The Very Latest on My Nada

[Guest guest]

They can't keep nada in the Hospice Care Unit any longer as Medicare won't pay

for much longer (she's only been in there 2 DAYS). I think that's absurd but

that's how it is now.

So even though she is non-ambulatory; removed the catheter herself and and can't

stand either, she is going home. Home to die. I am very relieved frankly even

though they are looking into getting her care that Medicare won't pay for (they

only pay for 2 hours a day - 5 days a week and nada needs much more than that).

So she will have to pay for someone to take care of her the rest of the time

which isn't cheap, but I don't think she will live much longer and this is a

blessing to us both since she isn't getting any better and won't.

She will be very ripped when she finds out that the doctor they assigned her to

there is none other than her former doctor who she doesn't like OR trust! I

tipped off the social worker that she is BPD and she was happy for the heads up

as she called it.

Haven't heard a word from nada today and although I've tried to call her several

times, her cell phone won't connect me. Oh well. I'm sure nada is giving them

all hell as she has been this whole time she was in there. Some things never

change.

I think she will kill herself with a drug overdose once she gets home. I hate

to say that but I am almost sure of it. She hasn't attempted in 10 years that I

know of, but she did 10 years ago and I saved her then for a second time (the

first time being when I was 12). She has no desire to live any more and knowing

she will never walk and always be the way she is will do her in because nada is

not about to live like that. Nada is far too proud and vain for that. I hope I

am wrong about her committing suicide but I doubt I am. I know my nada better

than anyone.

Well at least she will be home so, in nada's mind, she promised Eddie she would

die at home (my stepfather who passed in 2006) so he could 'find her' when she

dies - not that he couldn't find her no matter where she was, but if that's

nada's belief, so be it.

So now I will sleep well tonight knowing that nada is getting her way and I do

not have to deal with her cursing me out for 'allowing them to take me to a

nursing home'.

Thanks for listening to all my friends in this group. I know it isn't easy to

listen to just as it isn't easy to live through.

[Guest guest]

Wow, Libra. It's really a shame that medicare doesn't pay more for proper

care! I mean, like you said, she wants to be home anyway, but fact is she

needs more care than just 2 days in hospice and 2 hours a day from a home

care worker. Sheesh.

This must all be very hard on you, even though we're talking about a nada...

I can imagine all kinds of emotions coming to the surface. We're always

here for you to get them off your chest.

I also hope she doesn't hurt herself. Did you try to tell the social worker

that she might? That she has a history of attempts? Not sure they

would/could do anything, but still.

Hang in there lady.

Mia

>

>

> They can't keep nada in the Hospice Care Unit any longer as Medicare won't

> pay for much longer (she's only been in there 2 DAYS). I think that's absurd

> but that's how it is now.

>

> So even though she is non-ambulatory; removed the catheter herself and and

> can't stand either, she is going home. Home to die. I am very relieved

> frankly even though they are looking into getting her care that Medicare

> won't pay for (they only pay for 2 hours a day - 5 days a week and nada

> needs much more than that). So she will have to pay for someone to take care

> of her the rest of the time which isn't cheap, but I don't think she will

> live much longer and this is a blessing to us both since she isn't getting

> any better and won't.

>

> She will be very ripped when she finds out that the doctor they assigned

> her to there is none other than her former doctor who she doesn't like OR

> trust! I tipped off the social worker that she is BPD and she was happy for

> the heads up as she called it.

>

> Haven't heard a word from nada today and although I've tried to call her

> several times, her cell phone won't connect me. Oh well. I'm sure nada is

> giving them all hell as she has been this whole time she was in there. Some

> things never change.

>

> I think she will kill herself with a drug overdose once she gets home. I

> hate to say that but I am almost sure of it. She hasn't attempted in 10

> years that I know of, but she did 10 years ago and I saved her then for a

> second time (the first time being when I was 12). She has no desire to live

> any more and knowing she will never walk and always be the way she is will

> do her in because nada is not about to live like that. Nada is far too proud

> and vain for that. I hope I am wrong about her committing suicide but I

> doubt I am. I know my nada better than anyone.

>

> Well at least she will be home so, in nada's mind, she promised Eddie she

> would die at home (my stepfather who passed in 2006) so he could 'find her'

> when she dies - not that he couldn't find her no matter where she was, but

> if that's nada's belief, so be it.

>

> So now I will sleep well tonight knowing that nada is getting her way and I

> do not have to deal with her cursing me out for 'allowing them to take me to

> a nursing home'.

>

> Thanks for listening to all my friends in this group. I know it isn't easy

> to listen to just as it isn't easy to live through.

>

>

>

[Guest guest]

Libra, was your mom expected to die within those two days? I can't believe they

would dismiss her and send her home, unless they felt strongly she isn't dying.

Doesn't Hospice have to make sure a plan is in place before they dismiss your

nada? You can always call Medicare and tell you you want the case reviewed

again and give them reasons for why you don't think she should be dismissed.

Ask the Hospice folks for the phone number. They will have it, I'm sure. Do

you have some religious beliefs that make it hard for you to accept suicide? I

have to say that sometimes I wish my mom would take an overdose of something and

be done with it. I know I can only say something like this on this board.

Annie

>

> >

> >

> > They can't keep nada in the Hospice Care Unit any longer as Medicare won't

> > pay for much longer (she's only been in there 2 DAYS). I think that's absurd

> > but that's how it is now.

> >

> > So even though she is non-ambulatory; removed the catheter herself and and

> > can't stand either, she is going home. Home to die. I am very relieved

> > frankly even though they are looking into getting her care that Medicare

> > won't pay for (they only pay for 2 hours a day - 5 days a week and nada

> > needs much more than that). So she will have to pay for someone to take care

> > of her the rest of the time which isn't cheap, but I don't think she will

> > live much longer and this is a blessing to us both since she isn't getting

> > any better and won't.

> >

> > She will be very ripped when she finds out that the doctor they assigned

> > her to there is none other than her former doctor who she doesn't like OR

> > trust! I tipped off the social worker that she is BPD and she was happy for

> > the heads up as she called it.

> >

> > Haven't heard a word from nada today and although I've tried to call her

> > several times, her cell phone won't connect me. Oh well. I'm sure nada is

> > giving them all hell as she has been this whole time she was in there. Some

> > things never change.

> >

> > I think she will kill herself with a drug overdose once she gets home. I

> > hate to say that but I am almost sure of it. She hasn't attempted in 10

> > years that I know of, but she did 10 years ago and I saved her then for a

> > second time (the first time being when I was 12). She has no desire to live

> > any more and knowing she will never walk and always be the way she is will

> > do her in because nada is not about to live like that. Nada is far too proud

> > and vain for that. I hope I am wrong about her committing suicide but I

> > doubt I am. I know my nada better than anyone.

> >

> > Well at least she will be home so, in nada's mind, she promised Eddie she

> > would die at home (my stepfather who passed in 2006) so he could 'find her'

> > when she dies - not that he couldn't find her no matter where she was, but

> > if that's nada's belief, so be it.

> >

> > So now I will sleep well tonight knowing that nada is getting her way and I

> > do not have to deal with her cursing me out for 'allowing them to take me to

> > a nursing home'.

> >

> > Thanks for listening to all my friends in this group. I know it isn't easy

> > to listen to just as it isn't easy to live through.

> >

> >

> >

>

>

>

[Guest guest]

Libra, my grandmother had hospice care in the nursing home and that was covered

by Medicare. That consisted of a special nurse coming in ever so often but the

home still took care of her basic needs...maybe that's who this nurse who comes

in for two hours a day will be. I wonder if they are assuming someone else is

taking care of basic care... Have you asked the hospice coordinator what they

are doing?

> >

> > >

> > >

> > > They can't keep nada in the Hospice Care Unit any longer as Medicare won't

> > > pay for much longer (she's only been in there 2 DAYS). I think that's

absurd

> > > but that's how it is now.

> > >

> > > So even though she is non-ambulatory; removed the catheter herself and and

> > > can't stand either, she is going home. Home to die. I am very relieved

> > > frankly even though they are looking into getting her care that Medicare

> > > won't pay for (they only pay for 2 hours a day - 5 days a week and nada

> > > needs much more than that). So she will have to pay for someone to take

care

> > > of her the rest of the time which isn't cheap, but I don't think she will

> > > live much longer and this is a blessing to us both since she isn't getting

> > > any better and won't.

> > >

> > > She will be very ripped when she finds out that the doctor they assigned

> > > her to there is none other than her former doctor who she doesn't like OR

> > > trust! I tipped off the social worker that she is BPD and she was happy

for

> > > the heads up as she called it.

> > >

> > > Haven't heard a word from nada today and although I've tried to call her

> > > several times, her cell phone won't connect me. Oh well. I'm sure nada is

> > > giving them all hell as she has been this whole time she was in there.

Some

> > > things never change.

> > >

> > > I think she will kill herself with a drug overdose once she gets home. I

> > > hate to say that but I am almost sure of it. She hasn't attempted in 10

> > > years that I know of, but she did 10 years ago and I saved her then for a

> > > second time (the first time being when I was 12). She has no desire to

live

> > > any more and knowing she will never walk and always be the way she is will

> > > do her in because nada is not about to live like that. Nada is far too

proud

> > > and vain for that. I hope I am wrong about her committing suicide but I

> > > doubt I am. I know my nada better than anyone.

> > >

> > > Well at least she will be home so, in nada's mind, she promised Eddie she

> > > would die at home (my stepfather who passed in 2006) so he could 'find

her'

> > > when she dies - not that he couldn't find her no matter where she was, but

> > > if that's nada's belief, so be it.

> > >

> > > So now I will sleep well tonight knowing that nada is getting her way and

I

> > > do not have to deal with her cursing me out for 'allowing them to take me

to

> > > a nursing home'.

> > >

> > > Thanks for listening to all my friends in this group. I know it isn't easy

> > > to listen to just as it isn't easy to live through.

> > >

> > >

> > >

> >

> >

> >