Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

January 27, 2012

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun. ----- Forwarded Message ----- To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PM Subject: HELP:

new nighttime anxiety and OCD!

Hi All,I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask

to go the potty or not

talk.I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his NophenolSat: watery diarrhea (greenish - viral?)Sun: diarrhea but betterMon: Peeing alot. Started Lithium oratate (balance mood, behavior)Tues: Stopped LiverlifeWed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.Thurs: Stopped Lithium Oratate. Same behavior as Wed.Fri: Same night time behavior as Wed and Thurs. Restarted low

dose Liverlife.Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!Many thanks,

January 27, 2012

Have you changed the diet recently?A lot of what you are describing would fall into what we would call " dumping " on the low oxalate list.Something that might cause regressions in behavior and biological symptoms could be taking away nuts, soy, or spinach.

???

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----

To: " mb12valtrex " <mb12valtrex >

Sent: Friday, January 27, 2012 9:05 PM Subject: HELP:

new nighttime anxiety and OCD!

Hi All,I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask

to go the potty or not

talk.I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)Sun: diarrhea but betterMon: Peeing alot. Started Lithium oratate (balance mood, behavior)Tues: Stopped LiverlifeWed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.Fri: Same night time behavior as Wed and Thurs. Restarted low

dose Liverlife.Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!Many thanks,

-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565

--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565

------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

January 27, 2012

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 27, 2012

Increased urination goes along with the ocd/anxiety of PANDAS. To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 27, 2012

Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!Channa, I don't remember the diarrhea smelling terribly bad. I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. I do have some goldenseal but my kids have done really poorly on most naturals -- will have to think

about this one (too scared at the moment). Will order the CP 11 strain too.is, I had ruled out clostridia because he is not acting the same as he did

this summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). He is has been on Nystatin since mid december i think and Candidase since late december. My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. Took out Enhansa and they are coming down. Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. We do have regular epsom salts baths so will keep that up.Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed it

differently in her lungs. My

son often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).Toni, thank you for the new info on the oxolate dumping. I will have to think about that. We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.Gayle and others, what do you use to treat strep/PANDAS?, I hadnt thought of uti. I can easily rule that one out (or in). Parasites have always been on my mind too. We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).Hope we get it figured out shortly!!Many thanks, From: Channa

Brennon To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 28, 2012

- the chronic cough makes me think of mycoplasma pneumonia. And the symptoms sound very much like pandas (www.pandaslink.com). You could ask doc to check titers (IgG & IgM) or strep and myco p just to make sure. Also, they could check ASO & AntiDnase for strep as well. And if you want you could also check for common beepers viruses like hhb6 & cmv. If you see increased emotional lability, separation anxiety, OCD, fears, etc these are all classic signs of pandas. Hope all returns to normal soon, Ruth. Sent from my iPhone

Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!Channa, I don't remember the diarrhea smelling terribly bad. I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. I do have some goldenseal but my kids have done really poorly on most naturals -- will have to think

about this one (too scared at the moment). Will order the CP 11 strain too.is, I had ruled out clostridia because he is not acting the same as he did

this summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). He is has been on Nystatin since mid december i think and Candidase since late december. My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. Took out Enhansa and they are coming down. Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. We do have regular epsom salts baths so will keep that up.Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed it

differently in her lungs. My

son often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).Toni, thank you for the new info on the oxolate dumping. I will have to think about that. We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.Gayle and others, what do you use to treat strep/PANDAS?, I hadnt thought of uti. I can easily rule that one out (or in). Parasites have always been on my mind too. We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).Hope we get it figured out shortly!!Many thanks, From: Channa

Brennon To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 28, 2012

, my son is older, 18 now, but we've been at this a long time. My son, as Ruth suggested, is positive for strep AND myco p. The latter wasn't discovered until our last awful exacerbation but that knowledge can make a world of difference in treatment options if you go the antibiotic route. My son never did well on abx, they tore his already torn gut to a place I wasn't sure he'd recover from (and actually its the last piece to come back together). We live, swear by and will not be without Olive Leaf Extract...with a high percentage of oleuropein (the active ingredient in OLE). In addition, exceptional probiotics, MB12, folapro, magnesium, vit c and a consistent dose of melatonin at night....which will help with that bedtime ocd/anxiety. Best wishes to you. Gayle To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 7:39 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

- the chronic cough makes me think of mycoplasma pneumonia. And the symptoms sound very much like pandas (www.pandaslink.com). You could ask doc to check titers (IgG & IgM) or strep and myco p just to make sure. Also, they could check ASO & AntiDnase for strep as well. And if you want you could also check for common beepers viruses like hhb6 & cmv. If you see increased emotional lability, separation anxiety, OCD, fears, etc these are all classic signs of pandas. Hope all returns to normal soon, Ruth. Sent from my iPhoneOn Jan 27, 2012, at 11:28 PM,

wrote:

Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!Channa, I don't remember the diarrhea smelling terribly bad. I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. I do have some goldenseal but my kids have done really poorly on

most naturals -- will have to think

about this one (too scared at the moment). Will order the CP 11 strain too.is, I had ruled out clostridia because he is not acting the same as he did

this summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). He is has been on Nystatin since mid december i think and Candidase since late december. My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. Took out Enhansa and they are coming down. Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. We do have regular epsom salts baths so will keep that up.Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed it

differently in her lungs. My

son often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).Toni, thank you for the new info on the oxolate dumping. I will have to think about that. We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.Gayle and others, what do you use to treat strep/PANDAS?, I hadnt thought of uti. I can easily rule that one out (or in). Parasites have always been on my mind too. We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).Hope we get it figured out shortly!!Many thanks, From: Channa

Brennon To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 28, 2012

Thank you Gayle, Ruth and ! This has all been very helpful. I am definitely thinking this could be strep/PANDAS and i doubt this is the first episode. I remember about a year ago this time that he started a jaw tic that lasted months after an illness plus he had more anxiety then. I have the OLE on board but will be ordering new probiotics soon and looking into melatonin too (he had a hard time falling asleep again tonight and that hasnt been a problem in a long time)....not sure on the antibiotic at this time but will ask our dr. about it and all the titers, cultures to run....i am afraid that an antib will make his clostridia flare and I/we do not want the clostridia beast again.Thank you again!! To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 8:34 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

, my son is older, 18 now, but we've been at this a long time. My son, as Ruth suggested, is positive for strep AND myco p. The latter wasn't discovered until our last awful exacerbation but that knowledge can make a world of difference in treatment options if you go the antibiotic route. My son never did well on abx, they tore his already torn gut to a place I wasn't sure he'd recover from (and actually its the last piece to come back together). We live, swear by and will not be without Olive Leaf Extract...with a high percentage of oleuropein (the active ingredient in OLE). In addition, exceptional probiotics, MB12, folapro, magnesium, vit c and a consistent dose of melatonin at night....which will help with that bedtime ocd/anxiety. Best wishes to you.

Gayle To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 7:39 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

- the chronic cough makes me think of mycoplasma pneumonia. And the symptoms sound very much like pandas (www.pandaslink.com). You could ask doc to check titers (IgG & IgM) or strep and myco p just to make sure. Also, they could check ASO & AntiDnase for strep as well. And if you want you could also check for common beepers viruses like hhb6 & cmv. If you see increased emotional lability, separation anxiety, OCD, fears, etc these are all classic signs of pandas. Hope all returns to normal soon, Ruth. Sent from my iPhoneOn Jan 27, 2012, at 11:28 PM,

wrote:

Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!Channa, I don't remember the diarrhea smelling terribly bad. I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. I do have some goldenseal but my kids have done really poorly on

most naturals -- will have to think

about this one (too scared at the moment). Will order the CP 11 strain too.is, I had ruled out clostridia because he is not acting the same as he did

this summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). He is has been on Nystatin since mid december i think and Candidase since late december. My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. Took out Enhansa and they are coming down. Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. We do have regular epsom salts baths so will keep that up.Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed it

differently in her lungs. My

son often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).Toni, thank you for the new info on the oxolate dumping. I will have to think about that. We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.Gayle and others, what do you use to treat strep/PANDAS?, I hadnt thought of uti. I can easily rule that one out (or in). Parasites have always been on my mind too. We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).Hope we get it figured out shortly!!Many thanks, From: Channa

Brennon To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 29, 2012

,what brand of olive leaf extract do you use?..also,what do u use for PANDAS?My son was supp red for this without doing strep titre,and given hi dose antib which made issues worse and I do not want to do anymore antib.SandiSent from my iPad Thank you Gayle, Ruth and ! This has all been very helpful. I am definitely thinking this could be strep/PANDAS and i doubt this is the first episode. I remember about a year ago this time that he started a jaw tic that lasted months after an illness plus he had more anxiety then. I have the OLE on board but will be ordering new probiotics soon and looking into melatonin too (he had a hard time falling asleep again tonight and that hasnt been a problem in a long time)....not sure on the antibiotic at this time but will ask our dr. about it and all the titers, cultures to run....i am afraid that an antib will make his clostridia flare and I/we do not want the clostridia beast again.Thank you again!! To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 8:34 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu , my son is older, 18 now, but we've been at this a long time. My son, as Ruth suggested, is positive for strep AND myco p. The latter wasn't discovered until our last awful exacerbation but that knowledge can make a world of difference in treatment options if you go the antibiotic route. My son never did well on abx, they tore his already torn gut to a place I wasn't sure he'd recover from (and actually its the last piece to come back together). We live, swear by and will not be without Olive Leaf Extract...with a high percentage of oleuropein (the active ingredient in OLE). In addition, exceptional probiotics, MB12, folapro, magnesium, vit c and a consistent dose of melatonin at night....which will help with that bedtime ocd/anxiety. Best wishes to you.Gayle To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 7:39 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu - the chronic cough makes me think of mycoplasma pneumonia. And the symptoms sound very much like pandas (www.pandaslink.com). You could ask doc to check titers (IgG & IgM) or strep and myco p just to make sure. Also, they could check ASO & AntiDnase for strep as well. And if you want you could also check for common beepers viruses like hhb6 & cmv. If you see increased emotional lability, separation anxiety, OCD, fears, etc these are all classic signs of pandas. Hope all returns to normal soon, Ruth. Sent from my iPhoneOn Jan 27, 2012, at 11:28 PM, wrote: Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!Channa, I don't remember the diarrhea smelling terribly bad. I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. I do have some goldenseal but my kids have done really poorly onmost naturals -- will have to thinkabout this one (too scared at the moment). Will order the CP 11 strain too.is, I had ruled out clostridia because he is not acting the same as he didthis summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). He is has been on Nystatin since mid december i think and Candidase since late december. My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. Took out Enhansa and they are coming down. Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. We do have regular epsom salts baths so will keep that up.Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed itdifferently in her lungs. Myson often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).Toni, thank you for the new info on the oxolate dumping. I will have to think about that. We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.Gayle and others, what do you use to treat strep/PANDAS?, I hadnt thought of uti. I can easily rule that one out (or in). Parasites have always been on my mind too. We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).Hope we get it figured out shortly!!Many thanks, To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteriaTo: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!Hi All,I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his NophenolSat: watery diarrhea (greenish - viral?)Sun: diarrhea but betterMon: Peeing alot. Started Lithium oratate (balance mood, behavior)Tues: Stopped LiverlifeWed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.Thurs: Stopped Lithium Oratate. Same behavior as Wed.Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!Many thanks,

January 29, 2012

Hi sandi,We use the now brand olive leaf glycerite. Haven't decided yet what we will do for strep/pandas. Ordering culturelle and thinking about goldenseal (channa's rec). We will probably not do antibs either unless there is a positive throat culture....if I remember correctly our dr recommended adv biocidin this summer for strep while my son was on nystatin. He had the worst clostridia flare putting him back a year in language,cognition and behavior so we have to be very careful with clostridia flares and balancing the tummy bugs.Hope this helps!-- Sent from my Palm Pre

,what brand of olive leaf extract do you use?..also,what do u use for PANDAS?My son was supp red for this without doing strep titre,and given hi dose antib which made issues worse and I do not want to do anymore antib.SandiSent from my iPad

Thank you Gayle, Ruth and ! This has all been very helpful. I am definitely thinking this could be strep/PANDAS and i doubt this is the first episode. I remember about a year ago this time that he started a jaw tic that lasted months after an illness plus he had more anxiety then. I have the OLE on board but will be ordering new probiotics soon and looking into melatonin too (he had a hard time falling asleep again tonight and that hasnt been a problem in a long time)....not sure on the antibiotic at this time but will ask our dr. about it and all the titers, cultures to run....i am afraid that an antib will make his clostridia flare and I/we do not want the clostridia beast again.Thank you again!! To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 8:34 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

, my son is older, 18 now, but we've been at this a long time. My son, as Ruth suggested, is positive for strep AND myco p. The latter wasn't discovered until our last awful exacerbation but that knowledge can make a world of difference in treatment options if you go the antibiotic route. My son never did well on abx, they tore his already torn gut to a place I wasn't sure he'd recover from (and actually its the last piece to come back together). We live, swear by and will not be without Olive Leaf Extract...with a high percentage of oleuropein (the active ingredient in OLE). In addition, exceptional probiotics, MB12, folapro, magnesium, vit c and a consistent dose of melatonin at night....which will help with that bedtime ocd/anxiety. Best wishes to you.

Gayle To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 7:39 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

- the chronic cough makes me think of mycoplasma pneumonia. And the symptoms sound very much like pandas (www.pandaslink.com). You could ask doc to check titers (IgG & IgM) or strep and myco p just to make sure. Also, they could check ASO & AntiDnase for strep as well. And if you want you could also check for common beepers viruses like hhb6 & cmv. If you see increased emotional lability, separation anxiety, OCD, fears, etc these are all classic signs of pandas. Hope all returns to normal soon, Ruth. Sent from my iPhoneOn Jan 27, 2012, at 11:28 PM,

wrote:

Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!Channa, I don't remember the diarrhea smelling terribly bad. I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. I do have some goldenseal but my kids have done really poorly on

most naturals -- will have to think

about this one (too scared at the moment). Will order the CP 11 strain too.is, I had ruled out clostridia because he is not acting the same as he did

this summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). He is has been on Nystatin since mid december i think and Candidase since late december. My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. Took out Enhansa and they are coming down. Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. We do have regular epsom salts baths so will keep that up.Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed it

differently in her lungs. My

son often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).Toni, thank you for the new info on the oxolate dumping. I will have to think about that. We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.Gayle and others, what do you use to treat strep/PANDAS?, I hadnt thought of uti. I can easily rule that one out (or in). Parasites have always been on my mind too. We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).Hope we get it figured out shortly!!Many thanks, From: Channa

Brennon To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 29, 2012

- many people have reported good results using homeopathy for pANDAS. I would encourage you to check out the PANDAS Facebook group and also the yahoo group. Those that are going that route can make some recommendations. HTHRuthSent from my iPhone

,what brand of olive leaf extract do you use?..also,what do u use for PANDAS?My son was supp red for this without doing strep titre,and given hi dose antib which made issues worse and I do not want to do anymore antib.SandiSent from my iPad

Thank you Gayle, Ruth and ! This has all been very helpful. I am definitely thinking this could be strep/PANDAS and i doubt this is the first episode. I remember about a year ago this time that he started a jaw tic that lasted months after an illness plus he had more anxiety then. I have the OLE on board but will be ordering new probiotics soon and looking into melatonin too (he had a hard time falling asleep again tonight and that hasnt been a problem in a long time)....not sure on the antibiotic at this time but will ask our dr. about it and all the titers, cultures to run....i am afraid that an antib will make his clostridia flare and I/we do not want the clostridia beast again.Thank you again!! To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 8:34 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

, my son is older, 18 now, but we've been at this a long time. My son, as Ruth suggested, is positive for strep AND myco p. The latter wasn't discovered until our last awful exacerbation but that knowledge can make a world of difference in treatment options if you go the antibiotic route. My son never did well on abx, they tore his already torn gut to a place I wasn't sure he'd recover from (and actually its the last piece to come back together). We live, swear by and will not be without Olive Leaf Extract...with a high percentage of oleuropein (the active ingredient in OLE). In addition, exceptional probiotics, MB12, folapro, magnesium, vit c and a consistent dose of melatonin at night....which will help with that bedtime ocd/anxiety. Best wishes to you.

Gayle To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 7:39 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

- the chronic cough makes me think of mycoplasma pneumonia. And the symptoms sound very much like pandas (www.pandaslink.com). You could ask doc to check titers (IgG & IgM) or strep and myco p just to make sure. Also, they could check ASO & AntiDnase for strep as well. And if you want you could also check for common beepers viruses like hhb6 & cmv. If you see increased emotional lability, separation anxiety, OCD, fears, etc these are all classic signs of pandas. Hope all returns to normal soon, Ruth. Sent from my iPhoneOn Jan 27, 2012, at 11:28 PM,

wrote:

Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!Channa, I don't remember the diarrhea smelling terribly bad. I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. I do have some goldenseal but my kids have done really poorly on

most naturals -- will have to think

about this one (too scared at the moment). Will order the CP 11 strain too.is, I had ruled out clostridia because he is not acting the same as he did

this summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). He is has been on Nystatin since mid december i think and Candidase since late december. My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. Took out Enhansa and they are coming down. Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. We do have regular epsom salts baths so will keep that up.Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed it

differently in her lungs. My

son often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).Toni, thank you for the new info on the oxolate dumping. I will have to think about that. We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.Gayle and others, what do you use to treat strep/PANDAS?, I hadnt thought of uti. I can easily rule that one out (or in). Parasites have always been on my mind too. We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).Hope we get it figured out shortly!!Many thanks, From: Channa

Brennon To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 29, 2012

Nystatin has a strep assoc, Streptomyces noursei. It was not until we

discontinued this and weeded out the strep probiotics that titers began to come

down for us.

>

> & nbsp;

>

> Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if

i forgot someone!!) for all of your great ideas!!

> Channa, I don't remember the diarrhea smelling terribly bad. & nbsp;I am

planning to order some culturelle on Monday (this will be a new one for us) so I

will try that. & nbsp;I do have some goldenseal but my kids have done really

poorly on

> most naturals -- will have to think

> about this one (too scared at the moment). & nbsp;Will order the CP 11 strain

too.

> is, I had ruled out clostridia because he is not acting the same as he did

> this summer (and the poop is not dark as usual with clostridia) but i suppose

it is possible that it is a milder clostridia flare (oh, i was hoping to not go

back to that one soon). & nbsp;He is has been on Nystatin since mid december i

think and Candidase since late december. & nbsp;My son's ALT and AST have been

elevated (60 and 65 at the last test) and we are not sure why. & nbsp;Took out

Enhansa and they are coming down. & nbsp;Just lowered liverlife too (even though

it is supposed to help the liver, the dr. thought it could cause

problems)...will have to do viral hepatitis and some other tests soon....anyway,

we cant start any antibs/systemic antifungals at the moment. & nbsp;We do have

regular epsom salts baths so will keep that up.

> Ruth, I think the diarrhea he had on Sat/sun could have been his " flu " ...my

daughter showed it

> differently in her lungs. & nbsp;My

> son often does not have coughs and actually since he and I had a really bad

" bronchitis " that lasted 2 months when he was two, i dont remember him getting

too many coughs...i think this is one of his biggies too -- a chronic infection

in his lungs that he has never kicked. & nbsp;I have brought this up with DANs

but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment

is is mentioning??).

> Toni, thank you for the new info on the oxolate dumping. & nbsp;I will have to

think about that. & nbsp;We havent taken anything away but since you mention soy

i am wondering if his reaction could be to some waffles i gave them (not sure

when) that contained soy (i had forgotten this)....in the past, they havent been

very reactive to soy but i am guessing this can change....maybe it is this...

> Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think

it is an herbal though?). & nbsp;He takes 2 tsp a day of the Nordic Naturals

ProEFA -- over 1200 EPA.

> Gayle and others, what do you use to treat strep/PANDAS?

> , I hadnt thought of uti. & nbsp;I can easily rule that one out (or in).

& nbsp;Parasites have always been on my mind too. & nbsp;We havent treated yet for

that. I mentioned treating with our Dan at our last appt and she thought he is

too sensitive right now for treatment (apparently parasite cleanses are rough on

the bodies??).

> Hope we get it figured out shortly!!

> Many thanks,

>

> From: Channa

> Brennon channabrennon@...

> To: " mb12valtrex " mb12valtrex

> Sent: Friday, January 27, 2012 10:36 PM

> Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot

daughter with flu

>

> & nbsp;

>

> how did the diahreah smell? not to be gross but really bad smelly poop

would be a sign of bacteria overload....can your son take naturals? & nbsp; maybe

try a week of goldenseal...up the culturelle at same time...if that helps then

you know it was bacteria

>

> From: meganscott624@...

> To: " mb12valtrex " mb12valtrex

> Sent: Friday, January 27, 2012 9:10 PM

> Subject: Fw: HELP: new nighttime anxiety and OCD! -- forgot

daughter with flu

>

> & nbsp;

>

> I forgot to mention, my daughter has had what appears to be croup turning into

a nasty cough/flu/bronchitis which started on Sun....my son has not had the

cough....just the diareah on Sat/Sun.

>

> ----- Forwarded Message -----

> From: meganscott624@...

> To: " mb12valtrex " mb12valtrex

> Sent: Friday, January 27, 2012 9:05 PM

> Subject: HELP: new nighttime anxiety and OCD!

>

> Hi All,

>

> I need your brains to help figure out a new, dramatic change in my 5 year

old's behavior. & nbsp;For months, he has been going to bed on his own without

any problems. & nbsp;I would tuck him in and then go to his little sister's room

to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

>

> As of a couple of days ago, he has become very anxious and OCD about going to

bed. & nbsp;He cannot stay in his bed and comes into my daughter's room

obsessively. & nbsp;When I ask him to be quiet and not say anything he cannot.

& nbsp;He keeps saying he has to go to the bathroom (we go and then he

immediately has to go again)....he says this over and over and gets very upset.

& nbsp;He cannot control his urge to get out of bed, ask to go the potty or not

talk.

>

> I am trying to pinpoint the culprit. & nbsp;I was thinking strep/Pandas,

Phenols, virus, new supplement or food infraction. & nbsp;Here is a quick time

line of events:

>

> Friday: party at our house with kids -- possibility he ate something with

gluten/casein without us knowing. & nbsp;I found out later some of the older kids

had opened their chips bags and left them on the counter. & nbsp;He was also

given strawberries without his Nophenol

> Sat: watery diarrhea (greenish - viral?)

> Sun: diarrhea but better

> Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

> Tues: Stopped Liverlife

> Wed: weepy and frustrated at times. & nbsp;Started the above OCD/anxious night

time behavior. & nbsp;Pooped on bedroom floor.

> Thurs: Stopped Lithium Oratate. Same behavior as Wed.

> Fri: Same night time behavior as Wed and Thurs. & nbsp;Restarted low dose

Liverlife.

>

> Please let me know if you have any thoughts!! & nbsp;Bedtime is becoming a

nightmare!

>

> Many thanks,

>

January 29, 2012

Hi ,Is chlostidia yeast.? And if so,what did u use to help with?I will buy the olive leaf,trying diff things right now,hi dose biotin,zinc and now trying calcium for behaviours off the wall,jumping,hyper,darting,ace stuff,biting,chewing clothes,metal hair..What is adv stuff u mentioned?SandiSent from my iPad Hi sandi,We use the now brand olive leaf glycerite. Haven't decided yet what we will do for strep/pandas. Ordering culturelle and thinking about goldenseal (channa's rec). We will probably not do antibs either unless there is a positive throat culture....if I remember correctly our dr recommended adv biocidin this summer for strep while my son was on nystatin. He had the worst clostridia flare putting him back a year in language,cognition and behavior so we have to be very careful with clostridia flares and balancing the tummy bugs.Hope this helps!-- Sent from my Palm Pre ,what brand of olive leaf extract do you use?..also,what do u use for PANDAS?My son was supp red for this without doing strep titre,and given hi dose antib which made issues worse and I do not want to do anymore antib.SandiSent from my iPad Thank you Gayle, Ruth and ! This has all been very helpful. I am definitely thinking this could be strep/PANDAS and i doubt this is the first episode. I remember about a year ago this time that he started a jaw tic that lasted months after an illness plus he had more anxiety then. I have the OLE on board but will be ordering new probiotics soon and looking into melatonin too (he had a hard time falling asleep again tonight and that hasnt been a problem in a long time)....not sure on the antibiotic at this time but will ask our dr. about it and all the titers, cultures to run....i am afraid that an antib will make his clostridia flare and I/we do not want the clostridia beast again.Thank you again!! To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 8:34 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu , my son is older, 18 now, but we've been at this a long time. My son, as Ruth suggested, is positive for strep AND myco p. The latter wasn't discovered until our last awful exacerbation but that knowledge can make a world of difference in treatment options if you go the antibiotic route. My son never did well on abx, they tore his already torn gut to a place I wasn't sure he'd recover from (and actually its the last piece to come back together). We live, swear by and will not be without Olive Leaf Extract...with a high percentage of oleuropein (the active ingredient in OLE). In addition, exceptional probiotics, MB12, folapro, magnesium, vit c and a consistent dose of melatonin at night....which will help with that bedtime ocd/anxiety. Best wishes to you.Gayle To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 7:39 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu - the chronic cough makes me think of mycoplasma pneumonia. And the symptoms sound very much like pandas (www.pandaslink.com). You could ask doc to check titers (IgG & IgM) or strep and myco p just to make sure. Also, they could check ASO & AntiDnase for strep as well. And if you want you could also check for common beepers viruses like hhb6 & cmv. If you see increased emotional lability, separation anxiety, OCD, fears, etc these are all classic signs of pandas. Hope all returns to normal soon, Ruth. Sent from my iPhoneOn Jan 27, 2012, at 11:28 PM, wrote: Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!Channa, I don't remember the diarrhea smelling terribly bad. I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. I do have some goldenseal but my kids have done really poorly onmost naturals -- will have to thinkabout this one (too scared at the moment). Will order the CP 11 strain too.is, I had ruled out clostridia because he is not acting the same as he didthis summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). He is has been on Nystatin since mid december i think and Candidase since late december. My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. Took out Enhansa and they are coming down. Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. We do have regular epsom salts baths so will keep that up.Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed itdifferently in her lungs. Myson often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).Toni, thank you for the new info on the oxolate dumping. I will have to think about that. We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.Gayle and others, what do you use to treat strep/PANDAS?, I hadnt thought of uti. I can easily rule that one out (or in). Parasites have always been on my mind too. We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).Hope we get it figured out shortly!!Many thanks, To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteriaTo: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!Hi All,I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his NophenolSat: watery diarrhea (greenish - viral?)Sun: diarrhea but betterMon: Peeing alot. Started Lithium oratate (balance mood, behavior)Tues: Stopped LiverlifeWed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.Thurs: Stopped Lithium Oratate. Same behavior as Wed.Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!Many thanks,

January 29, 2012

Imegan,Also,been using cultrelle her it has strep,so maybe not what u want,just ordered custom probiotic cp from ourkidasd,no strep there.SandiSent from my iPad Nystatin has a strep assoc, Streptomyces noursei. It was not until we discontinued this and weeded out the strep probiotics that titers began to come down for us. > > > > > > > > > > > > > > > > > & nbsp;> > > > > > > Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!> Channa, I don't remember the diarrhea smelling terribly bad. & nbsp;I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. & nbsp;I do have some goldenseal but my kids have done really poorly on> most naturals -- will have to think> about this one (too scared at the moment). & nbsp;Will order the CP 11 strain too.> is, I had ruled out clostridia because he is not acting the same as he did> this summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). & nbsp;He is has been on Nystatin since mid december i think and Candidase since late december. & nbsp;My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. & nbsp;Took out Enhansa and they are coming down. & nbsp;Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. & nbsp;We do have regular epsom salts baths so will keep that up.> Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed it> differently in her lungs. & nbsp;My> son often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. & nbsp;I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).> Toni, thank you for the new info on the oxolate dumping. & nbsp;I will have to think about that. & nbsp;We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...> Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). & nbsp;He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.> Gayle and others, what do you use to treat strep/PANDAS?> , I hadnt thought of uti. & nbsp;I can easily rule that one out (or in). & nbsp;Parasites have always been on my mind too. & nbsp;We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).> Hope we get it figured out shortly!!> Many thanks,> > To: "mb12valtrex " mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM> Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu> > > > > > > > > > > > > > > > > > & nbsp;> > > > > > > how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? & nbsp; maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria> > > > > > To: "mb12valtrex " mb12valtrex > Sent: Friday, January 27, 2012 9:10 PM> Subject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu> > > > & nbsp; > > > I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.> > > > > ----- Forwarded Message -----> To: "mb12valtrex " mb12valtrex > Sent: Friday, January 27, 2012 9:05 PM> Subject: HELP: new nighttime anxiety and OCD!> > > > > > Hi All,> > > I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. & nbsp;For months, he has been going to bed on his own without any problems. & nbsp;I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).> > > As of a couple of days ago, he has become very anxious and OCD about going to bed. & nbsp;He cannot stay in his bed and comes into my daughter's room obsessively. & nbsp;When I ask him to be quiet and not say anything he cannot. & nbsp;He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. & nbsp;He cannot control his urge to get out of bed, ask to go the potty or not talk.> > > I am trying to pinpoint the culprit. & nbsp;I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. & nbsp;Here is a quick time line of events:> > > Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. & nbsp;I found out later some of the older kids had opened their chips bags and left them on the counter. & nbsp;He was also given strawberries without his Nophenol> Sat: watery diarrhea (greenish - viral?)> Sun: diarrhea but better> Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)> Tues: Stopped Liverlife> Wed: weepy and frustrated at times. & nbsp;Started the above OCD/anxious night time behavior. & nbsp;Pooped on bedroom floor.> Thurs: Stopped Lithium Oratate. Same behavior as Wed.> Fri: Same night time behavior as Wed and Thurs. & nbsp;Restarted low dose Liverlife.> > > Please let me know if you have any thoughts!! & nbsp;Bedtime is becoming a nightmare!> > > Many thanks,> >

January 29, 2012

Cuturelle does not have strep. It is great for bacteria but non-colonizing from what I understand. Make sure the OLE is at least 18% oleoreupin. Label should say. Sent from my iPhone

Imegan,Also,been using cultrelle her it has strep,so maybe not what u want,just ordered custom probiotic cp from ourkidasd,no strep there.SandiSent from my iPad

Nystatin has a strep assoc, Streptomyces noursei. It was not until we discontinued this and weeded out the strep probiotics that titers began to come down for us.

>

> & nbsp;

>

> Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!

> Channa, I don't remember the diarrhea smelling terribly bad. & nbsp;I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. & nbsp;I do have some goldenseal but my kids have done really poorly on

> most naturals -- will have to think

> about this one (too scared at the moment). & nbsp;Will order the CP 11 strain too.

> is, I had ruled out clostridia because he is not acting the same as he did

> this summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). & nbsp;He is has been on Nystatin since mid december i think and Candidase since late december. & nbsp;My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. & nbsp;Took out Enhansa and they are coming down. & nbsp;Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. & nbsp;We do have regular epsom salts baths so will keep that up.

> Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed it

> differently in her lungs. & nbsp;My

> son often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. & nbsp;I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).

> Toni, thank you for the new info on the oxolate dumping. & nbsp;I will have to think about that. & nbsp;We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...

> Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). & nbsp;He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.

> Gayle and others, what do you use to treat strep/PANDAS?

> , I hadnt thought of uti. & nbsp;I can easily rule that one out (or in). & nbsp;Parasites have always been on my mind too. & nbsp;We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).

> Hope we get it figured out shortly!!

> Many thanks,

>

> From: Channa

> Brennon channabrennon@...

> To: "mb12valtrex " mb12valtrex

> Sent: Friday, January 27, 2012 10:36 PM

> Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

>

> & nbsp;

>

> how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? & nbsp; maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

>

> From: meganscott624@...

> To: "mb12valtrex " mb12valtrex

> Sent: Friday, January 27, 2012 9:10 PM

> Subject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

>

> & nbsp;

>

> I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

>

> ----- Forwarded Message -----

> From: meganscott624@...

> To: "mb12valtrex " mb12valtrex

> Sent: Friday, January 27, 2012 9:05 PM

> Subject: HELP: new nighttime anxiety and OCD!

>

> Hi All,

>

> I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. & nbsp;For months, he has been going to bed on his own without any problems. & nbsp;I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

>

> As of a couple of days ago, he has become very anxious and OCD about going to bed. & nbsp;He cannot stay in his bed and comes into my daughter's room obsessively. & nbsp;When I ask him to be quiet and not say anything he cannot. & nbsp;He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. & nbsp;He cannot control his urge to get out of bed, ask to go the potty or not talk.

>

> I am trying to pinpoint the culprit. & nbsp;I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. & nbsp;Here is a quick time line of events:

>

> Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. & nbsp;I found out later some of the older kids had opened their chips bags and left them on the counter. & nbsp;He was also given strawberries without his Nophenol

> Sat: watery diarrhea (greenish - viral?)

> Sun: diarrhea but better

> Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

> Tues: Stopped Liverlife

> Wed: weepy and frustrated at times. & nbsp;Started the above OCD/anxious night time behavior. & nbsp;Pooped on bedroom floor.

> Thurs: Stopped Lithium Oratate. Same behavior as Wed.

> Fri: Same night time behavior as Wed and Thurs. & nbsp;Restarted low dose Liverlife.

>

> Please let me know if you have any thoughts!! & nbsp;Bedtime is becoming a nightmare!

>

> Many thanks,

>

January 29, 2012

Hi Ruth,Do u know the exact yahoo group name,unable to locateThx,SandiSent from my iPad - many people have reported good results using homeopathy for pANDAS. I would encourage you to check out the PANDAS Facebook group and also the yahoo group. Those that are going that route can make some recommendations. HTHRuthSent from my iPhone ,what brand of olive leaf extract do you use?..also,what do u use for PANDAS?My son was supp red for this without doing strep titre,and given hi dose antib which made issues worse and I do not want to do anymore antib.SandiSent from my iPad Thank you Gayle, Ruth and ! This has all been very helpful. I am definitely thinking this could be strep/PANDAS and i doubt this is the first episode. I remember about a year ago this time that he started a jaw tic that lasted months after an illness plus he had more anxiety then. I have the OLE on board but will be ordering new probiotics soon and looking into melatonin too (he had a hard time falling asleep again tonight and that hasnt been a problem in a long time)....not sure on the antibiotic at this time but will ask our dr. about it and all the titers, cultures to run....i am afraid that an antib will make his clostridia flare and I/we do not want the clostridia beast again.Thank you again!! To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 8:34 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu , my son is older, 18 now, but we've been at this a long time. My son, as Ruth suggested, is positive for strep AND myco p. The latter wasn't discovered until our last awful exacerbation but that knowledge can make a world of difference in treatment options if you go the antibiotic route. My son never did well on abx, they tore his already torn gut to a place I wasn't sure he'd recover from (and actually its the last piece to come back together). We live, swear by and will not be without Olive Leaf Extract...with a high percentage of oleuropein (the active ingredient in OLE). In addition, exceptional probiotics, MB12, folapro, magnesium, vit c and a consistent dose of melatonin at night....which will help with that bedtime ocd/anxiety. Best wishes to you.Gayle To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 7:39 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu - the chronic cough makes me think of mycoplasma pneumonia. And the symptoms sound very much like pandas (www.pandaslink.com). You could ask doc to check titers (IgG & IgM) or strep and myco p just to make sure. Also, they could check ASO & AntiDnase for strep as well. And if you want you could also check for common beepers viruses like hhb6 & cmv. If you see increased emotional lability, separation anxiety, OCD, fears, etc these are all classic signs of pandas. Hope all returns to normal soon, Ruth. Sent from my iPhoneOn Jan 27, 2012, at 11:28 PM, wrote: Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!Channa, I don't remember the diarrhea smelling terribly bad. I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. I do have some goldenseal but my kids have done really poorly onmost naturals -- will have to thinkabout this one (too scared at the moment). Will order the CP 11 strain too.is, I had ruled out clostridia because he is not acting the same as he didthis summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). He is has been on Nystatin since mid december i think and Candidase since late december. My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. Took out Enhansa and they are coming down. Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. We do have regular epsom salts baths so will keep that up.Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed itdifferently in her lungs. Myson often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).Toni, thank you for the new info on the oxolate dumping. I will have to think about that. We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.Gayle and others, what do you use to treat strep/PANDAS?, I hadnt thought of uti. I can easily rule that one out (or in). Parasites have always been on my mind too. We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).Hope we get it figured out shortly!!Many thanks, To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteriaTo: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!Hi All,I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his NophenolSat: watery diarrhea (greenish - viral?)Sun: diarrhea but betterMon: Peeing alot. Started Lithium oratate (balance mood, behavior)Tues: Stopped LiverlifeWed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.Thurs: Stopped Lithium Oratate. Same behavior as Wed.Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!Many thanks,

January 29, 2012

Clostridia is bad bacteria, not yeast, but is classified in same category of " dysbiosis " (bad bugs)

Hi ,Is chlostidia yeast.? And if so,what did u use to help with?I will buy the olive leaf,trying diff things right now,hi dose biotin,zinc and now trying calcium for behaviours off the wall,jumping,hyper,darting,ace stuff,biting,chewing clothes,metal hair..

What is adv stuff u mentioned?SandiSent from my iPad-- --------------------------------------------------------------------------------------------

Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565--------------------------------------------------------------------------------------------

Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565------

Toni------Mind like a steel trap...Rusty and illegal in 37 states.

January 29, 2012

Hi megan ,May I know which could be the correct dosage for biocidin? My daughter is 6 yeArs old and 38 lb .Thanks in advance.IsabelEnviado desde mi iPadEl 29/01/2012, a las 16:02, " " escribiÃ³:

Hi sandi,We use the now brand olive leaf glycerite. Haven't decided yet what we will do for strep/pandas. Ordering culturelle and thinking about goldenseal (channa's rec). We will probably not do antibs either unless there is a positive throat culture....if I remember correctly our dr recommended adv biocidin this summer for strep while my son was on nystatin. He had the worst clostridia flare putting him back a year in language,cognition and behavior so we have to be very careful with clostridia flares and balancing the tummy bugs.Hope this helps!-- Sent from my Palm Pre

,what brand of olive leaf extract do you use?..also,what do u use for PANDAS?My son was supp red for this without doing strep titre,and given hi dose antib which made issues worse and I do not want to do anymore antib.SandiSent from my iPad

Thank you Gayle, Ruth and ! This has all been very helpful. I am definitely thinking this could be strep/PANDAS and i doubt this is the first episode. I remember about a year ago this time that he started a jaw tic that lasted months after an illness plus he had more anxiety then. I have the OLE on board but will be ordering new probiotics soon and looking into melatonin too (he had a hard time falling asleep again tonight and that hasnt been a problem in a long time)....not sure on the antibiotic at this time but will ask our dr. about it and all the titers, cultures to run....i am afraid that an antib will make his clostridia flare and I/we do not want the clostridia beast again.Thank you again!! To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 8:34 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

, my son is older, 18 now, but we've been at this a long time. My son, as Ruth suggested, is positive for strep AND myco p. The latter wasn't discovered until our last awful exacerbation but that knowledge can make a world of difference in treatment options if you go the antibiotic route. My son never did well on abx, they tore his already torn gut to a place I wasn't sure he'd recover from (and actually its the last piece to come back together). We live, swear by and will not be without Olive Leaf Extract...with a high percentage of oleuropein (the active ingredient in OLE). In addition, exceptional probiotics, MB12, folapro, magnesium, vit c and a consistent dose of melatonin at night....which will help with that bedtime ocd/anxiety. Best wishes to you.

Gayle To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 7:39 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

- the chronic cough makes me think of mycoplasma pneumonia. And the symptoms sound very much like pandas (www.pandaslink.com). You could ask doc to check titers (IgG & IgM) or strep and myco p just to make sure. Also, they could check ASO & AntiDnase for strep as well. And if you want you could also check for common beepers viruses like hhb6 & cmv. If you see increased emotional lability, separation anxiety, OCD, fears, etc these are all classic signs of pandas. Hope all returns to normal soon, Ruth. Sent from my iPhoneOn Jan 27, 2012, at 11:28 PM,

wrote:

Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!Channa, I don't remember the diarrhea smelling terribly bad. I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. I do have some goldenseal but my kids have done really poorly on

most naturals -- will have to think

about this one (too scared at the moment). Will order the CP 11 strain too.is, I had ruled out clostridia because he is not acting the same as he did

this summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). He is has been on Nystatin since mid december i think and Candidase since late december. My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. Took out Enhansa and they are coming down. Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. We do have regular epsom salts baths so will keep that up.Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed it

differently in her lungs. My

son often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).Toni, thank you for the new info on the oxolate dumping. I will have to think about that. We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.Gayle and others, what do you use to treat strep/PANDAS?, I hadnt thought of uti. I can easily rule that one out (or in). Parasites have always been on my mind too. We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).Hope we get it figured out shortly!!Many thanks, From: Channa

Brennon To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 29, 2012

Hi isabel,My son was about that weight when we tried it and dr. Started us at one drop (it can be potent so be careful)...i cannot remember exactly how many to work up to if they tolerate...maybe 6 drops 2xday...if I find it I will let you know...-- Sent from my Palm Pre

Hi megan ,May I know which could be the correct dosage for biocidin? My daughter is 6 yeArs old and 38 lb .Thanks in advance.IsabelEnviado desde mi iPadEl 29/01/2012, a las 16:02, " " escribiÃ³:

Hi sandi,We use the now brand olive leaf glycerite. Haven't decided yet what we will do for strep/pandas. Ordering culturelle and thinking about goldenseal (channa's rec). We will probably not do antibs either unless there is a positive throat culture....if I remember correctly our dr recommended adv biocidin this summer for strep while my son was on nystatin. He had the worst clostridia flare putting him back a year in language,cognition and behavior so we have to be very careful with clostridia flares and balancing the tummy bugs.Hope this helps!-- Sent from my Palm Pre

,what brand of olive leaf extract do you use?..also,what do u use for PANDAS?My son was supp red for this without doing strep titre,and given hi dose antib which made issues worse and I do not want to do anymore antib.SandiSent from my iPad

Thank you Gayle, Ruth and ! This has all been very helpful. I am definitely thinking this could be strep/PANDAS and i doubt this is the first episode. I remember about a year ago this time that he started a jaw tic that lasted months after an illness plus he had more anxiety then. I have the OLE on board but will be ordering new probiotics soon and looking into melatonin too (he had a hard time falling asleep again tonight and that hasnt been a problem in a long time)....not sure on the antibiotic at this time but will ask our dr. about it and all the titers, cultures to run....i am afraid that an antib will make his clostridia flare and I/we do not want the clostridia beast again.Thank you again!! To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 8:34 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

, my son is older, 18 now, but we've been at this a long time. My son, as Ruth suggested, is positive for strep AND myco p. The latter wasn't discovered until our last awful exacerbation but that knowledge can make a world of difference in treatment options if you go the antibiotic route. My son never did well on abx, they tore his already torn gut to a place I wasn't sure he'd recover from (and actually its the last piece to come back together). We live, swear by and will not be without Olive Leaf Extract...with a high percentage of oleuropein (the active ingredient in OLE). In addition, exceptional probiotics, MB12, folapro, magnesium, vit c and a consistent dose of melatonin at night....which will help with that bedtime ocd/anxiety. Best wishes to you.

Gayle To: "mb12valtrex " <mb12valtrex > Sent: Saturday, January 28, 2012 7:39 AM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

- the chronic cough makes me think of mycoplasma pneumonia. And the symptoms sound very much like pandas (www.pandaslink.com). You could ask doc to check titers (IgG & IgM) or strep and myco p just to make sure. Also, they could check ASO & AntiDnase for strep as well. And if you want you could also check for common beepers viruses like hhb6 & cmv. If you see increased emotional lability, separation anxiety, OCD, fears, etc these are all classic signs of pandas. Hope all returns to normal soon, Ruth. Sent from my iPhoneOn Jan 27, 2012, at 11:28 PM,

wrote:

Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!Channa, I don't remember the diarrhea smelling terribly bad. I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. I do have some goldenseal but my kids have done really poorly on

most naturals -- will have to think

about this one (too scared at the moment). Will order the CP 11 strain too.is, I had ruled out clostridia because he is not acting the same as he did

this summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). He is has been on Nystatin since mid december i think and Candidase since late december. My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. Took out Enhansa and they are coming down. Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. We do have regular epsom salts baths so will keep that up.Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed it

differently in her lungs. My

son often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).Toni, thank you for the new info on the oxolate dumping. I will have to think about that. We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.Gayle and others, what do you use to treat strep/PANDAS?, I hadnt thought of uti. I can easily rule that one out (or in). Parasites have always been on my mind too. We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).Hope we get it figured out shortly!!Many thanks, From: Channa

Brennon To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 29, 2012

Thanks mary. I think I have read this before here but can't figure out what to do bc the yeast,clostridia is a bigger problem with us and my kids don't do well on herbals....so we have the nystatin going for now...i am plannign to try the cp 11 though but worried about clostridia if we take out vsl3....-- Sent from my Palm Pre

Nystatin has a strep assoc, Streptomyces noursei. It was not until we discontinued this and weeded out the strep probiotics that titers began to come down for us.

>

> & nbsp;

>

> Thank you Channa, is, Ruth, Toni, Gayle, Eileen, and (sorry if i forgot someone!!) for all of your great ideas!!

> Channa, I don't remember the diarrhea smelling terribly bad. & nbsp;I am planning to order some culturelle on Monday (this will be a new one for us) so I will try that. & nbsp;I do have some goldenseal but my kids have done really poorly on

> most naturals -- will have to think

> about this one (too scared at the moment). & nbsp;Will order the CP 11 strain too.

> is, I had ruled out clostridia because he is not acting the same as he did

> this summer (and the poop is not dark as usual with clostridia) but i suppose it is possible that it is a milder clostridia flare (oh, i was hoping to not go back to that one soon). & nbsp;He is has been on Nystatin since mid december i think and Candidase since late december. & nbsp;My son's ALT and AST have been elevated (60 and 65 at the last test) and we are not sure why. & nbsp;Took out Enhansa and they are coming down. & nbsp;Just lowered liverlife too (even though it is supposed to help the liver, the dr. thought it could cause problems)...will have to do viral hepatitis and some other tests soon....anyway, we cant start any antibs/systemic antifungals at the moment. & nbsp;We do have regular epsom salts baths so will keep that up.

> Ruth, I think the diarrhea he had on Sat/sun could have been his "flu"...my daughter showed it

> differently in her lungs. & nbsp;My

> son often does not have coughs and actually since he and I had a really bad "bronchitis" that lasted 2 months when he was two, i dont remember him getting too many coughs...i think this is one of his biggies too -- a chronic infection in his lungs that he has never kicked. & nbsp;I have brought this up with DANs but dont know how to treat that one (LDN, valtrex, IVIG, this new treatment is is mentioning??).

> Toni, thank you for the new info on the oxolate dumping. & nbsp;I will have to think about that. & nbsp;We havent taken anything away but since you mention soy i am wondering if his reaction could be to some waffles i gave them (not sure when) that contained soy (i had forgotten this)....in the past, they havent been very reactive to soy but i am guessing this can change....maybe it is this...

> Eileen, we were planning to trial 5HTP soon anyway so hope this helps (i think it is an herbal though?). & nbsp;He takes 2 tsp a day of the Nordic Naturals ProEFA -- over 1200 EPA.

> Gayle and others, what do you use to treat strep/PANDAS?

> , I hadnt thought of uti. & nbsp;I can easily rule that one out (or in). & nbsp;Parasites have always been on my mind too. & nbsp;We havent treated yet for that. I mentioned treating with our Dan at our last appt and she thought he is too sensitive right now for treatment (apparently parasite cleanses are rough on the bodies??).

> Hope we get it figured out shortly!!

> Many thanks,

>

> From: Channa

> Brennon channabrennon@...

> To: "mb12valtrex " mb12valtrex

> Sent: Friday, January 27, 2012 10:36 PM

> Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

>

> & nbsp;

>

> how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? & nbsp; maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

>

> From: meganscott624@...

> To: "mb12valtrex " mb12valtrex

> Sent: Friday, January 27, 2012 9:10 PM

> Subject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

>

> & nbsp;

>

> I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

>

> ----- Forwarded Message -----

> From: meganscott624@...

> To: "mb12valtrex " mb12valtrex

> Sent: Friday, January 27, 2012 9:05 PM

> Subject: HELP: new nighttime anxiety and OCD!

>

> Hi All,

>

> I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. & nbsp;For months, he has been going to bed on his own without any problems. & nbsp;I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

>

> As of a couple of days ago, he has become very anxious and OCD about going to bed. & nbsp;He cannot stay in his bed and comes into my daughter's room obsessively. & nbsp;When I ask him to be quiet and not say anything he cannot. & nbsp;He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. & nbsp;He cannot control his urge to get out of bed, ask to go the potty or not talk.

>

> I am trying to pinpoint the culprit. & nbsp;I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. & nbsp;Here is a quick time line of events:

>

> Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. & nbsp;I found out later some of the older kids had opened their chips bags and left them on the counter. & nbsp;He was also given strawberries without his Nophenol

> Sat: watery diarrhea (greenish - viral?)

> Sun: diarrhea but better

> Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

> Tues: Stopped Liverlife

> Wed: weepy and frustrated at times. & nbsp;Started the above OCD/anxious night time behavior. & nbsp;Pooped on bedroom floor.

> Thurs: Stopped Lithium Oratate. Same behavior as Wed.

> Fri: Same night time behavior as Wed and Thurs. & nbsp;Restarted low dose Liverlife.

>

> Please let me know if you have any thoughts!! & nbsp;Bedtime is becoming a nightmare!

>

> Many thanks,

>

January 29, 2012

My son has been having much of the same issues. Does not want to go to sleep, gets out of his bed and bolts in my room. He also has been having red lips and today a red cheeks. No fever though. The last time he had the red scaly lips was Jan. 13. With the red lips comes very regressive behavior. Uncontrollable, OCD, Zoned out, hitting, kicking and really fidgety. Any clues what this could be?

Kerri

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:15 PMSubject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

Increased urination goes along with the ocd/anxiety of PANDAS.

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PMSubject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 29, 2012

Hi Kerri,For us, the uncontrollable, zoned out, hitting, kicking and fidgety is more clostridia and yeast behaviors. I can comment on the red lips...and OCD (strep? but I am also thinking OCD comes with clostridia too?). To: "mb12valtrex " <mb12valtrex > Sent: Sunday, January 29, 2012 9:47

PM Subject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

My son has been having much of the same issues. Does not want to go to sleep, gets out of his bed and bolts in my room. He also has been having red lips and today a red cheeks. No fever though. The last time he had the red scaly lips was Jan. 13. With the red lips comes very regressive behavior. Uncontrollable, OCD, Zoned out, hitting, kicking and really fidgety. Any clues what this could be?

Kerri

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:15 PMSubject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

Increased urination goes along with the ocd/anxiety of PANDAS.

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PMSubject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

January 29, 2012

Again, we say oxalate here. But " oxalate dumping " and " PANDAS flares " look a lot alike. Owens (oxalate project for ARI) believes that perhaps some of the oxalate crystals thatform trap strep bacteria and it allows the strep to " hide " out till oxalate is being dumped.

I think she says they proved that for another type of bacteria but never looked at strep + oxalate.Dumping makes my daughter sound sensitive and tic-y. It makes my son irrational, aggressive.Makes me sound sensitive and irritable.

The dry peeling lips is an oxalate dumping sign too but also B vitamin deficiency,I think biotin and riboflavin, not completely sure. I know WIKI has a good decription of vitamin B def. symptoms.

My son has been having much of the same issues. Does not want to go to sleep, gets out of his bed and bolts in my room. He also has been having red lips and today a red cheeks. No fever though. The last time he had the red scaly lips was Jan. 13. With the red lips comes very regressive behavior. Uncontrollable, OCD, Zoned out, hitting, kicking and really fidgety. Any clues what this could be?

Kerri-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:

http://www.facebook.com/note.php?note_id=10150543521682565--------------------------------------------------------------------------------------------

Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565------

Toni------Mind like a steel trap...Rusty and illegal in 37 states.

January 30, 2012

Thanks for the info! I will look into it. My son recently had labs and one of the tests checked his B12 level. His B12 blood analysis was extremely high at 3963 with the norm range b/t 211-900. This was after stopping B12 injections four weeks before the labs. He did B12 inj for two and a half years. I stopped it on my own because I sensed something was not right. Wonder if the B12 could make him deficient on B vit.1-9's. I will ask our doc about this next week. Puzzling! I will pay attention to the oxalates. The only thing I will be cutting out will be spinach, zuchinni and carrots that I chop up really fine and cook to add to just about everything he eats.

Kerri

To: mb12valtrex Sent: Monday, January 30, 2012 12:02 AMSubject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

Again, we say oxalate here. But "oxalate dumping" and "PANDAS flares" look a lot alike. Owens (oxalate project for ARI) believes that perhaps some of the oxalate crystals thatform trap strep bacteria and it allows the strep to "hide" out till oxalate is being dumped.I think she says they proved that for another type of bacteria but never looked at strep + oxalate.Dumping makes my daughter sound sensitive and tic-y. It makes my son irrational, aggressive.Makes me sound sensitive and irritable.The dry peeling lips is an oxalate dumping sign too but also B vitamin deficiency,I think biotin and riboflavin, not completely sure. I know WIKI has a good decription of vitamin B def. symptoms.

My son has been having much of the same issues. Does not want to go to sleep, gets out of his bed and bolts in my room. He also has been having red lips and today a red cheeks. No fever though. The last time he had the red scaly lips was Jan. 13. With the red lips comes very regressive behavior. Uncontrollable, OCD, Zoned out, hitting, kicking and really fidgety. Any clues what this could be?

Kerri-- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565--------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565------Toni------Mind like a steel trap...Rusty and illegal in 37 states.

January 30, 2012

,

Yes, I am sure he is yeasty right now. Waiting to see a new doc next week and do not want to start on anti-fungal before a long trip/flight and risk die off reactions during an already difficult schedule change. Also, want to do things in right order for the NIDS protocol. Soooo ready for next Tuesday!

Kerri

To: "mb12valtrex " <mb12valtrex > Sent: Sunday, January 29, 2012 9:43 PMSubject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

Hi Kerri,

For us, the uncontrollable, zoned out, hitting, kicking and fidgety is more clostridia and yeast behaviors. I can comment on the red lips...and OCD (strep? but I am also thinking OCD comes with clostridia too?).

To: "mb12valtrex " <mb12valtrex > Sent: Sunday, January 29, 2012 9:47 PMSubject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

My son has been having much of the same issues. Does not want to go to sleep, gets out of his bed and bolts in my room. He also has been having red lips and today a red cheeks. No fever though. The last time he had the red scaly lips was Jan. 13. With the red lips comes very regressive behavior. Uncontrollable, OCD, Zoned out, hitting, kicking and really fidgety. Any clues what this could be?

Kerri

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:15 PMSubject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

Increased urination goes along with the ocd/anxiety of PANDAS.

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 10:36 PMSubject: Re: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

how did the diahreah smell? not to be gross but really bad smelly poop would be a sign of bacteria overload....can your son take naturals? maybe try a week of goldenseal...up the culturelle at same time...if that helps then you know it was bacteria

To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:10 PMSubject: Fw: HELP: new nighttime anxiety and OCD! -- forgot daughter with flu

I forgot to mention, my daughter has had what appears to be croup turning into a nasty cough/flu/bronchitis which started on Sun....my son has not had the cough....just the diareah on Sat/Sun.

----- Forwarded Message -----To: "mb12valtrex " <mb12valtrex > Sent: Friday, January 27, 2012 9:05 PMSubject: HELP: new nighttime anxiety and OCD!

Hi All,

I need your brains to help figure out a new, dramatic change in my 5 year old's behavior. For months, he has been going to bed on his own without any problems. I would tuck him in and then go to his little sister's room to stay with her until she sleeps (she doesn't fall asleep on her own yet;).

As of a couple of days ago, he has become very anxious and OCD about going to bed. He cannot stay in his bed and comes into my daughter's room obsessively. When I ask him to be quiet and not say anything he cannot. He keeps saying he has to go to the bathroom (we go and then he immediately has to go again)....he says this over and over and gets very upset. He cannot control his urge to get out of bed, ask to go the potty or not talk.

I am trying to pinpoint the culprit. I was thinking strep/Pandas, Phenols, virus, new supplement or food infraction. Here is a quick time line of events:

Friday: party at our house with kids -- possibility he ate something with gluten/casein without us knowing. I found out later some of the older kids had opened their chips bags and left them on the counter. He was also given strawberries without his Nophenol

Sat: watery diarrhea (greenish - viral?)

Sun: diarrhea but better

Mon: Peeing alot. Started Lithium oratate (balance mood, behavior)

Tues: Stopped Liverlife

Wed: weepy and frustrated at times. Started the above OCD/anxious night time behavior. Pooped on bedroom floor.

Thurs: Stopped Lithium Oratate. Same behavior as Wed.

Fri: Same night time behavior as Wed and Thurs. Restarted low dose Liverlife.

Please let me know if you have any thoughts!! Bedtime is becoming a nightmare!

Many thanks,

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