Guest guest Posted August 5, 2001 Report Share Posted August 5, 2001 Ted, I'm sorry to for all you've been going through. It's so awful. I'm sorry to but in but she should know better about smoking around her son. My husband is a smoker, but he has always gone outside to smoke and makes sure he airs himself out before coming back in. About the enzymes we were always told that as long as we give the enzymes within n hour of eating. But that doesn't seem to work well when it's with fatty foods. So our son usually does 2 before eating his pizza and one after. It was recommended he take an extra one with real fatty things. Since it takes young kids so long to eat I'd make sure he gets at least one before beginning to eat. I wish you luck and hope everything turns out for the best. Miranda mom to , 6w/cf, and Isabelle, 11months w/cf >Hi Everyone > >Just a little question about enzymes. >Here is what I think about enzymes. Enzymes I always have thought should >be given to my son before he eats. Like right before he eats and if I am >unsure as to the amount he is going to eat I can divide them up. maybe >half way through his meal give him more if he is still going to keep >eating. >Why I am asking is probably a good question. I just got to see my son >after a long dispute in the courts and I can say I am shocked at the care >he is getting. My experience was terrible observing my son sitting in the >smoking section of the food court in the mall. His mom selected the spot. >He was eating pizza. I would of given him his enzymes before eating but >she is in charge here as I have visitation with her supervision. Anyway I >said to her aren't you going to give him his enzymes here. She told me she >gives him his enzymes after he eats this way she knows how much to give >him. He started eating pizza and the time from the first bite of pizza >till enzymes were given was around 30 minutes. >I am tired of arguing with her about his care and am representing myself in >court. She is claiming to be the professional here and has denied me >access for a long time now. So I am not putting up a fight. Saving it for >the court. Still I question this idea on giving enzymes after eating. >But maybe there is something I don't know about this. I already know her >smoking around him is not good but she truly does not care at all as her >friends came over and lit up at the same table. I am forced into a bad >situation here and it breaks my heart. I cannot risk any disputes with >Jen as it will get me no where and most likely just get more >neglected. I am working on getting him out of this situation. Its just >taking some time. >If anyone does give enzymes after there child eats I would like to know >more as to the thinking of this. >His weight gain has been slow and well at this moment I can understand why >if I understand correctly. It was always before he eats before, but now >its different. She does this often, I find flipping things over and >thinking its like this and always was. I swear she is loosing her mind. > >father of wcf turning 3 this month >Ted > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2001 Report Share Posted August 5, 2001 Miranda, We were told that enzymes only last half an hour before more are needed, and they should be given just before food and then the rest half way through. I don't think they'd last an hour, well not our one anyway. Re: Enzyme question > Ted, > > I'm sorry to for all you've been going through. It's so awful. I'm sorry > to but in but she should know better about smoking around her son. My > husband is a smoker, but he has always gone outside to smoke and makes sure > he airs himself out before coming back in. About the enzymes we were always > told that as long as we give the enzymes within n hour of eating. But that > doesn't seem to work well when it's with fatty foods. So our son usually > does 2 before eating his pizza and one after. It was recommended he take an > extra one with real fatty things. Since it takes young kids so long to eat > I'd make sure he gets at least one before beginning to eat. I wish you luck > and hope everything turns out for the best. > > Miranda mom to > , 6w/cf, and Isabelle, 11months w/cf > > > > >Hi Everyone > > > >Just a little question about enzymes. > >Here is what I think about enzymes. Enzymes I always have thought should > >be given to my son before he eats. Like right before he eats and if I am > >unsure as to the amount he is going to eat I can divide them up. maybe > >half way through his meal give him more if he is still going to keep > >eating. > >Why I am asking is probably a good question. I just got to see my son > >after a long dispute in the courts and I can say I am shocked at the care > >he is getting. My experience was terrible observing my son sitting in the > >smoking section of the food court in the mall. His mom selected the spot. > >He was eating pizza. I would of given him his enzymes before eating but > >she is in charge here as I have visitation with her supervision. Anyway I > >said to her aren't you going to give him his enzymes here. She told me she > >gives him his enzymes after he eats this way she knows how much to give > >him. He started eating pizza and the time from the first bite of pizza > >till enzymes were given was around 30 minutes. > >I am tired of arguing with her about his care and am representing myself in > >court. She is claiming to be the professional here and has denied me > >access for a long time now. So I am not putting up a fight. Saving it for > >the court. Still I question this idea on giving enzymes after eating. > >But maybe there is something I don't know about this. I already know her > >smoking around him is not good but she truly does not care at all as her > >friends came over and lit up at the same table. I am forced into a bad > >situation here and it breaks my heart. I cannot risk any disputes with > >Jen as it will get me no where and most likely just get more > >neglected. I am working on getting him out of this situation. Its just > >taking some time. > >If anyone does give enzymes after there child eats I would like to know > >more as to the thinking of this. > >His weight gain has been slow and well at this moment I can understand why > >if I understand correctly. It was always before he eats before, but now > >its different. She does this often, I find flipping things over and > >thinking its like this and always was. I swear she is loosing her mind. > > > >father of wcf turning 3 this month > >Ted > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2001 Report Share Posted August 5, 2001 Ted, I can only tell you what we do. Firstly your ex sounds so irresponsible. Most people would do anything to the letter for the health of there child. With enzymes Eilish has half of what she takes just prior to eating and then the other half about half way through. Although we probably give about 3/4 at the beginning as her eating winds down towards the end. We were told enzymes only last half an hour before more are needed, so if she gives them later than that then he mays as well not take any. Whats his weight and growth like? I hope the courts will listen to you. COuld you get some extra support from a cf assocaition or clinic? Surely they would have the health of the child as first priority and with her smoking is not helping him. Good Luck Ted. My daughter is also three, but 4 next week. Enzyme question > Hi Everyone > > Just a little question about enzymes. > Here is what I think about enzymes. Enzymes I always have thought should be given to my son before he eats. Like right before he eats and if I am unsure as to the amount he is going to eat I can divide them up. maybe half way through his meal give him more if he is still going to keep eating. > Why I am asking is probably a good question. I just got to see my son after a long dispute in the courts and I can say I am shocked at the care he is getting. My experience was terrible observing my son sitting in the smoking section of the food court in the mall. His mom selected the spot. He was eating pizza. I would of given him his enzymes before eating but she is in charge here as I have visitation with her supervision. Anyway I said to her aren't you going to give him his enzymes here. She told me she gives him his enzymes after he eats this way she knows how much to give him. He started eating pizza and the time from the first bite of pizza till enzymes were given was around 30 minutes. > I am tired of arguing with her about his care and am representing myself in court. She is claiming to be the professional here and has denied me access for a long time now. So I am not putting up a fight. Saving it for the court. Still I question this idea on giving enzymes after eating. But maybe there is something I don't know about this. I already know her smoking around him is not good but she truly does not care at all as her friends came over and lit up at the same table. I am forced into a bad situation here and it breaks my heart. I cannot risk any disputes with Jen as it will get me no where and most likely just get more neglected. I am working on getting him out of this situation. Its just taking some time. > If anyone does give enzymes after there child eats I would like to know more as to the thinking of this. > His weight gain has been slow and well at this moment I can understand why if I understand correctly. It was always before he eats before, but now its different. She does this often, I find flipping things over and thinking its like this and always was. I swear she is loosing her mind. > > father of wcf turning 3 this month > Ted > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2001 Report Share Posted August 5, 2001 Hi Ted I'm just heart broken by your post.What an awful position you are in. My own personal advice would be to call or make an appt with your son's doctors and ask questions, tell them what is going on without getting into the whole schpeal. I'd ask for everything in writting. I'd also get some cf books and paragraph off the first chapter (which in almost all books, starts off with the dangers/damage of smoke and CF). Maybe this can be helpful. I hope your son is doing well. Take Care, Stein.....mom to CF (14 mo) & Tori wo/CF (4 yr) > Hi Everyone > > Just a little question about enzymes. > Here is what I think about enzymes. Enzymes I always have thought should be given to my son before he eats. Like right before he eats and if I am unsure as to the amount he is going to eat I can divide them up. maybe half way through his meal give him more if he is still going to keep eating. > Why I am asking is probably a good question. I just got to see my son after a long dispute in the courts and I can say I am shocked at the care he is getting. My experience was terrible observing my son sitting in the smoking section of the food court in the mall. His mom selected the spot. He was eating pizza. I would of given him his enzymes before eating but she is in charge here as I have visitation with her supervision. Anyway I said to her aren't you going to give him his enzymes here. She told me she gives him his enzymes after he eats this way she knows how much to give him. He started eating pizza and the time from the first bite of pizza till enzymes were given was around 30 minutes. > I am tired of arguing with her about his care and am representing myself in court. She is claiming to be the professional here and has denied me access for a long time now. So I am not putting up a fight. Saving it for the court. Still I question this idea on giving enzymes after eating. But maybe there is something I don't know about this. I already know her smoking around him is not good but she truly does not care at all as her friends came over and lit up at the same table. I am forced into a bad situation here and it breaks my heart. I cannot risk any disputes with Jen as it will get me no where and most likely just get more neglected. I am working on getting him out of this situation. Its just taking some time. > If anyone does give enzymes after there child eats I would like to know more as to the thinking of this. > His weight gain has been slow and well at this moment I can understand why if I understand correctly. It was always before he eats before, but now its different. She does this often, I find flipping things over and thinking its like this and always was. I swear she is loosing her mind. > > father of wcf turning 3 this month > Ted > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 Ted, I am horrified by the story of your son's mother and her treatment of him. My advice is not about enzymes, (we give them before the meal here and it works beautifully) but about your divorce. GET A LAWYER. PLEASE! I know it costs money, but for your son's sake it would be worth it. Having a private investigator document her care of your son and then bringing in his clinic doctors at your divorce hearing to show what shoddy care he is getting would definitely improve your chances of getting joint custody or what ever custody you are seeking. At least have an initial meeting with an attorney (they are usually free of charge) and see what they say - explain the situation and have them lay out a game plan - you could get some ideas. Krishnan Mom to Santosh, 4 a week from Tuesday with CF and Leela, almost 2 wcf Enzyme question Hi Everyone Just a little question about enzymes. Here is what I think about enzymes. Enzymes I always have thought should be given to my son before he eats. Like right before he eats and if I am unsure as to the amount he is going to eat I can divide them up. maybe half way through his meal give him more if he is still going to keep eating. Why I am asking is probably a good question. I just got to see my son after a long dispute in the courts and I can say I am shocked at the care he is getting. My experience was terrible observing my son sitting in the smoking section of the food court in the mall. His mom selected the spot. He was eating pizza. I would of given him his enzymes before eating but she is in charge here as I have visitation with her supervision. Anyway I said to her aren't you going to give him his enzymes here. She told me she gives him his enzymes after he eats this way she knows how much to give him. He started eating pizza and the time from the first bite of pizza till enzymes were given was around 30 minutes. I am tired of arguing with her about his care and am representing myself in court. She is claiming to be the professional here and has denied me access for a long time now. So I am not putting up a fight. Saving it for the court. Still I question this idea on giving enzymes after eating. But maybe there is something I don't know about this. I already know her smoking around him is not good but she truly does not care at all as her friends came over and lit up at the same table. I am forced into a bad situation here and it breaks my heart. I cannot risk any disputes with Jen as it will get me no where and most likely just get more neglected. I am working on getting him out of this situation. Its just taking some time. If anyone does give enzymes after there child eats I would like to know more as to the thinking of this. His weight gain has been slow and well at this moment I can understand why if I understand correctly. It was always before he eats before, but now its different. She does this often, I find flipping things over and thinking its like this and always was. I swear she is loosing her mind. father of wcf turning 3 this month Ted Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 Ted- I must echo 's concern. Having been througha divorce many years ago, I understand what you are saying in terms of not stirring up the waters too much. On the other hand, your son is in a different situation than many children. Waiting until you get to court could take many months and by that time, he could have suffered physical harm from the effects of her poor decision making. Clearly, a child with cf or any other respiratory illness should not be near second hand smoke. In addition, the enzyme situation will surely result in physical symptoms, if it persists. Your son, at the very least will have belly aches and diaharrea and quite likely will lose weight from malabsorbtion if he continues to take his enzymes at the end of his meals. By the time he gets the enzymes into his stomach, the food has already passed through. My advice would be to call his cf doctor and either make an appointment to sit down with him/her to address your concerns or call and leave a message for the doctor to call you in the evening to discuss things.You need an objective person to give you feedback before you discuss things with your child's mother. As his father, you have every right to talk to the doctor about your concerns. She will probably be very upset with you for calling the doctor, but that is too bad- it is your son's health that matters. ' weight may be good now, but later on it may not be. My son was a little chubba lubba as a baby and I really thought he was going to be one of the few cf patients who did not have to worry about calories. He is 6 now and very skinny, despite a high calorie diet and proper enzymes. Finally, I urge you to obtain an attorney. Do not represent yourself- frankly, you will get screwed. I know it is tempting to save money and also to get things over with as soon as possible, but it is a mistake- take it from one who knows. I spent many years after my divorce back in court trying to re-do things I did too quickly or that were not in my son's best interest. Please don't make this mistake. Even though fighting for your son will be more difficult, it is so very worth it. We will be here to support you. It is very possible that your ex is not thinking rationally right now. In her defense, everyone goes through some pretty rough times emotionally when a relationship ends. It is generally quite a while before people can put their anger/ hurt/ bitterness aside. Unfortunately, your little guy does not have time to wait. Damage that is done today does not show up until later, but make no mistake- it will show up. Please let us know how you are doing. We care about you. Been there, Debi > >Reply-To: cfparents >To: <cfparents > >Subject: RE: Enzyme question >Date: Mon, 6 Aug 2001 07:50:45 -0400 > >Ted, > >I am horrified by the story of your son's mother and her treatment of him. > >My advice is not about enzymes, (we give them before the meal here and it >works beautifully) but about your divorce. GET A LAWYER. PLEASE! I know >it costs money, but for your son's sake it would be worth it. Having a >private investigator document her care of your son and then bringing in his >clinic doctors at your divorce hearing to show what shoddy care he is >getting would definitely improve your chances of getting joint custody or >what ever custody you are seeking. > >At least have an initial meeting with an attorney (they are usually free of >charge) and see what they say - explain the situation and have them lay out >a game plan - you could get some ideas. > > Krishnan >Mom to Santosh, 4 a week from Tuesday with CF and Leela, almost 2 wcf > > Enzyme question > > >Hi Everyone > >Just a little question about enzymes. >Here is what I think about enzymes. Enzymes I always have thought should >be >given to my son before he eats. Like right before he eats and if I am >unsure as to the amount he is going to eat I can divide them up. maybe >half >way through his meal give him more if he is still going to keep eating. >Why I am asking is probably a good question. I just got to see my son >after >a long dispute in the courts and I can say I am shocked at the care he is >getting. My experience was terrible observing my son sitting in the >smoking section of the food court in the mall. His mom selected the spot. >He was eating pizza. I would of given him his enzymes before eating but >she >is in charge here as I have visitation with her supervision. Anyway I said >to her aren't you going to give him his enzymes here. She told me she >gives >him his enzymes after he eats this way she knows how much to give him. He >started eating pizza and the time from the first bite of pizza till enzymes >were given was around 30 minutes. >I am tired of arguing with her about his care and am representing myself in >court. She is claiming to be the professional here and has denied me >access for a long time now. So I am not putting up a fight. Saving it for >the court. Still I question this idea on giving enzymes after eating. >But >maybe there is something I don't know about this. I already know her >smoking around him is not good but she truly does not care at all as her >friends came over and lit up at the same table. I am forced into a bad >situation here and it breaks my heart. I cannot risk any disputes with >Jen >as it will get me no where and most likely just get more neglected. >I am working on getting him out of this situation. Its just taking some >time. >If anyone does give enzymes after there child eats I would like to know >more >as to the thinking of this. >His weight gain has been slow and well at this moment I can understand why >if I understand correctly. It was always before he eats before, but now >its different. She does this often, I find flipping things over and >thinking its like this and always was. I swear she is loosing her mind. > >father of wcf turning 3 this month >Ted > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2001 Report Share Posted August 6, 2001 " It is recommended that the total dose of pancrelipase being ingested for a meal or snack be dispersed equally (with fluids) before, during, and after the meal or snack. " from package labeling for Ultrase. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 My sister is a pediatrician in Mass. She told me of a parent with a child with CF whose child was taken by the State solely because parent refused to quit smoking around the child. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2001 Report Share Posted August 7, 2001 In a message dated 8/7/01 9:16:04 AM Central Daylight Time, jfkdc@... writes: << My sister is a pediatrician in Mass. She told me of a parent with a child with CF whose child was taken by the State solely because parent refused to quit smoking around the child. >> That is the way it should be! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.