Re: Re: [cfparents response to comments about theDanishapproach

[Guest guest]

n,

Yes we use COlistin here also. Eilish has been on it for over twelve months

now with Ciproxin. Im glad to hear our clinic is up to date with the Danish

treatment.

Re: Re: [cfparents response to comments about

theDanishapproach

> ; I have heard him speak twice at CFRI, and I believe the Danish

> approach is actually Three weeks of IV's, like it or not, every three

months,

> but they do rotate antibiotics of all kinds in addition to IV's, both TOBI

> and the old Tobramycin for those who can't tolerate TOBI or are allergic

to

> it,

> and in addition to all the meds that most of us are learning about, Europe

> does use Colistin, which is inhaled (and foams), but greatly reduces

> resistance to antibiotics. I wsh I had a video of it, and I did not even

> notice

> whether it was being videoed; the slides were excellent and made it all

very

> clear, and he is such a good person and skilled clinician, who says of

> himself, modestly, " Well, you know I am not a researcher. " No, just an

inno

> vator, ; truly, he is one of the greats along with DoPicco at

Wisconsin

> and Lap Tsu Chee (sp?) at Toronto, who is a researcher and was one of the

> first three for find alleles for cf on chromosome 7. I better quit, or

you

> will

> fall asleep, for sure! Love to you and yours,

> n Rojas wcf and all that

>

>

>