Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 Hi everyone, My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. Thanks is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 Am totally guessing here, but doesn't Culturelle have dairy? Also, how are you dosing the Leucovorin? I have read, anecdotally, that increased aggression and inattentiveness can happen if you don't very slowly work up to full dose. In terms of methylation, Yasko has given us the most information on our methylation profile. I highly recommend that testing. It has been helpful on many fronts.Ruth Hi everyone, My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. Thanks is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 is, A simple histamine test will tell you if he is and over or under methylator.High histamine = underLow histamine = over. hth,Tammy To: mb12valtrex Sent: Monday, January 16, 2012 6:21 PM Subject: increased stimming and refusing to do academics Hi everyone, My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. Thanks is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 leucovorin is just 5-mthf right? 2.5mg seems awfully high for a beginning dose.My kids and I still only take 1/4 tablet daily or actifolate, I think that's 1/10 of what you are giving.I know that 5-mthf is dosed much higher but I think with this, it's a low and slow type deal. I think it is likely just causing a lot of detox and that is the yeasty-looking behaviors you are seeing. :-) Â Hi everyone, My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. Thanks is -- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565 --------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565 ------Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 Hi alexis,I think it could be yeast flaring with th vanco. My kid's yeast worsened while on vanco and flagyl despite taking stronger antifungals then nystatin. Once we stopped flagyl, the yeast improved with nystatin and candidase was great also...they are still yeasty but better. Did you ever consider 3 lac for yeast? I know it has a small amt of dairy but my kids both did well on it and they are big reactors to allergens (esp milk)....and I really watched themm to see if they reacted to it...not sure how that works but my son for expample couldn't tolerate kirkmans probio which is dairy free....go figure!Good luck!-- Sent from my Palm Pre Hi everyone, My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. Thanks is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 Thanks ! I have started leucovorin at low dose - 2 mg and I have to slowly build it upto 15-20 mg/day. Also the culturelle that I use is dairy and gluten free but does contain inulin. is > > > Hi everyone, > > My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. > > Thanks > > is > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 Tammy is it a blood test? is > > is, >  > A simple histamine test will tell you if he is and over or under methylator. > High histamine = under > Low histamine = over. >  > hth, > Tammy > > > ________________________________ > > To: mb12valtrex > Sent: Monday, January 16, 2012 6:21 PM > Subject: increased stimming and refusing to do academics > > > >  > > Hi everyone, > My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk > about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. > Thanks > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 Toni, Leucovorin is folinic acid (5-formylTHF). Acifolate contains both 5MTHF and 5FTHF. My son is on a low dose as the dan prescribed 5 mg but I am giving 2.5 mg and will gradually build upto 15-20 mg. For now I will continue at the same dose till I see some reduction in yeasty behavior. If I start getting more aggression then I will probably switch to another form of folic acid. is > > > ** > > > > > > Hi everyone, > > My son has completed a total of 4 weeks of vancomycin. He is still on anti > > yeast. For the last two weeks, he has lost interest in any reading, writing > > or coloring. He would may be cooperate for 10 minutes and after that just > > wants to sit on my lap and then showers me with kisses. He still is able to > > work with his private OT on weekends and is doing a good job. Overall is > > taking interest in watching TV (had lost all his interests in the last 2 > > years). Very stimmy. Mouthing everything - licking small toys. The huge > > tantrums have lessened but gets angry easily and anger episodes are very > > physical as he pull my hair and squeezes anybody who is near him. I started > > leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short > > attention span was already there but has now worsened. He is getting at > > least 3 culturelles a day and nystatin. Also curcumin is back which has > > definitely calmed him down. Can leukovorin precipitate yeast flare? People > > talk about over methylators and under methylators. How do you figure out > > what your child exactly is? Will try adding back candidase but last time I > > tried, he had huge tantrums. Any suggestions about inattentiveness and > > short attention span will be appreciated. > > Thanks > > is > > > > > > > > > > -- > --------------------------------------------------------------------------------\ ------------ > Click to find info about Vitamins and Minerals: > http://www.facebook.com/note.php?note_id=10150543521682565 > --------------------------------------------------------------------------------\ ------------ > Click to find links to info about the Low Oxalate Diet : > http://www.facebook.com/note.php?note_id=10150543495292565 > ------ > Toni > > ------ > Mind like a steel trap... > Rusty and illegal in 37 states. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2012 Report Share Posted January 16, 2012 , thanks for reminding me about threelac. I forgot to ask our dan about it as now my son needs to be on absolutely dairy free diet because of folate receptor antibodies. I will definitely explore this probiotic. Thanks is > > > & nbsp; > > > > > > > > > > > Hi everyone, > > My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. > > Thanks > > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Interesting my son become agresive n completely psychotics on curcumin. Also vitamin b6 induce those same behaviour on him. > > Hi everyone, > My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. > Thanks > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Curcumin is high in phenols.Someone just posted at another yahoo group that a certain subgroup have an snp that will turn B6 to ammonia (new to me!)and in our archives, there's something about avoiding it if there's a CBS mutation. (No clue : ) -Tammy To: mb12valtrex Sent: Tuesday, January 17, 2012 4:22 AM Subject: Re: increased stimming and refusing to do academics Interesting my son become agresive n completely psychotics on curcumin. Also vitamin b6 induce those same behaviour on him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Yes, as far as I know. There is also a urine test, but I think you'd want to look at whole blood, specifically.Be warned, I am not the brightest bulb on the shelf. : ) -Tammy To: mb12valtrex Sent: Tuesday, January 17, 2012 12:23 AM Subject: Re: increased stimming and refusing to do academics Tammy is it a blood test? is > > is, > Â > A simple histamine test will tell you if he is and over or under methylator. > High histamine = under > Low histamine = over. > Â > hth, > Tammy > > > ________________________________ > > To: mb12valtrex > Sent: Monday, January 16, 2012 6:21 PM > Subject: increased stimming and refusing to do academics > > > > Â > > Hi everyone, > My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk > about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. > Thanks > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 I don't know if you know your child's MTHFR status, but I just read this last night in Yasko's book: " The C677T mutation serves the forward reaction of MTHFR enzyme, reducing the ability of the body to make a specific kind of folate called 5 methyl folate. That's why it is important to supplement with this specific form of folate and to limit to very low doses any other forms of plain folate or folinic, which compete with 5 methyl folate for transport into the body. ....but from my experience one thing is clear: Only 5 methyl folate will bypass the MTHFR mutation. The 5 formyl folate has other advantages, but it will not bypass the mutation. Going from 5 formyl THF to 5 methyl THF requires MTHFR. " Of the three of my children who have been tested for MTHFR, one has one mutation of C677T, the second has 2 mutations of C677T, and the third has one mutation of C677T and one of A1298C. I have been giving folinic all along. Maybe this is why one child can't tolerate it and I have been wondering about another... Cathy > > Toni, > Leucovorin is folinic acid (5-formylTHF). Acifolate contains both 5MTHF and 5FTHF. My son is on a low dose as the dan prescribed 5 mg but I am giving 2.5 mg and will gradually build upto 15-20 mg. For now I will continue at the same dose till I see some reduction in yeasty behavior. If I start getting more aggression then I will probably switch to another form of folic acid. > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 hi can someone tell me how i test for these mutations? thanka Sent from Yahoo! Mail on Android From: Callari ; To: <mb12valtrex >; Subject: Re: increased stimming and refusing to do academics Sent: Tue, Jan 17, 2012 1:50:34 PM I don't know if you know your child's MTHFR status, but I just read this last night in Yasko's book: " The C677T mutation serves the forward reaction of MTHFR enzyme, reducing the ability of the body to make a specific kind of folate called 5 methyl folate. That's why it is important to supplement with this specific form of folate and to limit to very low doses any other forms of plain folate or folinic, which compete with 5 methyl folate for transport into the body. ....but from my experience one thing is clear: Only 5 methyl folate will bypass the MTHFR mutation. The 5 formyl folate has other advantages, but it will not bypass the mutation. Going from 5 formyl THF to 5 methyl THF requires MTHFR. " Of the three of my children who have been tested for MTHFR, one has one mutation of C677T, the second has 2 mutations of C677T, and the third has one mutation of C677T and one of A1298C. I have been giving folinic all along. Maybe this is why one child can't tolerate it and I have been wondering about another... Cathy > > Toni, > Leucovorin is folinic acid (5-formylTHF). Acifolate contains both 5MTHF and 5FTHF. My son is on a low dose as the dan prescribed 5 mg but I am giving 2.5 mg and will gradually build upto 15-20 mg. For now I will continue at the same dose till I see some reduction in yeasty behavior. If I start getting more aggression then I will probably switch to another form of folic acid. > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Thanks, I couldn't remember which isomer or whatever it is called that Leucovorin had. I assume your son tested pos for antibodies, which I think I remember you saying. We also tested and not positive, thank goodness b/c they are both compound heterozygous for MTHFR, we don't need another strike against us. But my point is that typical daily dose of folic acid is 400micrograms (not easily absorbable) and pregnancy is 800 micrograms and Yasko who promotes heavy methylation still just promotes 200mcg daily 5-MTHF + 5-FTHF (in combination with the rest contained in her supplements) SOOO if the typical " therapeutic user " (meaning, using more than general population) is using 1mg daily (1000mcg) of easily absorbable folinic, and you are trying to work your son up to 15 milligrams a day (15 times the dose of a typical theraputic user and 35 times the dose a typical vitamin user would take) then I would expect to see some increased stimming/detox/yeast/die-off or whatever you want to call the herx-y reaction... I'm not saying that it's a bad dose or a bad product or bad advice :-) I am just saying that it sounds like it would be likely to have this period of negative reaction and if the negative reaction is too much to deal with, then maybe throttle back and work up more slowly? Oh I don't have the research to back this up, but someone on trying_low_oxalates list had mentioned finding in pubmed or elsewhere information stating that they believed it was best to take multiple forms of folic/folinic in case there was a breakdown in more than one of the pathways. That is why I left my folinic I was getting at Vitamin Shoppe for Actifolate, since it has all three forms of folate/folic/folinic. I am also trying to do this with my other vits. Super pain in the butt. LOL This is just directed at your comment about switching to another form of folinic... maybe just need to add one of the forms?? BTW is it true you have to be really super strict on the casein-free when taking leucovorin for folic antibodies? That is what I hear one of my mailing lists, wasn't sure what everyone else's docs were doing. Â Toni, Leucovorin is folinic acid (5-formylTHF). Acifolate contains both 5MTHF and 5FTHF. My son is on a low dose as the dan prescribed 5 mg but I am giving 2.5 mg and will gradually build upto 15-20 mg. For now I will continue at the same dose till I see some reduction in yeasty behavior. If I start getting more aggression then I will probably switch to another form of folic acid. is-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals: http://www.facebook.com/note.php?note_id=10150543521682565-------------------------------------------------------------------------------------------- Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565------ Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 holisticheal.com = Yasko  hi can someone tell me how i test for these mutations? thanka Sent from Yahoo! Mail on Android -- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals: http://www.facebook.com/note.php?note_id=10150543521682565-------------------------------------------------------------------------------------------- Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565------ Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Here is a good article that I found listed on another board related to under and over methylators. http://adhdldsupport.proboards.com/index.cgi?board=alt & action=display & thread=112\ 6 Interestingly (here I go with Yasko again), Yasko links this to the COMT enzyme. This is the enzyme that inactivates dopamine and norepinephrine by adding a methyl group. MTHFR helps us make these while COMT helps us break them down. Overmethylators might be those who have certain COMT mutations that inhibit this breakdown, increasing dopamine, norepinephrine and decreasing histamine while undermethylators might be those who don't have those mutations and instead have other enzyme mutations that reduce the production of dopamine and norepinephrine and increase histamine. She says that if you have mutations (like MTHFR) that inhibit your production, it can be to your advantage to also have the COMT mutations that keeps you from breaking it down as quickly. I hope I am not driving everyone crazy with the Yasko stuff, but it is what I am learning right now and it provides me with so many AHA! moments that I can't help but share. Cathy > > > > is, > >  > > A simple histamine test will tell you if he is and over or under methylator. > > High histamine = under > > Low histamine = over. > >  > > hth, > > Tammy > > > > > > ________________________________ > > From: alexis_d3378 <alexis_d3378@> > > To: mb12valtrex > > Sent: Monday, January 16, 2012 6:21 PM > > Subject: increased stimming and refusing to do academics > > > > > > > >  > > > > Hi everyone, > > My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk > > about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. > > Thanks > > is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 We ran our MTHFR testing through Quest labs and it was covered by insurance. The other testing I talk about is through Dr. Amy Yasko and her lab does not accept insurance. This is the test: http://www.holisticheal.com/comprehensive-methylation-panel-with-methylation-pat\ hway-analysis.html I have not received results from this test yet. Cathy > > hi can someone tell me how i test for these mutations? thanka > > > Sent from Yahoo! Mail on Android > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 I have heard that there is a prescription strength 5MTHF. I don't know anything about it, but I think it is called Metafolin. WHen I found that out, I wondered why kids who have this need aren't taking that, vs the Leucovorin. It may be something to look into, though, if the Leucovorin isn't sitting well with your child.Ruth Toni, Leucovorin is folinic acid (5-formylTHF). Acifolate contains both 5MTHF and 5FTHF. My son is on a low dose as the dan prescribed 5 mg but I am giving 2.5 mg and will gradually build upto 15-20 mg. For now I will continue at the same dose till I see some reduction in yeasty behavior. If I start getting more aggression then I will probably switch to another form of folic acid. is > > > ** > > > > > > Hi everyone, > > My son has completed a total of 4 weeks of vancomycin. He is still on anti > > yeast. For the last two weeks, he has lost interest in any reading, writing > > or coloring. He would may be cooperate for 10 minutes and after that just > > wants to sit on my lap and then showers me with kisses. He still is able to > > work with his private OT on weekends and is doing a good job. Overall is > > taking interest in watching TV (had lost all his interests in the last 2 > > years). Very stimmy. Mouthing everything - licking small toys. The huge > > tantrums have lessened but gets angry easily and anger episodes are very > > physical as he pull my hair and squeezes anybody who is near him. I started > > leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short > > attention span was already there but has now worsened. He is getting at > > least 3 culturelles a day and nystatin. Also curcumin is back which has > > definitely calmed him down. Can leukovorin precipitate yeast flare? People > > talk about over methylators and under methylators. How do you figure out > > what your child exactly is? Will try adding back candidase but last time I > > tried, he had huge tantrums. Any suggestions about inattentiveness and > > short attention span will be appreciated. > > Thanks > > is > > > > > > > > > > -- > ---------------------------------------------------------- > Click to find info about Vitamins and Minerals: > http://www.facebook.com/note.php?note_id=10150543521682565 > ---------------------------------------------------------- > Click to find links to info about the Low Oxalate Diet : > http://www.facebook.com/note.php?note_id=10150543495292565 > ------ > Toni > > ------ > Mind like a steel trap... > Rusty and illegal in 37 states. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Lower the dose. You can't be allergic to b6. :-) Maybe allergic to the source or anotheringredient?The SNP that pushes towards ammonia would just mean you can't take massive doses, I would guess.You'd die without B6. Gabi needs a lower dose of B6 than Alek. Alek can take A LOT of it, Gabi was having issues with 100mg and lessbut now I have her on a higher sustained release one and she seems ok.I might need to adjust her dose though because she is still not quite right, while Alek seems to be where he needs to be with the sustained release B6.He's the one with seizure activity so he likely needs that!She might just need more magnesium (Gabi, my daughter!) Yasko makes a low dose B6 " multi-B " that we all use. http://www.holisticheal.com/ultimate-b-complex.html Reminds me time to reorder  my dau seemed to have an allergic reaction to b6. Broke out in hives. Cleared after stoppong a few days. Re: increased stimming and refusing to do academics  Interesting my son become agresive n completely psychotics on curcumin. Also vitamin b6 induce those same behaviour on him. -- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565 --------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565 ------Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Thanks cathy! I love the details! Keep them coming! We just sent in our yasko test for my son yesterday so I need to do some more reading on it too! Looks like you have it really well grasped! I need cliff notes!-- Sent from my Palm Pre I don't know if you know your child's MTHFR status, but I just read this last night in Yasko's book: "The C677T mutation serves the forward reaction of MTHFR enzyme, reducing the ability of the body to make a specific kind of folate called 5 methyl folate. That's why it is important to supplement with this specific form of folate and to limit to very low doses any other forms of plain folate or folinic, which compete with 5 methyl folate for transport into the body. ....but from my experience one thing is clear: Only 5 methyl folate will bypass the MTHFR mutation. The 5 formyl folate has other advantages, but it will not bypass the mutation. Going from 5 formyl THF to 5 methyl THF requires MTHFR." Of the three of my children who have been tested for MTHFR, one has one mutation of C677T, the second has 2 mutations of C677T, and the third has one mutation of C677T and one of A1298C. I have been giving folinic all along. Maybe this is why one child can't tolerate it and I have been wondering about another... Cathy > > Toni, > Leucovorin is folinic acid (5-formylTHF). Acifolate contains both 5MTHF and 5FTHF. My son is on a low dose as the dan prescribed 5 mg but I am giving 2.5 mg and will gradually build upto 15-20 mg. For now I will continue at the same dose till I see some reduction in yeasty behavior. If I start getting more aggression then I will probably switch to another form of folic acid. > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 No kidding, right?? I am a " science-y " type person. Biology and Anatomy and Physiology were my fav subjects in school. I am a logical/linear thinker. But man, she stretches my brain. I get it while I am reading it, but retaining the details and utilizing the information is a totally different thing! I have to re-read and take notes. I think it will really start to come together when we get our test results. I will definitely be marking up my book at that point. Cathy > > & gt; > > & gt; Toni, > > & gt; Leucovorin is folinic acid (5-formylTHF). Acifolate contains both 5MTHF and 5FTHF. My son is on a low dose as the dan prescribed 5 mg but I am giving 2.5 mg and will gradually build upto 15-20 mg. For now I will continue at the same dose till I see some reduction in yeasty behavior. If I start getting more aggression then I will probably switch to another form of folic acid. > > & gt; is > > & gt; > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2012 Report Share Posted January 17, 2012 Chew on this: http://www.heartfixer.com/AMRI-Nutrigenomics.htmOn Tue, Jan 17, 2012 at 3:17 PM, Callari wrote: Â No kidding, right?? I am a " science-y " type person. Biology and Anatomy and Physiology were my fav subjects in school. I am a logical/linear thinker. But man, she stretches my brain. I get it while I am reading it, but retaining the details and utilizing the information is a totally different thing! I have to re-read and take notes. I think it will really start to come together when we get our test results. I will definitely be marking up my book at that point. Cathy-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565 --------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565 ------Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 Hi ,I really like that article.It looks like it comes from a scientist at the Pfeiffer Center in Illinous.Has anyone been to this center? Thanks,Tammy Here is a good article that I found listed on another board related to under and over methylators. http://adhdldsupport.proboards.com/index.cgi?board=alt & action=display & thread=1126 Interestingly (here I go with Yasko again), Yasko links this to the COMT enzyme. This is the enzyme that inactivates dopamine and norepinephrine by adding a methyl group. MTHFR helps us make these while COMT helps us break them down. Overmethylators might be those who have certain COMT mutations that inhibit this breakdown, increasing dopamine, norepinephrine and decreasing histamine while undermethylators might be those who don't have those mutations and instead have other enzyme mutations that reduce the production of dopamine and norepinephrine and increase histamine. She says that if you have mutations (like MTHFR) that inhibit your production, it can be to your advantage to also have the COMT mutations that keeps you from breaking it down as quickly. I hope I am not driving everyone crazy with the Yasko stuff, but it is what I am learning right now and it provides me with so many AHA! moments that I can't help but share. Cathy > > > > is, > >  > > A simple histamine test will tell you if he is and over or under methylator. > > High histamine = under > > Low histamine = over. > >  > > hth, > > Tammy > > > > > > ________________________________ > > From: alexis_d3378 <alexis_d3378@> > > To: mb12valtrex > > Sent: Monday, January 16, 2012 6:21 PM > > Subject: increased stimming and refusing to do academics > > > > > > > >  > > > > Hi everyone, > > My son has completed a total of 4 weeks of vancomycin. He is still on anti yeast. For the last two weeks, he has lost interest in any reading, writing or coloring. He would may be cooperate for 10 minutes and after that just wants to sit on my lap and then showers me with kisses. He still is able to work with his private OT on weekends and is doing a good job. Overall is taking interest in watching TV (had lost all his interests in the last 2 years). Very stimmy. Mouthing everything - licking small toys. The huge tantrums have lessened but gets angry easily and anger episodes are very physical as he pull my hair and squeezes anybody who is near him. I started leucovorin at 2.5 mg a day about 6 days ago. Some inattentiveness and short attention span was already there but has now worsened. He is getting at least 3 culturelles a day and nystatin. Also curcumin is back which has definitely calmed him down. Can leukovorin precipitate yeast flare? People talk > > about over methylators and under methylators. How do you figure out what your child exactly is? Will try adding back candidase but last time I tried, he had huge tantrums. Any suggestions about inattentiveness and short attention span will be appreciated. > > Thanks > > is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2012 Report Share Posted January 19, 2012 I have not been to pfeiffer but I know of someone on another group who has. Her son's docwas/is (????) Dr. Usman. I think she(Dr. Usman) has a separate practice now but they still follow Pfeifferprotocol. Â Hi ,I really like that article.It looks like it comes from a scientist at the Pfeiffer Center in Illinous.Has anyone been to this center? Thanks,Tammy -- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565 --------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565 ------Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
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