Guest guest Posted October 17, 2010 Report Share Posted October 17, 2010 Hello , I am sorry you can't get any of the drugs you need:( I worked briefly with homecare (Red Cross) and I hated it sooo much. Like you said, they were always so understaffed and expected ridiculous hours, it was a job I could not handle and I only lasted there a couple of months. But I do know very much what the people who need homecare go through.......Right now , I work privately for a 95 yr old woman and she has homecare come in for 2 hrs a day, and there is always something screwed up with it........My heart goes out to you!!! Jen Re: update time folks I'm here! ...though not a happy camper. I don't know if I mentioned this here or not (bloody memory!), but I can't get on any of the CRAB drugs--because I can't walk, healthcare will not pay for them...soooo it seems we are now in a game of catch-22. I posted a video about my situation last week: Other than that, I went to find a book I wanted, and bought some yummy cream puffs from the Chineese supermarket. A friend invited me to a hockey game tomorrow and I think I'll have to cancel...homecare is understaffed this weekend so no one to get me up and dressed tomorrow...so goes... www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2010 Report Share Posted October 17, 2010 Hi Jackie..I am new here.. I just wanted to say, boy, can I ever relate to what you said about your life being determined by how you are feeling.........It just really struck a cord with me... I used to be sooooo active, non stop...I have OCD when it comes to a clean and tidy and oragnized house and life in general.....This has been really hard to get used to! I have been "suffering" for a yr and a half with no answers, until a couple of weeks ago....and I have to tell myself, and remind myself that I have to slow down a little....Things are different than they used to be. You know?? I am not one to ask for help and my family and friends are saying "anything you need, just call...we are here for you...ask for help when you need it".....and that isn't the person I am...it's hard!!!!!!!!!! Jen Re: update time folks Well the weekend went too fast, and now its just me and the dust bunnies until Steve gets home from work. We had a house full on Sat. to celebrate Skylars 9th b-day [which was in Sept.], and we had our last barbeque of beefburgers, hotdogs, and turkey burgers. Potato salad, chips, green salad, olives, etc. etc......cupcakes for the kids. [will post pics when I download them] The house was filled with noise, especially with a football game going on in the front room, and my son in his usual booming voice cheering his team on. He grabbed his nephew Christian and sat him on the couch next to him to teach him all about the game. [he's 20 mo's now] lol...it was so cute when a touchdown was made my son yelled and clapped and Christian clapped just as hard. Don't think his dad was very pleased as he doesn't like any sports, but Christian is so active he will probably be involved in some sport as he gets older. The wimim folk were in the kitchen yaking up a storm, and getting caught up on all the latest. Its been awhile since we all got together. So to say I was pooped when everyone left is understating it, but at the same time as usual I went thru my withdrawals of having a house full like the good old days, and then empty. :-) :-( Sunday was quiet, with TV church, and just Steve and I, I haven't been sleeping very well lately so I caught a few cat naps here and there. Now its Monday, and I'm still tired, but miss the hubbub of having people around. I think the thing that frustrates me the most about about being ill is how its cut into my social life. Every thing is determined on how I am feeling, and if I can handle the noise. The rare times now that it does happen I cherish as much as I can, and hope next time will come sooner. Thats it for me.....time to try and catch up on some e-mails now. :-) Hugs and Love, Jackie May the peace of God be with you...the love of Jesus enfold you...and the Spirit of Christ fill you. No virus found in this incoming message.Checked by AVG - www.avg.com Version: 9.0.862 / Virus Database: 271.1.1/3190 - Release Date: 10/11/10 02:34:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2010 Report Share Posted October 17, 2010 JenYou and are both in Canada. I'm wondering if you also have trouble getting the meds you need? Or is the problem one of location?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sun, October 17, 2010 6:05:21 AMSubject: Re: update time folks Hello , I am sorry you can't get any of the drugs you need:( I worked briefly with homecare (Red Cross) and I hated it sooo much. Like you said, they were always so understaffed and expected ridiculous hours, it was a job I could not handle and I only lasted there a couple of months. But I do know very much what the people who need homecare go through.......Right now , I work privately for a 95 yr old woman and she has homecare come in for 2 hrs a day, and there is always something screwed up with it........My heart goes out to you!!! Jen Re: update time folks I'm here! ...though not a happy camper. I don't know if I mentioned this here or not (bloody memory!), but I can't get on any of the CRAB drugs--because I can't walk, healthcare will not pay for them...soooo it seems we are now in a game of catch-22. I posted a video about my situation last week: Other than that, I went to find a book I wanted, and bought some yummy cream puffs from the Chineese supermarket. A friend invited me to a hockey game tomorrow and I think I'll have to cancel...homecare is understaffed this weekend so no one to get me up and dressed tomorrow...so goes... www.laurabeaudin.com --NOT just another blog! http://practical-homeschooling.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2010 Report Share Posted October 17, 2010 To be honest, I am really not sure......Seeing as I am newly diagnosed, there isn't many meds I am on for MS. However, I have never had any trouble getting any of the meds I have been on in the past yr and a half while the doctor was trying to figure out what was wrong with me. I have been on so many and nothing really helped..... I have insurance however through my husbands work that covers 100% of pretty much every kind of medication out there. We are really fortunate for this. The only thing they didn't cover 100% of was my Cymbalta. Which I am no longer taking anyways. But it isn't like I have been prescribed any major MS drugs at this point......so I'm not totally sure.........Sorry. Jen Re: update time folks JenYou and are both in Canada. I'm wondering if you also have trouble getting the meds you need? Or is the problem one of location?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Quote Link to comment Share on other sites More sharing options...
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