Re: Just want to share gcmaf experience with everyone

January 27, 2012

alexis!!!!! this is an amazing post!!!!!!! i love it when parents take the time to share what is helping thier kids with the rest of us...and I know how many times you had gone down a road to be disappointed but you kept on getting up and fighting like a warrior never giving up...for this im sure your son will recover....you are too determined for it to be any other way.....

channa

To: mb12valtrex Sent: Friday, January 27, 2012 12:57 AMSubject: Just want to share gcmaf experience with everyone

Hi everyone,I have been patiently waiting to share something with all my friends here. Few months ago, my son had nagalase test thru his dan and he was then started on GCMAF. A lot of you may have heard of it already. I was too skeptical about it when it was introduced to me. First of all, I had not tried a lot of commonly used dan protocols and our dan was asking to jump to it which made me nervous. But my son had a clinical history which clearly suggested a viral cause and his nagalase level was high and he was also found to have some other tests that were positive. When I first started the treatment, I decided that I would share the experience once I was a little sure about it as this is a blood product, expensive, relatively new to our biomed world and I didn't want to give anyone false hopes. So tonight I wanted to share it with all of you and I hope that it will help. My son has received a total of 14 shots so far. I noticed

improvement after the fourth shot. He kind of went back to a state where he was before the regression at age 5. His eye contact improved, he started exploring heights like windows, climbed on chairs to see what was sitting on the chest etc, showed a lot of curiosity in the walk-in closets(which he was always scared of). He was scared of swings and that stopped bothering him. He started using my exercise machine everyday. Then right after that he started having screaming tantrums, anxiety and increased ocd and we concluded it was clostridia. All of you helped me during those days. I had also switched to enhansa around the same time so a lot of his bad symptoms were coming from that. I was in touch with some other parents on other forums regarding gcmaf and one child also had a clostridia issue. In my son's case, he was also on nystatin and enhansa so in my opinion, clostridia came from yeast being killed and clostridia had too much space to grow. The

fact that his tantrums responded to treatment with vancomycin and his ocd is at least 75% better, I do believe that it was clostridia. So during all this time, I continued the gcmaf although we reduced the strength and then gradually came up. The benefits that I can truly attribute to gcmaf are better responses to questions like before when I used to ask my son what he was doing, he would just repeat my question or say something scripted. Now he makes an effort to tell me exactly what he is doing. Now when he comes from school, he gives me at least some accurate information as to what he did in school. Last weekend he had OT and when I asked him "Where did you go today?", he answered the name of the therapist and when asked "what did you do today?", he answered "write letter D, P and R". His answer was accurate and knowing that he had such little speech before, this is big. Other parents who are using gcmaf have noticed even more benefits as my son got

hit with clostridia and enhansa and we couldn't see the results at least for few weeks. Another observation that I have made is that Longvida helps too when my son takes gcmaf. The best gains that I see are during the first few days and third day I see that he seems a little sick, dehydrated and that is probably from immune reconstitution. My son has definitely become a little naughty, doesn't want to share toys with his sister now which to me seems like he is more aware as before he was so passive that he would give away everything and would just be lost in his world. He wants to ride on a horse all day. He is able to write a few letters independently which is something new but then he is getting a lot of OT also. But of course he was getting therapy before also without phenomenal gains. I am not very good at giving an update like other moms but I tried. If anyone has any questions, I would be happy to answer. I will keep everyone updated on the

subject. Next few weeks will determine if the gains with gcmaf are multiplying or have plateaued. Do I recommend it? I would say that if you have a kid with a lot of immune dysfunction, allergies, vasculitis like signs then definitely look into it as the hope with gcmaf is to get to the root cause and fix the immune system. My son's immune system is completely messed up with hundreds of environmental and food allergies and this may help a little better than other immune modulators as this is activating body's own immune system to take care of the lingering viruses and also allowing the vitamin D to do what it is supposed to do. is

January 27, 2012

We didn't have any viral titers drawn. We had the nagalase test. Nagalase is

produced by viruses and it helps virus get into the cells and affects the body's

immune system in a way that it cannot attack the virus and then virus survives

in the body. In my son's case, when I looked back, he had his first regression

after roseola and another mysterious rash which the doctor diagnosed as some

virus going around in the community. He used to have swollen lymph nodes all the

time after that and pediatricians said that it was normal for kids his age. So

we tested the nagalase level and it was high. Nagalase inactivates the vitamin D

receptor which is the gcmaf. So you lose both the proper functioning of vitamin

D as well as a functioning immune system. If anyone wants to read details on

gcmaf, here is a link that I liked:

http://www.center4cancer.com/glyco-protein.php

We are in US and got our test done thru Dr Bradstreet and get the shots from his

office also. The source is gcmaf.eu in Belgium but I chose to get it from the

doctor's office as it is easier(the shots are already prepared). I know some

parents are getting the gcmaf directly from that site. But that is the only

reliable source of the purest, most legit product.

We are currently on a relatively low dose of gcmaf as so much was going on with

clostridia, acid reflux and yeast. I hope that once other issues are dealth

with, we can go up on the dose again and see some more benefits. This april we

will be able to see how much a difference this treatment has made as my son gets

regression every year around that time from his various allergies.

is

>

> How does one know if their child has a high viral load? Right now we are

getting ready to treat lyme, but was interested in Â the GCMAF shots for

modualting the immune system.

>

> ________________________________

>

> To: mb12valtrex

> Sent: Friday, January 27, 2012 4:43 AM

> Subject: RE: Just want to share gcmaf experience with everyone

>

> Â

> Hello,

> That is great information. We started gmcaf one week ago and I promised to do

at least 12 weeks. My daughter is a viral kid so hopefully we will see some

results.Â

>

> S

> #115, 11yr old,25mg ALA

> ________________________________

> From: alexis_d3378

> Sent: Friday, January 27, 2012 12:57 AM

> To: mb12valtrex

> Subject: Just want to share gcmaf experience with everyone

>

> Â

> Hi everyone,

> I have been patiently waiting to share something with all my friends here. Few

months ago, my son had nagalase test thru his dan and he was then started on

GCMAF. A lot of you may have heard of it already. I was too skeptical about it

when it was introduced to me. First of all, I had not tried a lot of commonly

used dan protocols and our dan was asking to jump to it which made me nervous.

But my son had a clinical history which clearly suggested a viral cause and his

nagalase level was high and he was also found to have some other tests that were

positive. When I first started the treatment, I decided that I would share the

experience once I was a little sure about it as this is a blood product,

expensive, relatively new to our biomed world and I didn't want to give anyone

false hopes. So tonight I wanted to share it with all of you and I hope that it

will help.

> My son has received a total of 14 shots so far. I noticed improvement after

the fourth shot. He kind of went back to a state where he was before the

regression at age 5. His eye contact improved, he started exploring heights like

windows, climbed on chairs to see what was sitting on the chest etc, showed a

lot of curiosity in the walk-in closets(which he was always scared of). He was

scared of swings and that stopped bothering him. He started using my exercise

machine everyday. Then right after that he started having screaming tantrums,

anxiety and increased ocd and we concluded it was clostridia. All of you helped

me during those days. I had also switched to enhansa around the same time so a

lot of his bad symptoms were coming from that. I was in touch with some other

parents on other forums regarding gcmaf and one child also had a clostridia

issue. In my son's case, he was also on nystatin and enhansa so in my opinion,

clostridia came from yeast being

> killed and clostridia had too much space to grow. The fact that his tantrums

responded to treatment with vancomycin and his ocd is at least 75% better, I do

believe that it was clostridia. So during all this time, I continued the gcmaf

although we reduced the strength and then gradually came up. The benefits that I

can truly attribute to gcmaf are better responses to questions like before when

I used to ask my son what he was doing, he would just repeat my question or say

something scripted. Now he makes an effort to tell me exactly what he is doing.

Now when he comes from school, he gives me at least some accurate information as

to what he did in school. Last weekend he had OT and when I asked him " Where did

you go today? " , he answered the name of the therapist and when asked " what did

you do today? " , he answered " write letter D, P and R " . His answer was accurate

and knowing that he had such little speech before, this is big. Other parents

who are

> using gcmaf have noticed even more benefits as my son got hit with clostridia

and enhansa and we couldn't see the results at least for few weeks. Another

observation that I have made is that Longvida helps too when my son takes gcmaf.

The best gains that I see are during the first few days and third day I see that

he seems a little sick, dehydrated and that is probably from immune

reconstitution. My son has definitely become a little naughty, doesn't want to

share toys with his sister now which to me seems like he is more aware as before

he was so passive that he would give away everything and would just be lost in

his world. He wants to ride on a horse all day. He is able to write a few

letters independently which is something new but then he is getting a lot of OT

also. But of course he was getting therapy before also without phenomenal gains.

> I am not very good at giving an update like other moms but I tried. If anyone

has any questions, I would be happy to answer. I will keep everyone updated on

the subject. Next few weeks will determine if the gains with gcmaf are

multiplying or have plateaued. Do I recommend it? I would say that if you have a

kid with a lot of immune dysfunction, allergies, vasculitis like signs then

definitely look into it as the hope with gcmaf is to get to the root cause and

fix the immune system. My son's immune system is completely messed up with

hundreds of environmental and food allergies and this may help a little better

than other immune modulators as this is activating body's own immune system to

take care of the lingering viruses and also allowing the vitamin D to do what it

is supposed to do.

> is

>

> =

>

January 27, 2012

Thanks Channa for your support. We all are dedicated parents but at the same

time desperate to get our kids better. Sometimes when I hear about a promising

treatment, I get too excited and want to try everything just to get my son

better. That was the reason I didn't want to create too much excitement about

something I did not have a first hand good experience with. It is of course a

big investment and many of us are already broke with the biomed expenses. Now

that I did feel that some good has definitely come out of gcmaf, I wanted to

share with all of you and will not feel like I have misguided anyone. I had a

horrible personal experience when someone pushed me towards homeotoxicology and

claimed that her son recovered because of it while I found out later that her

son had already recovered with different treatments before she even started

homeotoxicology. My son lost at least 2 years because of all the regression that

those protocols caused. We are still trying to get him back to where he was

before I tried that. So I am very careful at recommending anything and always

make sure that benefits that I see are not just my imagination. That is the

reason I keep bringing up curcumin which I saw amazing results with. In fact,

this was the first supplement/remedy which caused amazing results for my son but

then I lost those benefits when I switched to enhansa. I tried my best to let

all of you know about the difference I observed between enhansa and longvida

curcumin. My son is back on longvida now and I do see those gains coming back.

Would still need to use some no-phenol to reduce the phenol sensitivity. I do

have to admit that I am a disorganized person and started maintaining a proper

log only after Channa motivated me. What would I do without you Channa? You

inspire me so much.

is

>

> alexis!!!!! this is an amazing post!!!!!!! i love it when parents take the

time to share what is helping thier kids with the rest of us...and I know how

many times you had gone down a road to be disappointed but you kept on getting

up and fighting like a warrior never giving up...for this im sure your son will

recover....you are too determined for it to be any other way.....

> Â

> channa