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When I get " ambushed " by my nada, such as if I answer a phone where I can't see

who is calling and its her, I now tend to get Meniere's disease-like symptoms

shortly afterward: loud ringing in the ears, vertigo (the room seems to be

spinning), nausea, vomiting, and a blinding headache, culminating in extreme

sleepiness. Like, conking out for 12 hours straight. I can't function, can't

earn a living under those conditions so I have to control when I speak with nada

now and I only phone her a couple of times a year.

So, I don't know if that is ptsd or what the hell it is, but its nasty and I

hate it.

-Annie

>

> my dear friends w ptsd. Tell me what thats like for you, is it an attack?

> Sickness? what triggers it?

>

>

>

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I get panicky and scared. I also have flashbacks sometimes for no apparent

reason. Years ago before I knew what was going on, flashbacks came in the

form of auditory hallucinations... it was REALLY scary. And no, I do not

have schizophrenia or schizoaffective disorder. People with PTSD can have

hallucinations. It was awful. I am very thankful I don't have that issue

any longer.

Generally it's panic & fear. I get shakey, sometimes I " zone out " if I'm

being verbally attacked. I guess it's a form of dissociation.

Most of my symptoms have improved a lot because I've been working a long

time at getting better. I am very grateful for my T now and the one I had

before I moved, they helped me SO much. I also have IBS (Sorry if that's

TMI) and when I get panicky & fearful it tends to act up and I usually also

get a headache of massive proportions.

Mia

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Huh, sounds like it can vary. I get fibro symptoms my body pretty much

collapses into a mass of painful trigger points.

Thanks guys

>

>

> I get panicky and scared. I also have flashbacks sometimes for no apparent

> reason. Years ago before I knew what was going on, flashbacks came in the

> form of auditory hallucinations... it was REALLY scary. And no, I do not

> have schizophrenia or schizoaffective disorder. People with PTSD can have

> hallucinations. It was awful. I am very thankful I don't have that issue

> any longer.

>

> Generally it's panic & fear. I get shakey, sometimes I " zone out " if I'm

> being verbally attacked. I guess it's a form of dissociation.

>

> Most of my symptoms have improved a lot because I've been working a long

> time at getting better. I am very grateful for my T now and the one I had

> before I moved, they helped me SO much. I also have IBS (Sorry if that's

> TMI) and when I get panicky & fearful it tends to act up and I usually also

> get a headache of massive proportions.

>

> Mia

>

>

>

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I hear you on the fibro too, though mine acts up more when I'm really tired

(like right now sadly). My doctor said that with my history of depression

and chronic pain from the endo, it's no wonder I ended up with fibro.

Something else I can thank my nada for, perhaps? Or, maybe it is

genetic... my dad has it (and chronic fatigue) too =(

Mia

On Mon, Mar 14, 2011 at 8:55 AM, Girlscout Cowboy <

girlscout.cowboy@...> wrote:

> Huh, sounds like it can vary. I get fibro symptoms my body pretty much

> collapses into a mass of painful trigger points.

>

> Thanks guys

>

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Hugs Mia! Yeah it seems that if you have pain it can only escalate. Mine

started with migraines in 3rd grade.

>

>

> I hear you on the fibro too, though mine acts up more when I'm really tired

> (like right now sadly). My doctor said that with my history of depression

> and chronic pain from the endo, it's no wonder I ended up with fibro.

> Something else I can thank my nada for, perhaps? Or, maybe it is

> genetic... my dad has it (and chronic fatigue) too =(

>

> Mia

>

>

> On Mon, Mar 14, 2011 at 8:55 AM, Girlscout Cowboy <

> girlscout.cowboy@...> wrote:

>

> > Huh, sounds like it can vary. I get fibro symptoms my body pretty much

> > collapses into a mass of painful trigger points.

> >

> > Thanks guys

> >

>

>

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Oh geeze, 3rd grade & migraines? Yikes Hugs to you too! I do think since my

surgery that the pain from the fibro has improved some and that's GREAT.

Now, for the fatigue. If we could find a way to kick that in the rear I'd

be good!

But yes, stress, anxiety, trauma... I KNOW it can cause physical problems

for people. I joke that I'm a walking medical malfunction, so it only makes

sense that I am in nursing. But really, when I look at the issues I do

have, fibro, IBS and a balance issue (don't have too many problems with that

now thanks to two rounds of vestibular rehab/physical therapy)... I can't

help but wonder if it's from the stress & abuse I endured as a kid. I think

all we can do now is try to heal from it so that the physical exacerbations

don't get worse, you know?

Hang in there. We're fighting the good fight of healing right along with

you =)

Mia

On Mon, Mar 14, 2011 at 12:58 PM, Girlscout Cowboy <

girlscout.cowboy@...> wrote:

> Hugs Mia! Yeah it seems that if you have pain it can only escalate. Mine

> started with migraines in 3rd grade.

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Oh that's so weird, I have balance/vertigo/vision weird things too.

I also have extremely sensitive hearing, vision, etc. I can hear a pin drop

across the room. And I can see things other people have no idea what they

say. All KO stuff? I often wonder.

>

>

> Oh geeze, 3rd grade & migraines? Yikes Hugs to you too! I do think since my

> surgery that the pain from the fibro has improved some and that's GREAT.

> Now, for the fatigue. If we could find a way to kick that in the rear I'd

> be good!

>

> But yes, stress, anxiety, trauma... I KNOW it can cause physical problems

> for people. I joke that I'm a walking medical malfunction, so it only makes

> sense that I am in nursing. But really, when I look at the issues I do

> have, fibro, IBS and a balance issue (don't have too many problems with

> that

> now thanks to two rounds of vestibular rehab/physical therapy)... I can't

> help but wonder if it's from the stress & abuse I endured as a kid. I think

> all we can do now is try to heal from it so that the physical exacerbations

> don't get worse, you know?

>

> Hang in there. We're fighting the good fight of healing right along with

> you =)

>

> Mia

>

> On Mon, Mar 14, 2011 at 12:58 PM, Girlscout Cowboy <

>

> girlscout.cowboy@...> wrote:

>

> > Hugs Mia! Yeah it seems that if you have pain it can only escalate. Mine

> > started with migraines in 3rd grade.

>

>

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Oh and the senstive nose. . . . I have that too. I usually cook by smell

instead of time.

On Mon, Mar 14, 2011 at 5:02 PM, Girlscout Cowboy <

girlscout.cowboy@...> wrote:

> Oh that's so weird, I have balance/vertigo/vision weird things too.

>

> I also have extremely sensitive hearing, vision, etc. I can hear a pin drop

> across the room. And I can see things other people have no idea what they

> say. All KO stuff? I often wonder.

>

>

>

>>

>>

>> Oh geeze, 3rd grade & migraines? Yikes Hugs to you too! I do think since

>> my

>> surgery that the pain from the fibro has improved some and that's GREAT.

>> Now, for the fatigue. If we could find a way to kick that in the rear I'd

>> be good!

>>

>> But yes, stress, anxiety, trauma... I KNOW it can cause physical problems

>> for people. I joke that I'm a walking medical malfunction, so it only

>> makes

>> sense that I am in nursing. But really, when I look at the issues I do

>> have, fibro, IBS and a balance issue (don't have too many problems with

>> that

>> now thanks to two rounds of vestibular rehab/physical therapy)... I can't

>> help but wonder if it's from the stress & abuse I endured as a kid. I

>> think

>> all we can do now is try to heal from it so that the physical

>> exacerbations

>> don't get worse, you know?

>>

>> Hang in there. We're fighting the good fight of healing right along with

>> you =)

>>

>> Mia

>>

>> On Mon, Mar 14, 2011 at 12:58 PM, Girlscout Cowboy <

>>

>> girlscout.cowboy@...> wrote:

>>

>> > Hugs Mia! Yeah it seems that if you have pain it can only escalate. Mine

>> > started with migraines in 3rd grade.

>>

>>

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Mine is called bilateral vestibulopathy - dysfunction of the vestibular

portions of both inner ears. Main causes are ototoxic medications (toxic to

the ears) and *drum roll* head trauma. When that started, oh boy... it was

bad. Luckily after 2 rounds of the rehabilitation for it I'm good, except

in the dark lol. I'm fine to drive in the dark because of headlights, but I

do get a little off kilter in the dark at home.

I'm really sensitive to loud noises too. That I do think is a KO thing for

me, for sure! Stomping, yelling, loud tv... all those things make me tense.

I tend to have really good hearing too, pretty weird. I think if I didn't

smoke I'd have a better sense of smell. Going to be trying to quit (again)

at the end of the month on spring break. Vision would suck but thank

goodness for glasses hehe.

I am curious if other KOs have balance issues. Annie said she gets Menier's

disease like symptoms too. Too weird.

Mia

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Hi all,

I was diagnosed with BPPV (bilateral positional proximal vertigo) approximately

2 years ago. I had that along with a bout of labrynthitis - wow, was I ever

dizzy! They thought it was Meinere's Disease, but I don't have the hearing loss

portion of the triad. Quite the opposite, my hearing is excellent. The vertigo's

overall controlled with lifestyle and medication, but I still have 'spells' from

time to time. How strange that all of us have balance/vertigo issues.

I have the super-sniffer too. Weird.

Cat

>

> Mine is called bilateral vestibulopathy - dysfunction of the vestibular

> portions of both inner ears. Main causes are ototoxic medications (toxic to

> the ears) and *drum roll* head trauma. When that started, oh boy... it was

> bad. Luckily after 2 rounds of the rehabilitation for it I'm good, except

> in the dark lol. I'm fine to drive in the dark because of headlights, but I

> do get a little off kilter in the dark at home.

>

> I'm really sensitive to loud noises too. That I do think is a KO thing for

> me, for sure! Stomping, yelling, loud tv... all those things make me tense.

> I tend to have really good hearing too, pretty weird. I think if I didn't

> smoke I'd have a better sense of smell. Going to be trying to quit (again)

> at the end of the month on spring break. Vision would suck but thank

> goodness for glasses hehe.

>

> I am curious if other KOs have balance issues. Annie said she gets Menier's

> disease like symptoms too. Too weird.

>

> Mia

>

>

>

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I was diagnosed with PTSD by my T a few years back. The acute attacks, which

are generally brought on my my nada's outbursts, involve trembling, ringing in

my ears, blurry peripheral vision, horrible flu-style chills and nausea. I also

become so exhausted that I cannot function, usually for the better part of a

day. My poor husband has found me in a fetal position in bed, minimally

responsive and under a ton of blankets- he recognizes that pattern now. The

attacks are usually followed by flash-backs, some of which come with symptoms

almost as intense as the original incident. And they inevitably set off my

other chronic (stress-induced) issues- fibro pain, IBS and migraines. FYI, my

migraines started when I was 12. I literally thought I was dying.

I'm a big fan of anxiety-busting meds when this happens. I've had really good

luck with xanax. On the more holistic side I've also had good results with

Rescue Remedy.

Big hugs- I TOTALLY understand how you feel!

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Aww thanks big hugs back

>

>

> I was diagnosed with PTSD by my T a few years back. The acute attacks,

> which are generally brought on my my nada's outbursts, involve trembling,

> ringing in my ears, blurry peripheral vision, horrible flu-style chills and

> nausea. I also become so exhausted that I cannot function, usually for the

> better part of a day. My poor husband has found me in a fetal position in

> bed, minimally responsive and under a ton of blankets- he recognizes that

> pattern now. The attacks are usually followed by flash-backs, some of which

> come with symptoms almost as intense as the original incident. And they

> inevitably set off my other chronic (stress-induced) issues- fibro pain, IBS

> and migraines. FYI, my migraines started when I was 12. I literally thought

> I was dying.

>

> I'm a big fan of anxiety-busting meds when this happens. I've had really

> good luck with xanax. On the more holistic side I've also had good results

> with Rescue Remedy.

>

> Big hugs- I TOTALLY understand how you feel!

>

>

>

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By the way, T says she doesn't want me to get caught up in the diagnosis.

She said she is sure I had it as a kid but I've come a long long way. She

wants me to focus on how far I have come instead of the burdens I still

carry. She also thinks that my attack last week on my 8 years NC date may

have been more of an attack of grieving and sorrow than PTSD. I have to

admit, I do miss my dad.

On Fri, Mar 18, 2011 at 1:43 PM, Girlscout Cowboy <

girlscout.cowboy@...> wrote:

> Aww thanks big hugs back

>

>

>

>

>>

>>

>> I was diagnosed with PTSD by my T a few years back. The acute attacks,

>> which are generally brought on my my nada's outbursts, involve trembling,

>> ringing in my ears, blurry peripheral vision, horrible flu-style chills and

>> nausea. I also become so exhausted that I cannot function, usually for the

>> better part of a day. My poor husband has found me in a fetal position in

>> bed, minimally responsive and under a ton of blankets- he recognizes that

>> pattern now. The attacks are usually followed by flash-backs, some of which

>> come with symptoms almost as intense as the original incident. And they

>> inevitably set off my other chronic (stress-induced) issues- fibro pain, IBS

>> and migraines. FYI, my migraines started when I was 12. I literally thought

>> I was dying.

>>

>> I'm a big fan of anxiety-busting meds when this happens. I've had really

>> good luck with xanax. On the more holistic side I've also had good results

>> with Rescue Remedy.

>>

>> Big hugs- I TOTALLY understand how you feel!

>>

>>

>>

>

>

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