Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 I finally got a prescription for fluconazole from our dan. Now I need to know where to get it from. The commercial tablets contain red dye and some other chemicals. Commercial liquid contains sucrose. Should I get it compounded? Hopewell pharmacy even makes capsules but not sure if insurance will cover it. Please advise. If anyone has used vancomycin with fluconazole, please share what dose of vancomycin you were using and for how long. Thanks is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2012 Report Share Posted February 1, 2012 Hi alexis,We get everything compounded from lee silsby..gfcf,org stevia, no colors etc. I think we did use vanc and flucanazole together...i will see if I can fine dosage in my notes.-- Sent from my Palm Pre I finally got a prescription for fluconazole from our dan. Now I need to know where to get it from. The commercial tablets contain red dye and some other chemicals. Commercial liquid contains sucrose. Should I get it compounded? Hopewell pharmacy even makes capsules but not sure if insurance will cover it. Please advise. If anyone has used vancomycin with fluconazole, please share what dose of vancomycin you were using and for how long. Thanks is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2012 Report Share Posted February 1, 2012 Thanks ! My understanding is that both should be used together to prevent flare of either clostridia or yeast. Now I am finishing my current vanco tomorrow and then I was supposed to take a 1 week break. This was our 3rd two week vancomycin course. Should I wait and start both vancomycin and fluconazole together from next round of vancomycin which will start the following friday on feb 10th. My dan also recommended that since I have completed 3 rounds of two week vanco courses and the anxiety and ocd is much better, I can switch to every other day dose of vancomycin. Do you have any experience with that? I am not comfortable starting fluconazole when he is on vancomycin break as my son got clostridia flare while on nystatin and fluconazole is much stronger and systemic. Any input would be really appreciated. is > > > & nbsp; > > > > > > > > > > > I finally got a prescription for fluconazole from our dan. Now I need to know where to get it from. The commercial tablets contain red dye and some other chemicals. Commercial liquid contains sucrose. Should I get it compounded? Hopewell pharmacy even makes capsules but not sure if insurance will cover it. Please advise. If anyone has used vancomycin with fluconazole, please share what dose of vancomycin you were using and for how long. > > Thanks > > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2012 Report Share Posted February 1, 2012 Hi is, My son (at about 40lbs) was on the following dosage this summer for one month with diflucan and vanco (we used sporonox and flagyl the month prior and after this): Diflucan: 50mg / ml. Take 1ml 1x /day Vanco: 250mg/5ml. Take 5ml/day. 5 days on, 2 days off. I agree that you must be careful taking diflucan without vanco. It makes sense to wait and start them together unless you think he is tipping towards yeast at the moment. When my son was tipping towards yeast I would leave him a couple more days on diflucan/sporonox without vanco/flagyl. So for example, if you think your son is tending more towards yeast, I would say it is ok (at least we would do this) to start a couple days on diflucan before restarting the vanco. I don't have experience with the one day on/one off but it actually makes more sense then the 5 days on and 2 days off to me. On another note, one of the drs. we have seen who has personal experience with clostridia thinks that for a lot of kids if you really kill off the clostridia it doesn’t usually come right back. I think we may finally be at that point right now BUT I haven’t tested this out with a systemic antifungal and I am definitely worried about this when we trial Valtrex with sporonox. However, my daughter was on Amp B for one month and now Nystatin for about 6 weeks without a return of clostridia while my son has been on candidase and Nystatin for about 6 weeks without a return of clostridia (this wouldn’t have been possible last summer. In fact, Nystatin/adv. biocidin combo made my son's clostridia go through the roof last summer)....however, there is a possibility that my son's latest flare is mild clostridia but I am thinking it is strep related or something else. Just sent in an OAT so we will see what that reveals.Oh, one question. Do you know if vanco treats anything else besides clostridia? Does it work for strep for example -- just thinking about OCD and anxiety?Good luck and feel free to email more questions and I can try to help.cheers, To: mb12valtrex Sent: Wednesday, February 1, 2012 12:32 PM Subject: Re: Need help with starting fluconazole Thanks ! My understanding is that both should be used together to prevent flare of either clostridia or yeast. Now I am finishing my current vanco tomorrow and then I was supposed to take a 1 week break. This was our 3rd two week vancomycin course. Should I wait and start both vancomycin and fluconazole together from next round of vancomycin which will start the following friday on feb 10th. My dan also recommended that since I have completed 3 rounds of two week vanco courses and the anxiety and ocd is much better, I can switch to every other day dose of vancomycin. Do you have any experience with that? I am not comfortable starting fluconazole when he is on vancomycin break as my son got clostridia flare while on nystatin and fluconazole is much stronger and systemic. Any input would be really appreciated. is > > > & nbsp; > > > > > > > > > > > I finally got a prescription for fluconazole from our dan. Now I need to know where to get it from. The commercial tablets contain red dye and some other chemicals. Commercial liquid contains sucrose. Should I get it compounded? Hopewell pharmacy even makes capsules but not sure if insurance will cover it. Please advise. If anyone has used vancomycin with fluconazole, please share what dose of vancomycin you were using and for how long. > > Thanks > > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2012 Report Share Posted February 1, 2012 , thank you so much for your detailed response. The only other use of oral vancomycin that I am aware of is staphylococcal enterocolitis. I did a search but didn't find much on oral vancomycin for strep. I will keep looking for info and will let you know if I find something. I am even more confused now as I realized that my dan didn't clarify if I had to do 2 weeks on and 1 week off of fluconazole or every day for 1 month. I sent him a message and lets see if I get an answer on that. From what I understand, you used diflucan/vanco together for a duration of 1 month and then followed it with flagyl/sporonox. I really do want to kill yeast but at the same time cannot handle clostridia any more. Clostridia actually takes time to get killed as it forms spores and my friend's son had to do a total of maybe 8 rounds of 2 weeks treatments combined with diflucan to prevent yeast flares. I am also going up on gcmaf next weekend so maybe I will have to start fluconazole this friday so I don't get confused with the die off. And also can you share what the die off was like with fluconazole. Did you start with half the dose initially and when did the die off start(after how many doses)? I hope other experienced moms will give some input too. Thank you for all your help. is > > > > > > & nbsp; > > > > > > > > > > > > > > > > > > > > > > I finally got a prescription for fluconazole from our dan. Now I need to know where to get it from. The commercial tablets contain red dye and some other chemicals. Commercial liquid contains sucrose. Should I get it compounded? Hopewell pharmacy even makes capsules but not sure if insurance will cover it. Please advise. If anyone has used vancomycin with fluconazole, please share what dose of vancomycin you were using and for how long. > > > > Thanks > > > > is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 Hi is,I have been thinking today about what I said about starting early with the diflucan and am having second thoughts on that. If you think the clostridia is still there it may be better to keep hitting that one harder. You do want to get rid of clostridia and not have to be taking the vanco. I think the diflucan on its own for a couple of days would work better once you think the clostridia is under control. That being said if the yeast is really, really out of control right now and you have to up gcmaf then maybe it would be ok to start low on the diflucan (i usually start anything new like that at 1/4 of full dose and work up every couple of days if there is alot of die off...if die off isnt bad work up faster)...hope that doesnt confuse you!! Just looking in my notes now and we actually did sporonox/flagyl for first month and then diflucan/vanco for about 3weeks. I didnt see alot of die off when we switched from sporonox to diflucan but here are some of my notes from when we started sporonox (this was a couple days before starting flagyl bc we couldnt introduce the two at the same time in case there was a reaction):-Day one:More hyper, not listening, knocking jaw, spreading toys out everywhere, spitting, more unfocused in answering questions, repeating "mommy, mommy" over and over.-Day two: happy hyper but feels like he needs to throw up, better social communication ("That was good. Can I please have some more raspberries?"), spontaneously put on police uniform (never does this), eating well-Day three: more OCD in afternoon and distended tummy, weepy, repeating "I want chocolate brownie" over and over -- i think this could be the clostrida flaring without the flagyl-Day four: start flagyl at 1/4 dose. good behavior. no more spreading toys everywhere, no pushing into people, teary at lunch, better communication today: telling a story from word world, still spitting but less defiant at potty time-Day five: still spitting, still defiance, OCD, sneezing alot, not eating well, poor attention at ABA, still better social communication (saying please), running around without clothes, spitting, kissing, licking, hand flapping, reversing pronouns again, It definitely got a little worse for awhile before it got better at our house...it wasnt until the end of the rounds that he started doing better overall and like i said before it wasnt until we really upped the dosage to the highest for weight in Oct that we finally got it (as far as I know).Hope it goes smoothly for your family!!cheers, To: mb12valtrex Sent: Wednesday, February 1, 2012 10:42 PM Subject: Re: Need help with starting fluconazole , thank you so much for your detailed response. The only other use of oral vancomycin that I am aware of is staphylococcal enterocolitis. I did a search but didn't find much on oral vancomycin for strep. I will keep looking for info and will let you know if I find something. I am even more confused now as I realized that my dan didn't clarify if I had to do 2 weeks on and 1 week off of fluconazole or every day for 1 month. I sent him a message and lets see if I get an answer on that. From what I understand, you used diflucan/vanco together for a duration of 1 month and then followed it with flagyl/sporonox. I really do want to kill yeast but at the same time cannot handle clostridia any more. Clostridia actually takes time to get killed as it forms spores and my friend's son had to do a total of maybe 8 rounds of 2 weeks treatments combined with diflucan to prevent yeast flares. I am also going up on gcmaf next weekend so maybe I will have to start fluconazole this friday so I don't get confused with the die off. And also can you share what the die off was like with fluconazole. Did you start with half the dose initially and when did the die off start(after how many doses)? I hope other experienced moms will give some input too. Thank you for all your help. is > > > > > > & nbsp; > > > > > > > > > > > > > > > > > > > > > > I finally got a prescription for fluconazole from our dan. Now I need to know where to get it from. The commercial tablets contain red dye and some other chemicals. Commercial liquid contains sucrose. Should I get it compounded? Hopewell pharmacy even makes capsules but not sure if insurance will cover it. Please advise. If anyone has used vancomycin with fluconazole, please share what dose of vancomycin you were using and for how long. > > > > Thanks > > > > is > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2012 Report Share Posted February 2, 2012 , your response is very helpful. Thanks for going thru your notes for me. It gave me a very good idea about what to expect in the first few days. I will save this message as it will definitely help me later also. I heard from the dan. I have to use fluconazole daily for 1 month and continue vancomycin every other day. Hopefully, this will prevent clostridia flare but I have to prepare myself for a huge die off from fluconazole as my son has been off nystatin for almost ten days and he started having yeasty behaviors while he was still on it. I have also cut down on leucovorin to 1250 mcgs from 2500 mcgs. Stimming is still crazy but he has been doing good with his therapy and work sessions. I hope treating yeast will reduce the stimming and silly behavior. I can't go thru any prolonged regressions like last 2 years but I want to be mentally prepared for all the die off symptoms. Thank you so much for all your help. I think next few days, I will be bothering everyone with questions. is > > > > > > > > > & nbsp; > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > I finally got a prescription for fluconazole from our dan. Now I need to know where to get it from. The commercial tablets contain red dye and some other chemicals. Commercial liquid contains sucrose. Should I get it compounded? Hopewell pharmacy even makes capsules but not sure if insurance will cover it. Please advise. If anyone has used vancomycin with fluconazole, please share what dose of vancomycin you were using and for how long. > > > > > > Thanks > > > > > > is > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2012 Report Share Posted February 25, 2012 any compounding pharamcy can make it just tell them what you can't have From: alexis_d3378 Sent: Wednesday, February 01, 2012 12:01 AM To: mb12valtrex Subject: Need help with starting fluconazole I finally got a prescription for fluconazole from our dan. Now I need to know where to get it from. The commercial tablets contain red dye and some other chemicals. Commercial liquid contains sucrose. Should I get it compounded? Hopewell pharmacy even makes capsules but not sure if insurance will cover it. Please advise. If anyone has used vancomycin with fluconazole, please share what dose of vancomycin you were using and for how long. Thanksis Quote Link to comment Share on other sites More sharing options...
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