Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 Hi Jacquie: I'm very sorry to hear about your daughter's increasing difficulties. I can't even imagine the pain that you must be going through to see this happening to your daughter. Some of what you describe about 's legs turning blue reminds me of Raynaud's Disease/Phenomenon. Below is a bit more about it from a medical textbook. You can find a glossary of medical terms at http://allserv.rug.ac.be/~rvdstich/eugloss/EN/lijst.html to help get you through the medical words. Good luck! (another) ********************************* Raynaud Disease Raynaud disease refers to paroxysmal pallor or cyanosis of the digits of the hands or feet and infrequently the tips of the nose or ears (acral parts). It is caused by intense vasospasm of local small arteries or arterioles, principally of young, otherwise healthy women. Characteristically the fingers change color in the sequence white, blue, red. No organic changes are present in the arterial walls except late in the course, when intimal proliferation can appear. Of uncertain cause, Raynaud disease reflects an exaggeration of normal central and local vasomotor responses to cold or emotion. The course of Raynaud disease is usually benign, but long-standing, chronic cases can have atrophy of the skin, subcutaneous tissues, and muscles. Ulceration and ischemic gangrene are rare. In contrast, Raynaud phenomenon refers to arterial insufficiency of the extremities secondary to the arterial narrowing induced by various conditions, including systemic lupus erythematosus, progressive systemic sclerosis (scleroderma), atherosclerosis, or Buerger disease (see earlier). Raynaud phenomenon may be the first manifestation of any of these conditions. > Thanks for the replies. Sorry about the typo's, I was very low and > upset at the time. > has been tested for - H Pylori, dental and gum infections, > urinary and gynae problems, blood and other related as well as all > foods - every one of them. She has had bloods taken when fine and > when the CU is active (more like runnng riot) Been hospitalised for > observation and seen more doctors than any other child in her school. > Every test has come back normal, perfectly normal except her last > liver function which was borderline, bad not good. > We have pets, a dog and a cat,have always had them. She tested > negative to all blood testing for hair bugs etc. She has a younger > sister, karen is 15 and wears clothing for 11 year olds and underwear > for 9-10's, who is 10 and waiting to see skins about a circular rash > which is accompanied bu swelling of the soft tissue on her face, or > hands and pain in the joints. > That is my depressing story - oh and she was being treated by a paed > who didn't even speak to her, he spoke to me or the nursing staff, > poor man is in hospital with serious head injuries now, and it wasn't > me, hope his doc is as good as himself. With weather and illnesses > on her part she hasn't seen a paed for ages, but we managed to get an > appointment for next week, wednesday. > That is the whole story, apart from the fact that she has had this > for years and it is getting more and more severe, has just started > her first major year at high school and has exams, really important > ones in November and April/May to look forward to. > Thanx for any tips you can give me. > Take care of you > Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 Jacquie, has she had an ANA test done?? Love, ~Alena's Mom and tests > Thanks for the replies. Sorry about the typo's, I was very low and > upset at the time. > has been tested for - H Pylori, dental and gum infections, > urinary and gynae problems, blood and other related as well as all > foods - every one of them. She has had bloods taken when fine and > when the CU is active (more like runnng riot) Been hospitalised for > observation and seen more doctors than any other child in her school. > Every test has come back normal, perfectly normal except her last > liver function which was borderline, bad not good. > We have pets, a dog and a cat,have always had them. She tested > negative to all blood testing for hair bugs etc. She has a younger > sister, karen is 15 and wears clothing for 11 year olds and underwear > for 9-10's, who is 10 and waiting to see skins about a circular rash > which is accompanied bu swelling of the soft tissue on her face, or > hands and pain in the joints. > That is my depressing story - oh and she was being treated by a paed > who didn't even speak to her, he spoke to me or the nursing staff, > poor man is in hospital with serious head injuries now, and it wasn't > me, hope his doc is as good as himself. With weather and illnesses > on her part she hasn't seen a paed for ages, but we managed to get an > appointment for next week, wednesday. > That is the whole story, apart from the fact that she has had this > for years and it is getting more and more severe, has just started > her first major year at high school and has exams, really important > ones in November and April/May to look forward to. > Thanx for any tips you can give me. > Take care of you > Jacquie > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > urticaria-unsubscribeegroups > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 22, 2001 Report Share Posted June 22, 2001 Jacquie, here is a long shot but maybe worth looking into. Here is a link for symptoms of lupus. Love, ~Alena's Mom http://www.lupus.org/info/sym.html and tests > Thanks for the replies. Sorry about the typo's, I was very low and > upset at the time. > has been tested for - H Pylori, dental and gum infections, > urinary and gynae problems, blood and other related as well as all > foods - every one of them. She has had bloods taken when fine and > when the CU is active (more like runnng riot) Been hospitalised for > observation and seen more doctors than any other child in her school. > Every test has come back normal, perfectly normal except her last > liver function which was borderline, bad not good. > We have pets, a dog and a cat,have always had them. She tested > negative to all blood testing for hair bugs etc. She has a younger > sister, karen is 15 and wears clothing for 11 year olds and underwear > for 9-10's, who is 10 and waiting to see skins about a circular rash > which is accompanied bu swelling of the soft tissue on her face, or > hands and pain in the joints. > That is my depressing story - oh and she was being treated by a paed > who didn't even speak to her, he spoke to me or the nursing staff, > poor man is in hospital with serious head injuries now, and it wasn't > me, hope his doc is as good as himself. With weather and illnesses > on her part she hasn't seen a paed for ages, but we managed to get an > appointment for next week, wednesday. > That is the whole story, apart from the fact that she has had this > for years and it is getting more and more severe, has just started > her first major year at high school and has exams, really important > ones in November and April/May to look forward to. > Thanx for any tips you can give me. > Take care of you > Jacquie > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > If you do wish to unsubscribe then you can click on the following link: > urticaria-unsubscribeegroups > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > > This list is in the service of those who suffer from Chronic Urticaria (hives). We strive to support and lift each other as a worldwide cyber-family. > > We share whatever needs to be shared to help one another in our struggle with Chronic Urticria. Information provided in this forum is not to be taken as medical advice. Always consult your health professional before trying anything new. > > Any posting that is off the main topic of Chronic Urticaria, we post with a prefix of NCU -. This is done out of respect for those who do not wish to read such postings. > > Quote Link to comment Share on other sites More sharing options...
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