & Children's Hasp.

1 Kermode Street

NORTH ADELAIDE S.A. 5006

Re: Connor Update - and The Wiggles!!!!

>

>

> Dear All,

> What a week!!

> We aren't allowed to come home on night leave despite most of the doctors

> agreeing it was a good idea. Sorry , but I dont think much of Dr

> at the moment. He was the one who said no but the way he went about it and

> the way he spoke to us on ward rounds didn't make me think much of him.

> Since then he's been okay when I've seen him but I'm still fuming about

the

> way he mentioned all these things to the other doctors with him but didn't

> explain any of it to me. I asked some questions but of course I thought of

> so many more after he left. Basically he waltzed into the room, told the

> other Dr's Connor would need 2-3 weeks (!!) iv's, then 2-3 months inhaled

> Cipro(?) and then probably a bronchosocpy and more iv's. I was horrified

at

> hearing all these things aswell as him dismissing night leave as though

I'd

> asked for home iv's, that I didn't get the chance for him to clarify

> everything. Since then I've spoken to other Dr's and gotten more

> information. And Connor might not even have to have all these other things

> but Dr never said they were only possibilities. They'll be a new Dr

> in charge in a few days so I wonder what they'll say????

> Anyway, Connor is doing really well. Because a bronch wasnt done they are

> treating him as though he has cultuered PA. I guess it's a good thing but

> it's also a pain if we have to go through all this for nothing. Hopefully

> his cough will be fully gone by the end of his two weeks and he'll only

need

> the inhaled antibiotic and nothing more unless he gets sick again.

> That's about all from down here. I've had a break today and been out to

> lunch with some friends. Back in there tonight and not to many breaks this

> week as is off to Bali for five days on Wednesday.

> Kristy

>

>

>

> PLEASE do not post religious emails to the list.

>

>

> -------------------------------------------

>

>

> The opinions and information exchanged on this list should

> IN NO WAY

> be construed as medical advice.

>

> PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR

TREATMENTS.

>

> --------------------------------------------------

>

>

>