NCU for Terry

[Guest guest]

Listen here Mr. Mittensota Terry!!!!!!!! You will not let this thing beat

you down! You will go and enjoy a wonderful trip to Iowa, A 38 foot 5th

wheel sounds like a perfect way to go and forget all of this mess. My

grandfather was from Remson sp? I think it is in northern Iowa. Still have

a lot of relatives around there. (YIKES lol) Terry, whether or not you are

talking to " HIM " I believe he is listening and waiting. Talking to " Him " is

not easy for me either. I was raised catholic, went to catholic school, my

cousin is a catholic priest, married a muslim in a catholic church (yep, it

can happen lol) then things happen that aren't fair and are not supposed to

and needing someone to blame makes it easiest to stop talking to " Him "

However, personally when I am at my wits end and tired of all of it, I

reflect on " Footprints in the Sand " or a very personel favorite of mine

goes like this

Dear God:

So far today I have done alright. I haven't gossiped, I haven't lost my

temper, haven't been greedy, grumpy, nasty, selfish or overly indulgent.

But in a few minutes, Lord, I am going to get out of bed, and from then on,

I am probably going to need a lot more help. AMEN

A little humor goes a long way. Love, ~Alena's Mom

PS, I think her appointment went very well. We will have to wait for lab

work to come back but he definately thinks this is mastocyotsis. And I will

let you know when the story comes out in the paper.

Terry's update...

> Hi Guys,

> Well, it's now just over two weeks since the apex surgery on my tooth,

> and I can't really tell if the hives are better or not. They may be.

> I was down to 9mg of prednisone per day but had to go back to 10mg

> about a week ago. I also doubled dosed on alegra for a couple of days

> and that really helped. I just got a new batch of interferon and it

> seems to be affecting me a little more than usual. It's really touchy

> stuff. If it goes below 36 degress or above 42 degrees, it seems to

> lose it's potentcy. Also, you have to change the injection sites

> frequently, because after so many doses, the tissue in that area

> doesn't seem to be as receptive. I can tell by the side affects, so

> then I change. I haven't really had hives for a few days, but

> man do I hurt. I'm sore all over. Anyway, I thought that for the

> next week or so I'd keep meds at the curent levels cause I'm gonna' go

> on vacation for a week or so and don't really want to rock the boat.

> As for the tooth, I'll give it a little time, and if things don't seem

> better, it's outta' here... ) I see my new doc., Dr. Volcheck at the

> Mayo in mid August, and I'm going to run all of the changes by him and

> see what he thinks. Until then, I think I can hold on. Bigger

> problem is that I seem to be losing my faith a little bit. I'm kind

> of angry. So I haven't been talking to the big guy as much as usual

> lately, but I think about Him alot. Oh well, I'm sure this will pass

> too. Anyway, as I mentioned, I'm going on vacation for about a week

> and a half starting tomorrow. I'm gonna' take my wife and kids

> camping. You know... no phones, no lights, no motor cars, not a

> single luxury... well kind of. We have a 38 foot luxury fifth wheel

> trailer that's nicer than a holiday inn, so it won't be too rough.

> We're going to Iowa to see family and a couple of water parks and an

> amusement park. Given the weather forcast, it should be really hot

> and steamy. So, everyone, know that I'll be thinking of you all and

> that I'll check in when I get back.

>

> Love, your friend in mittensota, where the mosquito's are the state

> bird ) and that's no joke this summer.

> Terry

>

>

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> If you do wish to unsubscribe then you can click on the following link:

> urticaria-unsubscribeegroups

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

> This list is in the service of those who suffer from Chronic Urticaria

(hives). We strive to support and lift each other as a worldwide

cyber-family.

>

> We share whatever needs to be shared to help one another in our struggle

with Chronic Urticria. Information provided in this forum is not to be taken

as medical advice. Always consult your health professional before trying

anything new.

>

> Any posting that is off the main topic of Chronic Urticaria, we post with

a prefix of NCU -. This is done out of respect for those who do not wish to

read such postings.

>

>

[Guest guest]

Dearest ,

I don't know if anyone of us has said it lately, but, YOUR THE

GREATEST! Believe it or not, I actually got signed on from home, (my

son is at soccer practice). When I saw your post, it touched me so

deeply. I know that HE sent all of you to me to help me battle and

not give up. I too grew up as catholic being a good italian boy and

all, but I have recently converted to the church of Jesus Christ of

LDS. I try hard most of the time, and I know that there will be

bumps in the road of life, but it doesn't mean that I have to like

it. Your thoughts, words and courage, have been an inspiration to

alot of us. OK, OK enough of the mushy stuff ) I am so glad that

Alena's appointment went well. The mastocytosis diagnosis idea

sounds logical. I'm gonna' keep praying for my little Alena and I

know He will answer them. Iowa roots huh? I just knew it, there had

to be something special about you. anyway, now that I can sign on

from home, I'll keep up with everyone till we leave for our trip on

sunday. Thanks again ...

Terry

> Listen here Mr. Mittensota Terry!!!!!!!! You will not let this

thing beat

> you down! You will go and enjoy a wonderful trip to Iowa, A 38

foot 5th

> wheel sounds like a perfect way to go and forget all of this mess.

My

> grandfather was from Remson sp? I think it is in northern Iowa.

Still have

> a lot of relatives around there. (YIKES lol) Terry, whether or

not you are

> talking to " HIM " I believe he is listening and waiting. Talking

to " Him " is

> not easy for me either. I was raised catholic, went to catholic

school, my

> cousin is a catholic priest, married a muslim in a catholic church

(yep, it

> can happen lol) then things happen that aren't fair and are not

supposed to

> and needing someone to blame makes it easiest to stop talking

to " Him "

> However, personally when I am at my wits end and tired of all of

it, I

> reflect on " Footprints in the Sand " or a very personel favorite of

mine

> goes like this

>

> Dear God:

>

> So far today I have done alright. I haven't gossiped, I haven't

lost my

> temper, haven't been greedy, grumpy, nasty, selfish or overly

indulgent.

> But in a few minutes, Lord, I am going to get out of bed, and from

then on,

> I am probably going to need a lot more help. AMEN

>

> A little humor goes a long way. Love, ~Alena's Mom

>

> PS, I think her appointment went very well. We will have to wait

for lab

> work to come back but he definately thinks this is mastocyotsis.

And I will

> let you know when the story comes out in the paper.

>

>

> Terry's update...

>

>

> > Hi Guys,

> > Well, it's now just over two weeks since the apex surgery on my

tooth,

> > and I can't really tell if the hives are better or not. They may

be.

> > I was down to 9mg of prednisone per day but had to go back to 10mg

> > about a week ago. I also doubled dosed on alegra for a couple of

days

> > and that really helped. I just got a new batch of interferon and

it

> > seems to be affecting me a little more than usual. It's really

touchy

> > stuff. If it goes below 36 degress or above 42 degrees, it seems

to

> > lose it's potentcy. Also, you have to change the injection sites

> > frequently, because after so many doses, the tissue in that area

> > doesn't seem to be as receptive. I can tell by the side affects,

so

> > then I change. I haven't really had hives for a few days, but

> > man do I hurt. I'm sore all over. Anyway, I thought that for the

> > next week or so I'd keep meds at the curent levels cause I'm

gonna' go

> > on vacation for a week or so and don't really want to rock the

boat.

> > As for the tooth, I'll give it a little time, and if things don't

seem

> > better, it's outta' here... ) I see my new doc., Dr. Volcheck

at the

> > Mayo in mid August, and I'm going to run all of the changes by

him and

> > see what he thinks. Until then, I think I can hold on. Bigger

> > problem is that I seem to be losing my faith a little bit. I'm

kind

> > of angry. So I haven't been talking to the big guy as much as

usual

> > lately, but I think about Him alot. Oh well, I'm sure this will

pass

> > too. Anyway, as I mentioned, I'm going on vacation for about a

week

> > and a half starting tomorrow. I'm gonna' take my wife and kids

> > camping. You know... no phones, no lights, no motor cars, not a

> > single luxury... well kind of. We have a 38 foot luxury fifth

wheel

> > trailer that's nicer than a holiday inn, so it won't be too rough.

> > We're going to Iowa to see family and a couple of water parks and

an

> > amusement park. Given the weather forcast, it should be really

hot

> > and steamy. So, everyone, know that I'll be thinking of you all

and

> > that I'll check in when I get back.

> >

> > Love, your friend in mittensota, where the mosquito's are the

state

> > bird ) and that's no joke this summer.

> > Terry

> >

> >

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> > If you do wish to unsubscribe then you can click on the following

link:

> > urticaria-unsubscribeegroups

> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> >

> > This list is in the service of those who suffer from Chronic

Urticaria

> (hives). We strive to support and lift each other as a worldwide

> cyber-family.

> >

> > We share whatever needs to be shared to help one another in our

struggle

> with Chronic Urticria. Information provided in this forum is not to

be taken

> as medical advice. Always consult your health professional before

trying

> anything new.

> >

> > Any posting that is off the main topic of Chronic Urticaria, we

post with

> a prefix of NCU -. This is done out of respect for those who do

not wish to

> read such postings.

> >

> >