Guest guest Posted February 10, 2007 Report Share Posted February 10, 2007 , this is all such good news!!! pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2007 Report Share Posted February 11, 2007 - So many wonderful accomplishments! Thanks for sharing your joys with us. It gave my morning a smile :-) Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Thanks for the update , I hope they figure out what's going on very soon. > > i wanted to stop in and let everybody know nathan made it to his room > in the picu they got his breathing stable for about 2 hours last night > then he started going down hill again they dont know why but they are > also not doing anything to find out why its very frustrating i snuck > out to the ronal mcdonald house waiting room to send this message he > fell asleep after a long night and day they have his lights off and a > sign up not to wake him to let him sleep which is good he tried to eat > a little but only took a couple bites hes not taking his formula either > which they are concerned about but he is drinking out of a straw which > is something new ill keep you all updated and thanks for the prayers > mommy to 18 month old CHARGEr > > > -- " It is far better to grasp the universe as it really is than to persist in delusion, however satisfying and reassuring. " --Carl Sagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 , Thanks for the update‹thinking of you. pam > > > > > -- Pamela J. , M.A., CAGS Licensed Educational Psychologist Deafblind Program Perkins School for the Blind 175 N. Beacon St. Watertown, MA 02472 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2007 Report Share Posted March 25, 2007 wow you should be demanding some answers > > , > Thanks for the update‹thinking of you. > pam > > On 3/23/07 1:55 PM, " MacDougal " <nicolemacdougal@...<nicolemacdougal%40yahoo.com>> > wrote: > > > > > > > > > > > > > -- > Pamela J. , M.A., CAGS > Licensed Educational Psychologist > Deafblind Program > Perkins School for the Blind > 175 N. Beacon St. > Watertown, MA 02472 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 I am so happy- we- being our whole family(including ) was very upset and did some heavy praying. He got very teary when we talked this weekend.He loves -and he has been grateful and extra loving and respectful to Kasey and Me. ANyway I will try and call soo Love ya -- Update is doing well today. His color is great. His incision looks good. Liver functions are really good for just being transplanted. He was extubated (taken off the ventillator) around 3 this afternoon and has been breathing great on his own. He's pretty ticked off at not being able to drink anything, yet. They took the art line (arterial line, where they kept a constant measure of his blood pressure) today, along with the femoral catheter (the line that went into the artery in his leg that they'd originally used for dialysis when they started him on it two weeks ago) both out. So that's nice for him. He did start running a fever tonight, was up to 102.7, but most recently it was down to 100.5. They did blood cultures, of course, in case he's septic or has a line infection, and they sent the tip of the femoral line for culturing, also. If he DOES have an infection, hopefully it was that femoral line, because then the source of it is gone and we won't have too much time of antibiotics. 's kidneys are definitely back to normal for him. He put out over 3000cc's of urine yesterday. (For comparison, that's about 9 cans of soda.) Because he was peeing so much, they finally gave him a dose of his dDAVP (the stuff that keeps him from peeing him self to dehydration & death), which worked a little TOO well, so then he wasn't peeing enough. 24 hours later they gave him a dose of lasix (diuretic to help make him pee). By that time, the dDAVP was wearing off finally, so now he's peeing like a maniac again. Went from 40cc's an hour to well over 100cc's an hour - LoL. Tried to tell the resident yesterday that 's DI (Diabetes Insipidus) was the thing that is going to complicate things the most, but she'd never actually DEALT with it with him, since he came over to PICU in kidney failure, not peeing at all. Everyone's doing alright. Tired, but glad we've made it this far. And 's doing well, so we're happy. Thank you everyone for all your love and support and prayers the last few days, and throughout all of this. You have all been wonderful. There are pictures immediately post surgery posted on 's caringbridge site, and I'll be posting some more tomorrow. Ami Ami mom to - 9 yrs - Double Lung Tx 2/26/2006, PSC - Tx 7/16/2007, Central DI, Diabetes, Hypothyroid, GERD, High BP, ADD, Anemia, Osteopenia, Gastroperesis, Varices http://caringbridge.org/visit/seanfox mom to Emma - 13 yrs - Migraines stepmom to - 14 yrs - ADHD, ODD ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Get the Yahoo! toolbar and be alerted to new email wherever you're surfing. TD> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2007 Report Share Posted July 18, 2007 Ami, Wow, we are so happy to see that things are looking good. Thanks for keeping us updated, you won't believe how many of us worry and wait for any thread of info coming our way. Chaim and Ellen Boermeester, Israel From: [mailto: ] On Behalf Of Ami Fox Sent: Wednesday, July 18, 2007 07:33 To: ; Amundson; Andy ; Batinich; Jan Baumler; Lee Briggs; rachel carlson; Chloe; Shanai Cole; May Cross; Eggen; Emer; Sharon Ernst; Joan Helen Fox; Frei; Frider; Anita Haderly; Ken Hart; IMC; Jen; ; ; Geneva ; ; Deb Kroner; ; Jodi McCrady; Kristi ; Jean Moe; Mohns; ; Pagans with Fibromyalgia; Pam; Pederson; Ernie Prado; PSC Moms; PSC Support; R; Roo; Tesa Rude; Randy & Sharon Sauby; Helen Steidl; Lynn Sturm; Jo Vanness; Deanna Vinovich; Joni Kay Zeiler Subject: Update is doing well today. His color is great. His incision looks good. Liver functions are really good for just being transplanted. He was extubated (taken off the ventillator) around 3 this afternoon and has been breathing great on his own. He's pretty ticked off at not being able to drink anything, yet. They took the art line (arterial line, where they kept a constant measure of his blood pressure) today, along with the femoral catheter (the line that went into the artery in his leg that they'd originally used for dialysis when they started him on it two weeks ago) both out. So that's nice for him. He did start running a fever tonight, was up to 102.7, but most recently it was down to 100.5. They did blood cultures, of course, in case he's septic or has a line infection, and they sent the tip of the femoral line for culturing, also. If he DOES have an infection, hopefully it was that femoral line, because then the source of it is gone and we won't have too much time of antibiotics. 's kidneys are definitely back to normal for him. He put out over 3000cc's of urine yesterday. (For comparison, that's about 9 cans of soda.) Because he was peeing so much, they finally gave him a dose of his dDAVP (the stuff that keeps him from peeing him self to dehydration & death), which worked a little TOO well, so then he wasn't peeing enough. 24 hours later they gave him a dose of lasix (diuretic to help make him pee). By that time, the dDAVP was wearing off finally, so now he's peeing like a maniac again. Went from 40cc's an hour to well over 100cc's an hour - LoL. Tried to tell the resident yesterday that 's DI (Diabetes Insipidus) was the thing that is going to complicate things the most, but she'd never actually DEALT with it with him, since he came over to PICU in kidney failure, not peeing at all. Everyone's doing alright. Tired, but glad we've made it this far. And 's doing well, so we're happy. Thank you everyone for all your love and support and prayers the last few days, and throughout all of this. You have all been wonderful. There are pictures immediately post surgery posted on 's caringbridge site, and I'll be posting some more tomorrow. Ami Ami mom to - 9 yrs - Double Lung Tx 2/26/2006, PSC - Tx 7/16/2007, Central DI, Diabetes, Hypothyroid, GERD, High BP, ADD, Anemia, Osteopenia, Gastroperesis, Varices http://caringbridge.org/visit/seanfox mom to Emma - 13 yrs - Migraines stepmom to - 14 yrs - ADHD, ODD ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Get the Yahoo! toolbar and be alerted to new email wherever you're surfing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 Thank you for letting us know, Kacey. As with Sherry, please give our best and let her know that her EMS family is right here waiting to hear how she is doing. Jane Dinsmore To: texasems-l@...: kcbonz@...: Wed, 5 Mar 2008 17:21:21 -0800Subject: update was doing better after dialysis last night. She went into cardiac arrest early this a.m. was rescitated with epi. They decompressed her chest, swelling precluded a timely chest tube. She is still fighting and O2 sats are up to 100% last report.Some of our employees are trying to put together a benefit for her. More details to follow. thank you all for your prayers, it is the powerful medicine and it is working.Kacey---------------------------------Never miss a thing. Make Yahoo your homepage.[Non-text portions of this message have been removed] _________________________________________________________________ Helping your favorite cause is as easy as instant messaging. You IM, we give. http://im.live.com/Messenger/IM/Home/?source=text_hotmail_join Quote Link to comment Share on other sites More sharing options...
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