Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 The hospice center called me late last night and said they hoped they weren't waking me up but she wanted me to know that nada is on heavy dosages of morphine (patch AND under the tongue) and asked me for a copy of her living will which I have but I don't have a fax machine here and it WAS too late to find a place open that had fax machines of course so nothing could be done that way. I told her I had the original which I had found just where nada had told me it would be several months earlier in one of her complacent moods when I was down there this past weekend and I took it home. I had a neighbor make a copy of the living will and put it on her fridge as we thought nada was coming home with a live-in at that point. So I called the neighbor who has a key to the house and asked him to please fax it over for me this morning from work and he said he would. Without her telling me that obviously she was telling me what I already knew - that nada doesn't have long at all. I called the Hospice Care Center and the nurse said she was very confused; needed a blood transfusion again and the gangrene on her foot was 'much worse now' than it had been only two days earlier when she was last treating nada. They got the fever down to 103 and this was a 'break through' but she suspected strongly that nada was in sepsis. Of course that alone will kill you let alone all her other medical problems, but I won't go into them again here as most of you who are following my saga with nada know them. I have mixed feelings as I write. Part of me feels guilty because I didn't put my foot down on nada's HEAD if I had to and forced her to get the care she needed when this all started happening a few months ago now but I felt I was as forceful as I could be with a nada and she was self-destructing and would not listen to my pleas to 'go to your doctor' or 'call 911'. She had been vomiting BLOOD off and on for at least three months and kept insisting it was 'the contaminated fish I ate at Mc's' or something else she ate. I couldn't get her to listen to reason at all. She insisted if she went to the 'medical people' they would stick her in a nursing home and she promised my stepfather she would die at home and she'd never leave there as long as there was breathe in her body so he could 'find her' when she passed. She was ambulatory at the time and capable of at least cooking for herself and cleaning herself so I don't think so but to nada she knew it all so of course nothing could be done short of finding her mentally incompetent and that was something I wanted to avoid at all cost. I also feel sad because I am mourning the mother I will never have. I am also feeling glad she is going because watching this whole horrible thing unfold for the last six months has been excruciating for her AND for me. I would say the last year she has been deteriorating slowly and dying by inches. Sometimes I thought she was going to go soon and then she'd rally and then she'd go back down. But now the end is definitely a few days or less than a week away. No one there is SAYING that but her doctor did tell me that yesterday (although she is kept 'out of the loop' as she is not affiliated with that hospice unit) and they won't let her examine her. I trust this doctor explicitly but she only knows what I tell her and she called a woman named Ellen at the office for the hospice center who she knows who was going to give her the latest medically on nada. I haven't heard from her about that yet. Today in 15 minutes nada will be seen by their 'wound doctor' and then I will know what HE thinks. Thank you all who have been lending your support to me through this site. Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 yes it looks very like the end is near.. and go gentle with yourself.. you did everything you possibly could and  more.. rest easy on that account.. no one expects you to have done any different nor could you have, given the way your nada is, just is the way she is. and that has nothing to do with you as a person simply because you happen to be her daughter, no matter what anyone might choose to say or think.. they  are all entitled to their own opinions of course but we know in our hearts what is true and there is no need to feel guilty, no need at all.  remember your nada has spent a lifetime trying to push your quilt buttons (never good enuf for her for sure!!) don't let that old tape of nada get inside you and make you feel guilty now.  you are a good person and a dutiful daughter and besides, i know i wished my nada was dead plenty of times, and still suffer from her hand inside me to this day.  but life goes on for us and the future can be better, remember that!!  blessings to all, ann Subject: The Very Latest on My Nada To: WTOAdultChildren1 Date: Friday, March 11, 2011, 7:16 AM  The hospice center called me late last night and said they hoped they weren't waking me up but she wanted me to know that nada is on heavy dosages of morphine (patch AND under the tongue) and asked me for a copy of her living will which I have but I don't have a fax machine here and it WAS too late to find a place open that had fax machines of course so nothing could be done that way. I told her I had the original which I had found just where nada had told me it would be several months earlier in one of her complacent moods when I was down there this past weekend and I took it home. I had a neighbor make a copy of the living will and put it on her fridge as we thought nada was coming home with a live-in at that point. So I called the neighbor who has a key to the house and asked him to please fax it over for me this morning from work and he said he would. Without her telling me that obviously she was telling me what I already knew - that nada doesn't have long at all. I called the Hospice Care Center and the nurse said she was very confused; needed a blood transfusion again and the gangrene on her foot was 'much worse now' than it had been only two days earlier when she was last treating nada. They got the fever down to 103 and this was a 'break through' but she suspected strongly that nada was in sepsis. Of course that alone will kill you let alone all her other medical problems, but I won't go into them again here as most of you who are following my saga with nada know them. I have mixed feelings as I write. Part of me feels guilty because I didn't put my foot down on nada's HEAD if I had to and forced her to get the care she needed when this all started happening a few months ago now but I felt I was as forceful as I could be with a nada and she was self-destructing and would not listen to my pleas to 'go to your doctor' or 'call 911'. She had been vomiting BLOOD off and on for at least three months and kept insisting it was 'the contaminated fish I ate at Mc's' or something else she ate. I couldn't get her to listen to reason at all. She insisted if she went to the 'medical people' they would stick her in a nursing home and she promised my stepfather she would die at home and she'd never leave there as long as there was breathe in her body so he could 'find her' when she passed. She was ambulatory at the time and capable of at least cooking for herself and cleaning herself so I don't think so but to nada she knew it all so of course nothing could be done short of finding her mentally incompetent and that was something I wanted to avoid at all cost. I also feel sad because I am mourning the mother I will never have. I am also feeling glad she is going because watching this whole horrible thing unfold for the last six months has been excruciating for her AND for me. I would say the last year she has been deteriorating slowly and dying by inches. Sometimes I thought she was going to go soon and then she'd rally and then she'd go back down. But now the end is definitely a few days or less than a week away. No one there is SAYING that but her doctor did tell me that yesterday (although she is kept 'out of the loop' as she is not affiliated with that hospice unit) and they won't let her examine her. I trust this doctor explicitly but she only knows what I tell her and she called a woman named Ellen at the office for the hospice center who she knows who was going to give her the latest medically on nada. I haven't heard from her about that yet. Today in 15 minutes nada will be seen by their 'wound doctor' and then I will know what HE thinks. Thank you all who have been lending your support to me through this site. Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2011 Report Share Posted March 11, 2011 All I can say is HUGS! You did the best you could with a very difficult woman. You've maintained a loving attitude toward her even though she hasn't earned it. Do something nice for yourself today! > > > yes it looks very like the end is near.. and go gentle with yourself.. you > did everything you possibly could and more.. rest easy on that account.. no > one expects you to have done any different nor could you have, given the way > your nada is, just is the way she is. and that has nothing to do with you as > a person simply because you happen to be her daughter, no matter what anyone > might choose to say or think.. they are all entitled to their own opinions > of course but we know in our hearts what is true and there is no need to > feel guilty, no need at all. remember your nada has spent a lifetime trying > to push your quilt buttons (never good enuf for her for sure!!) don't let > that old tape of nada get inside you and make you feel guilty now. you are > a good person and a dutiful daughter and besides, i know i wished my nada > was dead plenty of times, and still suffer from her hand inside me to this > day. but life goes on for us and the future can be > better, remember that!! blessings to all, ann > > > > > Subject: The Very Latest on My Nada > To: WTOAdultChildren1 > Date: Friday, March 11, 2011, 7:16 AM > > > > > The hospice center called me late last night and said they hoped they > weren't waking me up but she wanted me to know that nada is on heavy dosages > of morphine (patch AND under the tongue) and asked me for a copy of her > living will which I have but I don't have a fax machine here and it WAS too > late to find a place open that had fax machines of course so nothing could > be done that way. I told her I had the original which I had found just where > nada had told me it would be several months earlier in one of her complacent > moods when I was down there this past weekend and I took it home. I had a > neighbor make a copy of the living will and put it on her fridge as we > thought nada was coming home with a live-in at that point. So I called the > neighbor who has a key to the house and asked him to please fax it over for > me this morning from work and he said he would. Without her telling me that > obviously she was telling me what I already knew - that nada > doesn't have long at all. > > I called the Hospice Care Center and the nurse said she was very confused; > needed a blood transfusion again and the gangrene on her foot was 'much > worse now' than it had been only two days earlier when she was last treating > nada. They got the fever down to 103 and this was a 'break through' but she > suspected strongly that nada was in sepsis. Of course that alone will kill > you let alone all her other medical problems, but I won't go into them again > here as most of you who are following my saga with nada know them. > > I have mixed feelings as I write. Part of me feels guilty because I didn't > put my foot down on nada's HEAD if I had to and forced her to get the care > she needed when this all started happening a few months ago now but I felt I > was as forceful as I could be with a nada and she was self-destructing and > would not listen to my pleas to 'go to your doctor' or 'call 911'. She had > been vomiting BLOOD off and on for at least three months and kept insisting > it was 'the contaminated fish I ate at Mc's' or something else she > ate. I couldn't get her to listen to reason at all. She insisted if she went > to the 'medical people' they would stick her in a nursing home and she > promised my stepfather she would die at home and she'd never leave there as > long as there was breathe in her body so he could 'find her' when she > passed. She was ambulatory at the time and capable of at least cooking for > herself and cleaning herself so I don't think so but to nada she > knew it all so of course nothing could be done short of finding her > mentally incompetent and that was something I wanted to avoid at all cost. > > I also feel sad because I am mourning the mother I will never have. > > I am also feeling glad she is going because watching this whole horrible > thing unfold for the last six months has been excruciating for her AND for > me. I would say the last year she has been deteriorating slowly and dying by > inches. Sometimes I thought she was going to go soon and then she'd rally > and then she'd go back down. But now the end is definitely a few days or > less than a week away. No one there is SAYING that but her doctor did tell > me that yesterday (although she is kept 'out of the loop' as she is not > affiliated with that hospice unit) and they won't let her examine her. I > trust this doctor explicitly but she only knows what I tell her and she > called a woman named Ellen at the office for the hospice center who she > knows who was going to give her the latest medically on nada. I haven't > heard from her about that yet. > > Today in 15 minutes nada will be seen by their 'wound doctor' and then I > will know what HE thinks. > > Thank you all who have been lending your support to me through this site. > > Marilyn > > Quote Link to comment Share on other sites More sharing options...
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