Sydney Children's Hospital

[Guest guest]

Hi Terri,

It is the renamed Prince of Wales & we do see the team headed by Dr

Morton. I'm very happy with him & also the fellow Bellessis. Morton

has a way of instilling some faith in CF care & his clinic. I have had concerns

previously about some hospital issues & they have listened to me & have been

willing to bend the rules & make changes.

We don't live in Sydney anymore, we live in Newcastle. We moved when Meg

was 1. We chose to stay at their clinic as we are happy & its not that far away.

We had our clinic visit yesterday & we are having a bronchoscopy next week.

Meg has been slightly unwell for a while & hasn't been gaining weight. As she is

still young we can't really get a good sputum sample from her. She has had 2

admissions this year for IV antis but still seems unchanged to me. Her chest CT

is normal & PFTs above 100%. So we having a few investigations & having ENT

& gastro consults while we are there. We are going to the care by parent ward,

so she won't really be in general hospital area.

So we will know more about Meg after next week.

We are going to the Brisbane conference in a few weeks time. Will you be there?

Take care

Aleta

Mum to Meg wcf & wocf