Guest guest Posted February 27, 2011 Report Share Posted February 27, 2011 It was quite a morning! I called nada as I do every morning to see how she is doing in the hospice care unit (she will be going home Wednesday as Medicare won't pay for her to be there any longer). Amazingly it has only been a week then! Trust me it feels like a lot longer to me! Anyway nada was VERY mean and nasty saying it was MY fault she was 'in there' and she doesn't want me in her life. She REALLY got nasty and vicious and that's my nada alright. I felt like saying 'yeah and if it weren't for ME you'd be laying in your own vomit, feces and urine - your place REEKED and was unfit for human habitation; no one would have cleaned it out and you would be sent to a nursing home where you do NOT want to be. AND you wouldn't be able to walk still, but now you can. I did everything by the book from a distance and I did what I felt had to be done every step of the way. I bit my tongue but part of me wanted to tell her off and then thought why bother since she's dying and telling nada the truth about anything is like beating your head against a wall - feels good when you stop. She went on to bring up my friend who she said, 'and another thing. I do NOT like and you will find out I'm right about her when I die. She just WANTS something from you and she wants it badly. " is the most selfless woman I know as most of my close friends are up here. She is a nurse practitioner/mental health therapist and diagnosed nada for me upon meeting her for free. She knows I don't have $ and never asks for a thing. She spent all day putting together my kitchen set and my kitchen trolley when I moved in here and didn't ask for a thing. I bought us dinner at Pizza Hut because I WANTED to and I owed her that I felt for helping me all day on her day off. She has also helped me every time I have needed her. I have NO idea where nada is getting those ideas but anyway. She went off on me about them 'wanting to take my blood - you bitch' and it's 'your fault'. No, nada they already TOOK blood and it shows according to her nurse there that she has such a low blood count that it is dangerous to her and asked ME if I would consent to a blood transfusion tomorrow which nada was refusing. I told her yes but they have her living will - she IS in hospice and the nurse told me good thing I was giving nada unbeknown to her a 90th birthday party early on Saturday because it WILL be her last and no it was NOT anemia - but some 'major organ is bleeding'. She said she feels it is her stomach lining. This is consistent with the severe stomach pains nada has had for two weeks; vomiting blood for MONTHS now off and on (would not see a doctor); losing weight and means she is literally starving to death no matter what she eats since her stomach is not digesting the food and assimilating the nutrients for her. I suspect stomach cancer and have for awhile but so far no one is saying that but I was told she may not make it through the blood transfusion as there ARE risks with someone in her condition. I read that her body could reject the blood; it could be from someone who has pneumonia or a virus and give it to nada etc. and 50% of people in nada's condition (elderly, feeble, in poor health etc.) DO wind up dying from blood transfusions so tomorrow morning is crucial. She will be taken to the hospital next door for the blood transfusion and they have to monitor her for two hours and then will return her to the hospice unit to stay until Wednesday when she is released. Did I do the right thing by over riding her veto for the blood transfusion? I will feel very badly if she dies from the blood transfusion even though it won't be my fault really. No I don't like nada. She had a right to live her life the way she wanted to as we all do but she hurt and destroyed a lot of people by doing it and that's not okay. I am a mixture of sad, angry, hurt and yet glad that it seems it WILL be over soon now. I am exhausted and haven't slept well for four nights now. So what do all of you think? Did I do the right thing getting her the blood transfusion despite the outcome? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2011 Report Share Posted February 27, 2011 You're giving your nada blood? And it's not a joke? Wow, you are a very charitable person. I wouldn't give my nada the time of day if she asked right now. I wouldn't say excuse me if I farted upwind of her. Sorry to make light. I don't know if you did the right thing. You can only do what is right for you. > > It was quite a morning! > > I called nada as I do every morning to see how she is doing in the hospice care unit (she will be going home Wednesday as Medicare won't pay for her to be there any longer). Amazingly it has only been a week then! Trust me it feels like a lot longer to me! > > Anyway nada was VERY mean and nasty saying it was MY fault she was 'in there' and she doesn't want me in her life. She REALLY got nasty and vicious and that's my nada alright. I felt like saying 'yeah and if it weren't for ME you'd be laying in your own vomit, feces and urine - your place REEKED and was unfit for human habitation; no one would have cleaned it out and you would be sent to a nursing home where you do NOT want to be. AND you wouldn't be able to walk still, but now you can. I did everything by the book from a distance and I did what I felt had to be done every step of the way. I bit my tongue but part of me wanted to tell her off and then thought why bother since she's dying and telling nada the truth about anything is like beating your head against a wall - feels good when you stop. She went on to bring up my friend who she said, 'and another thing. I do NOT like and you will find out I'm right about her when I die. She just WANTS something from you and she wants it badly. " is the most selfless woman I know as most of my close friends are up here. She is a nurse practitioner/mental health therapist and diagnosed nada for me upon meeting her for free. She knows I don't have $ and never asks for a thing. She spent all day putting together my kitchen set and my kitchen trolley when I moved in here and didn't ask for a thing. I bought us dinner at Pizza Hut because I WANTED to and I owed her that I felt for helping me all day on her day off. She has also helped me every time I have needed her. I have NO idea where nada is getting those ideas but anyway. > She went off on me about them 'wanting to take my blood - you bitch' and it's 'your fault'. No, nada they already TOOK blood and it shows according to her nurse there that she has such a low blood count that it is dangerous to her and asked ME if I would consent to a blood transfusion tomorrow which nada was refusing. I told her yes but they have her living will - she IS in hospice and the nurse told me good thing I was giving nada unbeknown to her a 90th birthday party early on Saturday because it WILL be her last and no it was NOT anemia - but some 'major organ is bleeding'. She said she feels it is her stomach lining. This is consistent with the severe stomach pains nada has had for two weeks; vomiting blood for MONTHS now off and on (would not see a doctor); losing weight and means she is literally starving to death no matter what she eats since her stomach is not digesting the food and assimilating the nutrients for her. I suspect stomach cancer and have for awhile but so far no one is saying that but I was told she may not make it through the blood transfusion as there ARE risks with someone in her condition. I read that her body could reject the blood; it could be from someone who has pneumonia or a virus and give it to nada etc. and 50% of people in nada's condition (elderly, feeble, in poor health etc.) DO wind up dying from blood transfusions so tomorrow morning is crucial. She will be taken to the hospital next door for the blood transfusion and they have to monitor her for two hours and then will return her to the hospice unit to stay until Wednesday when she is released. Did I do the right thing by over riding her veto for the blood transfusion? I will feel very badly if she dies from the blood transfusion even though it won't be my fault really. No I don't like nada. She had a right to live her life the way she wanted to as we all do but she hurt and destroyed a lot of people by doing it and that's not okay. I am a mixture of sad, angry, hurt and yet glad that it seems it WILL be over soon now. I am exhausted and haven't slept well for four nights now. So what do all of you think? Did I do the right thing getting her the blood transfusion despite the outcome? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2011 Report Share Posted February 27, 2011 I guess I'm confused about the whole " hospice " thing. I thought that hospice is a comfortable hotel-like setting where terminally ill people go when they are near death (I think its terminal within 6 months or less, right?) and only pain-reducing medications are given. If that's the case, then I don't understand giving life-saving treatments (a blood transfusion is a life-saving treatment, right?) to the terminally ill in hospice...? ...to prolong their death? And I don't understand being sent to a hospice and then getting sent home again? So, people who are NOT terminally ill are sent to hospice... temporarily? Instead of being sent to a hospital? But if a blood transfusion is only palliative (it doesn't really help prolong her life, it just temporarily masks or reduces her pain) then, aren't their other ways to reduce/eliminate her pain (like morphine) without putting her through a transfusion against her will? Sorry, I'm just not getting the picture here, its not making sense to me. And after the transfusion, your nada is being returned at her insistence to her vomit-encrusted, feces-encrusted, urine-soaked home? She can't just stay in the nice, clean hospice or in a nursing home for a week or so until her house gets the haz-mat treatment... and THEN go back home, if that's what she wants? I can't see the point in giving a transfusion to a terminally ill person who doesn't want one, myself. But you have to choose what you feel is the best option for you and your nada, you're the only one who can. I feel for your dilemma, its horrible; you are in a no-win situation. May we all find peace and healing, in this life or in the next. -Annie > > It was quite a morning! > > I called nada as I do every morning to see how she is doing in the hospice care unit (she will be going home Wednesday as Medicare won't pay for her to be there any longer). Amazingly it has only been a week then! Trust me it feels like a lot longer to me! > > Anyway nada was VERY mean and nasty saying it was MY fault she was 'in there' and she doesn't want me in her life. She REALLY got nasty and vicious and that's my nada alright. I felt like saying 'yeah and if it weren't for ME you'd be laying in your own vomit, feces and urine - your place REEKED and was unfit for human habitation; no one would have cleaned it out and you would be sent to a nursing home where you do NOT want to be. AND you wouldn't be able to walk still, but now you can. I did everything by the book from a distance and I did what I felt had to be done every step of the way. I bit my tongue but part of me wanted to tell her off and then thought why bother since she's dying and telling nada the truth about anything is like beating your head against a wall - feels good when you stop. She went on to bring up my friend who she said, 'and another thing. I do NOT like and you will find out I'm right about her when I die. She just WANTS something from you and she wants it badly. " is the most selfless woman I know as most of my close friends are up here. She is a nurse practitioner/mental health therapist and diagnosed nada for me upon meeting her for free. She knows I don't have $ and never asks for a thing. She spent all day putting together my kitchen set and my kitchen trolley when I moved in here and didn't ask for a thing. I bought us dinner at Pizza Hut because I WANTED to and I owed her that I felt for helping me all day on her day off. She has also helped me every time I have needed her. I have NO idea where nada is getting those ideas but anyway. > She went off on me about them 'wanting to take my blood - you bitch' and it's 'your fault'. No, nada they already TOOK blood and it shows according to her nurse there that she has such a low blood count that it is dangerous to her and asked ME if I would consent to a blood transfusion tomorrow which nada was refusing. I told her yes but they have her living will - she IS in hospice and the nurse told me good thing I was giving nada unbeknown to her a 90th birthday party early on Saturday because it WILL be her last and no it was NOT anemia - but some 'major organ is bleeding'. She said she feels it is her stomach lining. This is consistent with the severe stomach pains nada has had for two weeks; vomiting blood for MONTHS now off and on (would not see a doctor); losing weight and means she is literally starving to death no matter what she eats since her stomach is not digesting the food and assimilating the nutrients for her. I suspect stomach cancer and have for awhile but so far no one is saying that but I was told she may not make it through the blood transfusion as there ARE risks with someone in her condition. I read that her body could reject the blood; it could be from someone who has pneumonia or a virus and give it to nada etc. and 50% of people in nada's condition (elderly, feeble, in poor health etc.) DO wind up dying from blood transfusions so tomorrow morning is crucial. She will be taken to the hospital next door for the blood transfusion and they have to monitor her for two hours and then will return her to the hospice unit to stay until Wednesday when she is released. Did I do the right thing by over riding her veto for the blood transfusion? I will feel very badly if she dies from the blood transfusion even though it won't be my fault really. No I don't like nada. She had a right to live her life the way she wanted to as we all do but she hurt and destroyed a lot of people by doing it and that's not okay. I am a mixture of sad, angry, hurt and yet glad that it seems it WILL be over soon now. I am exhausted and haven't slept well for four nights now. So what do all of you think? Did I do the right thing getting her the blood transfusion despite the outcome? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2011 Report Share Posted February 27, 2011 that it seems it WILL be over soon now. I am exhausted and haven't slept well for four nights now. So what do all of you think? Did I do the right thing getting her the blood transfusion despite the outcome? > Absolutely, I think if you had said no to the blood transfusion it might have haunted you later. Here you know that you did the right thing by your nada. She's not in her right mind to make decisions for herself anymore (or for a long time sounds like). Please remember to take care of you - I'm sure it's hard to sleep with all this going on. Maybe take an Epsom salt bath, some Tylenol PM, put some lavender essential oil around....whatever works for you to help with the stress. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2011 Report Share Posted February 27, 2011 As I understood it she authorized a transfusion at a hospital in another city...not *her* own blood. I'd have trouble with that one too! > > You're giving your nada blood? And it's not a joke? Wow, you are a very charitable person. I wouldn't give my nada the time of day if she asked right now. I wouldn't say excuse me if I farted upwind of her. > > Sorry to make light. I don't know if you did the right thing. You can only do what is right for you. > > Quote Link to comment Share on other sites More sharing options...
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