The Very Latest on My Nada

[Guest guest]

Thanks to all those who have been supportive and reading my posts about my

nada's last days. I wanted to clarify for a few of you about hospice in the

event that any of you need their help with your nadas and fadas.

First of all hospice IS only for those who are in the end stages of their lives

with 6 months or less to live. Medicare will not pay for this and as I

understand it a physician's license could be compromised or revoked if they do

not follow the stringent guidelines set up by Medicare regarding hospice. The

confusion occurs as there are two levels of hospice care and everyone assumes

there is one just as I did. The first level is for patients who are 'dying' but

have less severe health problems than those who are deemed immediately to be

'very end stage' which to them apparently means imminent as in a few days or a

week. My nada was placed in there as 'dying' but not on death's door so to

speak, but that can change from minute to minute as you can well understand. My

nada in a week went from 'dying' to 'fairly terminal' as the nurse told me

yesterday she would not have another birthday which is April 5th and she is in

dire need of a blood transfusion as she has internal bleeding. With my mother's

heart trouble; normally sky high blood pressure AND uncontrolled diabetes she

would never survive an operation of any kind nor any chemo or radiation therapy

if she indeed has cancer which seems to be what a lot of the nurses seem to

think she has (cancer of the stomach). They are not sure but there is indeed

internal bleeding of some major organ I was told and it is not anemia because

her blood level is much too low for that to be the case.

My nada did NOT want a blood transfusion but in nada fashion she is now all for

it where yesterday morning she was calling me everything under the sun and

blaming ME for her being in there etc. as most of you who have been following my

posts know.

I was told that this is just to make her 'comfortable' and is not going to

prolong or save her life.

No, I am not the one giving her my blood either. It will be from someone with

her blood type but from reading about blood tranfusions, in her elderly,

emaciated, terminal health condition, there is a 50-50 chance her body will

reject the blood anyway which will cause her more problems. I will keep all of

you advised as to the newest situation as it arises.

Thanks so much for all of your kind words, help and understanding.

[Guest guest]

Libra, my mom is under Hospice care and as I understand it, Medicare is paying

for it. My mom made yet another miraculous recovery, but Hospice is still

keeping her on because she has nonhodgkins lymphoma. I was worried that Hospice

would terminate their services when she got stable, but so far this hasn't

happened and I say Thank Goodness! She's been on Hospice since July. It's home

based. A few years prior to this, she was at the Hospice House dying, but

recovered and so they dismissed her. But, regardless of my mom, I hope you are

taking good care of your own needs. Hugs, Annie

>

> Thanks to all those who have been supportive and reading my posts about my

nada's last days. I wanted to clarify for a few of you about hospice in the

event that any of you need their help with your nadas and fadas.

>

> First of all hospice IS only for those who are in the end stages of their

lives with 6 months or less to live. Medicare will not pay for this and as I

understand it a physician's license could be compromised or revoked if they do

not follow the stringent guidelines set up by Medicare regarding hospice. The

confusion occurs as there are two levels of hospice care and everyone assumes

there is one just as I did. The first level is for patients who are 'dying' but

have less severe health problems than those who are deemed immediately to be

'very end stage' which to them apparently means imminent as in a few days or a

week. My nada was placed in there as 'dying' but not on death's door so to

speak, but that can change from minute to minute as you can well understand. My

nada in a week went from 'dying' to 'fairly terminal' as the nurse told me

yesterday she would not have another birthday which is April 5th and she is in

dire need of a blood transfusion as she has internal bleeding. With my mother's

heart trouble; normally sky high blood pressure AND uncontrolled diabetes she

would never survive an operation of any kind nor any chemo or radiation therapy

if she indeed has cancer which seems to be what a lot of the nurses seem to

think she has (cancer of the stomach). They are not sure but there is indeed

internal bleeding of some major organ I was told and it is not anemia because

her blood level is much too low for that to be the case.

>

> My nada did NOT want a blood transfusion but in nada fashion she is now all

for it where yesterday morning she was calling me everything under the sun and

blaming ME for her being in there etc. as most of you who have been following my

posts know.

>

> I was told that this is just to make her 'comfortable' and is not going to

prolong or save her life.

>

> No, I am not the one giving her my blood either. It will be from someone with

her blood type but from reading about blood tranfusions, in her elderly,

emaciated, terminal health condition, there is a 50-50 chance her body will

reject the blood anyway which will cause her more problems. I will keep all of

you advised as to the newest situation as it arises.

>

> Thanks so much for all of your kind words, help and understanding.

>

[Guest guest]

Thank you for the information on Hospice. As a nursing student, I think

it's really good info to know! You are still in my thoughts, Libra. Hope

you are taking care of you.

Mia

[Guest guest]

Revolting Update....is this a coincidence? I just found out this morning that

Hospice is thinking of dropping my nada. OH NO! Not sure what's going to

happen. The home/health aide that Hospice sends over to bath my nada got a real

ear whipping from my mom. The H/H aide then told the care-provider that she

didnt' know how the care-provider could stand to work for my nada and that she

must really be hard up for money! Unreal.

Annie

> >

> > Thanks to all those who have been supportive and reading my posts about my

nada's last days. I wanted to clarify for a few of you about hospice in the

event that any of you need their help with your nadas and fadas.

> >

> > First of all hospice IS only for those who are in the end stages of their

lives with 6 months or less to live. Medicare will not pay for this and as I

understand it a physician's license could be compromised or revoked if they do

not follow the stringent guidelines set up by Medicare regarding hospice. The

confusion occurs as there are two levels of hospice care and everyone assumes

there is one just as I did. The first level is for patients who are 'dying' but

have less severe health problems than those who are deemed immediately to be

'very end stage' which to them apparently means imminent as in a few days or a

week. My nada was placed in there as 'dying' but not on death's door so to

speak, but that can change from minute to minute as you can well understand. My

nada in a week went from 'dying' to 'fairly terminal' as the nurse told me

yesterday she would not have another birthday which is April 5th and she is in

dire need of a blood transfusion as she has internal bleeding. With my mother's

heart trouble; normally sky high blood pressure AND uncontrolled diabetes she

would never survive an operation of any kind nor any chemo or radiation therapy

if she indeed has cancer which seems to be what a lot of the nurses seem to

think she has (cancer of the stomach). They are not sure but there is indeed

internal bleeding of some major organ I was told and it is not anemia because

her blood level is much too low for that to be the case.

> >

> > My nada did NOT want a blood transfusion but in nada fashion she is now all

for it where yesterday morning she was calling me everything under the sun and

blaming ME for her being in there etc. as most of you who have been following my

posts know.

> >

> > I was told that this is just to make her 'comfortable' and is not going to

prolong or save her life.

> >

> > No, I am not the one giving her my blood either. It will be from someone

with her blood type but from reading about blood tranfusions, in her elderly,

emaciated, terminal health condition, there is a 50-50 chance her body will

reject the blood anyway which will cause her more problems. I will keep all of

you advised as to the newest situation as it arises.

> >

> > Thanks so much for all of your kind words, help and understanding.

> >

>

[Guest guest]

I'm sorry to hear that. My Sister and I are already mentally prepared that

if/when our nada requires home health care assistance with bathing & pooping,

preparing/eating food, etc., that nada will probably burn her way through a new

helper every few days/weeks.

When I nursed nada for a couple of months while she was recovering from major

surgery, it was like a visit to the 7th circle of hell. I could do nothing

right; nothing was perfect enough for nada. I believe I became severely

clinically depressed during that time. So, yeesh, the idea of even the

possibility of having to do that again makes my skin crawl.

I hope you can work something out with Hospice or with an elder-care service

provider so that you aren't going to be nursing her yourself.

-Annie

>

> Revolting Update....is this a coincidence? I just found out this morning that

Hospice is thinking of dropping my nada. OH NO! Not sure what's going to

happen. The home/health aide that Hospice sends over to bath my nada got a real

ear whipping from my mom. The H/H aide then told the care-provider that she

didnt' know how the care-provider could stand to work for my nada and that she

must really be hard up for money! Unreal.

> Annie

[Guest guest]

Thank you Annie, for your kind words and support. I won't be able to take care

of her. It's just too much of a downer. Like you experienced, everything I do

is not good enough or just downright bad. Can't take it. I would get severely

depressed in no time at all. With my nada, the glass isn't even half empty.

There is a big hole in the bottom of it, so there is nothing in it.

Annie 2

> >

> > Revolting Update....is this a coincidence? I just found out this morning

that Hospice is thinking of dropping my nada. OH NO! Not sure what's going to

happen. The home/health aide that Hospice sends over to bath my nada got a real

ear whipping from my mom. The H/H aide then told the care-provider that she

didnt' know how the care-provider could stand to work for my nada and that she

must really be hard up for money! Unreal.

> > Annie

>

[Guest guest]

Annie,

thanks for my laugh for the day:

" When I nursed nada for a couple of months while she was recovering from major

surgery, it was like a visit to the 7th circle of hell. "

it's funny and yet, it's something my brother and I don't talk about b/c it's

too much to bear right now, what we would do in the event of...

Fiona