Re:

[Guest guest]

Colleen-

The violin?! That sounds lovely! I can't wait to hear how she does with

it.

Michele W

Aubrie's mom

[Guest guest]

Colleen,

I second Michele's wonderment!! I can't wait to see the pictures of with

her violin. And a recital will be in the future, right?????

Congrats to both of you!!

pam

[Guest guest]

HI ,

Nice to 'meet' you and Emma. I wonder if life could ever be so simple

for us

that she just may not have enough of an apetite for the bottle if she is

tube fed?

Then there is the possibility of reflux or silent reflux creating an

aversion to bottle

drinking. I'm assuming as she's being followed for this that breathing is

not interfering.

How much does she rely on her mouth to breath?

Was she taking a bottle previously, then stopped? Were her lungs staying

clear?

Any increased secretions, drooling or spit ups after bottle feeds? Does she

prefer

sitting up a bit to drink?

Does she like her binky? Is there anything with the shape or muscles of her

mouth or face that might be contributing?

Are the doctors pleased with her weight?

Is that enough questions? LOL-laughing out loud.

There are lots of Mom's with babies on the list who can comment better. My

daughter's

a little older than bottle feeds. ;-)

Glad you've joined us,

in Ma. mom to , 21 yrs old.

[Guest guest]

Hi ,

Congratulations on the birth of Emma. Is she your first child? I can't

wait to hear more about her!

Regarding the bottle, many children with CHARGE have difficulty swallowing,

so it is hard work for them to coordinate sucking and swallowing. My

daughter (and many others) is fed using a g-tube but there are many as well

who have learned to eat orally. Is there a feeding team at your hospital

(or a close children's hospital?) - they sometimes have very good ideas for

helping with feeding.

Cheers,

Weir

http://www.chargesyndrome.info

>

> Hello,

>

> My name is and my 12 week old daughter Emma has just been

> positively diagnosised with CHARGE Syndrome. I'm not sure how the chat thing

> works so please bear with me until I get used to this. I was wondering if

> anyone has had trouble getting their child to take a bottle. Emma takes one

> but only takes a half of ounce to one ounce every four hours. If you have

> any tricks can you please let me know. I look forward to talking to

> everyone.

>

> (mother of Emma)

>

> Moser

> msmollybear@... <msmollybear%40earthlink.net>

> Why Wait? Move to EarthLink.

>

>

[Guest guest]

,

She has been seeing the feeding team since she was 18 days old. THey have tried

the vital stimulation on her. Her swallow is actually fine now, she just

doesn't seem to even want the bottle now. She had in the past. The feeding

team is now confused and are currently taking a break from seeing her. She does

have a G-Tube and is doing well with it. Just thought I would see if anyone

else had any problems that were simular. Do you have anyother children? This

is our first and we are concerned that if we have another that that one may have

the same thing happen. I would love to have more children I am afraid it will

happen again. Thanks for emailing me back.

Re:

Hi ,

Congratulations on the birth of Emma. Is she your first child? I can't

wait to hear more about her!

Regarding the bottle, many children with CHARGE have difficulty swallowing,

so it is hard work for them to coordinate sucking and swallowing. My

daughter (and many others) is fed using a g-tube but there are many as well

who have learned to eat orally. Is there a feeding team at your hospital

(or a close children's hospital?) - they sometimes have very good ideas for

helping with feeding.

Cheers,

Weir

http://www.chargesyndrome.info

>

> Hello,

>

> My name is and my 12 week old daughter Emma has just been

> positively diagnosised with CHARGE Syndrome. I'm not sure how the chat thing

> works so please bear with me until I get used to this. I was wondering if

> anyone has had trouble getting their child to take a bottle. Emma takes one

> but only takes a half of ounce to one ounce every four hours. If you have

> any tricks can you please let me know. I look forward to talking to

> everyone.

>

> (mother of Emma)

>

> Moser

> msmollybear@... <msmollybear%40earthlink.net>

> Why Wait? Move to EarthLink.

>

>

[Guest guest]

, I have two older sons, Kennedy was my third. She tested positive

for a de novo mutation on CHD7, so that means neither her father or I tested

positive for the mutation so we have no increased risk for having another

child with CHARGE if we were to have more (but we're finished so it's not

relevant for us personally). I would say to seek genetic counselling if and

when you do decide to have another child just so you can get all the facts.

Sorry I'm not much help with the feeding. Once Kennedy got a couple of

aspiration pneumonias, I stopped pushing the oral feeds when she was a

baby. She eats some stuff now but it's hard work for her and not

enjoyable. She eats yogurt and drinks sips of things but the preponderance

of her diet for sure, goes in through the tube. She's very healthy and I

feel she will work on learning to swallow more effectively and eat orally

when she's ready to and the motivation comes from within her.

Good luck and keep posting when you can!

www.chargesyndrome.info

>

> ,

> She has been seeing the feeding team since she was 18 days old. THey have

> tried the vital stimulation on her. Her swallow is actually fine now, she

> just doesn't seem to even want the bottle now. She had in the past. The

> feeding team is now confused and are currently taking a break from seeing

> her. She does have a G-Tube and is doing well with it. Just thought I would

> see if anyone else had any problems that were simular. Do you have anyother

> children? This is our first and we are concerned that if we have another

> that that one may have the same thing happen. I would love to have more

> children I am afraid it will happen again. Thanks for emailing me back.

>

>

>

> Re:

>

> Hi ,

> Congratulations on the birth of Emma. Is she your first child? I can't

> wait to hear more about her!

> Regarding the bottle, many children with CHARGE have difficulty

> swallowing,

> so it is hard work for them to coordinate sucking and swallowing. My

> daughter (and many others) is fed using a g-tube but there are many as

> well

> who have learned to eat orally. Is there a feeding team at your hospital

> (or a close children's hospital?) - they sometimes have very good ideas

> for

> helping with feeding.

>

> Cheers,

> Weir

> http://www.chargesyndrome.info

>

> On 11/17/06, Moser

<msmollybear@...<msmollybear%40earthlink.net>>

> wrote:

> >

> > Hello,

> >

> > My name is and my 12 week old daughter Emma has just been

> > positively diagnosised with CHARGE Syndrome. I'm not sure how the chat

> thing

> > works so please bear with me until I get used to this. I was wondering

> if

> > anyone has had trouble getting their child to take a bottle. Emma takes

> one

> > but only takes a half of ounce to one ounce every four hours. If you

> have

> > any tricks can you please let me know. I look forward to talking to

> > everyone.

> >

> > (mother of Emma)

> >

> > Moser

> > msmollybear@...

<msmollybear%40earthlink.net><msmollybear%40earthlink.net>

> > Why Wait? Move to EarthLink.

> >

> >

[Guest guest]

,

welcome, my 14 month old son didnt like the bottle we tried diffrent styles of

nipples until we found one we like now he has to have a certain color bottle

with a certain nipple i hope this helps he also had a feeding tube but no longer

has it they took it out

mommy of {14 moths old}

Re:

>

> Hi ,

> Congratulations on the birth of Emma. Is she your first child? I can't

> wait to hear more about her!

> Regarding the bottle, many children with CHARGE have difficulty

> swallowing,

> so it is hard work for them to coordinate sucking and swallowing. My

> daughter (and many others) is fed using a g-tube but there are many as

> well

> who have learned to eat orally. Is there a feeding team at your hospital

> (or a close children's hospital?) - they sometimes have very good ideas

> for

> helping with feeding.

>

> Cheers,

> Weir

> http://www.chargesy ndrome.info

>

> On 11/17/06, Moser <msmollybear@ earthlink. net<msmollybear%

40earthlink. net>>

> wrote:

> >

> > Hello,

> >

> > My name is and my 12 week old daughter Emma has just been

> > positively diagnosised with CHARGE Syndrome. I'm not sure how the chat

> thing

> > works so please bear with me until I get used to this. I was wondering

> if

> > anyone has had trouble getting their child to take a bottle. Emma takes

> one

> > but only takes a half of ounce to one ounce every four hours. If you

> have

> > any tricks can you please let me know. I look forward to talking to

> > everyone.

> >

> > (mother of Emma)

> >

> > Moser

> > msmollybear@ earthlink. net <msmollybear% 40earthlink. net><msmollybear

%40earthlink. net>

> > Why Wait? Move to EarthLink.

> >

> >

[Guest guest]

lisa is right we will start when we r ready you know im a charger it took me

21 hears to get where i am now and im still tube fed LOL last night for

everyones info i ate five pieces cheese vegimite three picesed mango and a

cherrie now whod of thought a few years ago id be doing that LOL there

ishope for us all i know i have also got colabomas cleft lip palte huge

reflux issues and growth problems many other hormonal stuff what other stuff

has emma got my mai issues now r my reflux hearing and hormones where r you

from im from aus hugs ellen

>

> HI ,

> Nice to 'meet' you and Emma. I wonder if life could ever be so simple

> for us

> that she just may not have enough of an apetite for the bottle if she is

> tube fed?

> Then there is the possibility of reflux or silent reflux creating an

> aversion to bottle

> drinking. I'm assuming as she's being followed for this that breathing is

> not interfering.

> How much does she rely on her mouth to breath?

> Was she taking a bottle previously, then stopped? Were her lungs staying

> clear?

> Any increased secretions, drooling or spit ups after bottle feeds? Does

> she

> prefer

> sitting up a bit to drink?

> Does she like her binky? Is there anything with the shape or muscles of

> her

> mouth or face that might be contributing?

> Are the doctors pleased with her weight?

> Is that enough questions? LOL-laughing out loud.

> There are lots of Mom's with babies on the list who can comment better. My

>

> daughter's

> a little older than bottle feeds. ;-)

>

> Glad you've joined us,

> in Ma. mom to , 21 yrs old.

>

>

[Guest guest]

Hi

Congratulations on the birth of Emma. I can't help you on the feeding but

does Emma have Choanal atresia? because this would cause problems with her

bottle. Babies are nose breathers for their first 6 months. It maybe that

her nasal passageways are not blocked but very narrow (stenosis) and that it

is too much effort for her to feed. Likewise do she have a heart problem,

this could have an impact.

Regarding first children like Kennedy ('s daughter) my daughter

(6) has the mutation but she was my first child. I have another and in the

UK there are a crowd of us who have first children with CHARGE around the

age of 6, 7, 8 with a younger sibling about 2 years younger who are

medically unremarkable. Hopefully this gives you some reassurance although I

am sure that Meg (Hefner) will comment in due course. Meg is the genetic

expert on CHARGE and is on the board on the CHARGE Syndrome Foundation.

Regards

Simon

[Guest guest]

Hey Ellen!!

Great news on the big meal last night!!!! Way to go!!

Janay

Rasha's Mom

> >

> > HI ,

> > Nice to 'meet' you and Emma. I wonder if life could ever be so

simple

> > for us

> > that she just may not have enough of an apetite for the bottle

if she is

> > tube fed?

> > Then there is the possibility of reflux or silent reflux

creating an

> > aversion to bottle

> > drinking. I'm assuming as she's being followed for this that

breathing is

> > not interfering.

> > How much does she rely on her mouth to breath?

> > Was she taking a bottle previously, then stopped? Were her lungs

staying

> > clear?

> > Any increased secretions, drooling or spit ups after bottle

feeds? Does

> > she

> > prefer

> > sitting up a bit to drink?

> > Does she like her binky? Is there anything with the shape or

muscles of

> > her

> > mouth or face that might be contributing?

> > Are the doctors pleased with her weight?

> > Is that enough questions? LOL-laughing out loud.

> > There are lots of Mom's with babies on the list who can comment

better. My

> >

> > daughter's

> > a little older than bottle feeds. ;-)

> >

> > Glad you've joined us,

> > in Ma. mom to , 21 yrs old.

> >

> >

[Guest guest]

-

My daughter is now nearly 9 years old and is an oral eater who can handle

just about anything. But she started out on a Gtube and unable to manage a

bottle. She did not have choanal atresia or aspiration issues. She did

have an aorta repair as an infant with a few VSDs that eventually resolved

on their own. She has a submucous cleft palate and a highly arched palate.

The biggest obstacle to her feeding was oral muscle weakness,

incoordination, and GE reflux. She never could coordinate the

suck-swallow-breath thing and never did manage to drink from a bottle. Her

reflux was horrible, but we managed it with medication and positioning

(keeping her upright) until she outgrew it by age 1.5 yrs or so.

We did intense feeding therapy during her first year. It felt like it went

on forever. Felt like " one step forward, 2 steps back " . But it actually

went relatively quickly. At 9 months, she could barely drink 10cc's by

bottle and barely ate 2 TB of baby food by spoon. I have video of a feeding

session at that age. It's remarkable that she went from that to having her

Gtube removed at age 1.5 or so. She did better when she was able to drink

from a sippy cup. And she slowly managed solid foods better.

I guess the moral to the story is to hold onto hope, continue with oral

motor and feeding therapy -even when it feels fruitless - and try not to

worry too much. I know I agonized. I'm troubled that the feeding team is

taking a break from Emma. If it's because she needs a break - that's ok -

but if it's because they are giving up - well, that's not ok. There were so

many times when I felt like we were getting no where. But obviously, we

made progress. It was just so slow sometimes that I didn't see it.

We spent the first year or so with the specialized speech therapist at the

children's hospital 2 hours away. Finally, I had the confidence to trust

our local speech therapist. She was young and new to the field with no

experience weaning a child from the Gtube. But together, we got it done.

She had her expertise, I had my knowledge of Aubrie and my experience with

the specialized speech therapist, and we both had our intuition and common

sense. We worked together to figure it out with no real course of action

and no " expert " to guide us through. Talking things through with the folks

here on the list was a huge help. It was really hard to keep up with the

feeding sessions and not let my anxiety and anguish flow over to Aubrie. Of

course, each feeding experience needs to be positive. And sometimes I

wasn't feeling so positive. But I worked hard at it, kept at it even when I

really wanted to just throw in the towel and go cry, and we made it.

Now - there are lots of parents here who have also worked really hard at it

without the same results. Each of our kids is very different so we can

never be sure what each one will accomplish. Emma will do what she can when

she can. Your job is to support her in getting there. And our job (as your

newly found CHARGE family) is to support you along the way!

Michele W

Aubrie's mom (9 yrs soon CHaRgE) and 15 yrs (without CHARGE)

[Guest guest]

Welcome !!

My oldest, Wyatt, has CHARGE and we just had another baby. Toby is

completely healthy. Wyatt is strictly g-tube fed, but seems to be

making some good strides with his swallow. Since he's 2 yrs old

we'll never give him a bottle so I can't help you with your feeding

questions.

Where are you located, if you don't mind sharing?

> > >

> > > Hello,

> > >

> > > My name is and my 12 week old daughter Emma has just

been

> > > positively diagnosised with CHARGE Syndrome. I'm not sure how

the chat

> > thing

> > > works so please bear with me until I get used to this. I was

wondering

> > if

> > > anyone has had trouble getting their child to take a bottle.

Emma takes

> > one

> > > but only takes a half of ounce to one ounce every four hours.

If you

> > have

> > > any tricks can you please let me know. I look forward to

talking to

> > > everyone.

> > >

> > > (mother of Emma)

> > >

> > > Moser

> > > msmollybear@ earthlink. net <msmollybear% 40earthlink.

net><msmollybear %40earthlink. net>

> > > Why Wait? Move to EarthLink.

> > >

> > >

[Guest guest]

Things like this do seem to run in cycles.

Again one can tell that EMS has sustained a loss.

Louis N. Molino, Sr., CET

FF/NREMT-B/FSI/EMSI

Freelance Consultant/Trainer/Author/Journalist/Fire Protection Consultant

LNMolino@...

(Cell Phone)

(IFW/TFW/FSS Office)

(IFW/TFW/FSS Fax)

" A Texan with a Jersey Attitude "

" Great minds discuss ideas; Average minds discuss events; Small minds

discuss people " Eleanor Roosevelt - US diplomat & reformer (1884 - 1962)

The comments contained in this E-mail are the opinions of the author and the

author alone. I in no way ever intend to speak for any person or

organization that I am in any way whatsoever involved or associated with unless

I

specifically state that I am doing so. Further this E-mail is intended only for

its

stated recipient and may contain private and or confidential materials

retransmission is strictly prohibited unless placed in the public domain by the

original author.

************************************** See what's free at http://www.aol.com.

[Guest guest]

Once again, another fallen hero. My condolensce to the family and friends of

.

It is with profound sadness that I send this e-mail to inform the

EMS community of the untimely death of . passed away

Saturday morning after a very brief illness.

was a long-time HFD, Manvel EMS and Alvin EMS firefighter / paramedic

who gave tirelessly to the communities he served.

Please join me in keeping 's wife, children, family and friends in your

thoughts and prayers during this very difficult time.

Funeral arrangements have been made and are posted below.

Sadly,

Dave Ferguson

Director

Manvel EMS

Viewing

Tuesday, May 1, 2007

4:30pm to 9:30pm.

Forest Park Lawndale

Funeral

Wednesday, May 2, 2007

1 pm

Forest Park Lawndale

This will be a Fire Department Funeral.

Please, keep the family in your thoughts and prayers during this

difficult time.

[Guest guest]

Dave,

This is a difficult month for Texas EMS. Those of us in Tyler and at ETMC-EMS

are very saddened to learn of 's death. We will keep his family in our

prayers.

Don

>>> " Manvel E M S " 04/30/07 11:02 AM >>>

It is with profound sadness that I send this e-mail to inform the EMS community

of the untimely death of . passed away Saturday morning

after a very brief illness.

was a long-time HFD, Manvel EMS and Alvin EMS firefighter / paramedic

who gave tirelessly to the communities he served.

Please join me in keeping 's wife, children, family and friends in your

thoughts and prayers during this very difficult time.

Funeral arrangements have been made and are posted below.

Sadly,

Dave Ferguson

Director

Manvel EMS

Viewing

Tuesday, May 1, 2007

4:30pm to 9:30pm.

Forest Park Lawndale

Funeral

Wednesday, May 2, 2007

1 pm

Forest Park Lawndale

This will be a Fire Department Funeral.

Please, keep the family in your thoughts and prayers during this

difficult time.

[Guest guest]

and I graduated from the same paramedic class at UT-Houston in 1979 and

we taught at Alvin CC in the early part of this decade. What a shame...

Gentle journey, ... the next place is better...

" A prudent man foresees the difficulties ahead and prepares for them; the

simpleton goes blindly on and suffers the consequences. " Proverbs 22:3

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

[Guest guest]

, Thank you very much!...It's always good to have friends to talk with about our problems...Some understand and some don't. Kim

>

> From: MSersLife@yahoogrou ps.com

> Subject: Birthday Reminder

> To: MSersLife@yahoogrou ps.com

> Date: Tuesday, July 6, 2010, 1:56 AM

>

>

>

>

>

>

>

>

>

>

>

>

>

> #yiv1925812030 a {color:#0066CC; text-decoration: none;}

> #yiv1925812030 {text-align: center;font- family:Arial; }

> #yiv1925812030 .propertyname{ text-align: right;font-

> size:13px;color: 7A8180;vertical- align:top; white-space: nowrap;}

> #yiv1925812030 .propertyvalue{ text-align: left;font-

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> #yiv1925812030 .divider{width: 5px;}

> #yiv1925812030 #main {background-

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> #yiv1925812030 #main_info {background- color:white; margin:0px

> 10px 0px 10px;clear:both; zoom:1;width: 505px;}

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> #yiv1925812030 #header_yahoo_ image {margin-

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> repeat;height: 28px;text- align:left; }

> #yiv1925812030 #header_second_ image {margin-

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> #yiv1925812030 #tip_footer {font-size:10px; text-align: center;}

> #yiv1925812030 .clear_line{ font-size: 8px;}

>

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>

>

>

>

>

>

>

>

>

>

>

> Reminder from:

>

> MSersLife Yahoo! Group

>

>

>

> Title:

>

> Kate R

>

>

>

> Date:

>

> Thursday July 8, 2010

>

> Time:

>

> All Day

>

> Repeats:

>

> This event repeats every year.

>

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>

>

>

> Yahoo! Greetings:

>

>

> Send a Yahoo! Greeting

>

>

>

>

> Yahoo! Shopping:

>

>

> Browse Yahoo! Shopping Gift Guide

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> Get reminders on your mobile, Yahoo! Messenger,

> and email.

> Edit reminder options

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> Copyright © 2010

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love and blessings,

Kate

[Guest guest]

I'm in Edmonton,but grew up near Montreal. I actually like the system here in Alberta and while I don't have any family and few good friends here (paranoid ex-husband), that's changing and I doubt I'd move. Accessibility here is awesome.

Join us on our homeschooling adventure! http://www.practical-homeschooling.org

--

I'm so sorry you've been having such a difficult time lately. So glad your dad could come up for a while to help. I keep forgetting where you are? I'm in Thunder Bay and totally disgusted by our premier.

How bout after you feel well enough, we temporarily move to Sask? How I wish we really could ... hugs, Cait

[Guest guest]

How are your girls doing, ? I'm assuming you are still in the hospital? How are your progressing? I know... too many questions as usual:)hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Mon, August 2, 2010 7:34:19 AMSubject: Re:

I'm in Edmonton,but grew up near Montreal. I actually like the system here in Alberta and while I don't have any family and few good friends here (paranoid ex-husband), that's changing and I doubt I'd move. Accessibility here is awesome.

Join us on our homeschooling adventure! http://www.practical-homeschooling.org

--

I'm so sorry you've been having such a difficult time lately. So glad your dad could come up for a while to help. I keep forgetting where you are? I'm in Thunder Bay and totally disgusted by our premier.

How bout after you feel well enough, we temporarily move to Sask? How I wish we really could ... hugs, Cait

[Guest guest]

Still in the hospital. Have a bit of brain fog at the moment..I hate that! I'm getting better. My arms are weak and numb, but function has returned, thank God!

The girls are now with a friend as of yesterday and they will stay there as long as necessary. She has four kids of her own for them to play with.

I'm hoping that my stay here will not be longer than 2 weeks. As soon as I can do wheelchair transfers, I'm going to convince them to discharge me on homecare, as I'm already in their system and have their own PTs and OTs, etc...

Thanks for inquiring, btw...feels nice to know I've been rememberes--this is an awesome group!

Join us on our homeschooling adventure! http://www.practical-homeschooling.org

--

I'm so sorry you've been having such a difficult time lately. So glad your dad could come up for a while to help. I keep forgetting where you are? I'm in Thunder Bay and totally disgusted by our premier.

How bout after you feel well enough, we temporarily move to Sask? How I wish we really could ... hugs, Cait

[Guest guest]

,

Thanks for the update. Continued prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

I'm so sorry you've been having such a difficult time lately. So glad your dad could come up for a while to help. I keep forgetting where you are? I'm in Thunder Bay and totally disgusted by our premier.

How bout after you feel well enough, we temporarily move to Sask? How I wish we really could ... hugs, Cait

Free 3D Earth Screensaver

Watch the Earth right on your desktop! Check it out at www.inbox.com/earth

[Guest guest]

Glad you're feeling better, prayers for quickest recovery!

in WY

Practical Blackwork Designs

" You get a wonderful view from the point of no return... "    

http://practical-blackwork.blogspot.com    

http://practicalblackwork.com

 

 

I'm so sorry you've been having such a difficult time lately.  So glad your

dad could come up for a while to help.  I keep forgetting where you are? 

I'm in Thunder Bay and totally disgusted by our premier.

 

How bout after you feel well enough, we temporarily move to Sask?  How I

wish we really could  ... hugs, Cait

 

 

 

 

[Guest guest]

Thanks ...

This really isn't my month! Now my new roomate might have TB...they have started "infection control" so that she's in semi isolation. Call me paranoid and the chances of me catching whatever she has are almost 0, but I have two kids waiting for me.

Join us on our homeschooling adventure! http://www.practical-homeschooling.org

-- Re: I'm in Edmonton,but grew up near Montreal. I actually like the system herein Alberta and while I don't have any family and few good friends here(paranoid ex-husband), that's changing and I doubt I'd move. Accessibilityhere is awesome. Join us on our homeschooling adventure!http://www.practical-homeschooling.org-------Original Message------- From: xstitcherDate: 07/31/10 22:05:50To: MSersLife Subject: I'm so sorry you've been having such a difficult time lately. So glad yourdad could come up for a while to help. I keep forgetting where you are? I'm in Thunder Bay and totally disgusted by our premier. How bout after you feel well enough, we temporarily move to Sask? How Iwish we really could ... hugs, Cait

[Guest guest]

If everybody follows protocols, the risk is VERY small - my dad had TB

when I was a kid, and none of the rest of us developed it.

You should be home very soon, God willing!

in WY

Practical Blackwork Designs

" You get a wonderful view from the point of no return... "    

http://practical-blackwork.blogspot.com    

http://practicalblackwork.com

 

 

I'm so sorry you've been having such a difficult time lately.  So glad your

dad could come up for a while to help.  I keep forgetting where you are? 

I'm in Thunder Bay and totally disgusted by our premier.

 

How bout after you feel well enough, we temporarily move to Sask?  How I

wish we really could  ... hugs, Cait

 

 

 

 

 

 

[Guest guest]

Dear ... I'm glad to hear the girls have a good place to be. I know you were hesitant about going because of the girls. Is this episode MS or TM? What do your docs think? SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, August 4, 2010 10:46:48 AMSubject: Re:

Still in the hospital. Have a bit of brain fog at the moment..I hate that! I'm getting better. My arms are weak and numb, but function has returned, thank God!

The girls are now with a friend as of yesterday and they will stay there as long as necessary. She has four kids of her own for them to play with.

I'm hoping that my stay here will not be longer than 2 weeks. As soon as I can do wheelchair transfers, I'm going to convince them to discharge me on homecare, as I'm already in their system and have their own PTs and OTs, etc...

Thanks for inquiring, btw...feels nice to know I've been rememberes--this is an awesome group!

Join us on our homeschooling adventure! http://www.practical-homeschooling.org

--

I'm so sorry you've been having such a difficult time lately. So glad your dad could come up for a while to help. I keep forgetting where you are? I'm in Thunder Bay and totally disgusted by our premier.

How bout after you feel well enough, we temporarily move to Sask? How I wish we really could ... hugs, Cait