Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

August 17, 2011

It's legit. It's NIH study. Mike AlvarezDistrict Manager Atlanta EastCell has anyone clicked this link? If so, is it legit? It seems like an awful long link...

<skullsignatureb & wsepiahandcoloredsmall.png>~Antiviral Therapy 101~ http://www.gryffins-tail.blogspot.com ~~ @Gryffins_Tail ~

link here http://www.clinicaltrials.gov/ct2/bye/mQoPWw4lZXc6edhHld-gWQ7xUXU3lB1ymB7gmXNgZdD9jd-iudh9k6GgzwU6eBc8uB1glT490dhzzdUV9VLPD1WeKDzqcR48ayUgWi7PxQ7V9gFJN6Nzv67xkd789VLnERCV-g432VLgDXU356J/oVD3CioH5TD3Z6p3WQh8JP76N67gWQ16zdNHFwS3kdNVJ8cGN61Pxnh9NnGP-dS3jd-gzwS3Z6p3DQ1gE61ye6h9u6D3edp3WQh8JHoyzB1Pm67xWnh9NnjglQ7a5wNHunhGu6Y336h9v61g067xWwS31Q1PlnjGLihzFihz0njPewc9S6hHS

August 17, 2011

Did you read the study? Shows a statistically significant improvement in autistic kids at high doses. Go to the conclusion section at the end. Mike AlvarezDistrict Manager Atlanta EastCell

I clicked it, it seems ok but i sure do not believe anything they say about this med. they gave it to my son, which i refused it. The doctor threatened me, so i was forced to get it for him,. After one dose he almost died from it , so i had a good excuse to stop that horrid med. They can say whatever they want to about this med , for me and my son was almost a death sentence.

That is my opinion, but i just had to say it.Tunde

I'm too chicken to click it lol

To: mb12valtrex Sent: Tuesday, August 16, 2011 9:11 PM

Subject: Re: has anyone seen or heard about the Risperdal

Phase IV study for Autismhas anyone clicked this link? If so, is it legit? It seems like an awful long link...

~Antiviral Therapy 101~ http://www.gryffins-tail.blogspot.com ~

~ @Gryffins_Tail ~

link here http://www.clinicaltrials.gov/ct2/bye/mQoPWw4lZXc6edhHld-gWQ7xUXU3lB1ymB7gmXNgZdD9jd-iudh9k6GgzwU6eBc8uB1glT490dhzzdUV9VLPD1WeKDzqcR48ayUgWi7PxQ7V9gFJN6Nzv67xkd789VLnERCV-g432VLgDXU356J/oVD3CioH5TD3Z6p3WQh8JP76N67gWQ16zdNHFwS3kdNVJ8cGN61Pxnh9NnGP-dS3jd-gzwS3Z6p3DQ1gE61ye6h9u6D3edp3WQh8JHoyzB1Pm67xWnh9NnjglQ7a5wNHunhGu6Y336h9v61g067xWwS31Q1PlnjGLihzFihz0njPewc9S6hHS

-- "Our lives begin to end the day we become silent about things that matter." MLK

August 17, 2011

My 7 yr old son was recently put on Risperdal for his violent outbursts and has

been on it now for the last month and a half. I can say that it has changed our

lives for the better as we were facing being kicked out of school and most Alta

services. There have been some noticeable changes in his appetite and thirst for

sure...but honestly he is like a different child now. He is now very

cooperative, friendly, and enjoys life....which trust me was not the case a

month and a half ago. This is just our experience so far and hopefully it

continues to stay on this path.

JP

>

> link here

http://www.clinicaltrials.gov/ct2/bye/mQoPWw4lZXc6edhHld-gWQ7xUXU3lB1ymB7gmXNgZd\

D9jd-iudh9k6GgzwU6eBc8uB1glT490dhzzdUV9VLPD1WeKDzqcR48ayUgWi7PxQ7V9gFJN6Nzv67xkd\

789VLnERCV-g432VLgDXU356J/oVD3CioH5TD3Z6p3WQh8JP76N67gWQ16zdNHFwS3kdNVJ8cGN61Pxn\

h9NnGP-dS3jd-gzwS3Z6p3DQ1gE61ye6h9u6D3edp3WQh8JHoyzB1Pm67xWnh9NnjglQ7a5wNHunhGu6\

Y336h9v61g067xWwS31Q1PlnjGLihzFihz0njPewc9S6hHS

>

August 18, 2011

Psychiatric drugs r horrible on the human body I work as a psychiatric nurse here in the UK ve done so including my training for over 19yrs and I see the side effects these drugs do to adults. I bet that anyone who works in the pharmaceutical industry would not take them or give them to their family but r hppy wt their profit margins Matambanadzo

link here http://www.clinicaltrials.gov/ct2/bye/mQoPWw4lZXc6edhHld-gWQ7xUXU3lB1ymB7gmXNgZdD9jd-iudh9k6GgzwU6eBc8uB1glT490dhzzdUV9VLPD1WeKDzqcR48ayUgWi7PxQ7V9gFJN6Nzv67xkd789VLnERCV-g432VLgDXU356J/oVD3CioH5TD3Z6p3WQh8JP76N67gWQ16zdNHFwS3kdNVJ8cGN61Pxnh9NnGP-dS3jd-gzwS3Z6p3DQ1gE61ye6h9u6D3edp3WQh8JHoyzB1Pm67xWnh9NnjglQ7a5wNHunhGu6Y336h9v61g067xWwS31Q1PlnjGLihzFihz0njPewc9S6hHS

August 18, 2011

something caused our kids neurological functioning to go array. Figure out what caused it to dysfunction in the first place and fix it biochemically (naturally) you can almost reverse (in some cases totally reverse) the autism. Giving a psychotropic drug will only mask the problem, it won't fix it and eventually you WILL have to keep uping the dose to get the same effect. My son is becoming increasingly aggressive as he ages, and as I watch this unfold in my house I begin to understand why parents would want to try anything to get peace in thier house. But no matter how hard it gets there is no way in Hell I'd put my kid on something like Risperdal. Doctors are trained to give you a pill to make whatever it is you don't like go away, they aren't trained to find the root cause of the problem, thats why so many people

never get better, the drug reps are rich and we are all dying so young! Ridiculous!!

link here http://www.clinicaltrials.gov/ct2/bye/mQoPWw4lZXc6edhHld-gWQ7xUXU3lB1ymB7gmXNgZdD9jd-iudh9k6GgzwU6eBc8uB1glT490dhzzdUV9VLPD1WeKDzqcR48ayUgWi7PxQ7V9gFJN6Nzv67xkd789VLnERCV-g432VLgDXU356J/oVD3CioH5TD3Z6p3WQh8JP76N67gWQ16zdNHFwS3kdNVJ8cGN61Pxnh9NnGP-dS3jd-gzwS3Z6p3DQ1gE61ye6h9u6D3edp3WQh8JHoyzB1Pm67xWnh9NnjglQ7a5wNHunhGu6Y336h9v61g067xWwS31Q1PlnjGLihzFihz0njPewc9S6hHS-- "Our lives begin to end the day we become silent about things that matter." MLK

August 18, 2011

something caused our kids neurological functioning to go array. Figure out what caused it to dysfunction in the first place and fix it biochemically (naturally) you can almost reverse (in some cases totally reverse) the autism. Giving a psychotropic drug will only mask the problem, it won't fix it and eventually you WILL have to keep uping the dose to get the same effect. My son is becoming increasingly aggressive as he ages, and as I watch this unfold in my house I begin to understand why parents would want to try anything to get peace in thier house. But no matter how hard it gets there is no way in Hell I'd put my kid on something like Risperdal. Doctors are trained to give you a pill to make whatever it is you don't like go away, they aren't trained to find the root cause of the problem, thats why so many people

never get better, the drug reps are rich and we are all dying so young! Ridiculous!!

link here http://www.clinicaltrials.gov/ct2/bye/mQoPWw4lZXc6edhHld-gWQ7xUXU3lB1ymB7gmXNgZdD9jd-iudh9k6GgzwU6eBc8uB1glT490dhzzdUV9VLPD1WeKDzqcR48ayUgWi7PxQ7V9gFJN6Nzv67xkd789VLnERCV-g432VLgDXU356J/oVD3CioH5TD3Z6p3WQh8JP76N67gWQ16zdNHFwS3kdNVJ8cGN61Pxnh9NnGP-dS3jd-gzwS3Z6p3DQ1gE61ye6h9u6D3edp3WQh8JHoyzB1Pm67xWnh9NnjglQ7a5wNHunhGu6Y336h9v61g067xWwS31Q1PlnjGLihzFihz0njPewc9S6hHS-- "Our lives begin to end the day we become silent about things that matter." MLK

August 18, 2011

The side effect alone are major then the dr will put u on another drug to take away the side effect.Am sure u ve all heard of the side effects locked jaw where u get stiff jaw, dry mouth, constipation, stiff joint or restless where the person keeps wanting to pace up and down and even when they sit they keep shaking their low legs I could go on but I wont I ve seen this ving worked wt psychiatric patients for most of my working life Matambanadzo

something caused our kids neurological functioning to go array. Figure out what caused it to dysfunction in the first place and fix it biochemically (naturally) you can almost reverse (in some cases totally reverse) the autism. Giving a psychotropic drug will only mask the problem, it won't fix it and eventually you WILL have to keep uping the dose to get the same effect. My son is becoming increasingly aggressive as he ages, and as I watch this unfold in my house I begin to understand why parents would want to try anything to get peace in thier house. But no matter how hard it gets there is no way in Hell I'd put my kid on something like Risperdal. Doctors are trained to give you a pill to make whatever it is you don't like go away, they aren't trained to find the root cause of the problem, thats why so many people

never get better, the drug reps are rich and we are all dying so young! Ridiculous!!

link here http://www.clinicaltrials.gov/ct2/bye/mQoPWw4lZXc6edhHld-gWQ7xUXU3lB1ymB7gmXNgZdD9jd-iudh9k6GgzwU6eBc8uB1glT490dhzzdUV9VLPD1WeKDzqcR48ayUgWi7PxQ7V9gFJN6Nzv67xkd789VLnERCV-g432VLgDXU356J/oVD3CioH5TD3Z6p3WQh8JP76N67gWQ16zdNHFwS3kdNVJ8cGN61Pxnh9NnGP-dS3jd-gzwS3Z6p3DQ1gE61ye6h9u6D3edp3WQh8JHoyzB1Pm67xWnh9NnjglQ7a5wNHunhGu6Y336h9v61g067xWwS31Q1PlnjGLihzFihz0njPewc9S6hHS-- "Our lives begin to end the day we become silent about things that matter." MLK

August 18, 2011

We tried Risperidone for a few weeks and it did help. I wanted to get him off it so then we switched to lamictal and the change has been amazing. I personally do not agree that kids should be on Risperidone BUT sometimes parents need to get a child under control until they can find what will work. This is a hard road to travel. Parents are in desperate need of help for their child. We were at our last straw when trying ris. Thank god lamictal worked wonders as I certainly wouldnâ€™t want to have continued with ris for any length of time. I found Dr. Bockâ€™s book very helpful when looking over choices for our son. Also, spect/mri can help in finding out what area of the brain is not functioning properly. Good luck with your child. From: mb12valtrex [mailto:mb12valtrex ] On Behalf Of becky rogalskiSent: August-18-11 1:03 PMTo: mb12valtrex Subject: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism something caused our kids neurological functioning to go array. Figure out what caused it to dysfunction in the first place and fix it biochemically (naturally) you can almost reverse (in some cases totally reverse) the autism. Giving a psychotropic drug will only mask the problem, it won't fix it and eventually you WILL have to keep uping the dose to get the same effect. My son is becoming increasingly aggressive as he ages, and as I watch this unfold in my house I begin to understand why parents would want to try anything to get peace in thier house. But no matter how hard it gets there is no way in Hell I'd put my kid on something like Risperdal. Doctors are trained to give you a pill to make whatever it is you don't like go away, they aren't trained to find the root cause of the problem, thats why so many people never get better, the drug reps are rich and we are all dying so young! Ridiculous!! link here http://www.clinicaltrials.gov/ct2/bye/mQoPWw4lZXc6edhHld-gWQ7xUXU3lB1ymB7gmXNgZdD9jd-iudh9k6GgzwU6eBc8uB1glT490dhzzdUV9VLPD1WeKDzqcR48ayUgWi7PxQ7V9gFJN6Nzv67xkd789VLnERCV-g432VLgDXU356J/oVD3CioH5TD3Z6p3WQh8JP76N67gWQ16zdNHFwS3kdNVJ8cGN61Pxnh9NnGP-dS3jd-gzwS3Z6p3DQ1gE61ye6h9u6D3edp3WQh8JHoyzB1Pm67xWnh9NnjglQ7a5wNHunhGu6Y336h9v61g067xWwS31Q1PlnjGLihzFihz0njPewc9S6hHS -- " Our lives begin to end the day we become silent about things that matter. " MLK

August 19, 2011

My son took a low dose of this drug under the care of Dr. Kartzinel. He took it

for about a 18 months beginning when he was in 4th grade. He is 16 now.

Pros-

made him go to sleep at night

improved eye contact

weight gain/ increased appetite willingness to eat

Cons-

1.bed wetting (the only time he ever had this problem was when he was on this

drug and it happened several times a week)

2. weight gain (went from being seriously skinny to fat, no muscle tone, pudgy

and floppy. (Girlfriend on this drug for another reason has become fat and

diabetic.)

3. No behavioral improvement at school or home (The reason I broke down and

tried it.)

4. difficulty forming words and sentences (Had the feeling he was either " too

high " or too tired to makeout what he wanted to say. He had less motivation to

try. Increased difficulty with apraxia.)

5. Throat clearing tic (Probably due to PANDAS not risperadal, just want to

point out that risperadal did not make it go away.)

6. Difficulty waking up and getting started in the morning.

Overall, it did not do what I had hoped it would. I am grateful for the weight

gain as my child was like an anorexic, but I do not think it was a healthy

weight gain. He has since evened out. I do miss the eye contact, but the price

was a child that couldn't communicate his thoughts very well verbally.

He had no difficulty coming off this drug because the dose was low. They did not

notice any change behaviorally at school.

My girlfriend who takes this drug for " dissociative disorder " tells me that it

helps keep her mind from " racing " and quiets " the other voices " in her head.

She has significant mental health issues. Now after many years on this and other

anti-psychotic drugs she also has a s@#! load of health issues. Risperadal was

the main drug she used through her teenage years and her twenties. She now has

diabetes, myasthenia gravis, asthma, neuropathy, and gastro paralysis.

The seriousness and stress of her health issues set off the mental health

issues. That leads to a cycle of hospitalization, medication changes, more/new

health issues etc. She is trapped now.

Because of what I have watched her go through, I would never have my son try

risperadal again. Even if risperdal medicated a few symptoms, it didn't fix

anything and it has the possibily to cause so many other problems. The weight

gain alone is something I consider medically dangerous. (My father died from

complications of diabetes.)

Just something I hope you will consider,

Jen

August 20, 2011

I appreciate this post. I was at the end of my rope on Wednesday.First day of Kinder and my son kicked and bit the teacher. (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS and then out of the blue, he will snap...

anxiety induced)Was screaming at him that I was going to put him on the drug that would make him fat, stupid and act right.LOLLooks like it would only make him fat and stupid... if it won't make him act right, hardly worth it. Haha.

I'm feeling better now but just sayin... thanks for the post, esp. with the PRO/CON list.

My son took a low dose of this drug under the care of Dr. Kartzinel. He took it for about a 18 months beginning when he was in 4th grade. He is 16 now.

Pros-

made him go to sleep at night

improved eye contact

weight gain/ increased appetite willingness to eat

Cons-

1.bed wetting (the only time he ever had this problem was when he was on this drug and it happened several times a week)

2. weight gain (went from being seriously skinny to fat, no muscle tone, pudgy and floppy. (Girlfriend on this drug for another reason has become fat and diabetic.)

3. No behavioral improvement at school or home (The reason I broke down and tried it.)

4. difficulty forming words and sentences (Had the feeling he was either " too high " or too tired to makeout what he wanted to say. He had less motivation to try. Increased difficulty with apraxia.)

5. Throat clearing tic (Probably due to PANDAS not risperadal, just want to point out that risperadal did not make it go away.)

6. Difficulty waking up and getting started in the morning.

Overall, it did not do what I had hoped it would. I am grateful for the weight gain as my child was like an anorexic, but I do not think it was a healthy weight gain. He has since evened out. I do miss the eye contact, but the price was a child that couldn't communicate his thoughts very well verbally.

He had no difficulty coming off this drug because the dose was low. They did not notice any change behaviorally at school.

My girlfriend who takes this drug for " dissociative disorder " tells me that it helps keep her mind from " racing " and quiets " the other voices " in her head. She has significant mental health issues. Now after many years on this and other anti-psychotic drugs she also has a s@#! load of health issues. Risperadal was the main drug she used through her teenage years and her twenties. She now has diabetes, myasthenia gravis, asthma, neuropathy, and gastro paralysis.

The seriousness and stress of her health issues set off the mental health issues. That leads to a cycle of hospitalization, medication changes, more/new health issues etc. She is trapped now.

Because of what I have watched her go through, I would never have my son try risperadal again. Even if risperdal medicated a few symptoms, it didn't fix anything and it has the possibily to cause so many other problems. The weight gain alone is something I consider medically dangerous. (My father died from complications of diabetes.)

Just something I hope you will consider,

Jen

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

August 20, 2011

Now I really am laughing outloud! Sent from my iPhone

I appreciate this post. I was at the end of my rope on Wednesday.First day of Kinder and my son kicked and bit the teacher. (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS and then out of the blue, he will snap...

anxiety induced)Was screaming at him that I was going to put him on the drug that would make him fat, stupid and act right.LOLLooks like it would only make him fat and stupid... if it won't make him act right, hardly worth it. Haha.

I'm feeling better now but just sayin... thanks for the post, esp. with the PRO/CON list.

My son took a low dose of this drug under the care of Dr. Kartzinel. He took it for about a 18 months beginning when he was in 4th grade. He is 16 now.

Pros-

made him go to sleep at night

improved eye contact

weight gain/ increased appetite willingness to eat

Cons-

1.bed wetting (the only time he ever had this problem was when he was on this drug and it happened several times a week)

2. weight gain (went from being seriously skinny to fat, no muscle tone, pudgy and floppy. (Girlfriend on this drug for another reason has become fat and diabetic.)

3. No behavioral improvement at school or home (The reason I broke down and tried it.)

4. difficulty forming words and sentences (Had the feeling he was either "too high" or too tired to makeout what he wanted to say. He had less motivation to try. Increased difficulty with apraxia.)

5. Throat clearing tic (Probably due to PANDAS not risperadal, just want to point out that risperadal did not make it go away.)

6. Difficulty waking up and getting started in the morning.

Overall, it did not do what I had hoped it would. I am grateful for the weight gain as my child was like an anorexic, but I do not think it was a healthy weight gain. He has since evened out. I do miss the eye contact, but the price was a child that couldn't communicate his thoughts very well verbally.

He had no difficulty coming off this drug because the dose was low. They did not notice any change behaviorally at school.

My girlfriend who takes this drug for "dissociative disorder" tells me that it helps keep her mind from "racing" and quiets "the other voices" in her head. She has significant mental health issues. Now after many years on this and other anti-psychotic drugs she also has a s@#! load of health issues. Risperadal was the main drug she used through her teenage years and her twenties. She now has diabetes, myasthenia gravis, asthma, neuropathy, and gastro paralysis.

The seriousness and stress of her health issues set off the mental health issues. That leads to a cycle of hospitalization, medication changes, more/new health issues etc. She is trapped now.

Because of what I have watched her go through, I would never have my son try risperadal again. Even if risperdal medicated a few symptoms, it didn't fix anything and it has the possibily to cause so many other problems. The weight gain alone is something I consider medically dangerous. (My father died from complications of diabetes.)

Just something I hope you will consider,

Jen

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

August 20, 2011

My child has never taken risperdal, but I know plenty of parents who have given it to their children and it does indeed work.. for a while. I think the question is really are you willing to take the risks just to have the drug stop working when your child is bigger and stronger ( maybe fatter too). This drug scares me. I wasn't going to comment on this one but Tonis post felt so familiar to me. Our son actually open hand slapped his kindergarden teacher 6 years ago. He will still try to bite ( mostly himself) if hes in a PANDAS flare, and he can't get the words out right, but he is much, much better. Exercise, exercise, exercise and many things we've learned here have helped. I understand, if you have to do it, you have to do it but make it a last resort.Sent from my

iPhone

I appreciate this post. I was at the end of my rope on Wednesday.First day of Kinder and my son kicked and bit the teacher. (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS and then out of the blue, he will snap...

anxiety induced)Was screaming at him that I was going to put him on the drug that would make him fat, stupid and act right.LOLLooks like it would only make him fat and stupid... if it won't make him act right, hardly worth it. Haha.

I'm feeling better now but just sayin... thanks for the post, esp. with the PRO/CON list.

My son took a low dose of this drug under the care of Dr. Kartzinel. He took it for about a 18 months beginning when he was in 4th grade. He is 16 now.

Pros-

made him go to sleep at night

improved eye contact

weight gain/ increased appetite willingness to eat

Cons-

1.bed wetting (the only time he ever had this problem was when he was on this drug and it happened several times a week)

2. weight gain (went from being seriously skinny to fat, no muscle tone, pudgy and floppy. (Girlfriend on this drug for another reason has become fat and diabetic.)

3. No behavioral improvement at school or home (The reason I broke down and tried it.)

4. difficulty forming words and sentences (Had the feeling he was either "too high" or too tired to makeout what he wanted to say. He had less motivation to try. Increased difficulty with apraxia.)

5. Throat clearing tic (Probably due to PANDAS not risperadal, just want to point out that risperadal did not make it go away.)

6. Difficulty waking up and getting started in the morning.

Overall, it did not do what I had hoped it would. I am grateful for the weight gain as my child was like an anorexic, but I do not think it was a healthy weight gain. He has since evened out. I do miss the eye contact, but the price was a child that couldn't communicate his thoughts very well verbally.

He had no difficulty coming off this drug because the dose was low. They did not notice any change behaviorally at school.

My girlfriend who takes this drug for "dissociative disorder" tells me that it helps keep her mind from "racing" and quiets "the other voices" in her head. She has significant mental health issues. Now after many years on this and other anti-psychotic drugs she also has a s@#! load of health issues. Risperadal was the main drug she used through her teenage years and her twenties. She now has diabetes, myasthenia gravis, asthma, neuropathy, and gastro paralysis.

The seriousness and stress of her health issues set off the mental health issues. That leads to a cycle of hospitalization, medication changes, more/new health issues etc. She is trapped now.

Because of what I have watched her go through, I would never have my son try risperadal again. Even if risperdal medicated a few symptoms, it didn't fix anything and it has the possibily to cause so many other problems. The weight gain alone is something I consider medically dangerous. (My father died from complications of diabetes.)

Just something I hope you will consider,

Jen

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

August 21, 2011

I assume you've already tried tryptophan? We get ours from Jarrow.

Good mood during the day and sleeps at night. Ahhh.

>

> I appreciate this post. I was at the end of my rope on Wednesday.

> First day of Kinder and my son kicked and bit the teacher.

> (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS

> and then out of the blue, he will snap...

> anxiety induced)

>

> Was screaming at him that I was going to put him on the drug that would make

> him fat, stupid and act right.

>

> LOL

>

> Looks like it would only make him fat and stupid... if it won't make him act

> right, hardly worth it. Haha...

August 21, 2011

Not everything is black and white, and not every medication has the same effect

on each indivdual. Please think before scare a mother whose child may be self

injuring for years, and take away a chance to help them.

I have been doing biomed for seven years, I could give you a two page laundry

list of everthing we have done and every state I have flown too, to meet with a

new Dr.

My then Seven year old was self injuring, also hitting teachers taking clothes

off, ect. Finally against every Biomed law there is we tried Risperdal. Well my

now 10 year old is being placed in a regular 3rd grade class with assistance.

The Risperdal has allowed him to be calm enough to allow the other

interverntions we do work. He has been in the process of weaning off it. I am

going slow but see no difference as we have almost fully taken him off it. Three

years of being on this was well worth the child I have now.

Like I said before this medicine may not help every child, but my son is a

testament that it did. I never stopped the biomed, just added risperdal.

As far as the weight gain goes my son was practically emnaciated before, he is

chunky now and strong and happy. The weight gain came on fast but over the last

18 months he gained nothing.I'm sure he will grow into the extra ten pounds.

Just think before you make some of your comments, so many parents need help.

My son is neither fat or stupid , but he does act right now.

>

> My son took a low dose of this drug under the care of Dr. Kartzinel. He took

it for about a 18 months beginning when he was in 4th grade. He is 16 now.

>

> Pros-

> made him go to sleep at night

> improved eye contact

> weight gain/ increased appetite willingness to eat

>

> Cons-

> 1.bed wetting (the only time he ever had this problem was when he was on this

drug and it happened several times a week)

> 2. weight gain (went from being seriously skinny to fat, no muscle tone, pudgy

and floppy. (Girlfriend on this drug for another reason has become fat and

diabetic.)

> 3. No behavioral improvement at school or home (The reason I broke down and

tried it.)

> 4. difficulty forming words and sentences (Had the feeling he was either " too

high " or too tired to makeout what he wanted to say. He had less motivation to

try. Increased difficulty with apraxia.)

> 5. Throat clearing tic (Probably due to PANDAS not risperadal, just want to

point out that risperadal did not make it go away.)

> 6. Difficulty waking up and getting started in the morning.

>

> Overall, it did not do what I had hoped it would. I am grateful for the weight

gain as my child was like an anorexic, but I do not think it was a healthy

weight gain. He has since evened out. I do miss the eye contact, but the price

was a child that couldn't communicate his thoughts very well verbally.

>

> He had no difficulty coming off this drug because the dose was low. They did

not notice any change behaviorally at school.

>

> My girlfriend who takes this drug for " dissociative disorder " tells me that it

helps keep her mind from " racing " and quiets " the other voices " in her head. She

has significant mental health issues. Now after many years on this and other

anti-psychotic drugs she also has a s@#! load of health issues. Risperadal was

the main drug she used through her teenage years and her twenties. She now has

diabetes, myasthenia gravis, asthma, neuropathy, and gastro paralysis.

>

> The seriousness and stress of her health issues set off the mental health

issues. That leads to a cycle of hospitalization, medication changes, more/new

health issues etc. She is trapped now.

>

> Because of what I have watched her go through, I would never have my son try

risperadal again. Even if risperdal medicated a few symptoms, it didn't fix

anything and it has the possibily to cause so many other problems. The weight

gain alone is something I consider medically dangerous. (My father died from

complications of diabetes.)

>

> Just something I hope you will consider,

> Jen

>

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

August 21, 2011

No, I do have 5-htp, is that what you mean since we cannot buy tryptophan anymore in the USA I think??I only gave it to him a short while, last summer. I should try it again.

I assume you've already tried tryptophan? We get ours from Jarrow.

Good mood during the day and sleeps at night. Ahhh.

>

> I appreciate this post. I was at the end of my rope on Wednesday.

> First day of Kinder and my son kicked and bit the teacher.

> (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS

> and then out of the blue, he will snap...

> anxiety induced)

>

> Was screaming at him that I was going to put him on the drug that would make

> him fat, stupid and act right.

>

> LOL

>

> Looks like it would only make him fat and stupid... if it won't make him act

> right, hardly worth it. Haha...

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

August 21, 2011

You can now.

~Antiviral Therapy 101~ http://www.gryffins-tail.blogspot.com ~~ @Gryffins_Tail ~

On Aug 21, 2011, at 7:00 PM, Toni Marie Lombardo wrote:

No, I do have 5-htp, is that what you mean since we cannot buy tryptophan anymore in the USA I think??I only gave it to him a short while, last summer. I should try it again.

I assume you've already tried tryptophan? We get ours from Jarrow.

Good mood during the day and sleeps at night. Ahhh.

>

> I appreciate this post. I was at the end of my rope on Wednesday.

> First day of Kinder and my son kicked and bit the teacher.

> (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS

> and then out of the blue, he will snap...

> anxiety induced)

>

> Was screaming at him that I was going to put him on the drug that would make

> him fat, stupid and act right.

>

> LOL

>

> Looks like it would only make him fat and stupid... if it won't make him act

> right, hardly worth it. Haha...

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

August 21, 2011

So I know I am not alone now, after reading the thread prior to this, but am desperately hoping to get some answers from friends here in this group! We have a 4.5 year old son who is ASD, possibly combo adhd. He has been the worst he has EVER been recently, with regards to his moods (crying and screaming when he can't do something he wants to do and we simply guide him into another distraction.....), hitting, kicking, talking back, pinching and spitting, impossible to focus or listen or even rationalize with, etc. Sigh. It is beginning to really put a huge damper on our 15 year marriage, and I am hoping someone can give me a heads up as to what to do next. I have been giving him high omega-3's (krill oil of 1,000-1,200 pure epa-dha's per day) b-vitamin complex

every other day (just sublingual), melatonin and magnesium at night to sleep (this does wonders for him sleep wise), and just began inositol of 500 mg once per day and choline each day of 200 mg. No red or yellow dyes allowed, however he is not casein or gluten free....we are a very low income family due to job losses the past year, so can't afford to eliminate gluten or milk just yet. My "HUNCH" is that there could be something going on with him not tolerating the supplements well due to either YEAST or needing antivirals or probably just heavy metals. He seems almost like he is going crazy, just angry and frustrated and melting down almost all day long, and it is breaking my heart. I don't know what to do other than to back down supplements and try a bentonite clay bath (being very very careful of course because of his age, and then having coconut water or emergen-c ready to replentish electrolytes afterwards). What kind/brand of

anything should I do to chelate? He is 43 lbs and 4.5. THanks everyone in advance...please any kind of advice would soothe our nerves here. Feel free to message me back at the posted email so that I don't lose track of anyone who can help us!! Sigh. Alisbeth and Danlakeland, floridadanandalisabeth@...From: cheryl biomed.mom

To: mb12valtrex Sent: Sunday, August 21, 2011 10:02 PMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for AutismYou can now.

~Antiviral Therapy 101~ http://www.gryffins-tail.blogspot.com ~~ @Gryffins_Tail ~

On Aug 21, 2011, at 7:00 PM, Toni Marie Lombardo wrote:

No, I do have 5-htp, is that what you mean since we cannot buy tryptophan anymore in the USA I think??I only gave it to him a short while, last summer. I should try it again.

I assume you've already tried tryptophan? We get ours from Jarrow.

Good mood during the day and sleeps at night. Ahhh.

>

> I appreciate this post. I was at the end of my rope on Wednesday.

> First day of Kinder and my son kicked and bit the teacher.

> (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS

> and then out of the blue, he will snap...

> anxiety induced)

>

> Was screaming at him that I was going to put him on the drug that would make

> him fat, stupid and act right.

>

> LOL

>

> Looks like it would only make him fat and stupid... if it won't make him act

> right, hardly worth it. Haha...

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

August 21, 2011

LOL Is this new? I'm confused. Teehee.I know my aunt used to use it so I was surprised when it wasn't available. Cool...

You can now.

~Antiviral Therapy 101~ http://www.gryffins-tail.blogspot.com ~

~ @Gryffins_Tail ~-- Toni------Mind like a steel trap...

Rusty and illegal in 37 states.

August 21, 2011

It's about 9 years new... Been available since 2002.

~Antiviral Therapy 101~ http://www.gryffins-tail.blogspot.com ~~ @Gryffins_Tail ~

On Aug 21, 2011, at 8:43 PM, Toni Marie Lombardo wrote:

LOL Is this new? I'm confused. Teehee.I know my aunt used to use it so I was surprised when it wasn't available. Cool...

You can now.

~Antiviral Therapy 101~ http://www.gryffins-tail.blogspot.com ~

~ @Gryffins_Tail ~-- Toni------Mind like a steel trap...

Rusty and illegal in 37 states.

August 22, 2011

I couldn't be happier to eat my words. Hooray for something working like it should!!!!!!!!!!!!!

Not everything is black and white, and not every medication has the same effect on each indivdual. Please think before scare a mother whose child may be self injuring for years, and take away a chance to help them.

I have been doing biomed for seven years, I could give you a two page laundry list of everthing we have done and every state I have flown too, to meet with a new Dr.

My then Seven year old was self injuring, also hitting teachers taking clothes off, ect. Finally against every Biomed law there is we tried Risperdal. Well my now 10 year old is being placed in a regular 3rd grade class with assistance.

The Risperdal has allowed him to be calm enough to allow the other interverntions we do work. He has been in the process of weaning off it. I am going slow but see no difference as we have almost fully taken him off it. Three years of being on this was well worth the child I have now.

Like I said before this medicine may not help every child, but my son is a testament that it did. I never stopped the biomed, just added risperdal.

As far as the weight gain goes my son was practically emnaciated before, he is chunky now and strong and happy. The weight gain came on fast but over the last 18 months he gained nothing.I'm sure he will grow into the extra ten pounds.

Just think before you make some of your comments, so many parents need help.

My son is neither fat or stupid , but he does act right now.-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

August 22, 2011

Glad to hear your son is doing better. The stress that is brought on by a family member going through this is unimaginable. I had a ‘cry spot’ downstairs in the laundry room for years. God be with your family. From: mb12valtrex [mailto:mb12valtrex ] On Behalf Of PSent: August-21-11 9:40 PMTo: mb12valtrex Subject: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism Not everything is black and white, and not every medication has the same effect on each indivdual. Please think before scare a mother whose child may be self injuring for years, and take away a chance to help them.I have been doing biomed for seven years, I could give you a two page laundry list of everthing we have done and every state I have flown too, to meet with a new Dr.My then Seven year old was self injuring, also hitting teachers taking clothes off, ect. Finally against every Biomed law there is we tried Risperdal. Well my now 10 year old is being placed in a regular 3rd grade class with assistance. The Risperdal has allowed him to be calm enough to allow the other interverntions we do work. He has been in the process of weaning off it. I am going slow but see no difference as we have almost fully taken him off it. Three years of being on this was well worth the child I have now.Like I said before this medicine may not help every child, but my son is a testament that it did. I never stopped the biomed, just added risperdal.As far as the weight gain goes my son was practically emnaciated before, he is chunky now and strong and happy. The weight gain came on fast but over the last 18 months he gained nothing.I'm sure he will grow into the extra ten pounds.Just think before you make some of your comments, so many parents need help.My son is neither fat or stupid , but he does act right now.> > My son took a low dose of this drug under the care of Dr. Kartzinel. He took it for about a 18 months beginning when he was in 4th grade. He is 16 now.> > Pros- > made him go to sleep at night > improved eye contact > weight gain/ increased appetite willingness to eat > > Cons- > 1.bed wetting (the only time he ever had this problem was when he was on this drug and it happened several times a week)> 2. weight gain (went from being seriously skinny to fat, no muscle tone, pudgy and floppy. (Girlfriend on this drug for another reason has become fat and diabetic.)> 3. No behavioral improvement at school or home (The reason I broke down and tried it.)> 4. difficulty forming words and sentences (Had the feeling he was either " too high " or too tired to makeout what he wanted to say. He had less motivation to try. Increased difficulty with apraxia.)> 5. Throat clearing tic (Probably due to PANDAS not risperadal, just want to point out that risperadal did not make it go away.) > 6. Difficulty waking up and getting started in the morning. > > Overall, it did not do what I had hoped it would. I am grateful for the weight gain as my child was like an anorexic, but I do not think it was a healthy weight gain. He has since evened out. I do miss the eye contact, but the price was a child that couldn't communicate his thoughts very well verbally. > > He had no difficulty coming off this drug because the dose was low. They did not notice any change behaviorally at school.> > My girlfriend who takes this drug for " dissociative disorder " tells me that it helps keep her mind from " racing " and quiets " the other voices " in her head. She has significant mental health issues. Now after many years on this and other anti-psychotic drugs she also has a s@#! load of health issues. Risperadal was the main drug she used through her teenage years and her twenties. She now has diabetes, myasthenia gravis, asthma, neuropathy, and gastro paralysis. > > The seriousness and stress of her health issues set off the mental health issues. That leads to a cycle of hospitalization, medication changes, more/new health issues etc. She is trapped now.> > Because of what I have watched her go through, I would never have my son try risperadal again. Even if risperdal medicated a few symptoms, it didn't fix anything and it has the possibily to cause so many other problems. The weight gain alone is something I consider medically dangerous. (My father died from complications of diabetes.)> > Just something I hope you will consider,> Jen > > > > > -- > Toni> > ------> Mind like a steel trap...> Rusty and illegal in 37 states.>

August 22, 2011

Im glad you found success with it. Hope third grade goes really well.Sent from my iPhone