Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 - >I'm certain that I recall hearing anecdotes of asthma worsening on a lowfat >diet. Anybody? Me. There are other factors too, but even now if I run out of fat and don't eat enough for a couple days it gets a lot worse. >How about instances of anxiety and or heart irregularities due to: lowfat, >omega imbalances, and/or magnesium/mineral imbalances? This is harder to nail down, but a pancreatin (enzyme) supplement eliminated my anxiety problem. Switching to an NT-style diet wasn't enough by itself. Again, other factors are involved too, though, like eliminating grains -- they give me problems even with the supplement. Whether that would help her or a significant portion of other people with anxiety, though, is anyone's guess. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 Thanks ! How long were you low fat? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 It sounds heartless and maybe it is, but I'd let her sink or swim for a little longer. It doesn't sound like she's ready to change her diet yet, so even if you overwhelm her with facts she's going to always think that in the long run she's eating unhealthfully. Its like the Atkins diet, a lot of people lose weight on it but then they go back to low-fat eating because they're still afraid of fat. Just make it clear that there are other schools of thought but that you think everyone has to do what works for them, and let the subject drop. Maybe a year from now she'll ask you for some advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 - >Thanks ! How long were you low fat? I never really bought into the low fat craze, but I nonetheless ate that way a few times during my life. When I was a kid, my mom went on a tofu kick, during which our meals were low fat, and then later on an ultra-low fat, almost macrobiotic craze. Both times my asthma, which I got at an extremely early age apparently due to her smoking (she later quit, years before either low-fat period) worsened. Then when I was on my own I went through a time or two during which I could hardly afford to put food on my table, and so my diet of necessity became low in fat. I should mention, though, that's it's not merely the presence of sufficient fat in my diet which helps my asthma, but the nature of the fat I consume. PUFA vegetable oils (and of course trans fats) are both killers. If I eat something made with commercial mayonnaise, bang, asthma attack, but if I make homemade olive oil or coconut oil mayo, I'm fine. (I've pretty much given up on mayo because olive oil may tastes too strongly of olives for me and coconut oil mayo is an enormous pain in the neck because it solidifies.) And of course sugar's a killer too, and excess starch. Interestingly, though, fish, with its highly unsaturated oils, doesn't cause a problem, unlike even un-hydrogenated vegetable oils like corn oil. Unfortunately my asthma still tends to be very bad, or at least very reactive to the least little problem in the air (like a dusty room, a cat's litter box, the smoke and pollution from the World Trade Center disaster, sometimes I don't know what) so I can only hope that after a few years of eating only the best fats from grass-fed animals and fish and whatnot my system will manage to repair itself on a more fundamental level, but at least when I'm eating right and avoiding air problems it's vastly better than it used to be. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 > fine. (I've pretty much given up on mayo because olive oil may tastes too > strongly of olives for me and coconut oil mayo is an enormous pain in the > neck because it solidifies.) And of course sugar's a killer too, and Just a suggestion to try... I haven't tried it myself yet, but I would expect avocado oil or maybe almond oil (depending on the use) might work well. They should both be relatively mild compared to olive oil and they both have fairly favorable FA profiles (especially avocado). These possibilities seem somewhat less likely to be tasty, but if you really want mayo you might want to try peanut or untoasted sesame oil too. Peanut and sesame might benefit more from the addition of lime juice. Avocado and almond would probably do well with lemon. All of them would probably be good with white wine vinegar. However, all of the above has only been experimented on in my mind's kitchen. Real kitchens are much more tricky! ;-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2002 Report Share Posted April 23, 2002 At 02:14 PM 4/23/2002 -0400, you wrote: >I should mention, though, that's it's not merely the presence of sufficient >fat in my diet which helps my asthma, but the nature of the fat I >consume. PUFA vegetable oils (and of course trans fats) are both >killers. If I eat something made with commercial mayonnaise, bang, asthma >attack, but if I make homemade olive oil or coconut oil mayo, I'm >fine. You know it's interesting: I don't really have asthma (I think), but every time I get some Canola my chest closes up like asthma and it's hard to breathe. Took me forever to figure it out -- but they put Canola in so many things now, and since I'm not cooking with it any more I'm more sensitized to it. None of the other PUFA's do that -- I think it's a Canola thing. Heidi Schuppenhauer Trillium Custom Software Inc. heidis@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Heidi- >Took me forever to figure it out -- but they put Canola in so many >things now, and since I'm not cooking with it any more I'm more sensitized >to it. None of the other PUFA's do that -- I think it's a Canola thing. Canola is definitely a terrible, terrible oil for a wide variety of reasons, but I do have one theory about your experience -- trans fats. Manmade trans fats are really bad for asthmatics, and I've read in multiple locations that Canola oil contains trans fats despite not being hydrogenated due to some element of the processing required to manufacture it. (I say manmade because IIRC, CLA -- the much-vaunted fatty acid to be found in grass-fed meat and dairy -- is actually a naturally-occurring trans fat, but natural CLA is obviously very good for us.) - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 At 11:15 PM 4/23/2002 -0400, you wrote: >Heidi- > > >Took me forever to figure it out -- but they put Canola in so many > >things now, and since I'm not cooking with it any more I'm more sensitized > >to it. None of the other PUFA's do that -- I think it's a Canola thing. > >Canola is definitely a terrible, terrible oil for a wide variety of >reasons, but I do have one theory about your experience -- trans >fats. Manmade trans fats are really bad for asthmatics, and I've read in >multiple locations that Canola oil contains trans fats despite not being >hydrogenated due to some element of the processing required to manufacture >it. (I say manmade because IIRC, CLA -- the much-vaunted fatty acid to be >found in grass-fed meat and dairy -- is actually a naturally-occurring >trans fat, but natural CLA is obviously very good for us.) > >- Hmmm. I wonder if it's been studied. Why I wonder is that my boy, , has been tube fed since birth and mostly fed bottled products. After my Canola experience I took another look at the label -- and it was all Canola and Karo and soy. It seemed like he was having problems with it too ... so being the rebel that I am I mixed up my own mix (coconut oil and egg based: it's not ideal still and still has the Karo, but it's slowly improving -- there are multiple problems with getting food through a little tube!). Some of his issues actually seem to be clearing up -- he's had chronic sinus problems but they are clearing. So why are they feeding sick little kids Canola, Karo and soy? And why isn't anyone even looking at alternatives? These kids have a LOT of problems with asthma, but it's kind of accepted that when a kid has " problems " early in life that they may get asthma. Heidi Schuppenhauer Trillium Custom Software Inc. heidis@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 , I also have an anxiety problem and I'm curious about the pancreatin supplement. I don't think diet is the main problem for me since I have plenty of stress to account for the anxiety, but food has triggered some of my panic attacks (I decided it was because I was afraid there was something wrong with the food, but who knows). I'm doing an experiment with going off grains to see what happens, but it's too early to tell. Where did you get the idea to try that particular supplement? I'd really appreciate any more details about the supplement or other dietary changes that helped. Thanks, > > Me. There are other factors too, but even now if I run out of fat and > don't eat enough for a couple days it gets a lot worse. > > >How about instances of anxiety and or heart irregularities due to: lowfat, > >omega imbalances, and/or magnesium/mineral imbalances? > > This is harder to nail down, but a pancreatin (enzyme) supplement > eliminated my anxiety problem. Switching to an NT-style diet wasn't enough > by itself. Again, other factors are involved too, though, like eliminating > grains -- they give me problems even with the supplement. Whether that > would help her or a significant portion of other people with anxiety, > though, is anyone's guess. > > > > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 - >I don't think diet is the main problem for me since I >have plenty of stress to account for the anxiety, That could be so, but frankly I think it's highly likely that diet is at the root of it. The human system can withstand an awful lot of stress without becoming stressed out if it's properly nourished and doesn't have to deal with harmful, indigestible foods. People going on the SCD diet, for example (the Specific Carbohydrate Diet, designed to remedy bowel disease and described in _Breaking The Vicious Cycle_) are very frequently surprised at the seemingly-unrelated conditions which clear up after positive dietary change. The same can be said, actually, for most good diets, including NT, but that's probably because all genuinely good diets (which effect long-term rather than merely short-term change) are pretty closely related. >I'm >doing an experiment with going off grains to see what happens, That's a very good idea, but make sure to go off sugars too or your experiment may fail. You might want to avoid very starchy foods like potatoes too, but that may depend more on other details of your physiology. >Where did you get the idea to try that >particular supplement? I'd really appreciate any more details about >the supplement or other dietary changes that helped. Actually, I tried a pancreatic enzyme supplement for a completely different reason -- I suffer from allergies, and I read that in some fraction of cases, perhaps 20%, taking an amylase supplement helps or eliminates allergies because the allergies turn out to be due to undigested starches, so I bought a bottle of Lipanase (the particular pancreatin extract I happened to try) and took it faithfully with every meal for, I don't know, about a month, until I finished the bottle. During that time I noticed no change in my allergies, which isn't that surprising since I don't eat much in the way of starch, so once I finished the bottle I decided that particular experiment was over. The surprise was that I immediately started suffering from anxiety and attacks of what I've called the dreads -- problems I hadn't noticed I wasn't having during the month I took the pancreatin. So I bought another bottle, and almost overnight the anxiety cleared up. Then I stopped taking it again to see what happened -- and presto, the anxiety returned. I also experimented with a mixed enzyme supplement with various plant enzymes and a very small amount of pancreatin, but that didn't do anything for me that I could see, so I went back to the Lipanase and I haven't stopped taking it since. I'm not particularly happy with this state of affairs for the long term, since I wonder whether I'm causing my system to become dependent on an external supply of enzymes rather than merely taking care of a problem, but I'm trying to deal with that by eating a more raw diet. I should add that I have some pretty stunning stress in my life too, and while I wouldn't call the pancreatin a magic bullet and I wouldn't describe it that way to anyone, it does help enormously. Instead of being weighed down, sometimes even crippled, by anxiety, I just deal with things as they come. But the degree to which it's helpful even for people whose anxiety is rooted in digestion will probably depend to a great deal on what those people are eating. Taking all the enzymes in the world probably won't solve the problem for someone who continues to eat refined sugars, devitalized foods, trans fats, grains -- particularly grains not prepared the NT way -- etc. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 My wife and I did the low-fat thing for the first seven years we were together. I had recently joined the Navy and, since submarine food is pretty high-fat, didn't notice too much of an effect until I went on shore duty 3 years later. We only bought no-fat or low-fat, no red meat, no whole milk, no real eggs. I doubt we even got 30 grams of fat per day. After 3-4 years of that diet, I felt pretty terrible. I had lost weight while trying to gain, and I didn't seem able to build muscle at all. My wife met with a plague of conditions including asthma, psoriasis, IBS, reflux, etc. etc. I started researching nutrition and fitness to combat our failing health. Luckily, I happened across some info on the paleo diet, and adopted some very different eating habits. We ate fish and raw veggies nearly every day (red meat was still evil in our minds) and, although we both felt better, we were far from our youthful health and fitness levels. Having read extensively about the paleo diet, I ran across a paper that provided evidence that humankind had evolved to incorporate some amount of traditionally prepared foods into the diet. Shortly afterwards, I found the WAP site, and we adopted the NT diet (she's still not eating red meat, though). I noticed a pronounced change for the positive in both our physical and mental states over the course of the next two months. I still follow some paleo diet guidlines, such as macronutrient ratios (50F 28P 22C) and a reluctance to consume a lot of dairy, but we're NT for the most part. I've just gotten into making kraut and stocks, and expect a lot from the additions. One negative, though. Looking back over our checking account registers from years ago, our monthly grocery bill was only $175.00 seven years ago on the low-fat diet, but it tops $600 on NT. Maybe what we eat really doesn't matter all that much as the body reduces everything to amino acids and glucose anyhow, and NT is just a grocery store mafia conspiracy to make more money Take care, and have fun. Dan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 >>>>>One negative, though. Looking back over our checking account registers from years ago, our monthly grocery bill was only $175.00 seven years ago on the low-fat diet, but it tops $600 on NT. Maybe what we eat really doesn't matter all that much as the body reduces everything to amino acids and glucose anyhow, and NT is just a grocery store mafia conspiracy to make more money Take care, and have fun. ***Hi Dan, Ouch that's a painful grocery bill! But, have you adjusted for inflation? I'm pretty sure my grocery bill would've been quite a bit lower 7 years ago had i lived in the same location i do now and eaten the same foods. Also, are you getting your meat directly from the farm? If not, you can save a lot by buying direct and especially buying in bulk, such as a quarter or half an animal. Or in the case of sheep or goat, for instance, buying the whole animal. As far as produce, I ONLY buy at local farmers' markets in season and find the produce not only to be much fresher than the stuff shipped in from CA, but also cheaper. By buying directly from local farms, you can not only save money and get fresher and often more nutritious food, but also provide vital support to small farms, which are probably our only hope for authentic, nutrient-dense foods. IMO, one of the MOST important messages from the WAPF is supporting local small farmers - good for them, good for us, and good for the seventh generation... Suze Fisher Web Design & Development http://members.bellatlantic.net/~vze3shjg/ mailto:s.fisher22@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 >>>> so I went back to the Lipanase and I haven't stopped taking it since. I'm not particularly happy with this state of affairs for the long term, since I wonder whether I'm causing my system to become dependent on an external supply of enzymes rather than merely taking care of a problem, but I'm trying to deal with that by eating a more raw diet. ***, I've thought about this too. I've got both of my senior dogs on digestive enzymes (including pancreatin) and I think they've become dependent on them. I haven't read any literature that supports this, but I know some other folks feel this is a probability as well. This is one reason I don't take them myself, i think i'm too young to become dependent on them, and i don't want to spend the rest of my life on them. But when i did have a digestive problem a few months back, i took some for a short period. do you think that your body would again produce the necessary quantity of enzymes if you weaned yourself off them slowly? i don't mean *you* in particular, but as a general rule? i can't imagine that the body would totally lose it's ability to produce pancreatic enzymes through supplementation... Suze Fisher Web Design & Development http://members.bellatlantic.net/~vze3shjg/ mailto:s.fisher22@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 > (I say manmade because IIRC, CLA -- the much-vaunted fatty acid to be > found in grass-fed meat and dairy -- is actually a naturally-occurring > trans fat, but natural CLA is obviously very good for us.) I believe CLA is, in fact, a cis fatty acid rather than a trans fatty acid; however, trans vaccenic acid (sp?) which the human gut is readily capable of converting to CLA *is* a healthy naturally occurring trans fat (in butter). Funny thing: I actually read an article (on iVillage.com a while back, I think) by either a registered dietician or certified nutritionist that discouraged eating butter not only because of saturated fat, but also because of *trans fatty acid* content! Yep, they saw that there were trans fats and assumed they were bad rather than doing the work to find out whether such naturally occurring trans fats had a valid role! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 > > (I say manmade because IIRC, CLA -- the much-vaunted fatty acid to be > > found in grass-fed meat and dairy -- is actually a naturally- occurring > > trans fat, but natural CLA is obviously very good for us.) > > I believe CLA is, in fact, a cis fatty acid rather than a trans fatty acid; > however, trans vaccenic acid (sp?) which the human gut is readily capable of > converting to CLA *is* a healthy naturally occurring trans fat (in butter). The 'conjugated' part of Conjugated Linoleic Acid refers to the fact that it has one cis and one trans. There are actually three kinds of naturally occuring CLA: 9 cis, 11 trans; 10 trans 12 cis; and 11 cis 13 trans. The most common is the 9cis 11trans. CLA also works for the same reason that trans fats are nasty: the odd shape at the trans bond blocks the actions of certain enzymes. Its just that for CLA it blocks bad reactions. For example, 10trans 12cis blocks lipoprotein lipase, which results in lean animals. The CLA studies have not been corroborated in humans, but that may be for one of two reasons: one is that most humans have a high 'bad' trans load which will counter the effects of the 'good' trans, and the other is because CLA supplements are not dairy derived, but are produced by hydrogenated high linoleic sunflower oil, resulting in a high content of bad trans! > > > Funny thing: I actually read an article (on iVillage.com a while back, I > think) by either a registered dietician or certified nutritionist that > discouraged eating butter not only because of saturated fat, but also > because of *trans fatty acid* content! Yep, they saw that there were trans > fats and assumed they were bad rather than doing the work to find out > whether such naturally occurring trans fats had a valid role! It would be hard to expect someone to do that with all the demonizing (in nutritional circles) or trans fats. CLA is still pretty cutting edge. We only know about it because its found in grassfed ruminants, and therefore justifies our dietary choices. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 > it's not ideal still and still has the Karo, but it's slowly improving -- > there are multiple problems with getting food through a little tube!). Some > of his issues actually seem to be clearing up -- he's had chronic sinus > problems but they are clearing. Heidi, Why does it still have the Karo? Is there something particular about it that couldn't be provided by some other sugar syrup like Lundberg Farms GF Rice Syrup, honey, maple syrup, or even a Sucanat or Rapadura syrup? I would even expect a frozen concentrate apple juice to be a better alternative...? I'm really just curious; I don't claim to know anything about the specifics of the mix and its requirements. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 At 11:10 AM 4/24/2002 -0500, you wrote: >Heidi, > >Why does it still have the Karo? Is there something particular about it >that couldn't be provided by some other sugar syrup like Lundberg Farms GF >Rice Syrup, honey, maple syrup, or even a Sucanat or Rapadura syrup? I >would even expect a frozen concentrate apple juice to be a better >alternative...? I'm really just curious; I don't claim to know anything >about the specifics of the mix and its requirements. We tried molasses first, but it gets too thick: I think honey would have the same problem. The mix has to be kept cold, because he's fed at 15 minute intervals and it's just not feasible to heat up small amounts every 15 minutes. For some reason it thickens the whole mix and it won't go through the tube. I'm trying to keep the protein/fat/carb ratios about the same as the formula (on the theory that they did more research on kids than I have and it basically works), but carbs tend to be thick and clog the tubes. We don't experiment TOO quickly because he reacts -- we change one thing at a time, gradually. Juices caused diarrhea in our older kid, and the pediatrician said that was typical, so I guess I've avoided them for that reason. I need to do more research on sugars. Glucose, maltose, fructose -- they all get digested differently!!!! The corn syrup seems to be the standard for kid's formulas, I'm guessing because it gets sucked into the bloodstream quickly and doesn't go into the gut to screw up the bacteria/digestion there, and it doesn't cause blood sugar spikes. Which is not generally a good thing, for kids, but I'm not sure if it's good for him or not. Sugar metabolism issues are almost as complicated as fat metabolism issues. What I REALLY need is to talk the docs into a wider tube, so we can grind up more normal foods. Like steak maybe! And to get him to EAT (he's beginning to, but it's a slow process: he basically can eat ok, but he has an abnormal gag reflex). Heidi Schuppenhauer Trillium Custom Software Inc. heidis@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 > We tried molasses first, but it gets too thick: I think honey would have > the same problem. The mix has to be kept cold, because he's fed at 15 > minute intervals and it's just not feasible to heat up small amounts every > 15 minutes. For some reason it thickens the whole mix and it won't go > through the tube. I'm trying to keep the protein/fat/carb ratios about the > same as the formula (on the theory that they did more research on kids than > I have and it basically works), but carbs tend to be thick and clog the > tubes. We don't experiment TOO quickly because he reacts -- we change one > thing at a time, gradually. Juices caused diarrhea in our older kid, and > the pediatrician said that was typical, so I guess I've avoided them for > that reason. Couldn't you dilute the molasses, honey, or rice syrup to achieve the right consistency? Granted it would increase the total volume slightly, but I wouldn't think it would require a large increase... I suspect the higher mineral content in the alternative syrups would make the extra water desirable anyway... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 > > We tried molasses first, but it gets too thick: I think honey would have > > the same problem. The mix has to be kept cold, because he's fed at 15 > > minute intervals and it's just not feasible to heat up small amounts every > > > 15 minutes. For some reason it thickens the whole mix and it won't go > > through the tube. I'm trying to keep the protein/fat/carb ratios about the > > > same as the formula (on the theory that they did more research on kids > than > > I have and it basically works), but carbs tend to be thick and clog the > > tubes. We don't experiment TOO quickly because he reacts -- we change one > > thing at a time, gradually. Juices caused diarrhea in our older kid, and > > the pediatrician said that was typical, so I guess I've avoided them for > > that reason. > > Couldn't you dilute the molasses, honey, or rice syrup to achieve the right > consistency? Granted it would increase the total volume slightly, but I > wouldn't think it would require a large increase... I suspect the higher > mineral content in the alternative syrups would make the extra water > desirable anyway... Why the emphasis on sugars? Why not a nice starch like tomatos made into a puree or soup? That should flow pretty nicely. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Heidi- >I'm trying to keep the protein/fat/carb ratios about the >same as the formula (on the theory that they did more research on kids than >I have and it basically works), Given the monstrous crap that masquerades as baby food, I wouldn't consider that a sound assumption. I think you'd do much better to base the mixture more on the milk replacer recipe in NT and avoid corn syrup like the plague. At the very least, replace it with a whole sweetener like maple syrup -- still bad, but better. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 - Right, it's coming back to me now, but the papers and articles I read a year or two ago indicated that nobody knew how the different forms functioned in the body. Is there new information on this? >The 'conjugated' part of Conjugated Linoleic Acid refers to the fact >that it has one cis and one trans. There are actually three kinds of >naturally occuring CLA: 9 cis, 11 trans; 10 trans 12 cis; and 11 cis >13 trans. The most common is the 9cis 11trans. > >CLA also works for the same reason that trans fats are nasty: the odd >shape at the trans bond blocks the actions of certain enzymes. Its >just that for CLA it blocks bad reactions. For example, 10trans 12cis >blocks lipoprotein lipase, which results in lean animals. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Heidi- >So why are they feeding sick little kids Canola, Karo and soy? Because these ingredients are cheap for them to acquire and produce and thus provide a high profit margin compared to healthy whole foods. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2002 Report Share Posted April 24, 2002 Suze- >do you think that your body would again produce the necessary quantity of >enzymes if you weaned yourself off them slowly? i don't mean *you* in >particular, but as a general rule? i can't imagine that the body would >totally lose it's ability to produce pancreatic enzymes through >supplementation... That's my theory. My plan is to improve my health as much as possible, and, when I'm healthier and eating a more raw diet (i.e. more RAF) gradually decrease my pancreatin dose and see what happens. Obviously I was suffering from enzyme insufficiency to start with, but hopefully I can get things going to the point where I someday won't need a supplement anymore. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 At 05:50 PM 4/24/2002 +0000, you wrote: >Why the emphasis on sugars? Why not a nice starch like tomatos made >into a puree or soup? That should flow pretty nicely. > > Or better -- I think I have the name of a doc who will just replace the silly tube with something bigger. Then we can just go for hamburger! And vegies and whatever. (I just came back from a GREAT doctor appointment with an allergist for ). The reason for the sugars is for n calories of carbohydrates in a small volume. Tomato juice has next to no calories. But I don't like the idea of everything being so pureed either: the gut actually does better when things are a bit chunky and dissolve slower. The allergist also did a CT scan, and it looks like most of his nasal problems can be fixed easily (turns out he has a VERY deviated septum), which should make it easier for him to digest stuff. Then we can vary his diet more. Heidi Schuppenhauer Trillium Custom Software Inc. heidis@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2002 Report Share Posted April 25, 2002 At 12:47 PM 4/24/2002 -0500, you wrote: >Couldn't you dilute the molasses, honey, or rice syrup to achieve the right >consistency? Granted it would increase the total volume slightly, but I >wouldn't think it would require a large increase... I suspect the higher >mineral content in the alternative syrups would make the extra water >desirable anyway... > > That's the problem: volume! He was tube fed as a baby, and his stomach doesn't hold much. So he has to be fed minute amounts at close intervals or he throws up. Used to be he'd throw up 10 times a day. Which needless to say was not good for nutrition or his esophagus. We've managed to get that better by very careful manipulation of a lot of factors. Now we can feed him a whole 2 oz at a time. He's much, much better than he was, and if we get a bigger tube (mentioned in previous post today) then maybe we can just feed him solid food, which should stay down better, then we can work on expanding his stomach. I don't much like the idea of feeding a kid on sugar anyway, but there's a Maslow's triangle involved: first you keep the kid alive, then you get him to gain weight, then you start working on making things more ideal. 2 years ago he was below the 0'th percentile weight wise: when we got it up to 50% the docs were amazed ( " That NEVER happens! " ). What we really want is to just grind up a " normal " meal and get him used to regular food. So now I need to work on tube issues. Which is still my original point: why are the doctors so content to keep feeding a kid out of a can? If I was the doc, I'd be pestering the parents to start making some nice real, ground up food and give them some suggestions for nutrition and digestability. But as it is, even the " nutritionist " is pretty much content to use " meal replacers " . Heidi Schuppenhauer Trillium Custom Software Inc. heidis@... Quote Link to comment Share on other sites More sharing options...
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