Re: Jackie.....Re: bad balance or loss of coordination?

[Guest guest]

Sharon, you mean there's some other way to fall? I just feel a little "oh oh" and wham I'm on the floor or whatever. My brain doesn't give me any signal like "smarten up and break your fall or turn your leg or whatever". And then "please please let my hip be okay and I promise to take that Fossavance again" which I don't. Whatever it does to my esophagus is too painful.

When I think about my fall the other day and how I've been feeling, I really wonder if it's an exacerbation. I know we're not supposed to have them with SPMS. In any case, I pray I'm not going to feel like this forever! ... hugs, Cait

bad balance or loss of coordination?To: MSersLife Date: Friday, November 12, 2010, 10:56 PM

Do you participate in the NARCOMS study? In the current study they asked about "loss of coordination" and the description was what I call "bad balance". When 'whatever it is' is bad I walk a reeling type of walk and keep saying "oops" when I nearly fall into things. It can change within the same day. Anyone else?

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

Cait,

We actually do have exacerbations with SPMS, however there is

still an underlying steady progression in disease between

relapses.. I know I'm not explaining it correctly. This:

http://www.mult-sclerosis.org/secondaryprogressivemultiplesclerosis.html

is a great site with a tremendous amount of information about

the MonSter. I actually find it more informative than the

NMSS.org website when I really want to learn something about the

MonSter.

And a relapse in SPMS is still treated the same way the same

type of relapse/exacerbation is treated for RRMS..

And if my memory has not entirely leaked out one of my ears, and

it serves me correctly an exacerbation/flare/relapse is an

occurrence of any new or worsening symptoms.

Maybe you should give your doctor a call.. however, I'm thinking

that I remember you haven't lined up or haven't met with your

new neurologist as of yet. If I'm right about that memory,

although you haven't met with the new neurologist yet, you could

still call his/her office, explain that you are having an

exacerbation and they will inform you as to how to proceed with

the situation. The office might not be able to squeeze in an

appointment for you earlier, but if they can't I would think,

that like my neurologist's office, they will advise you to come

to their Emergency Room and tell the triage (or first person you

speak to) that you have MS and that you are requesting or in

need of a Neurology Consult. That usually gets the ball rolling

for treatment rather quickly.. They already know who they have

to call in, and when I went in that way May before last, I

didn't have to sit and "wait my turn" for hours in he waiting

room... but of course my neurology nurse also told me to be

there very early in the morning as well..

I think that action saved me an extended sit in the waiting room

once before, even though my diagnosis was still pending.. I

explained that I was in the process of being diagnosed with MS,

and that I was having super severe pain in my neck but hadn't

fallen or done anything else that would warrant the pain.. I

didn't wait but a few minutes for a bed, or for treatment for

the pain to begin..

On the lighter side of that story.. They gave me Morphine via

IV.. and after the first dose.. or maybe the 2nd (they did them

in small increments of 1 maybe 2mg).. it was after the 2nd dose

that the doctor asked me to rate my pain once again.. tells

me that I sat up on the gurney, looked the doctor in the face

and announced that I had given birth, naturally, to two boys

that were over 8 pounds each.. and that my pain was STILL worse

than that.. He also told me that when he walked me out of the ER

that night, if he had had a string on him, and tied it to my

belt loops.. he could have used me as a kite!

I didn't really care.. all I knew was that I was OUT of pain..

LOL

HUGS

|)onna

Sharon, you mean there's some

other way to fall? I just feel a little "oh oh" and wham I'm

on the floor or whatever. My brain doesn't give me any signal

like "smarten up and break your fall or turn your leg or

whatever". And then "please please let my hip be okay and I

promise to take that Fossavance again" which I don't.

Whatever it does to my esophagus is too painful.

When I think about my fall the

other day and how I've been feeling, I really wonder if it's

an exacerbation. I know we're not supposed to have them with

SPMS. In any case, I pray I'm not going to feel like this

forever! ... hugs, Cait

bad

balance or loss of

coordination?

To:

MSersLife

Date: Friday,

November 12, 2010,

10:56 PM

Do you

participate in

the NARCOMS

study? In the

current study

they asked

about "loss of

coordination"

and the

description

was what I

call "bad

balance".

When 'whatever

it is' is bad

I walk a

reeling type

of walk and

keep saying

"oops" when I

nearly fall

into things.

It can change

within the

same day.

Anyone else?

Sharon

This

email is a

natural hand

made product.

The slight

variations in

spelling and

grammar

enhance its

individual

character and

beauty and in

no way are to

be considered

flaws or

defects.

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