Cait.....falling and exacerbations with SPMS? (was) Re: bad balance or loss of coordination?

[Guest guest]

LOL... apparently there isn't any other way for us to fall! I keep thinking that if I went to physical therapy maybe they could teach me how to fall a different way. I was dxed with SPMS about 6 years ago but I clearly have exacerbations. I can understand why the neuro dxed me with SPMS at that time because I was in really bad shape. I swear I had a 3 year long exacerbation after coming back to Arizona from Alaska. But I did improve. I wonder if it's because I was taking LDN? Now I have exacerbations, more so in the hot weather. hugs to you SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Sat, November 13, 2010 8:29:51 PMSubject: Re: Jackie.....Re: bad balance or loss of coordination?

Sharon, you mean there's some other way to fall? I just feel a little "oh oh" and wham I'm on the floor or whatever. My brain doesn't give me any signal like "smarten up and break your fall or turn your leg or whatever". And then "please please let my hip be okay and I promise to take that Fossavance again" which I don't. Whatever it does to my esophagus is too painful.

When I think about my fall the other day and how I've been feeling, I really wonder if it's an exacerbation. I know we're not supposed to have them with SPMS. In any case, I pray I'm not going to feel like this forever! ... hugs, Cait

bad balance or loss of coordination?To: MSersLife Date: Friday, November 12, 2010, 10:56 PM

Do you participate in the NARCOMS study? In the current study they asked about "loss of coordination" and the description was what I call "bad balance". When 'whatever it is' is bad I walk a reeling type of walk and keep saying "oops" when I nearly fall into things. It can change within the same day. Anyone else?

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.