Guest guest Posted October 13, 2010 Report Share Posted October 13, 2010 JenThe journey to a MS diagnosis can be a long one. I don't know for sure how many years I have had MS. I know I had problems with my legs as a child and had an attack of vertigo when I was 18. In that attack I could not stand up and had to literally crawl to the bathroom. Over the years I had strange health things happen but most doctors acted like I was a hypochondriac. Then I had an attack of Transverse Myelitis in 98 and was dxed with MS thefollowing year. There are people who seek diagnosis for years though. hugsSharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, October 13, 2010 9:03:02 AMSubject: Re: new member Sharon, I only found out a couple of weeks ago about the MS....there were other thoughts originally..Fibro...Degenerative Disc Disease.....Depression...Anxiety...it was a long journey to get here!! Jen new member Hi everyone, I was just diagnosed with MS and I just don't know what to think..I have heard some hopeful stories and some not so hopeful ones....I hope to connect with others who are going through the same things. I am 35, I am a Health Care Aide at a small nursing home. I have 3 teenage children ( 2 boys, 16 and 15, and a step daughter, 13). My hubby and I have been together for 6 yrs. We were both previously married. he has been really great. but neither of us has any experience with this........... Thanks for letting me be a part of your group Jen No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.862 / Virus Database: 271.1.1/3185 - Release Date: 10/08/10 14:34:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2010 Report Share Posted October 17, 2010  Sharon, No, I hadn't contacted the MS Society for info. I didn't know they did that...So this is something I will definately do. I know I have already learned so much from all of you!! I was pretty sure that it was the Baclofen that was making me so exhausted all the time....... Jen Re: new member JenI was on Baclofen and, while it worked for me, it really made my fatigue so much worse. Before Baclofen I was on Klonopin. It worked well but is rather sedating. It's a never ending cycle!As a newly diagnosed MSer you are on a brand new road. It's going to be a real learning experience and you will eventually settle in with your MS and things should calm down for you. Have you called your local National Multiple Sclerosis Society chapter to get information? They will mail you a packet of information for newly diagnosed. They also may have an in-person support group for the newly diagnosed.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2010 Report Share Posted October 17, 2010 Oh Akiba, I am very sorry that you went through so much with your marriage ending badly. Big hugs to you and to your son. I can't believe you were diagnosed on April Fools Day! I feel bad enough that I found out on my mothers birthday! How has your MS been progressing since 2004??????? Jen Re: new member Oh, I didn't mean to make you cry! And the longer you are here, the more this group will be home and the members, your extended family. I am Akiba, BTW, I am 56 now, with a young son about to turn 13. Yes he is an only child. I am divorced, my 14-year marriage ended fairly badly, I won't go into it at this time, we want you to stay lol... I was diagnosed on April Fool's day 2004. Some joke, huh? No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.862 / Virus Database: 271.1.1/3183 - Release Date: 10/07/10 14:34:00 No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.862 / Virus Database: 271.1.1/3192 - Release Date: 10/12/10 02:34:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2010 Report Share Posted October 17, 2010 I take LDN and my MS is under full control. It works for me. I AM in a chair but that is from arthritis, not MS. Oh, and I also found out I was pregnant...on April Fool's day...at age 42. My son is my miracle ~*~Hugs~*~ ~*~Akiba~*~ -- Re: new member Oh Akiba, I am very sorry that you went through so much with your marriage ending badly. Big hugs to you and to your son. I can't believe you were diagnosed on April Fools Day! I feel bad enough that I found out on my mothers birthday! How has your MS been progressing since 2004??????? Jen Re: new member Oh, I didn't mean to make you cry! And the longer you are here, the more this group will be home and the members, your extended family. I am Akiba, BTW, I am 56 now, with a young son about to turn 13. Yes he is an only child. I am divorced, my 14-year marriage ended fairly badly, I won't go into it at this time, we want you to stay lol... I was diagnosed on April Fool's day 2004. Some joke, huh? No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.862 / Virus Database: 271.1.1/3183 - Release Date: 10/07/10 14:34:00 No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.862 / Virus Database: 271.1.1/3192 - Release Date: 10/12/10 02:34:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 Reb, Thank you for sharing this with me..... May I ask what kind of cognitive issues she suffers???? Jen Re: new member Hi Jen, She is 37 now (so she hasn't been diagnosed all that very long, although she has probably had MS for quite long). She went to the ER with loss of sensation in one leg some 2 years, I think it may have been, before the actual diagnosis. That didn't lead to much, and eventually she regained sensation in that leg. Before that she had been to the doctor with a loss of sensation in half her face. Then, a couple of years after the first "leg episode", she lost sensation in both her legs (starting in her feet and spreading), and went to the PT, who sent her to the doctor, who sent her to the ER, where she was admitted to the hospital (that whole chain from the PT to the hospital was completed in a few hours actually...). And a couple of weeks (or could have been a month) later she had a definite diagnosis of MS, when all tests (MR and LP etc) had been done, and all the other things ruled out. Those were worrisome weeks, of course, but all in all, I guess she was lucky, I know that for others it has been a process of several years and countless of doctors visits. She is quite well. Suffers a lot from fatigue, and has some cognitive issues. But other symptoms are relatively mild. She has regained sensation and control in her legs, although they can still "act up" at times. And she has had a few episodes of things like minor loss of sensation in limited areas. Nothing big. That was the short answer – have to save that pea soup from the stove now... – do feel free to ask if you wonder about anything else, or if it was too short an answer. love /Reb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2010 Report Share Posted October 27, 2010 wow sharon......... There is nothing I hate more than being treated like a hypochondriac!!!!!!!!!!!! Jen Re: new member JenThe journey to a MS diagnosis can be a long one. I don't know for sure how many years I have had MS. I know I had problems with my legs as a child and had an attack of vertigo when I was 18. In that attack I could not stand up and had to literally crawl to the bathroom. Over the years I had strange health things happen but most doctors acted like I was a hypochondriac. Then I had an attack of Transverse Myelitis in 98 and was dxed with MS the following year. There are people who seek diagnosis for years though. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.