Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

[Guest guest]

For us, more than any supp or med, diet makes a huge difference in

terms of behaviors....I don't mean just GFCF, I mean finding your

child's triggers and removing them. It's the hardest thing we've done

but, what my children eat dictates whether they are calm, happy, and a

joy to be around...vs. being OCD, defiant, unfocused, and hyper.

Something as harmless as a banana can make my NT 5 year old spiral into

an ADHD mess within minutes. Yes, it's very hard and my kids are super

restricted but, it's well worth it.

Alisabeth Stoin wrote:

So I know I am not alone now, after reading the

thread prior to this, but am desperately hoping to get some answers

from friends here in this group!

We have a 4.5 year old son who is ASD, possibly combo

adhd. He has been the worst he has EVER been recently, with regards to

his moods (crying and screaming when he can't do something he wants to

do and we simply guide him into another distraction.....), hitting,

kicking, talking back, pinching and spitting, impossible to focus or

listen or even rationalize with, etc. Sigh. It is beginning to really

put a huge damper on our 15 year marriage, and I am hoping someone can

give me a heads up as to what to do next. I have been giving him high

omega-3's (krill oil of 1,000-1,200 pure epa-dha's per day) b-vitamin

complex every other day (just sublingual), melatonin and magnesium at

night to sleep (this does wonders for him sleep wise), and just began

inositol of 500 mg once per day and choline each day of 200 mg. No red

or yellow dyes allowed, however he is not casein or gluten free....we

are a very low income family due to job losses the past year, so can't

afford to eliminate gluten or milk just yet. My "HUNCH" is that there

could be something going on with him not tolerating the supplements

well due to either YEAST or needing antivirals or probably just heavy

metals. He seems almost like he is going crazy, just angry and

frustrated and melting down almost all day long, and it is breaking my

heart. I don't know what to do other than to back down supplements and

try a bentonite clay bath (being very very careful of course because of

his age, and then having coconut water or emergen-c ready to replentish

electrolytes afterwards). What kind/brand of anything should I do to

chelate? He is 43 lbs and 4.5. THanks everyone in advance...please any

kind of advice would soothe our nerves here. Feel free to message me

back at the posted email so that I don't lose track of anyone who can

help us!! Sigh.

Alisbeth and Dan

lakeland, florida

danandalisabeth@...

From:

cheryl biomed.mom

To:

mb12valtrex

Sent: Sunday, August

21, 2011 10:02 PM

Subject: Re:

Re: has anyone seen or heard about the Risperdal Phase IV

study for Autism

You can now.

~Antiviral Therapy 101

~ http://www.gryffins-tail.blogspot.com ~

~ @Gryffins_Tail ~

On Aug 21, 2011, at 7:00 PM, Toni Marie Lombardo wrote:

No, I do have 5-htp, is that what you mean since we cannot buy

tryptophan anymore in the USA I think??

I only gave it to him a short while, last summer. I should try it again.

On Sun, Aug 21, 2011 at 6:50

PM, CGF

wrote:

I assume you've already tried tryptophan? We get ours from

Jarrow.

Good mood during the day and sleeps at night. Ahhh.

>

> I appreciate this post. I was at the end of my rope on Wednesday.

> First day of Kinder and my son kicked and bit the teacher.

> (We've been thru the violent outbursts for 3 yrs; he will have

good MONTHS

> and then out of the blue, he will snap...

> anxiety induced)

>

> Was screaming at him that I was going to put him on the drug that

would make

> him fat, stupid and act right.

>

> LOL

>

> Looks like it would only make him fat and stupid... if it won't

make him act

> right, hardly worth it. Haha...

--

Toni

------

Mind like a steel trap...

Rusty and illegal in 37 states.

[Guest guest]

Hi There

I read your post and I really felt for you. Our son is 4 and ASD. I want to refer you to a book you should be able to get at the library called Healing the new Childhood Epidemics bt Bock M.D. In it he expresses the huge importance of dietary changes if we want to recover our children. He is a DAN doctor who has recovered many children. Our son is VERY VERY picky. He only eats bread with peanut butter and honey and drinks ovaltine and vitamin water zero. We are very broke (we receive supplemental security income and WIC) I dont work, my husband does, so we are very limited budget, but we have changed his diet a few times, affordably, and seen many positive changes. He now drinks Almond and coconut milks (we buy cans of trader joes light coconut milk for a dollar and add a jar of flouride free filtered water plus a little stevia) with supplements (we call it

ovaltine) and stevia. He eats gluten free yeast free bread, sunflower seed butter with a "honey" we make out of coconut oil and liquid stevia. We also now juice organic vegabtables into his zero water. I must express the importance of dietary changes!! Especially GFCF. We saw major changes. I must emphasize "baby steps" your son will fight you at first, but when he realizes he is feeling better, he WILL stop fighting.

[Guest guest]

Just an addition to my previous post. www.nourishinghope.com will help you, as well as another book called: Healing our autistic children by A. Buckley M.D. (we got at library) In the book she emphasises and explains the importance of GFCF. I want to add our children are worth the financial sacrifice. We are their main hope and lifeline to recovering. My husband and I dont have cable, we dont eat out much, our neighbor lets us use their internet, we drive one car. It isn't a huge deal because we enjoy seeing our son progress and also we deal with less melt down drama. Best of luck to you!!!!!

[Guest guest]

Alisabeth,I AM IN LAKELAND !!!!!!!!!!!!!!!!!:-)

 

So I know I am not alone now, after reading the thread prior to this, but am desperately hoping to get some answers from friends here in this group!

We have a 4.5 year old son who is ASD, possibly combo adhd. He has been the worst he has EVER been recently, with regards to his moods (crying and screaming when he can't do something he wants to do and we simply guide him into another distraction.....), hitting, kicking, talking back, pinching and spitting, impossible to focus or listen or even rationalize with, etc. Sigh. It is beginning to really put a huge damper on our 15 year marriage, and I am hoping someone can give me a heads up as to what to do next.   I have been giving him high omega-3's (krill oil of 1,000-1,200 pure epa-dha's per day) b-vitamin complex

every other day (just sublingual), melatonin and magnesium at night to sleep (this does wonders for him sleep wise), and just began inositol of 500 mg once per day and choline each day of 200 mg. No red or yellow dyes allowed,  however he is not casein or gluten free....we are a very low income family due to job losses the past year, so can't afford to eliminate gluten or milk just yet.   My " HUNCH " is that there could be something going on with him not tolerating the supplements well due to either YEAST or needing antivirals or probably just heavy metals.  He seems almost like he is going crazy, just angry and frustrated and melting down almost all day long, and it is breaking my heart. I don't know what to do other than to back down supplements and try a bentonite clay bath (being very very careful of course because of his age, and then having coconut water or emergen-c ready to replentish electrolytes afterwards). What kind/brand of

anything should I do to chelate? He is 43 lbs and 4.5. THanks everyone in advance...please any kind of advice would soothe our nerves here. Feel free to message me back at the posted email so that I don't lose track of anyone who can help us!! Sigh.

Alisbeth and Danlakeland, floridadanandalisabeth@...

From: cheryl biomed.mom

To: mb12valtrex

Sent: Sunday, August 21, 2011 10:02 PMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

You can now.

~Antiviral Therapy 101

~ http://www.gryffins-tail.blogspot.com ~~ @Gryffins_Tail ~

On Aug 21, 2011, at 7:00 PM, Toni Marie Lombardo wrote:

 

No, I do have 5-htp, is that what you mean since we cannot buy tryptophan anymore in the USA I think??I only gave it to him a short while, last summer. I should try it again.

 

I assume you've already tried tryptophan? We get ours from Jarrow.

Good mood during the day and sleeps at night. Ahhh.

>

> I appreciate this post. I was at the end of my rope on Wednesday.

> First day of Kinder and my son kicked and bit the teacher.

> (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS

> and then out of the blue, he will snap...

> anxiety induced)

>

> Was screaming at him that I was going to put him on the drug that would make

> him fat, stupid and act right.

>

> LOL

>

> Looks like it would only make him fat and stupid... if it won't make him act

> right, hardly worth it. Haha...

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

We couldn't tolerate inositol here.

Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

You can now.

~Antiviral Therapy 101

~ http://www.gryffins-tail.blogspot.com ~

~ @Gryffins_Tail ~

On Aug 21, 2011, at 7:00 PM, Toni Marie Lombardo wrote:

No, I do have 5-htp, is that what you mean since we cannot buy tryptophan anymore in the USA I think??

I only gave it to him a short while, last summer. I should try it again.

I assume you've already tried tryptophan? We get ours from Jarrow.

Good mood during the day and sleeps at night. Ahhh.

>

> I appreciate this post. I was at the end of my rope on Wednesday.

> First day of Kinder and my son kicked and bit the teacher.

> (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS

> and then out of the blue, he will snap...

> anxiety induced)

>

> Was screaming at him that I was going to put him on the drug that would make

> him fat, stupid and act right.

>

> LOL

>

> Looks like it would only make him fat and stupid... if it won't make him act

> right, hardly worth it. Haha...

--

Toni

------

Mind like a steel trap...

Rusty and illegal in 37 states.

--

Toni

------

Mind like a steel trap...

Rusty and illegal in 37 states.

[Guest guest]

... so glad to hear about a wonderful story of recovering...that is what i love about this group..i think it humbles all of us. we find something that works or doesnt work and it is so easy to close our minds..to everything else.

how we share with each other is how we keep learning..

I am believe in naturals..but i also believe there is a time and place for meds. I think the main thing is like everything we carefully moniter our kids and see what is helping and what isnt.

I think we all want to protect each others kids so....by instinct if something didnt work for us we might be inclined to come off strongly about it. we want to save someone a bad experience.

God knows ive shoved my experience with ac chelation down many peoples throats. only cause i want to help. God bless us all... its not an easy fight we all have.

channa

To: "mb12valtrex " <mb12valtrex >Sent: Monday, August 22, 2011 12:54 PMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

"like"

To: mb12valtrex Sent: Monday, August 22, 2011 11:36 AMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

I couldn't be happier to eat my words. Hooray for something working like it should!!!!!!!!!!!!!

Not everything is black and white, and not every medication has the same effect on each indivdual. Please think before scare a mother whose child may be self injuring for years, and take away a chance to help them.I have been doing biomed for seven years, I could give you a two page laundry list of everthing we have done and every state I have flown too, to meet with a new Dr.My then Seven year old was self injuring, also hitting teachers taking clothes off, ect. Finally against every Biomed law there is we tried Risperdal. Well my now 10 year old is being placed in a regular 3rd grade class with assistance. The Risperdal has allowed him to be calm enough to allow the other interverntions we do work. He has been in the process of weaning off it. I am going slow but see no difference as we have almost fully taken him off it. Three years of being on this was well worth the child I have now.Like I said before this medicine may not help

every child, but my son is a testament that it did. I never stopped the biomed, just added risperdal.As far as the weight gain goes my son was practically emnaciated before, he is chunky now and strong and happy. The weight gain came on fast but over the last 18 months he gained nothing.I'm sure he will grow into the extra ten pounds.Just think before you make some of your comments, so many parents need help.My son is neither fat or stupid , but he does act right now.-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

alisabeth and dan,

ok i will tell you about my son and maybe it will help you with yours...like many people gfcf was such a tiny piece of the puzzle it hardley made a diffrence. my son had multiple food alleries and i found reacted to high oxylates as well as fructose malabsorbtion.

what does that really mean? for me it meant that i needed to have a journal that i carried around with me. i wrote what he ate what he pooped and how his mood was.

i found fruit except small amounts of applesauce made my son act like a possessed monster.

any grains except white rice only and oatmeal could he tolerate and he was allergic to coconut. also almonds.

also rice milk. he couldnt do potatoes or carrots.. my point is you have to keep a careful log of what your son eats and his reactions..because that is the only way you can figure this stuff out.

unless you got the money to get all these fancy test i would say go for that too. but still i would prefer do things old fashion way.

i will tell everyone that andy cutler chelation was my single biggest wow.

all you need is a bottle of alpha lipoic acid to do the protocol and if you can afford the dmsa that would be wonderful.

it got my son slepping thru the night and the horrible rages he would have non stop.

the second wows for me and this is costing some more money is l theanine and 5htp. in between meals. just chilled the boy right out.

then really loved neuroprotek and PS which i would give together for further wows.

i also got something called an orgone zapper which seemed to have similar effects of the other above meds..it spose to kill parasites and normalize inflammation you can google info on it or i can give you website if you want.

seaking of parasites...i also did now brand wormwood formula and others have great effect with humana ? i think its called.

there is a list i think most of us go by in this group.

you treat one thing at a time and if it doesnt work you go to next.

parasites- now brand wormwood formula twenty bucks must do at least one month

yeast '- grapeseed extract , oil of oregano do one at a time only!

bacteria- culturelle probiotic get at CVS twenty bucks. goldenseal root

viruses-virastop by enzymedica, monolauricidin

metals-andy cutler protocol , chlorella

these all cost about twenty bucks a pop. so just try one at a time ..and only do one supplement at a time.there are others but this is off the top of my head.

my advice is start with andy cutler chelation .it is what worked for me so i am predudice on that.

feel free to pick our brains it is what we are all here for.

channa

To: "mb12valtrex " <mb12valtrex >Sent: Sunday, August 21, 2011 10:49 PMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

So I know I am not alone now, after reading the thread prior to this, but am desperately hoping to get some answers from friends here in this group!

We have a 4.5 year old son who is ASD, possibly combo adhd. He has been the worst he has EVER been recently, with regards to his moods (crying and screaming when he can't do something he wants to do and we simply guide him into another distraction.....), hitting, kicking, talking back, pinching and spitting, impossible to focus or listen or even rationalize with, etc. Sigh. It is beginning to really put a huge damper on our 15 year marriage, and I am hoping someone can give me a heads up as to what to do next. I have been giving him high omega-3's (krill oil of 1,000-1,200 pure epa-dha's per day) b-vitamin complex every other day (just sublingual), melatonin and magnesium at night to sleep (this does wonders for him sleep wise), and just began inositol of 500 mg once per day and choline each day of 200 mg. No red or yellow dyes allowed, however he is not casein or gluten free....we are a very low income family due to job losses

the past year, so can't afford to eliminate gluten or milk just yet. My "HUNCH" is that there could be something going on with him not tolerating the supplements well due to either YEAST or needing antivirals or probably just heavy metals. He seems almost like he is going crazy, just angry and frustrated and melting down almost all day long, and it is breaking my heart. I don't know what to do other than to back down supplements and try a bentonite clay bath (being very very careful of course because of his age, and then having coconut water or emergen-c ready to replentish electrolytes afterwards). What kind/brand of anything should I do to chelate? He is 43 lbs and 4.5. THanks everyone in advance...please any kind of advice would soothe our nerves here. Feel free to message me back at the posted email so that I don't lose track of anyone who can help us!! Sigh.

Alisbeth and Dan

lakeland, florida

danandalisabeth@...

To: mb12valtrex Sent: Sunday, August 21, 2011 10:02 PMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

You can now.

~Antiviral Therapy 101

~ http://www.gryffins-tail.blogspot.com ~

~ @Gryffins_Tail ~

On Aug 21, 2011, at 7:00 PM, Toni Marie Lombardo wrote:

No, I do have 5-htp, is that what you mean since we cannot buy tryptophan anymore in the USA I think??I only gave it to him a short while, last summer. I should try it again.

I assume you've already tried tryptophan? We get ours from Jarrow.Good mood during the day and sleeps at night. Ahhh.

>> I appreciate this post. I was at the end of my rope on Wednesday.> First day of Kinder and my son kicked and bit the teacher.> (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS> and then out of the blue, he will snap...> anxiety induced)> > Was screaming at him that I was going to put him on the drug that would make> him fat, stupid and act right.> > LOL> > Looks like it would only make him fat and stupid... if it won't make him act> right, hardly worth it. Haha...

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

" P "

I couldn't agree more with your words.

Not good to judge the drugs until we've been there ourselves.

Sara

> >

> > My son took a low dose of this drug under the care of Dr. Kartzinel. He took

it for about a 18 months beginning when he was in 4th grade. He is 16 now.

> >

> > Pros-

> > made him go to sleep at night

> > improved eye contact

> > weight gain/ increased appetite willingness to eat

> >

> > Cons-

> > 1.bed wetting (the only time he ever had this problem was when he was on

this drug and it happened several times a week)

> > 2. weight gain (went from being seriously skinny to fat, no muscle tone,

pudgy and floppy. (Girlfriend on this drug for another reason has become fat and

diabetic.)

> > 3. No behavioral improvement at school or home (The reason I broke down and

tried it.)

> > 4. difficulty forming words and sentences (Had the feeling he was either

" too high " or too tired to makeout what he wanted to say. He had less motivation

to try. Increased difficulty with apraxia.)

> > 5. Throat clearing tic (Probably due to PANDAS not risperadal, just want to

point out that risperadal did not make it go away.)

> > 6. Difficulty waking up and getting started in the morning.

> >

> > Overall, it did not do what I had hoped it would. I am grateful for the

weight gain as my child was like an anorexic, but I do not think it was a

healthy weight gain. He has since evened out. I do miss the eye contact, but the

price was a child that couldn't communicate his thoughts very well verbally.

> >

> > He had no difficulty coming off this drug because the dose was low. They did

not notice any change behaviorally at school.

> >

> > My girlfriend who takes this drug for " dissociative disorder " tells me that

it helps keep her mind from " racing " and quiets " the other voices " in her head.

She has significant mental health issues. Now after many years on this and other

anti-psychotic drugs she also has a s@#! load of health issues. Risperadal was

the main drug she used through her teenage years and her twenties. She now has

diabetes, myasthenia gravis, asthma, neuropathy, and gastro paralysis.

> >

> > The seriousness and stress of her health issues set off the mental health

issues. That leads to a cycle of hospitalization, medication changes, more/new

health issues etc. She is trapped now.

> >

> > Because of what I have watched her go through, I would never have my son try

risperadal again. Even if risperdal medicated a few symptoms, it didn't fix

anything and it has the possibily to cause so many other problems. The weight

gain alone is something I consider medically dangerous. (My father died from

complications of diabetes.)

> >

> > Just something I hope you will consider,

> > Jen

> >

> >

> >

> >

> > --

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

>

[Guest guest]

wow Channa,

That's a great list for all of us!

Thanks

Sara

> >>>

> >>> I appreciate this post. I was at the end of my rope on Wednesday.

> >>> First day of Kinder and my son kicked and bit the teacher.

> >>> (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS

> >>> and then out of the blue, he will snap...

> >>> anxiety induced)

> >>>

> >>> Was screaming at him that I was going to put him on the drug that would

make

> >>> him fat, stupid and act right.

> >>>

> >>> LOL

> >>>

> >>> Looks like it would only make him fat and stupid... if it won't make him

act

> >>> right, hardly worth it. Haha...

> >>

> >>

> >>

> >>

> >

> >

> >--

> >Toni

> >

> >------

> >Mind like a steel trap...

> >Rusty and illegal in 37 states.

> >

> >

> >

>

[Guest guest]

there is more..just have to sit down and think of them all!

oliveleaf for viruses also most people know that...there is myrhh essentail oil which i have heard to be great for mold and viruses

it is very potent so one has to go real small amount.

there is silver water for bacteria..but some contreversy for our kids having a hard time to excrete metals.. pau d arco for yeast..and if your kid is craving non stop a certain food it usually no always meant for me a bad thing.

the foods he wanted all the time were usually what made him sick.

but it does begin with the diet..when i am totally confused about the foods i will put him on a couple days with veggie soup only of things i feel comfortable he can digest and then add in onee food a time after that.

To: mb12valtrex Sent: Tuesday, August 23, 2011 5:39 AMSubject: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

wow Channa,That's a great list for all of us!ThanksSara> >>>> >>> I appreciate this post. I was at the end of my rope on Wednesday.> >>> First day of Kinder and my son kicked and bit the teacher.> >>> (We've been thru

the violent outbursts for 3 yrs; he will have good MONTHS> >>> and then out of the blue, he will snap...> >>> anxiety induced)> >>> > >>> Was screaming at him that I was going to put him on the drug that would make> >>> him fat, stupid and act right.> >>> > >>> LOL> >>> > >>> Looks like it would only make him fat and stupid... if it won't make him act> >>> right, hardly worth it. Haha...> >>> >>> >>> >>> >> >> >-- > >Toni> >> >------> >Mind like a steel trap...> >Rusty and illegal in 37 states.> >> >> >>

[Guest guest]

hey channa , after how many round od AC chelation did you see some result, my son is on a very good yeast protocol but he is going crazy on this chelation method,

Thanks

To: "mb12valtrex " <mb12valtrex >Sent: Tuesday, August 23, 2011 9:54 AMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

there is more..just have to sit down and think of them all!

oliveleaf for viruses also most people know that...there is myrhh essentail oil which i have heard to be great for mold and viruses

it is very potent so one has to go real small amount.

there is silver water for bacteria..but some contreversy for our kids having a hard time to excrete metals.. pau d arco for yeast..and if your kid is craving non stop a certain food it usually no always meant for me a bad thing.

the foods he wanted all the time were usually what made him sick.

but it does begin with the diet..when i am totally confused about the foods i will put him on a couple days with veggie soup only of things i feel comfortable he can digest and then add in onee food a time after that.

To: mb12valtrex Sent: Tuesday, August 23, 2011 5:39 AMSubject: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

wow Channa,That's a great list for all of us!ThanksSara> >>>> >>> I appreciate this post. I was at the end of my rope on Wednesday.> >>> First day of Kinder and my son kicked and bit the teacher.> >>> (We've been thru

the violent outbursts for 3 yrs; he will have good MONTHS> >>> and then out of the blue, he will snap...> >>> anxiety induced)> >>> > >>> Was screaming at him that I was going to put him on the drug that would make> >>> him fat, stupid and act right.> >>> > >>> LOL> >>> > >>> Looks like it would only make him fat and stupid... if it won't make him act> >>> right, hardly worth it. Haha...> >>> >>> >>> >>> >> >> >-- > >Toni> >> >------> >Mind like a steel trap...> >Rusty and illegal in 37 states.> >> >> >>

[Guest guest]

are you giving your son the supporting supps?

vitamin c, magnesium and zinc? are you on the RFA yahoo group?

my guess is there is a detox pathway blocked...wheneve my son got bad i would go back to a veggie soup of veg that i know he can tolerate. keep him on that a couple days .then try adding diffrent detox suport, like a liver tonic , make sure he is pooping well ect.

i have heard of glycine being good to help support detox..there is many things that can cause bad reactrions..chelation puts stress on adrenals I use a adrenal herbal formula..

but as they say on recovery from autism, if your child has a bad reaction to chelation it means they need it. the metals need to come out one way or another.

channa

To: "mb12valtrex " <mb12valtrex >Sent: Tuesday, August 23, 2011 10:43 AMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

hey channa , after how many round od AC chelation did you see some result, my son is on a very good yeast protocol but he is going crazy on this chelation method,

Thanks

To: "mb12valtrex " <mb12valtrex >Sent: Tuesday, August 23, 2011 9:54 AMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

there is more..just have to sit down and think of them all!

oliveleaf for viruses also most people know that...there is myrhh essentail oil which i have heard to be great for mold and viruses

it is very potent so one has to go real small amount.

there is silver water for bacteria..but some contreversy for our kids having a hard time to excrete metals.. pau d arco for yeast..and if your kid is craving non stop a certain food it usually no always meant for me a bad thing.

the foods he wanted all the time were usually what made him sick.

but it does begin with the diet..when i am totally confused about the foods i will put him on a couple days with veggie soup only of things i feel comfortable he can digest and then add in onee food a time after that.

To: mb12valtrex Sent: Tuesday, August 23, 2011 5:39 AMSubject: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

wow Channa,That's a great list for all of us!ThanksSara> >>>> >>> I appreciate this post. I was at the end of my rope on Wednesday.> >>> First day of Kinder and my son kicked and bit the teacher.> >>> (We've been thru

the violent outbursts for 3 yrs; he will have good MONTHS> >>> and then out of the blue, he will snap...> >>> anxiety induced)> >>> > >>> Was screaming at him that I was going to put him on the drug that would make> >>> him fat, stupid and act right.> >>> > >>> LOL> >>> > >>> Looks like it would only make him fat and stupid... if it won't make him act> >>> right, hardly worth it. Haha...> >>> >>> >>> >>> >> >> >-- > >Toni> >> >------> >Mind like a steel trap...> >Rusty and illegal in 37 states.> >> >>

>>

[Guest guest]

Hi Channa,what yahoo group is this RFA.I did not find anything in

the yahoo group lists?                    Thanks,Tammy

 

are you giving your son the supporting supps?

vitamin c, magnesium and zinc? are you on the

RFA yahoo group?

my guess is there is a detox pathway

blocked...wheneve my son got bad i would go back to a

veggie soup of veg that i know he can tolerate. keep

him on that a couple days .then try adding diffrent

detox suport, like a liver tonic , make sure he is

pooping well ect.

i have heard of glycine being good to help

support detox..there is many things that can cause bad

reactrions..chelation puts stress on adrenals I use a

adrenal herbal formula..

   but as they say on recovery from autism, if

your child has a bad reaction to chelation it means

they need it. the metals need to come out one way or

another.

channa

From:

Lili K

To:

"mb12valtrex "

<mb12valtrex >

Sent:

Tuesday, August 23, 2011 10:43 AM

Subject:

Re: Re: has anyone seen or heard about

the Risperdal Phase IV study for Autism

 

hey channa , after how many round od

AC chelation did you see some result, my son

is on a very good yeast protocol but he is

going crazy on this chelation method,

 

Thanks

From:

Channa Brennon

To:

"mb12valtrex "

<mb12valtrex >

Sent:

Tuesday, August 23, 2011 9:54 AM

Subject:

Re: Re: has anyone seen or

heard about the Risperdal Phase IV study

for Autism

 

there is more..just have to

sit down and think of them all!

oliveleaf for viruses also

most people know that...there is

myrhh essentail oil which i have

heard to be great for mold and

viruses

it is very potent so one

has to go real small amount.

there is silver water for

bacteria..but some contreversy for

our kids having a hard time to

excrete metals.. pau d arco for

yeast..and if your kid is craving

non stop a certain food it usually

no always meant for me a bad

thing.

the foods he wanted all the

time were usually what made him

sick.

but it does begin with the

diet..when i am totally confused

about the foods i will put him on

a couple days with veggie soup

only of things i feel comfortable

he can digest and then add in

onee  food a time after that.

From:

jandjmother

To:

mb12valtrex

Sent:

Tuesday, August 23, 2011 5:39 AM

Subject:

Re: has anyone

seen or heard about the

Risperdal Phase IV study for

Autism

 

wow Channa,

That's a great list for all

of us!

Thanks

Sara

> >>>

> >>> I

appreciate this post. I was

at the end of my rope on

Wednesday.

> >>> First day

> >>> (We've

been thru the violent

outbursts for 3 yrs; he will

have good MONTHS will

snap...

> >>> anxiety

induced)

> >>>

> >>> Was

screaming at him that I was

going to put him on the drug

that would make

> >>> him fat,

stupid and act right.

> >>>

> >>> LOL

> >>>

> >>> Looks like

it would only make him fat

and stupid... if it won't

make him act

> >>> right,

hardly worth it. Haha...

> >>

> >>

> >>

> >>

> >

> >

> >--

> >Toni

> >

> >------

> >Mind like a steel

trap...

> >Rusty and illegal

in 37 states.

> >

> >

> >

>

[Guest guest]

recovery from autism yahoo group..they are very strict and only allow people who are serious about doing the low frequent dose chelation mehthod

To: mb12valtrex Sent: Wednesday, August 24, 2011 11:47 PMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

Hi Channa,what yahoo group is this RFA.I did not find anything in the yahoo group lists? Thanks,Tammy

are you giving your son the supporting supps?

vitamin c, magnesium and zinc? are you on the RFA yahoo group?

my guess is there is a detox pathway blocked...wheneve my son got bad i would go back to a veggie soup of veg that i know he can tolerate. keep him on that a couple days .then try adding diffrent detox suport, like a liver tonic , make sure he is pooping well ect.

i have heard of glycine being good to help support detox..there is many things that can cause bad reactrions..chelation puts stress on adrenals I use a adrenal herbal formula..

but as they say on recovery from autism, if your child has a bad reaction to chelation it means they need it. the metals need to come out one way or another.

channa

To: "mb12valtrex " <mb12valtrex >Sent: Tuesday, August 23, 2011 10:43 AMSubject: Re: Re: has anyone seen or

heard about the Risperdal Phase IV study for Autism

hey channa , after how many round od AC chelation did you see some result, my son is on a very good yeast protocol but he is going crazy on this chelation method,

Thanks

To: "mb12valtrex " <mb12valtrex >Sent: Tuesday, August 23, 2011 9:54 AMSubject: Re: Re:

has anyone seen or heard about the Risperdal Phase IV study for Autism

there is more..just have to sit down and think of them all!

oliveleaf for viruses also most people know that...there is myrhh essentail oil which i have heard to be great for mold and viruses

it is very potent so one has to go real small amount.

there is silver water for bacteria..but some contreversy for our kids having a hard time to excrete metals.. pau d arco for yeast..and if your kid is craving non stop a certain food it usually no always meant for me a bad thing.

the foods he wanted all the time were usually what made him sick.

but it does begin with the diet..when i am totally confused about the foods i will put him on a couple days with veggie soup only of things i feel comfortable he can digest and then add in onee food a time after that.

To: mb12valtrex Sent: Tuesday, August 23, 2011 5:39 AMSubject: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

wow Channa,That's a great list for all of us!ThanksSara> >>>> >>> I appreciate this post. I was at the end of my rope on Wednesday.> >>> First day> >>> (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS will snap...> >>> anxiety induced)>

>>> > >>> Was screaming at him that I was going to put him on the drug that would make> >>> him fat, stupid and act right.> >>> > >>> LOL> >>> > >>> Looks like it would only make him fat and stupid... if it won't make him act> >>> right, hardly worth it. Haha...> >>> >>> >>> >>> >> >> >-- > >Toni> >> >------> >Mind like a steel trap...> >Rusty and illegal in 37 states.> >> >> >>

[Guest guest]

thanks channa,I will join the RFA group and yes I am giving him supporting supplement, my son is a non responder to everything(no changes ) but only with chelation he regress, I know he needs it but I just don't know how long would it take to see some positive changes,Thanks for your helpTo:

"mb12valtrex " <mb12valtrex >Sent: Wednesday, August 24, 2011 11:00 PMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

are you giving your son the supporting supps?

vitamin c, magnesium and zinc? are you on the RFA yahoo group?

my guess is there is a detox pathway blocked...wheneve my son got bad i would go back to a veggie soup of veg that i know he can tolerate. keep him on that a couple days .then try adding diffrent detox suport, like a liver tonic , make sure he is pooping well ect.

i have heard of glycine being good to help support detox..there is many things that can cause bad reactrions..chelation puts stress on adrenals I use a adrenal herbal formula..

but as they say on recovery from autism, if your child has a bad reaction to chelation it means they need it. the metals need to come out one way or another.

channa

To: "mb12valtrex " <mb12valtrex >Sent: Tuesday, August 23, 2011 10:43 AMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

hey channa , after how many round od AC chelation did you see some result, my son is on a very good yeast protocol but he is going crazy on this chelation method,

Thanks

To: "mb12valtrex " <mb12valtrex >Sent: Tuesday, August 23, 2011 9:54 AMSubject: Re: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

there is more..just have to sit down and think of them all!

oliveleaf for viruses also most people know that...there is myrhh essentail oil which i have heard to be great for mold and viruses

it is very potent so one has to go real small amount.

there is silver water for bacteria..but some contreversy for our kids having a hard time to excrete metals.. pau d arco for yeast..and if your kid is craving non stop a certain food it usually no always meant for me a bad thing.

the foods he wanted all the time were usually what made him sick.

but it does begin with the diet..when i am totally confused about the foods i will put him on a couple days with veggie soup only of things i feel comfortable he can digest and then add in onee food a time after that.

To: mb12valtrex Sent: Tuesday, August 23, 2011 5:39 AMSubject: Re: has anyone seen or heard about the Risperdal Phase IV study for Autism

wow Channa,That's a great list for all of us!ThanksSara> >>>> >>> I appreciate this post. I was at the end of my rope on Wednesday.> >>> First day of Kinder and my son kicked and bit the teacher.> >>> (We've been

thru

the violent outbursts for 3 yrs; he will have good MONTHS> >>> and then out of the blue, he will snap...> >>> anxiety induced)> >>> > >>> Was screaming at him that I was going to put him on the drug that would make> >>> him fat, stupid and act right.> >>> > >>> LOL> >>> > >>> Looks like it would only make him fat and stupid... if it won't make him act> >>> right, hardly worth it. Haha...> >>> >>> >>> >>> >> >> >-- > >Toni> >> >------> >Mind like a steel trap...> >Rusty and illegal in 37 states.> >> >>

>>

[Guest guest]

,

In my experience watching my son, Risperadal does not improve PANDAS behavior

symptomology. It may make a child too tired/high to misbehave, but so does a

traquilizer gun. And just like a traquilizer gun, the effect wears off.

My son's appetite improved, but I have seen other children who barely touch

their food magically puff out on this drug. It is a bloated, Tommy McFarlin kind

of fat. Not healthy.

Toni,

I have so been where you are. PANDAS type behavior is very frustrating. It's

also tricky, because I don't think strep is the only thing that triggers it. We

are left feeling so powerless when we can't suss out the right answer. For me

the stress of the behavior effecting others (like teachers, peers, my family)

exhausts me. That stress is what drove me to try Risperadal and even spanking.

(Not proud of it, but yes I tried it.)

A few things that brought about improvement in behavior for my son included

homeopathy (thuja), secretin infusions (porcine), enzymes, no phenol, flagyl,

boccapa moneirra (sp), theanine, CoQ10 and carnitine, vit B1, DMSA chelation,

Berard auditory training, Son-Rise play therapy and RDI therapy. He benefits

from the structure of ABA, but really is too smart for it and tries to

manipulate the formula in his favor to obtain what he wants. That would be fine

if we lived in a world he could always have what he wants, but that is not the

case.

Adderral helped at school, but you develop a tolerance, and it can make you

irritable or anxious. For about a year it allowed him to ignore OCD triggers,

make friends and not complain about completing school work, but eventually that

wore off. Also, I thought it was suspicious that he asked for it to play video

games. He caught on that he could score higher/play better when he had just

taken it. Are we seeing the pathway of recreational use?? Scary.

Horrible confession, I gave him a higher dose on the days he took his SOL

(Standards of Learning NCLB testing). I did this because I was scared the

testing might trigger a melt down and poor score. He scored well on all, even

the subjects he hates and didn't study for. He got a perfect score on the math.

I can see why college students buy this drug illegally, and I sort of wish I

knew that when I was in college.

Anyway, I weaned him off of it because we would have just had to keep increasing

the dose and there is a legal limit doctors can prescribe. It is a " controlled

substance " in the same family as coccaine.

A month or so off of it, I noticed the ear popping and throat clearing tics had

disappeared. My theory about this involves PANDAS and dry mouth. Sone of the

common side effects of Adderral are dry mouth and teeth grinding. If Adderral

dries up your mouth and sinuses where you have latent strep housed, is it

possible your

f!@#ed up immune system is irritated by the strep and starts attacking the basil

ganglia? Could the tics be a symptom of strep/PANDAS immune reaction, and not

actually the drug? Maybe the reason Adderral helps some children and makes

others develop tics is because the kids that tic have some autoimmune issues

from strep.

No judgements if Risperadal works for your child, but in my experience it only

improved eye contact. The bed wetting and puffy bloated weight gain were signs

that if we stayed on it long term, other health problems/ psychiatric issues

might arrise.

From one who's been there and wishes you didn't have to be,

Jen

>

> I appreciate this post. I was at the end of my rope on Wednesday.

> First day of Kinder and my son kicked and bit the teacher.

> (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS and

then out of the blue, he will snap...

> anxiety induced)

~~~~Maybe PANDAS

>

> Was screaming at him that I was going to put him on the drug that would make

him fat, stupid and act right.

~~~~~Maybe you should just drug the teacher, so it doesn't bother her. Lol.

Jen

[Guest guest]

Nyla has done very well on Risperdal. But she did not start it until she was 15. She had the increased appetite and puffed out but then grew 4 inches. She is slim now and still on the drug. Over time we have had to increase now have tried other drugs as well. Not as easy as it first sounded. She is aggressive so much that I couldn't take it any more.We do what we have to some times even when we don't want to.Ginger--- On

Fri, 8/26/11, S wrote:Subject: Re: has anyone seen or heard about the Risperdal Phase IV study for AutismTo: mb12valtrex Date: Friday, August 26, 2011, 10:11 AM

,

In my experience watching my son, Risperadal does not improve PANDAS behavior symptomology. It may make a child too tired/high to misbehave, but so does a traquilizer gun. And just like a traquilizer gun, the effect wears off.

My son's appetite improved, but I have seen other children who barely touch their food magically puff out on this drug. It is a bloated, Tommy McFarlin kind of fat. Not healthy.

Toni,

I have so been where you are. PANDAS type behavior is very frustrating. It's also tricky, because I don't think strep is the only thing that triggers it. We are left feeling so powerless when we can't suss out the right answer. For me the stress of the behavior effecting others (like teachers, peers, my family) exhausts me. That stress is what drove me to try Risperadal and even spanking. (Not proud of it, but yes I tried it.)

A few things that brought about improvement in behavior for my son included homeopathy (thuja), secretin infusions (porcine), enzymes, no phenol, flagyl, boccapa moneirra (sp), theanine, CoQ10 and carnitine, vit B1, DMSA chelation, Berard auditory training, Son-Rise play therapy and RDI therapy. He benefits from the structure of ABA, but really is too smart for it and tries to manipulate the formula in his favor to obtain what he wants. That would be fine if we lived in a world he could always have what he wants, but that is not the case.

Adderral helped at school, but you develop a tolerance, and it can make you irritable or anxious. For about a year it allowed him to ignore OCD triggers, make friends and not complain about completing school work, but eventually that wore off. Also, I thought it was suspicious that he asked for it to play video games. He caught on that he could score higher/play better when he had just taken it. Are we seeing the pathway of recreational use?? Scary.

Horrible confession, I gave him a higher dose on the days he took his SOL (Standards of Learning NCLB testing). I did this because I was scared the testing might trigger a melt down and poor score. He scored well on all, even the subjects he hates and didn't study for. He got a perfect score on the math. I can see why college students buy this drug illegally, and I sort of wish I knew that when I was in college.

Anyway, I weaned him off of it because we would have just had to keep increasing the dose and there is a legal limit doctors can prescribe. It is a "controlled substance" in the same family as coccaine.

A month or so off of it, I noticed the ear popping and throat clearing tics had disappeared. My theory about this involves PANDAS and dry mouth. Sone of the common side effects of Adderral are dry mouth and teeth grinding. If Adderral dries up your mouth and sinuses where you have latent strep housed, is it possible your

f!@#ed up immune system is irritated by the strep and starts attacking the basil ganglia? Could the tics be a symptom of strep/PANDAS immune reaction, and not actually the drug? Maybe the reason Adderral helps some children and makes others develop tics is because the kids that tic have some autoimmune issues from strep.

No judgements if Risperadal works for your child, but in my experience it only improved eye contact. The bed wetting and puffy bloated weight gain were signs that if we stayed on it long term, other health problems/ psychiatric issues might arrise.

From one who's been there and wishes you didn't have to be,

Jen

>

> I appreciate this post. I was at the end of my rope on Wednesday.

> First day of Kinder and my son kicked and bit the teacher.

> (We've been thru the violent outbursts for 3 yrs; he will have good MONTHS and then out of the blue, he will snap...

> anxiety induced)

~~~~Maybe PANDAS

>

> Was screaming at him that I was going to put him on the drug that would make him fat, stupid and act right.

~~~~~Maybe you should just drug the teacher, so it doesn't bother her. Lol.

Jen