question about spasms

[Guest guest]

You got it

Sharon!!!

I have been known to be a slug-a-bed.. and I really have NO

problem with it.. LOL.. Especially in the winter.. cover me in

quilts up to my chin and let me stay toasty warm in the bed!!!..

so long as someone parks the laptop next to me in the bed.. It's

all right as rain!!!

And .. catch a few ZZZ's for me while you're at it.. I

could have napped awhile ago.. but pushed on through to make

sure I got the email cleaned up.. and now of course.. I'm not

needing a nap.. (give me another 10 minutes though.. LOL that

could change)..

HUGS

|)onna

Yes, MS is a disease of many changes for most

of us!

I hope you continue to feel better and better. Just take it

easy and rest when you need to and sleep when you want:)

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

WEST

To:

MSersLife

Sent: Thu,

November 18, 2010 8:16:07 PM

Subject:

Re: question about spasms

Wow.that's a large dose. He

just put me on 10mg twice a day. The nurse said to try

taking it just at night because of the sleepies. I did

take a pill this morning because I was feeling so bad.

I do feel better tonight, but I know it's time for

anther dose. I love your other post....there is always

hope even if some days feel like there isn't. Tomorrow

is a new day, and with MS, each one can be very

different. Only someone with MS really gets that!

Re: question about spasms

The meds for spasms can bring a

whole new set of problems unfortunately.

The worst side effect for me was the

groggy/sleepy 'out-of-it' feeling. Dan

mentioned feeling depressed from taking

baclofen.

How are you doing today?

Sharon

This email is a natural

hand made product. The slight

variations in spelling and grammar

enhance its individual character and

beauty and in no way are to be

considered flaws or defects.

--

Help Feed The Critters!

Your daily click counts at

http://www.theanimalrescuesite.com/clickToGive/

[Guest guest]

Baclofen caused my legs to turn to jello. Even at its lowest dose. When I went to Dr. Swank he put me on a low dose of Valium and told me to take 1 every 4 hrs. [2-1/2 mgs] it worked great and I've been on it for over 11 years. My spasticity has progressed now, but if it flares really bad I can up my dose and that takes care of it with minimal side effects. Maybe a little drowsy, but not bad. Most Dr's don't like to give out valium because of the overdosing and over prescribing of it back in the '70's, and they say its highly addictive. For me its a lifesaver for the times my spasms get bad. Its fast working too, and that stops the pain sooner. There are some days I don't have to take as much and I don't feel any type of addiction. [withdrawal]

I've tried all the other types of muscle relaxants and none of them even touch the spasms. So I stick with what works for me and I was told by another Dr. that some of the older meds are better because they have had a chance to be on the market longer and the side effects are known.

Hugs from Jackie in Oregon

Subject: RE: question about spasmsTo: mserslife Date: Friday, November 19, 2010, 7:20 AM

Oh yes, I have been on Baclofen for awhile. First Flexeril, then the Bac.I am very happy to be cutting it down, then out. It WORKS. But it doesn't like me lol jen h

To: MSersLife From: wobbletowalk@...Date: Thu, 18 Nov 2010 10:24:50 -0800Subject: Re: question about spasms

Oh, I guess I didn't realize you had already been on baclofen. I'm so glad to hear you are feeling better with the reduction. Great news!

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

You saw Dr. Swank also Jackie? Our dear n has as well.I'm glad the valium seems to keep the spasticity at bay for you.hugs to you,KateTo: MSersLife Sent: Fri, November 19, 2010 1:59:55 PMSubject: RE: question about

spasms

Baclofen caused my legs to turn to jello. Even at its lowest dose. When I went to Dr. Swank he put me on a low dose of Valium and told me to take 1 every 4 hrs. [2-1/2 mgs] it worked great and I've been on it for over 11 years. My spasticity has progressed now, but if it flares really bad I can up my dose and that takes care of it with minimal side effects. Maybe a little drowsy, but not bad. Most Dr's don't like to give out valium because of the overdosing and over prescribing of it back in the '70's, and they say its highly addictive. For me its a lifesaver for the times my spasms get bad. Its fast working too, and that stops the pain sooner. There are some days I don't have to take as much and I don't feel any type of addiction. [withdrawal]

I've tried all the other types of muscle relaxants and none of them even touch the spasms. So I stick with what works for me and I was told by another Dr. that some of the older meds are better because they have had a chance to be on the market longer and the side effects are known.

Hugs from Jackie in Oregon

Subject: RE: question about spasmsTo: mserslife Date: Friday, November 19, 2010, 7:20 AM

Oh yes, I have been on Baclofen for awhile. First Flexeril, then the Bac.I am very happy to be cutting it down, then out. It WORKS. But it doesn't like me lol jen h

To: MSersLife From: wobbletowalk@...Date: Thu, 18 Nov 2010 10:24:50 -0800Subject: Re: question about spasms

Oh, I guess I didn't realize you had already been on baclofen. I'm so glad to hear you are feeling better with the reduction. Great news!

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

I think that Dr. Swank retired in the 1980s, though lived to age 96.Dennis Bourdette, M.D. is now head of the MS clinic--very good, too.Love, nTo: MSersLife Sent: Fri, November 19, 2010 12:32:01 PMSubject: Re: question about

spasms

You saw Dr. Swank also Jackie? Our dear n has as well.I'm glad the valium seems to keep the spasticity at bay for you.hugs to you,KateTo: MSersLife Sent: Fri, November 19, 2010 1:59:55 PMSubject: RE: question about

spasms

Baclofen caused my legs to turn to jello. Even at its lowest dose. When I went to Dr. Swank he put me on a low dose of Valium and told me to take 1 every 4 hrs. [2-1/2 mgs] it worked great and I've been on it for over 11 years. My spasticity has progressed now, but if it flares really bad I can up my dose and that takes care of it with minimal side effects. Maybe a little drowsy, but not bad. Most Dr's don't like to give out valium because of the overdosing and over prescribing of it back in the '70's, and they say its highly addictive. For me its a lifesaver for the times my spasms get bad. Its fast working too, and that stops the pain sooner. There are some days I don't have to take as

much and I don't feel any type of addiction. [withdrawal]

I've tried all the other types of muscle relaxants and none of them even touch the spasms. So I stick with what works for me and I was told by another Dr. that some of the older meds are better because they have had a chance to be on the market longer and the side effects are known.

Hugs from Jackie in Oregon

Subject: RE: question about spasmsTo: mserslife Date: Friday, November 19, 2010, 7:20 AM

Oh yes, I have been on Baclofen for awhile. First Flexeril, then the Bac.I am very happy to be cutting it down, then out. It WORKS. But it doesn't like me lol jen h

To: MSersLife From: wobbletowalk@...Date: Thu, 18 Nov 2010 10:24:50 -0800Subject: Re: question about spasms

Oh, I guess I didn't realize you had already been on baclofen. I'm so glad to hear you are feeling better with the reduction. Great news!

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

I plan to be off Baclofen totally.

My doctor said to me that I was doing better than most people with it, so I asked "why's that?" and his reply was " because you're ON it"

Meaning , many people can't be.......

But now I see, that IT was causing me more health problems than it was curing..........

Jen H

To: MSersLife From: wobbletowalk@...Date: Thu, 18 Nov 2010 18:36:55 -0800Subject: Re: question about spasms

I was on 100 mg of baclofen at one point. I started weaning off and finally quit the baclofen completely in Oct. 2009. I feel so much better! I'm glad to hear you are having positive results so far.hugs

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.

[Guest guest]

Jen,

I'm tickled that you'll be weaned today..

Int (intentional there) it funny how one thing will work for 1

person but not the next, then something else does the same

thing..

Hmm.. and it's also funny how things work for us differently

than they do for people who don't have MS...

When gets these neck spasms (he was t-boned in a car

accident years ago, and has had neck problems and headaches ever

since).. and I can't work the muscle out with massage.. or

brushing his hair (that does work for him most of the time.. go

figure) I'll tell him to take a half of 1 of my Baclofen..

should work.. he tells me he'll take it when he's ready for

bed.. cause it's going to knock him out.. it will stop the neck

spasm but he'll be out like a light.. even if he breaks the half

in half and take a quarter of a 10 mg pill (so 2 1/2 milligrams)

he's ready for bed just shortly after taking it..

He came home tired one evening.. was even more tired when he

woke up in the morning.. (it was one of those weeks, that happen

once or twice a year, at the funeral home where they're having 1

to 2 funerals a day for a week, sometimes two).. and by the

middle of the week he was soooo exhausted.. So I said.. take a

half of a Provigil.. it works for my fatigue.. it should work

for you too.. Unfortunately, for him.. it DID wake him up..

wherein I can take a half a Provigil in the afternoon and still

be able to lay down and go to sleep at night... Needless to say

he wasn't really very happy with me, when it was two nights

later that he was actually able to fall asleep and stay that

way..

He doesn't take anything I offer him anymore.. except the

Baclofen, and when that happens I know he's in tremendous pain..

But it's still strange how these things work..

HUGS

|)onna

I plan to be off Baclofen totally.

My doctor said to me that I was doing better than most people with

it, so I asked "why's that?" and his reply was " because you're ON

it"

Meaning , many people can't be.......

But now I see, that IT was causing me more health problems than it

was curing..........

Jen H

To: MSersLife

From: wobbletowalk@...

Date: Thu, 18 Nov 2010 18:36:55 -0800

Subject: Re: question about spasms

I was on 100 mg of

baclofen at one point. I started weaning off and finally

quit the baclofen completely in Oct. 2009. I feel so much

better! I'm glad to hear you are having positive results

so far.

hugs

Sharon

This email is a natural hand

made product. The slight variations in spelling and

grammar enhance its individual character and beauty

and in no way are to be considered flaws or defects.

--

Help Feed The Critters!

Your daily click counts at

http://www.theanimalrescuesite.com/clickToGive/

[Guest guest]

I have always thought it was stupid for doctors to be hesitant to prescribe valium but willing to give so many other, much worse, drugs.hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Fri, November 19, 2010 11:59:55 AMSubject: RE: question about spasms

Baclofen caused my legs to turn to jello. Even at its lowest dose. When I went to Dr. Swank he put me on a low dose of Valium and told me to take 1 every 4 hrs. [2-1/2 mgs] it worked great and I've been on it for over 11 years. My spasticity has progressed now, but if it flares really bad I can up my dose and that takes care of it with minimal side effects. Maybe a little drowsy, but not bad. Most Dr's don't like to give out valium because of the overdosing and over prescribing of it back in the '70's, and they say its highly addictive. For me its a lifesaver for the times my spasms get bad. Its fast working too, and that stops the pain sooner. There are some days I don't have to take as much and I don't feel any type of addiction. [withdrawal]

I've tried all the other types of muscle relaxants and none of them even touch the spasms. So I stick with what works for me and I was told by another Dr. that some of the older meds are better because they have had a chance to be on the market longer and the side effects are known.

Hugs from Jackie in Oregon

Subject: RE: question about spasmsTo: mserslife Date: Friday, November 19, 2010, 7:20 AM

Oh yes, I have been on Baclofen for awhile. First Flexeril, then the Bac.I am very happy to be cutting it down, then out. It WORKS. But it doesn't like me lol jen h

To: MSersLife From: wobbletowalk@...Date: Thu, 18 Nov 2010 10:24:50 -0800Subject: Re: question about spasms

Oh, I guess I didn't realize you had already been on baclofen. I'm so glad to hear you are feeling better with the reduction. Great news!

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.