Re: MB 12

[Guest guest]

What pharmacy do you use? Could they deliver to Russia? At Merloni MB 12 costs

6,50 for 0,05mL and 7 for 0,1mL (www.merlonipharma.ch). But they have some

problems with delivery (((

MB 12

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[Guest guest]

Hi Steph

We have now switched to the preloaded thicker MB12 jabs. As yet (after ten days, injections three times a week) we can't see any change. What are other people's experience of them and is there a way of getting them cheaper than £10 a shot?

>>Now then, I just been on the phone to the Breakspear today about MB12 as Wellness seemed to have forgotten about me and my order

Sam has always done the 2500mcg syringe. They just quoted me £2.65 per syringe of this new College Pharmacy stuff that doesn;t need refrigeration although I didn;t get a proper explanation as to why it needs no refridgeration if it has no presevatives - just thats what written in big letters on the vials.

We're buying from Dr Heard (also buying TD DMPS from him at a reasonable rate). Should we expect a eureka moment? At a tenner a shot we're staring down the barrel of an incredibly large credit card bill and would welcome others experience. This isn't the liquid multi shot phial it's the pre loaded syringe with the slower release stuff in it.

>>>Do you know where they are sourcing this? Ideas? Have booked to come to Edinburgh. Should be a goodie.

>>yeah thats great, what a good natter we are all goign to have

Mandi x

[Guest guest]

>>>if you ave a prescription you could probably get Breakspear here in UK or AMT/College Pharmacy in US to send you the MB12.

We are hoping that Merloni might be able to source thiers through AMT also, but that will take a while to set up.

Fingers crossed for you

Mandi in UK

What pharmacy do you use? Could they deliver to Russia? At Merloni MB 12 costs 6,50 for 0,05mL and 7 for 0,1mL (www.merlonipharma.ch). But they have some problems with delivery (((

[Guest guest]

In a message dated 18/07/2005 15:50:18 GMT Daylight Time, jane_hogan@... writes:

Is Dr Heard able to prescribe the Coastal MB12 shots.

>>>Yes but Coastal won't send them unless a US Dr writes the script (this is what Steve was goign to try and help us with).

Dr Heard Rx is good for Wellness in US but the Breakspear are dispensing their own now, for about the same price and no duty

Mandi x

[Guest guest]

We learned that we have been giving shots the wrong way for months and

months, that is, we were giving our son the shots intramuscularly

(sps?) when it is supposed to be a subcutoneous shot. Dr. Neubrander

also told us that the potency of the vitamin 12 is essential here and

that we should request an independent lab. that shows the strengh of

the B12.

According to him, more than 90% of our kids respond to the shots in a

positive way, if giving the right way. There are videos of parents

giving the shots in his site. He also has his papers there. If you

want to be 100% sure that you are giving the shots right and that you

have the right stuff, I highly recommend spending some time reading

his site:www.drneubrander.com

According to Neubrander, the positive effects build on with time.

However, I have seen reports of parents talking about good stuff just

a few days after the shots. Who knows! We are in week 3. After another

2 weeks we will fill out the parent form Dr. Neubrander developed so

that we can have a better assesement of whether he is responding well

or not. I know that with kids that are not responding, there could be

a change in the dose or the frequency. You've heard it before: not

every kid is the same. We are not there yet.

Dr. R. Deth mentioned that they are working on a nasal spray. I don't

know who or when, but I am sure we all hear about it when is ready.

According to him, this is even a more effective way to provide the

MB12 to our kids.

Hope this helps,

J

> Hello all

>

> We have now switched to the preloaded thicker MB12 jabs. As yet

> (after ten days, injections three times a week) we can't see any

> change. What are other people's experience of them and is there a

> way of getting them cheaper than £10 a shot? We're buying from Dr

> Heard (also buying TD DMPS from him at a reasonable rate). Should

> we expect a eureka moment? At a tenner a shot we're staring down

> the barrel of an incredibly large credit card bill and would welcome

> others experience. This isn't the liquid multi shot phial it's the

> pre loaded syringe with the slower release stuff in it.

>

> Ideas? Have booked to come to Edinburgh. Should be a goodie.

>

> Stephxx

>

> PS Does anyone want to buy a brand new tub of Kirkmans yeast aid?

> We use Nystatin now and it's new an unopened, just pay postage and a

> donation. Is this legal on this site? Probably not. Email me off

> site if interested!

[Guest guest]

Hi Steph

Just wanted to say that the MB12 shots have made a big difference here. We have increased dose to get even more benefits. More language, greater understanding etc. We started the shots in November and chelation in January so its difficult to attribute gains accurately to one or the other - just know that when we went every 2 days for shots, put on another spurt.

£10 per shot seems a bit pricey, we pay $4 per shot from Coastal in the US (with Drs Prescription) plus shipping - and sometimes duty (last lot got in with a 10.3 duty free).

Tinastephaniesirr <mark.grabiec@...> wrote:

Hello allWe have now switched to the preloaded thicker MB12 jabs. As yet (after ten days, injections three times a week) we can't see any change. What are other people's experience of them and is there a way of getting them cheaper than £10 a shot? We're buying from Dr Heard (also buying TD DMPS from him at a reasonable rate). Should we expect a eureka moment? At a tenner a shot we're staring down the barrel of an incredibly large credit card bill and would welcome others experience. This isn't the liquid multi shot phial it's the pre loaded syringe with the slower release stuff in it.Ideas? Have booked to come to Edinburgh. Should be a goodie.StephxxPS Does anyone want to buy a brand new tub of Kirkmans yeast aid? We use Nystatin now and it's new an unopened, just pay postage and a donation. Is this legal on this

site? Probably not. Email me off site if interested!

[Guest guest]

Hi,

Can you just tell me, how do you administer Nystatin? Our asd son will swallow capsules quite happily but we've only been able to get Nystatin as a powder. We spent a couple of months stuffing the stuff into empty vegi-capsules - messy stuff and horrible to breath in. We've still got some in the fridge, but just don't fancy the hassle again. Does your child take it off a spoon? It seems like quite a yukky substance to inflinct in this way,

Would welcome any thought,

Thanks,

Kris

[Guest guest]

Is Dr Heard able to prescribe the Coastal MB12 shots.

Re: MB 12

Hi Steph

Just wanted to say that the MB12 shots have made a big difference here. We have increased dose to get even more benefits. More language, greater understanding etc. We started the shots in November and chelation in January so its difficult to attribute gains accurately to one or the other - just know that when we went every 2 days for shots, put on another spurt.

£10 per shot seems a bit pricey, we pay $4 per shot from Coastal in the US (with Drs Prescription) plus shipping - and sometimes duty (last lot got in with a 10.3 duty free).

Tinastephaniesirr <mark.grabiec@...> wrote:

Hello allWe have now switched to the preloaded thicker MB12 jabs. As yet (after ten days, injections three times a week) we can't see any change. What are other people's experience of them and is there a way of getting them cheaper than £10 a shot? We're buying from Dr Heard (also buying TD DMPS from him at a reasonable rate). Should we expect a eureka moment? At a tenner a shot we're staring down the barrel of an incredibly large credit card bill and would welcome others experience. This isn't the liquid multi shot phial it's the pre loaded syringe with the slower release stuff in it.Ideas? Have booked to come to Edinburgh. Should be a goodie.StephxxPS Does anyone want to buy a brand new tub of Kirkmans yeast aid? We use Nystatin now and it's new an unopened, just pay postage and a donation. Is this legal on this site? Probably not. Email me off site if interested!

[Guest guest]

For those of us working with no Dr - is Merloni the only place that

will supply without rx?

Jacqui

> Hello all

>

> We have now switched to the preloaded thicker MB12 jabs. As

yet

> (after ten days, injections three times a week) we can't see

any

> change. What are other people's experience of them and is

there a

> way of getting them cheaper than £10 a shot? We're buying from

Dr

> Heard (also buying TD DMPS from him at a reasonable rate).

Should

> we expect a eureka moment? At a tenner a shot we're staring

down

> the barrel of an incredibly large credit card bill and would

welcome

> others experience. This isn't the liquid multi shot phial it's

the

> pre loaded syringe with the slower release stuff in it.

>

> Ideas? Have booked to come to Edinburgh. Should be a goodie.

>

> Stephxx

>

> PS Does anyone want to buy a brand new tub of Kirkmans yeast

aid?

> We use Nystatin now and it's new an unopened, just pay postage

and a

> donation. Is this legal on this site? Probably not. Email me

off

> site if interested!

>

>

>

>

>

>

>

>

[Guest guest]

Mandi,

Are the ones that Breakspear supply the same as those recommended by Neubrander?

Jane

Re: MB 12

In a message dated 18/07/2005 15:50:18 GMT Daylight Time, jane_hogan@... writes:

Is Dr Heard able to prescribe the Coastal MB12 shots.

>>>Yes but Coastal won't send them unless a US Dr writes the script (this is what Steve was goign to try and help us with).

Dr Heard Rx is good for Wellness in US but the Breakspear are dispensing their own now, for about the same price and no duty

Mandi x

[Guest guest]

Mandi

Are Merloni having problems actually getting the MB12 now? I have

my first order with them and they have said they are hoping to get

it this week? I'm getting frantic now as, with no prescription, I

don't know where else I could get it. Would Dr H supply without rx?

Thanks

Jacqui

>

> >>>if you ave a prescription you could probably get Breakspear

here in UK or

> AMT/College Pharmacy in US to send you the MB12.

>

> We are hoping that Merloni might be able to source thiers through

AMT also,

> but that will take a while to set up.

>

> Fingers crossed for you

>

> Mandi in UK

>

>

> What pharmacy do you use? Could they deliver to Russia? At Merloni

MB 12

> costs 6,50 for 0,05mL and 7 for 0,1mL (www.merlonipharma.ch).

But they have

> some problems with delivery (((

[Guest guest]

Hi,

For my 5 year old we buy pear puree and pear dessert from Dietary Needs Direct, then carefully mix the dose into it - it is weird, sticky, flyaway stuff. For my toddler we kind of swoosh it around in a bottle of pear juice until it sort of dissolves. I have misgivings about mixing it with something sweet, but some people think pears do not feed yeast, and Dr Heard seemed to think the Nystatin was powerful enough to do its job regardless of the presence of fruit sugar.

Good luck!

Re: MB 12

Hi,

Can you just tell me, how do you administer Nystatin? Our asd son will swallow capsules quite happily but we've only been able to get Nystatin as a powder. We spent a couple of months stuffing the stuff into empty vegi-capsules - messy stuff and horrible to breath in. We've still got some in the fridge, but just don't fancy the hassle again. Does your child take it off a spoon? It seems like quite a yukky substance to inflinct in this way,

Would welcome any thought,

Thanks,

Kris

[Guest guest]

Hi Kris,

My ten year old takes it mixed in with filtered water. I just offer something he likes to take the taste away (usually a raw carrot). I have not tasted it myself, but he doesn't seem bothered by its taste.

Jane

Re: MB 12

Hi,

Can you just tell me, how do you administer Nystatin? Our asd son will swallow capsules quite happily but we've only been able to get Nystatin as a powder. We spent a couple of months stuffing the stuff into empty vegi-capsules - messy stuff and horrible to breath in. We've still got some in the fridge, but just don't fancy the hassle again. Does your child take it off a spoon? It seems like quite a yukky substance to inflinct in this way,

Would welcome any thought,

Thanks,

Kris

[Guest guest]

Hi Jane, yes they are the same as recommended by Neubrander.

I spoke with Dr Heard this morning and he said they were now able to

supply the strong MB12 from College Pharmacy and that it was cheaper

than the previous MB12 they were using. I asked about the no

refridgeration aspect. He said that it still had no preservative but

therefore had a shorter shelf life. They found that the solution was

crystalising if kept in the fridge but as it was a more highly

concentrated solution that it wouldn't go off as quickly. Anyway we

are giving it a shot to see if on responds as not much change

in the first 5 weeks on the weaker stuff.

Just read this back and not sure if it makes much sense but posting

anyway. We are also going the Nystatin route, can't imagine how I'll

get it into him.

Also for info. Dr Heard can supply customs form if you are planning on

taking syringes abroad.

Sally in Manchester

Also looking forward to Edinburgh

[Guest guest]

Our son takes it dissolved in oil on a spoon. Now he's having the

peach flavour nordic naturals it probably disguises the taste. Have

to let it dissolve. It tastes SO foul I can't stand it but Tom will

take it off a spoon. Perhaps yours will too?

> Hi,

>

> Can you just tell me, how do you administer Nystatin? Our asd

son will

> swallow capsules quite happily but we've only been able to get

Nystatin as a

> powder. We spent a couple of months stuffing the stuff into

empty vegi-capsules

> - messy stuff and horrible to breath in. We've still got some in

the fridge,

> but just don't fancy the hassle again. Does your child take it

off a spoon?

> It seems like quite a yukky substance to inflinct in this way,

>

> Would welcome any thought,

> Thanks,

> Kris

[Guest guest]

Hi Mandi,

I am interested about the B-12 from Breakspear. Merloni Pharmacy, takes too long for us to wait for the delivery. Is there any possiblity that they can send to me here in Abu Dhabi without any doctor prescription?

Are the B-12 from Breakspear is of same quality from Coastal and Hopewell?

Hope to hear from you.

Sincerely,

Buddy

-------------------------------------------------Mum231ASD@... wrote:

In a message dated 18/07/2005 15:50:18 GMT Daylight Time, jane_hogan@... writes:

Is Dr Heard able to prescribe the Coastal MB12 shots.

>>>Yes but Coastal won't send them unless a US Dr writes the script (this is what Steve was goign to try and help us with).

Dr Heard Rx is good for Wellness in US but the Breakspear are dispensing their own now, for about the same price and no duty

Mandi x

Start your day with - make it your home page

[Guest guest]

Good idea - thanks

Our son has Meridian pear juice, but quite dilute - it would be no worse than mixing in honey to give Nystatin in a spoonful of undiluted pear juice syrup. Thanks,

Kris

[Guest guest]

Jane,

Yes, I think it is just very "chalky" to take on its own off a spoon. You've all given me ideas to get experimenting with - thanks,

BW, Kris

[Guest guest]

Thanks Sally,

We have made an appointment to see Dr Heard in August.

We are currently week four of nystatin. Seeing some irritable behaviour on and off. Also taking longer getting to go to sleep. He takes it no problem. He is used to oral supplements. I just offer him a treat (for him it is a raw carrot).

I would really appreciate knowing how you get on with the MB12 - I imagine we will be starting these soon.

Thanks,

Jane

Re: MB 12

Hi Jane, yes they are the same as recommended by Neubrander.I spoke with Dr Heard this morning and he said they were now able tosupply the strong MB12 from College Pharmacy and that it was cheaperthan the previous MB12 they were using. I asked about the norefridgeration aspect. He said that it still had no preservative buttherefore had a shorter shelf life. They found that the solution wascrystalising if kept in the fridge but as it was a more highlyconcentrated solution that it wouldn't go off as quickly. Anyway weare giving it a shot to see if on responds as not much changein the first 5 weeks on the weaker stuff.Just read this back and not sure if it makes much sense but postinganyway. We are also going the Nystatin route, can't imagine how I'llget it into him. Also for info. Dr Heard can supply customs form if you are planning ontaking syringes abroad.Sally in ManchesterAlso looking forward to Edinburgh

[Guest guest]

Stick with the programme girls!! The sleep disturbance is tought to be the yeastie beasties crying out for food so they can regroup again. Its does get better.

I read somewhere recently that early morning wakening can be liver backup, I threw in a couple of Milk thistle over a few days and it went away. Could be coincidence.

I go 1/2 teaspoon of the yukky Nystatin BP powder now, 3 times for 5 days sorts it without major behavioural stuff - this would hgave been unthinkable back in the beginning

Mandi x

We have been giving it for 3 weeks and I was hoping for lots of good responses in behaviour, but so far we too are having difficulty getting him to go to sleep (he used to be very easy), plus he has gone through waking up at night again, although that seems to be improving over the last few days.

[Guest guest]

Hi Jane

Saw your post and thought I'd mention that my son is having the same sort of response to Nystatin as yours, even though we have introduced it very slowly. We have been giving it for 3 weeks and I was hoping for lots of good responses in behaviour, but so far we too are having difficulty getting him to go to sleep (he used to be very easy), plus he has gone through waking up at night again, although that seems to be improving over the last few days.

We describe his behaviour at the moment as "spikey", with some very good days and then some horrible ones, eg running out of the classroom at school 4 or 5 times during the day.

I just keep hoping that this is all positive, as it means that the yeast is dying off .

Hope things get better for us both soon.

Kay.

Re: MB 12

Hi Jane, yes they are the same as recommended by Neubrander.I spoke with Dr Heard this morning and he said they were now able tosupply the strong MB12 from College Pharmacy and that it was cheaperthan the previous MB12 they were using. I asked about the norefridgeration aspect. He said that it still had no preservative buttherefore had a shorter shelf life. They found that the solution wascrystalising if kept in the fridge but as it was a more highlyconcentrated solution that it wouldn't go off as quickly. Anyway weare giving it a shot to see if on responds as not much changein the first 5 weeks on the weaker stuff.Just read this back and not sure if it makes much sense but postinganyway. We are also going the Nystatin route, can't imagine how I'llget it into him. Also for info. Dr Heard can supply customs form if you are planning ontaking syringes abroad.Sally in ManchesterAlso looking forward to Edinburgh

[Guest guest]

,

Dr. Neubrander has done most of the research on methyl B12 injections.

I think his website is drneubrander.com. There is more info there.

Tests like the Metametrix ION test indicate a problem in the folate

cycle, which is a good indicator that the shots may help. A Dan doc

would prescribe them for you. Some osteopaths might prescribe them as

well.

My kids have had no negative reactions, only positive. We've seen

gains in language and energy (my son in particular was very low energy

and lethargic previously).

The dose is based on your child's weight. I suppose almost anything is

harmful in large enough doses, but the amount your child would receive

according to the Neubrander protocol should not be at all dangerous.

>

> Hi!

> I'm trying to learn more about MB 12 shots. I don't know much

> except that it sounds promosing for some, especially those who have

> been diagnosed with PDD and some degree of autism. Anyhow, my son

> has not been diagnosed with either of us but I still would like some

> info on MB 12. Is there a test done to find out who's a candidate

> for it? What type of doctor do I talk to about this? Who gives the

> shots? How often? What type of progress is typically seen. Any

> negative side effects...I have heard of sleep issues and issues with

> chewing on this. However, I also heard that with large doses of B12

> (could be something other than MB 12) that there is an increased

> risk for cancer.

> Thank you,

>

> Proud Mom to -DOB 7/4/03

> undiagnosed syndrome: microcephaly, bilateral ptosis (corrected),

> bilateral clubfeet, undescended testes (corrected), GERD, low

> muscle tone, left kidney-hydronephrosis due to reflux, right kidney-

> reflux,cysts on upper 20%, small and low functioning, heart murmur,

> short stature, small hands/feet, hypoplastic nails, high arched

> palate, underbite, slightly near sighted, right and left tibia

> sublexes, feeding difficulties, global developmental delays, sensory

> seeker, non-verbal (but knows a few signs) and a big snuggle-bug

> that is determined to do things.

>

[Guest guest]

Dr. Neubrander in NJ gives B-12 shots. We have been considering going there.

He has a site you can google that discusses the benefits as well as a

discussion forum for parents. thanks, carolyn