Now: It is actually a migraine.. Was:Another run in with O.N.

[Guest guest]

Thanks for

the info Kate,

I was wondering about that.. However.. I am home.. no 3-5

infusion.. Did get to meet a bunch of ladies at the infusion

center, that has over 200 participants!

It was decided.. after taking me to the normal eye chart.. and

he was kind of chuckling when I got down to line 20, and read

them off with my right eye.. and to line 15 with my left eye..

guess with my glasses, that I keep thinking need the script

changed in them, I have 20/20 in the right eye, and 20/15 in the

left!

Some acuity is gone in the right eye, because of he did see

damage to the optical nerve in the right eye, no damage to the

left, but then the O.N. hasn't ever really been bad or lasted

long in that eye..

I'm not color-blind, nor have I lost, is the word acuity for

colors too?.. well in any case I picked all the numbers out of

all those dots he showed me.. some took me a few seconds longer

to identify than others.. but since I got them all.. can't have

lost anything in that area..I guess

But it's been decided.. and he saw no signs of optic neuritis in

either eye.. that I'm having migraines...he gave the type a

name.. it was a long one (and I gotta research backwards to find

the name now), but it was treated with a Solumedrol push today,

one dose, then I get a pill.. he didn't name it, but listed the

ingredients.. Aspirin, Caffeine & a narcotic, didn't name

the narcotic though, and the script wasn't there for to

pick up when he stopped tonight.. so I've got to check

Walgreen's tomorrow.. because I'm going to bet that they sent

that script there... so they might have used the wrong number or

the wrong part of the company for the script.. My Copoxone comes

out of Walgreen's specialty pharmacy.. and I've got a hunch

that's where they called sent the script.

I did google the ingredients he gave me (aspirin, caffeine &

a narcotic) and came up with Fiorinal for the ingredients.. it

comes with either Butasomething or other.. or Codeine for the

narcotic.. don't know which I'm getting.. He told me I could

start out for the first 2 or 3 days, taking 1 pill every 2 to 4

hours the first day (I think... will have to run that one by

) then every 4 hours until this stops.. then IF it occurs,

or maybe I should say when it happens, again, then I start the

process all over again.. they will be on an "as needed" basis.

And I guess from what I read, either in "Neurology Now" or maybe

it was a website this evening.. the neuro-ophthalmology

specialty is something fairly new.. and migraines aren't just

for vice requesting people anymore.. it looks like there are

about 12 different types of migraines.. and not all of them

require a vice for relief..

I will post links when I figure it out all, and then the links

I've found that look reliable for their info.. so that everyone

can now be aware of this development.. unless of course I'm

actually the last person in the group to become aware of the

different types of migraines... <grin>..

HUGS

|)onna

Hey Donna,

Little story for you...believe it or not, when I was put on a

3 or 5 day infusion of solumedrol, they hooked me up at home.

A nurse came in and started the line; showed me how to flush

it with heparin and all the other details, and left me on my

own to do it. Apparently, I can only guess, that the insurance

wouldn't cover her to come in every day, or for a stay at the

hospital. I freaked out. Fortunately, there was a oncology

nurse that lived down the street at the time, and I kept

asking her to check on what I was doing, and give me a hand.

She was shocked that they left me to do this. So, count

yourself lucky if they admit you!

Let us know what happens, ok? I hope you are feeling better

real soon.

love and hugs, Kate

From:

|)onna

To:

MSersLife

Sent: Wed,

November 17, 2010 3:00:28 PM

Subject:

Re: Another run in with O.N.

Thanks Sharon,

And after talking to my neuro-nurse.. she said that doc

won't treat unless he's got confirmation that it is O.N.

from an ophthalmologist.. (guess a couple of docs got

burned -- not sure what she meant, unless they didn't

verify the O.N. and the person receiving the IV steroids

was fibbing to get them.. and that's a good possibility

in that area as well).. but once it's confirmed that it

is O.N. he will start the Solumedrol....

Turns out that a neuro-ophthalmologist just joined the

"team" recently, and he has an opening tomorrow

morning.. as does Doctor .. so I guess I'll be

seeing both.. and once Doctor Zayden (ZY-den) confirms,

guess Doctor will be sending me to the Infusion

Center for the 1st round and then we'll puzzle out the

rest of the rounds of treatment.. Hopefully if they are

going to do a three day thing with the Solumedrol, they

will keep me.. (not that I'm wanting a stay in the

hospital) and take care of the treatments that way,

rather than me having to figure out how to get in to

Pittsburgh every day for these infusions..

The bright side is that if there's inflammation in my

back causing the pain that's there between my shoulder

blades, again.. and the definite inflammation that's in

my knee.. They will all get a nice kick in the read and

be on their way shortly..

I'll keep you posted as to the outcome.. I'll load up my

laptop and take it with me.. and that way, since the

hospital offers wi-fi.. I can still keep in touch..

HUGS

|)onna

I'm sorry, Donna.

I hope you are better in a hurry!

hugs

Sharon

This email is a natural

hand made product. The slight variations in

spelling and grammar enhance its individual

character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent:

Wed, November 17, 2010 5:32:41 AM

Subject:

Another run in with O.N.

Feels like I've got a bout of O.N.

going now, in both eyes, with the right being

a little worse than the left.. No light show,

as of yet, only the pain/soreness involved so

far. Maybe a touch of double vision, haven't

decided on that yet.

Hopefully the nurse will have a script called

into the pharmacy rather than turning into the

guy from The Price is Right saying "Come on

Down!"..

HUGS

|)onna

--

Help Feed The Critters! Your daily click

counts at http://www.theanimalrescuesite.com/clickToGive/

--

Help Feed The Critters!

Your daily click counts at

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[Guest guest]

Donna I am glad you got something to help with the pain. Continued prayers.

Hugs

nne

To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com

Another run in with O.N.Feels like I've got a bout of O.N. going now, in both eyes, with the right being a little worse than the left.. No light show, as of yet, only the pain/soreness involved so far. Maybe a touch of double vision, haven't decided on that yet. Hopefully the nurse will have a script called into the pharmacy rather than turning into the guy from The Price is Right saying "Come on Down!".. HUGS|)onna

-- Help Feed The Critters! Your daily click counts at http://www.theanimalrescuesite.com/clickToGive/

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[Guest guest]

Interesting information...didn't know about the types of migraines. I have lots of headaches, so it's especially of interest.

Hope you feel better today.

Another run in with O.N.Feels like I've got a bout of O.N. going now, in both eyes, with the right being a little worse than the left.. No light show, as of yet, only the pain/soreness involved so far. Maybe a touch of double vision, haven't decided on that yet. Hopefully the nurse will have a script called into the pharmacy rather than turning into the guy from The Price is Right saying "Come on Down!".. HUGS|)onna

-- Help Feed The Critters! Your daily click counts at http://www.theanimalrescuesite.com/clickToGive/

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[Guest guest]

Thanks

nne...

Still waiting for the prescription though.. stopped at the

pharmacy last evening, they hadn't received it.. I called this

morning.. they still hadn't received it.. I also called the

Neurology Nurse to see if she could figure out what happened or

where it went.. waiting to hear from her, but probably won't

hear from her until this afternoon sometime. Got to actually put

a face with the voice yesterday, when she dropped into the

infusion center for something with someone else. Very nice

lady.. very busy lady as well.. but she does return calls as

quickly as she can..

Here's to hoping the script gets somewhere today though.. LOL

HUGS

|)onna

Donna I am glad you got something to help with the pain.

Continued prayers.

Hugs

nne

To the world you might be one person, but to one person you

just might be the world"

"May the Lord Bless you and keep you,

May the Lord Make his face shine upon you, and give you

Peace...Forever"

Breast Cancer Patients Soul Mates for Life

http://breastcancerpatientssoulmatesforlife.bravehost.com/

Anxiety Depression and Breast Cancer

http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer

Angel Feather Loomer

www.angelfeatherloomer.blogspot.com

The Cancer Club

www.cancerclub.com

Another run in with O.N.

Feels like I've

got a bout of O.N. going now, in

both eyes, with the right being a

little worse than the left.. No

light show, as of yet, only the

pain/soreness involved so far. Maybe

a touch of double vision, haven't

decided on that yet.

Hopefully the nurse will have a

script called into the pharmacy

rather than turning into the guy

from The Price is Right saying "Come

on Down!"..

HUGS

|)onna

--

Help Feed The Critters! Your

daily click counts at http://www.theanimalrescuesite.com/clickToGive/

--

Help Feed The Critters! Your daily click counts at http://www.theanimalrescuesite.com/clickToGive/

Free 3D Marine Aquarium

Screensaver

Watch dolphins, sharks & orcas on your desktop!

Check it out at www.inbox.com/marineaquarium

--

Help Feed The Critters!

Your daily click counts at

http://www.theanimalrescuesite.com/clickToGive/

[Guest guest]

Interesting, Donna. It sounds like you certainly do have an excellent doctor there:) How are you feeling today? How are your eyes feeling?hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Thu, November 18, 2010 11:38:06 PMSubject: Now: It is actually a migraine.. Was:Another run in with O.N.

Thanks for

the info Kate,

I was wondering about that.. However.. I am home.. no 3-5

infusion.. Did get to meet a bunch of ladies at the infusion

center, that has over 200 participants!

It was decided.. after taking me to the normal eye chart.. and

he was kind of chuckling when I got down to line 20, and read

them off with my right eye.. and to line 15 with my left eye..

guess with my glasses, that I keep thinking need the script

changed in them, I have 20/20 in the right eye, and 20/15 in the

left!

Some acuity is gone in the right eye, because of he did see

damage to the optical nerve in the right eye, no damage to the

left, but then the O.N. hasn't ever really been bad or lasted

long in that eye..

I'm not color-blind, nor have I lost, is the word acuity for

colors too?.. well in any case I picked all the numbers out of

all those dots he showed me.. some took me a few seconds longer

to identify than others.. but since I got them all.. can't have

lost anything in that area..I guess

But it's been decided.. and he saw no signs of optic neuritis in

either eye.. that I'm having migraines...he gave the type a

name.. it was a long one (and I gotta research backwards to find

the name now), but it was treated with a Solumedrol push today,

one dose, then I get a pill.. he didn't name it, but listed the

ingredients.. Aspirin, Caffeine & a narcotic, didn't name

the narcotic though, and the script wasn't there for to

pick up when he stopped tonight.. so I've got to check

Walgreen's tomorrow.. because I'm going to bet that they sent

that script there... so they might have used the wrong number or

the wrong part of the company for the script.. My Copoxone comes

out of Walgreen's specialty pharmacy.. and I've got a hunch

that's where they called sent the script.

I did google the ingredients he gave me (aspirin, caffeine &

a narcotic) and came up with Fiorinal for the ingredients.. it

comes with either Butasomething or other.. or Codeine for the

narcotic.. don't know which I'm getting.. He told me I could

start out for the first 2 or 3 days, taking 1 pill every 2 to 4

hours the first day (I think... will have to run that one by

) then every 4 hours until this stops.. then IF it occurs,

or maybe I should say when it happens, again, then I start the

process all over again.. they will be on an "as needed" basis.

And I guess from what I read, either in "Neurology Now" or maybe

it was a website this evening.. the neuro-ophthalmology

specialty is something fairly new.. and migraines aren't just

for vice requesting people anymore.. it looks like there are

about 12 different types of migraines.. and not all of them

require a vice for relief..

I will post links when I figure it out all, and then the links

I've found that look reliable for their info.. so that everyone

can now be aware of this development.. unless of course I'm

actually the last person in the group to become aware of the

different types of migraines... <grin>..

HUGS

|)onna

Hey Donna,

Little story for you...believe it or not, when I was put on a

3 or 5 day infusion of solumedrol, they hooked me up at home.

A nurse came in and started the line; showed me how to flush

it with heparin and all the other details, and left me on my

own to do it. Apparently, I can only guess, that the insurance

wouldn't cover her to come in every day, or for a stay at the

hospital. I freaked out. Fortunately, there was a oncology

nurse that lived down the street at the time, and I kept

asking her to check on what I was doing, and give me a hand.

She was shocked that they left me to do this. So, count

yourself lucky if they admit you!

Let us know what happens, ok? I hope you are feeling better

real soon.

love and hugs, Kate

From:

|)onna

To:

MSersLife

Sent: Wed,

November 17, 2010 3:00:28 PM

Subject:

Re: Another run in with O.N.

Thanks Sharon,

And after talking to my neuro-nurse.. she said that doc

won't treat unless he's got confirmation that it is O.N.

from an ophthalmologist.. (guess a couple of docs got

burned -- not sure what she meant, unless they didn't

verify the O.N. and the person receiving the IV steroids

was fibbing to get them.. and that's a good possibility

in that area as well).. but once it's confirmed that it

is O.N. he will start the Solumedrol....

Turns out that a neuro-ophthalmologist just joined the

"team" recently, and he has an opening tomorrow

morning.. as does Doctor .. so I guess I'll be

seeing both.. and once Doctor Zayden (ZY-den) confirms,

guess Doctor will be sending me to the Infusion

Center for the 1st round and then we'll puzzle out the

rest of the rounds of treatment.. Hopefully if they are

going to do a three day thing with the Solumedrol, they

will keep me.. (not that I'm wanting a stay in the

hospital) and take care of the treatments that way,

rather than me having to figure out how to get in to

Pittsburgh every day for these infusions..

The bright side is that if there's inflammation in my

back causing the pain that's there between my shoulder

blades, again.. and the definite inflammation that's in

my knee.. They will all get a nice kick in the read and

be on their way shortly..

I'll keep you posted as to the outcome.. I'll load up my

laptop and take it with me.. and that way, since the

hospital offers wi-fi.. I can still keep in touch..

HUGS

|)onna

I'm sorry, Donna.

I hope you are better in a hurry!

hugs

Sharon

This email is a natural

hand made product. The slight variations in

spelling and grammar enhance its individual

character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent:

Wed, November 17, 2010 5:32:41 AM

Subject:

Another run in with O.N.

Feels like I've got a bout of O.N.

going now, in both eyes, with the right being

a little worse than the left.. No light show,

as of yet, only the pain/soreness involved so

far. Maybe a touch of double vision, haven't

decided on that yet.

Hopefully the nurse will have a script called

into the pharmacy rather than turning into the

guy from The Price is Right saying "Come on

Down!"..

HUGS

|)onna

--

Help Feed The Critters! Your daily click

counts at http://www.theanimalrescuesite.com/clickToGive/

--

Help Feed The Critters!

Your daily click counts at

http://www.theanimalrescuesite.com/clickToGive/

[Guest guest]

Sharon,

I think the new guy is pretty thorough, and I'm happy that he

joined the group.. at least I KNOW that should I have another

bout of O.N. (which was a relief yesterday, finding out it

wasn't actually.. though I'm still a little baffled on the

migraine thing) they WILL be doing something about it

immediately rather than letting it run it's course.. waiting for

it to just go away on it's own..

Still eye-achy-head-ache type thing.. but the 2 Advil seems to

have taken care of that for at least the moment.. there was a

mess up with where the script for Esgic (I think she spelled

it.. oh.. memory is really really short these past couple of

days).. and it was faxed to the wrong pharmacy, but having a

narcotic as part of the combo drug.. it can't be faxed anyway..

has to be either hand carried or called in.. so she's calling it

into the correct pharmacy today..

Oh... and another tid-bit for you.. maybe.. kinda.. might not

mean a thing.. but another type of "migraine".. sounds an awful

lot like, and may actually be diagnosed as Trigeminal

Neuralgia.. and it's a migraine stemming from CNS damage.. I

need to start bookmarking these pages that I'm reading.. so that

when I start to say something about what I've read, I can point

out where I read it..

I'll try to find it and pass it along as well

HUGS

|)onna

Interesting, Donna. It sounds like you

certainly do have an excellent doctor there:) How are you

feeling today? How are your eyes feeling?

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Thu,

November 18, 2010 11:38:06 PM

Subject:

Now: It is actually a migraine.. Was:Another run

in with O.N.

Thanks

for the info Kate,

I was wondering about that.. However.. I am home.. no

3-5 infusion.. Did get to meet a bunch of ladies at the

infusion center, that has over 200 participants!

It was decided.. after taking me to the normal eye

chart.. and he was kind of chuckling when I got down to

line 20, and read them off with my right eye.. and to

line 15 with my left eye.. guess with my glasses, that I

keep thinking need the script changed in them, I have

20/20 in the right eye, and 20/15 in the left!

Some acuity is gone in the right eye, because of he did

see damage to the optical nerve in the right eye, no

damage to the left, but then the O.N. hasn't ever really

been bad or lasted long in that eye..

I'm not color-blind, nor have I lost, is the word acuity

for colors too?.. well in any case I picked all the

numbers out of all those dots he showed me.. some took

me a few seconds longer to identify than others.. but

since I got them all.. can't have lost anything in that

area..I guess

But it's been decided.. and he saw no signs of optic

neuritis in either eye.. that I'm having migraines...he

gave the type a name.. it was a long one (and I gotta

research backwards to find the name now), but it was

treated with a Solumedrol push today, one dose, then I

get a pill.. he didn't name it, but listed the

ingredients.. Aspirin, Caffeine & a narcotic, didn't

name the narcotic though, and the script wasn't there

for to pick up when he stopped tonight.. so I've

got to check Walgreen's tomorrow.. because I'm going to

bet that they sent that script there... so they might

have used the wrong number or the wrong part of the

company for the script.. My Copoxone comes out of

Walgreen's specialty pharmacy.. and I've got a hunch

that's where they called sent the script.

I did google the ingredients he gave me (aspirin,

caffeine & a narcotic) and came up with Fiorinal for

the ingredients.. it comes with either Butasomething or

other.. or Codeine for the narcotic.. don't know which

I'm getting.. He told me I could start out for the first

2 or 3 days, taking 1 pill every 2 to 4 hours the first

day (I think... will have to run that one by ) then

every 4 hours until this stops.. then IF it occurs, or

maybe I should say when it happens, again, then I start

the process all over again.. they will be on an "as

needed" basis.

And I guess from what I read, either in "Neurology Now"

or maybe it was a website this evening.. the

neuro-ophthalmology specialty is something fairly new..

and migraines aren't just for vice requesting people

anymore.. it looks like there are about 12 different

types of migraines.. and not all of them require a vice

for relief..

I will post links when I figure it out all, and then the

links I've found that look reliable for their info.. so

that everyone can now be aware of this development..

unless of course I'm actually the last person in the

group to become aware of the different types of

migraines... <grin>..

HUGS

|)onna

Hey Donna,

Little story for you...believe it or not, when I was

put on a 3 or 5 day infusion of solumedrol, they

hooked me up at home. A nurse came in and started the

line; showed me how to flush it with heparin and all

the other details, and left me on my own to do it.

Apparently, I can only guess, that the insurance

wouldn't cover her to come in every day, or for a stay

at the hospital. I freaked out. Fortunately, there was

a oncology nurse that lived down the street at the

time, and I kept asking her to check on what I was

doing, and give me a hand. She was shocked that they

left me to do this. So, count yourself lucky if they

admit you!

Let us know what happens, ok? I hope you are feeling

better real soon.

love and hugs, Kate

From:

|)onna

To:

MSersLife

Sent:

Wed, November 17, 2010 3:00:28 PM

Subject:

Re: Another run in with O.N.

Thanks Sharon,

And after talking to my neuro-nurse.. she said

that doc won't treat unless he's got

confirmation that it is O.N. from an

ophthalmologist.. (guess a couple of docs got

burned -- not sure what she meant, unless they

didn't verify the O.N. and the person receiving

the IV steroids was fibbing to get them.. and

that's a good possibility in that area as

well).. but once it's confirmed that it is O.N.

he will start the Solumedrol....

Turns out that a neuro-ophthalmologist just

joined the "team" recently, and he has an

opening tomorrow morning.. as does Doctor

.. so I guess I'll be seeing both.. and

once Doctor Zayden (ZY-den) confirms, guess

Doctor will be sending me to the

Infusion Center for the 1st round and then we'll

puzzle out the rest of the rounds of treatment..

Hopefully if they are going to do a three day

thing with the Solumedrol, they will keep me..

(not that I'm wanting a stay in the hospital)

and take care of the treatments that way, rather

than me having to figure out how to get in to

Pittsburgh every day for these infusions..

The bright side is that if there's inflammation

in my back causing the pain that's there between

my shoulder blades, again.. and the definite

inflammation that's in my knee.. They will all

get a nice kick in the read and be on their way

shortly..

I'll keep you posted as to the outcome.. I'll

load up my laptop and take it with me.. and that

way, since the hospital offers wi-fi.. I can

still keep in touch..

HUGS

|)onna

I'm sorry,

Donna. I hope you are better in a hurry!

hugs

Sharon

This

email is a natural hand made product.

The slight variations in spelling and

grammar enhance its individual character

and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent:

Wed, November 17, 2010 5:32:41 AM

Subject:

Another run in with O.N.

Feels like I've got

a bout of O.N. going now, in both

eyes, with the right being a little

worse than the left.. No light show,

as of yet, only the pain/soreness

involved so far. Maybe a touch of

double vision, haven't decided on that

yet.

Hopefully the nurse will have a script

called into the pharmacy rather than

turning into the guy from The Price is

Right saying "Come on Down!"..

HUGS

|)onna

--

Help Feed The Critters! Your

daily click counts at http://www.theanimalrescuesite.com/clickToGive/

--

Help Feed The Critters! Your daily click counts at http://www.theanimalrescuesite.com/clickToGive/

--

Help Feed The Critters!

Your daily click counts at

http://www.theanimalrescuesite.com/clickToGive/

[Guest guest]

I would be interested in seeing what you have found about TN. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Fri, November 19, 2010 12:03:25 PMSubject: Re: Now: It is actually a migraine.. Was:Another run in with O.N.

Sharon,

I think the new guy is pretty thorough, and I'm happy that he

joined the group.. at least I KNOW that should I have another

bout of O.N. (which was a relief yesterday, finding out it

wasn't actually.. though I'm still a little baffled on the

migraine thing) they WILL be doing something about it

immediately rather than letting it run it's course.. waiting for

it to just go away on it's own..

Still eye-achy-head-ache type thing.. but the 2 Advil seems to

have taken care of that for at least the moment.. there was a

mess up with where the script for Esgic (I think she spelled

it.. oh.. memory is really really short these past couple of

days).. and it was faxed to the wrong pharmacy, but having a

narcotic as part of the combo drug.. it can't be faxed anyway..

has to be either hand carried or called in.. so she's calling it

into the correct pharmacy today..

Oh... and another tid-bit for you.. maybe.. kinda.. might not

mean a thing.. but another type of "migraine".. sounds an awful

lot like, and may actually be diagnosed as Trigeminal

Neuralgia.. and it's a migraine stemming from CNS damage.. I

need to start bookmarking these pages that I'm reading.. so that

when I start to say something about what I've read, I can point

out where I read it..

I'll try to find it and pass it along as well

HUGS

|)onna

Interesting, Donna. It sounds like you

certainly do have an excellent doctor there:) How are you

feeling today? How are your eyes feeling?

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Thu,

November 18, 2010 11:38:06 PM

Subject:

Now: It is actually a migraine.. Was:Another run

in with O.N.

Thanks

for the info Kate,

I was wondering about that.. However.. I am home.. no

3-5 infusion.. Did get to meet a bunch of ladies at the

infusion center, that has over 200 participants!

It was decided.. after taking me to the normal eye

chart.. and he was kind of chuckling when I got down to

line 20, and read them off with my right eye.. and to

line 15 with my left eye.. guess with my glasses, that I

keep thinking need the script changed in them, I have

20/20 in the right eye, and 20/15 in the left!

Some acuity is gone in the right eye, because of he did

see damage to the optical nerve in the right eye, no

damage to the left, but then the O.N. hasn't ever really

been bad or lasted long in that eye..

I'm not color-blind, nor have I lost, is the word acuity

for colors too?.. well in any case I picked all the

numbers out of all those dots he showed me.. some took

me a few seconds longer to identify than others.. but

since I got them all.. can't have lost anything in that

area..I guess

But it's been decided.. and he saw no signs of optic

neuritis in either eye.. that I'm having migraines...he

gave the type a name.. it was a long one (and I gotta

research backwards to find the name now), but it was

treated with a Solumedrol push today, one dose, then I

get a pill.. he didn't name it, but listed the

ingredients.. Aspirin, Caffeine & a narcotic, didn't

name the narcotic though, and the script wasn't there

for to pick up when he stopped tonight.. so I've

got to check Walgreen's tomorrow.. because I'm going to

bet that they sent that script there... so they might

have used the wrong number or the wrong part of the

company for the script.. My Copoxone comes out of

Walgreen's specialty pharmacy.. and I've got a hunch

that's where they called sent the script.

I did google the ingredients he gave me (aspirin,

caffeine & a narcotic) and came up with Fiorinal for

the ingredients.. it comes with either Butasomething or

other.. or Codeine for the narcotic.. don't know which

I'm getting.. He told me I could start out for the first

2 or 3 days, taking 1 pill every 2 to 4 hours the first

day (I think... will have to run that one by ) then

every 4 hours until this stops.. then IF it occurs, or

maybe I should say when it happens, again, then I start

the process all over again.. they will be on an "as

needed" basis.

And I guess from what I read, either in "Neurology Now"

or maybe it was a website this evening.. the

neuro-ophthalmology specialty is something fairly new..

and migraines aren't just for vice requesting people

anymore.. it looks like there are about 12 different

types of migraines.. and not all of them require a vice

for relief..

I will post links when I figure it out all, and then the

links I've found that look reliable for their info.. so

that everyone can now be aware of this development..

unless of course I'm actually the last person in the

group to become aware of the different types of

migraines... <grin>..

HUGS

|)onna

Hey Donna,

Little story for you...believe it or not, when I was

put on a 3 or 5 day infusion of solumedrol, they

hooked me up at home. A nurse came in and started the

line; showed me how to flush it with heparin and all

the other details, and left me on my own to do it.

Apparently, I can only guess, that the insurance

wouldn't cover her to come in every day, or for a stay

at the hospital. I freaked out. Fortunately, there was

a oncology nurse that lived down the street at the

time, and I kept asking her to check on what I was

doing, and give me a hand. She was shocked that they

left me to do this. So, count yourself lucky if they

admit you!

Let us know what happens, ok? I hope you are feeling

better real soon.

love and hugs, Kate

From:

|)onna

To:

MSersLife

Sent:

Wed, November 17, 2010 3:00:28 PM

Subject:

Re: Another run in with O.N.

Thanks Sharon,

And after talking to my neuro-nurse.. she said

that doc won't treat unless he's got

confirmation that it is O.N. from an

ophthalmologist.. (guess a couple of docs got

burned -- not sure what she meant, unless they

didn't verify the O.N. and the person receiving

the IV steroids was fibbing to get them.. and

that's a good possibility in that area as

well).. but once it's confirmed that it is O.N.

he will start the Solumedrol....

Turns out that a neuro-ophthalmologist just

joined the "team" recently, and he has an

opening tomorrow morning.. as does Doctor

.. so I guess I'll be seeing both.. and

once Doctor Zayden (ZY-den) confirms, guess

Doctor will be sending me to the

Infusion Center for the 1st round and then we'll

puzzle out the rest of the rounds of treatment..

Hopefully if they are going to do a three day

thing with the Solumedrol, they will keep me..

(not that I'm wanting a stay in the hospital)

and take care of the treatments that way, rather

than me having to figure out how to get in to

Pittsburgh every day for these infusions..

The bright side is that if there's inflammation

in my back causing the pain that's there between

my shoulder blades, again.. and the definite

inflammation that's in my knee.. They will all

get a nice kick in the read and be on their way

shortly..

I'll keep you posted as to the outcome.. I'll

load up my laptop and take it with me.. and that

way, since the hospital offers wi-fi.. I can

still keep in touch..

HUGS

|)onna

I'm sorry,

Donna. I hope you are better in a hurry!

hugs

Sharon

This

email is a natural hand made product.

The slight variations in spelling and

grammar enhance its individual character

and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent:

Wed, November 17, 2010 5:32:41 AM

Subject:

Another run in with O.N.

Feels like I've got

a bout of O.N. going now, in both

eyes, with the right being a little

worse than the left.. No light show,

as of yet, only the pain/soreness

involved so far. Maybe a touch of

double vision, haven't decided on that

yet.

Hopefully the nurse will have a script

called into the pharmacy rather than

turning into the guy from The Price is

Right saying "Come on Down!"..

HUGS

|)onna

--

Help Feed The Critters! Your

daily click counts at http://www.theanimalrescuesite.com/clickToGive/

--

Help Feed The Critters! Your daily click counts at http://www.theanimalrescuesite.com/clickToGive/

--

Help Feed The Critters!

Your daily click counts at

http://www.theanimalrescuesite.com/clickToGive/

[Guest guest]

http://www.umanitoba.ca/cranial_nerves/trigeminal_neuralgia/index.htmHey Donna, this is my favorite site for info regarding trigeminal neuralgia.Just copy and paste into your browser.Hope you are feeling better soon sister!love, KateTo:

MSersLife Sent: Fri, November 19, 2010 2:03:25 PMSubject: Re: Now: It is actually a migraine.. Was:Another run in with O.N.

Sharon,

I think the new guy is pretty thorough, and I'm happy that he

joined the group.. at least I KNOW that should I have another

bout of O.N. (which was a relief yesterday, finding out it

wasn't actually.. though I'm still a little baffled on the

migraine thing) they WILL be doing something about it

immediately rather than letting it run it's course.. waiting for

it to just go away on it's own..

Still eye-achy-head-ache type thing.. but the 2 Advil seems to

have taken care of that for at least the moment.. there was a

mess up with where the script for Esgic (I think she spelled

it.. oh.. memory is really really short these past couple of

days).. and it was faxed to the wrong pharmacy, but having a

narcotic as part of the combo drug.. it can't be faxed anyway..

has to be either hand carried or called in.. so she's calling it

into the correct pharmacy today..

Oh... and another tid-bit for you.. maybe.. kinda.. might not

mean a thing.. but another type of "migraine".. sounds an awful

lot like, and may actually be diagnosed as Trigeminal

Neuralgia.. and it's a migraine stemming from CNS damage.. I

need to start bookmarking these pages that I'm reading.. so that

when I start to say something about what I've read, I can point

out where I read it..

I'll try to find it and pass it along as well

HUGS

|)onna

Interesting, Donna. It sounds like you

certainly do have an excellent doctor there:) How are you

feeling today? How are your eyes feeling?

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Thu,

November 18, 2010 11:38:06 PM

Subject:

Now: It is actually a migraine.. Was:Another run

in with O.N.

Thanks

for the info Kate,

I was wondering about that.. However.. I am home.. no

3-5 infusion.. Did get to meet a bunch of ladies at the

infusion center, that has over 200 participants!

It was decided.. after taking me to the normal eye

chart.. and he was kind of chuckling when I got down to

line 20, and read them off with my right eye.. and to

line 15 with my left eye.. guess with my glasses, that I

keep thinking need the script changed in them, I have

20/20 in the right eye, and 20/15 in the left!

Some acuity is gone in the right eye, because of he did

see damage to the optical nerve in the right eye, no

damage to the left, but then the O.N. hasn't ever really

been bad or lasted long in that eye..

I'm not color-blind, nor have I lost, is the word acuity

for colors too?.. well in any case I picked all the

numbers out of all those dots he showed me.. some took

me a few seconds longer to identify than others.. but

since I got them all.. can't have lost anything in that

area..I guess

But it's been decided.. and he saw no signs of optic

neuritis in either eye.. that I'm having migraines...he

gave the type a name.. it was a long one (and I gotta

research backwards to find the name now), but it was

treated with a Solumedrol push today, one dose, then I

get a pill.. he didn't name it, but listed the

ingredients.. Aspirin, Caffeine & a narcotic, didn't

name the narcotic though, and the script wasn't there

for to pick up when he stopped tonight.. so I've

got to check Walgreen's tomorrow.. because I'm going to

bet that they sent that script there... so they might

have used the wrong number or the wrong part of the

company for the script.. My Copoxone comes out of

Walgreen's specialty pharmacy.. and I've got a hunch

that's where they called sent the script.

I did google the ingredients he gave me (aspirin,

caffeine & a narcotic) and came up with Fiorinal for

the ingredients.. it comes with either Butasomething or

other.. or Codeine for the narcotic.. don't know which

I'm getting.. He told me I could start out for the first

2 or 3 days, taking 1 pill every 2 to 4 hours the first

day (I think... will have to run that one by ) then

every 4 hours until this stops.. then IF it occurs, or

maybe I should say when it happens, again, then I start

the process all over again.. they will be on an "as

needed" basis.

And I guess from what I read, either in "Neurology Now"

or maybe it was a website this evening.. the

neuro-ophthalmology specialty is something fairly new..

and migraines aren't just for vice requesting people

anymore.. it looks like there are about 12 different

types of migraines.. and not all of them require a vice

for relief..

I will post links when I figure it out all, and then the

links I've found that look reliable for their info.. so

that everyone can now be aware of this development..

unless of course I'm actually the last person in the

group to become aware of the different types of

migraines... <grin>..

HUGS

|)onna

Hey Donna,

Little story for you...believe it or not, when I was

put on a 3 or 5 day infusion of solumedrol, they

hooked me up at home. A nurse came in and started the

line; showed me how to flush it with heparin and all

the other details, and left me on my own to do it.

Apparently, I can only guess, that the insurance

wouldn't cover her to come in every day, or for a stay

at the hospital. I freaked out. Fortunately, there was

a oncology nurse that lived down the street at the

time, and I kept asking her to check on what I was

doing, and give me a hand. She was shocked that they

left me to do this. So, count yourself lucky if they

admit you!

Let us know what happens, ok? I hope you are feeling

better real soon.

love and hugs, Kate

From:

|)onna

To:

MSersLife

Sent:

Wed, November 17, 2010 3:00:28 PM

Subject:

Re: Another run in with O.N.

Thanks Sharon,

And after talking to my neuro-nurse.. she said

that doc won't treat unless he's got

confirmation that it is O.N. from an

ophthalmologist.. (guess a couple of docs got

burned -- not sure what she meant, unless they

didn't verify the O.N. and the person receiving

the IV steroids was fibbing to get them.. and

that's a good possibility in that area as

well).. but once it's confirmed that it is O.N.

he will start the Solumedrol....

Turns out that a neuro-ophthalmologist just

joined the "team" recently, and he has an

opening tomorrow morning.. as does Doctor

.. so I guess I'll be seeing both.. and

once Doctor Zayden (ZY-den) confirms, guess

Doctor will be sending me to the

Infusion Center for the 1st round and then we'll

puzzle out the rest of the rounds of treatment..

Hopefully if they are going to do a three day

thing with the Solumedrol, they will keep me..

(not that I'm wanting a stay in the hospital)

and take care of the treatments that way, rather

than me having to figure out how to get in to

Pittsburgh every day for these infusions..

The bright side is that if there's inflammation

in my back causing the pain that's there between

my shoulder blades, again.. and the definite

inflammation that's in my knee.. They will all

get a nice kick in the read and be on their way

shortly..

I'll keep you posted as to the outcome.. I'll

load up my laptop and take it with me.. and that

way, since the hospital offers wi-fi.. I can

still keep in touch..

HUGS

|)onna

I'm sorry,

Donna. I hope you are better in a hurry!

hugs

Sharon

This

email is a natural hand made product.

The slight variations in spelling and

grammar enhance its individual character

and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent:

Wed, November 17, 2010 5:32:41 AM

Subject:

Another run in with O.N.

Feels like I've got

a bout of O.N. going now, in both

eyes, with the right being a little

worse than the left.. No light show,

as of yet, only the pain/soreness

involved so far. Maybe a touch of

double vision, haven't decided on that

yet.

Hopefully the nurse will have a script

called into the pharmacy rather than

turning into the guy from The Price is

Right saying "Come on Down!"..

HUGS

|)onna

--

Help Feed The Critters! Your

daily click counts at http://www.theanimalrescuesite.com/clickToGive/

--

Help Feed The Critters! Your daily click counts at http://www.theanimalrescuesite.com/clickToGive/

--

Help Feed The Critters!

Your daily click counts at

http://www.theanimalrescuesite.com/clickToGive/

[Guest guest]

Kate; this site actually lists MS Trigeminal Neuropathy as a distinct disorder.Thank you for the link; excellent!Love,nTo: MSersLife Sent: Sat, November 20, 2010 9:05:21 AMSubject: Re: Now: It is actually a migraine..

Was:Another run in with O.N.

http://www.umanitoba.ca/cranial_nerves/trigeminal_neuralgia/index.htmHey Donna, this is my favorite site for info regarding trigeminal neuralgia.Just copy and paste into your browser.Hope you are feeling better soon sister!love, KateTo:

MSersLife Sent: Fri, November 19, 2010 2:03:25 PMSubject: Re: Now: It is actually a migraine.. Was:Another run in with O.N.

Sharon,

I think the new guy is pretty thorough, and I'm happy that he

joined the group.. at least I KNOW that should I have another

bout of O.N. (which was a relief yesterday, finding out it

wasn't actually.. though I'm still a little baffled on the

migraine thing) they WILL be doing something about it

immediately rather than letting it run it's course.. waiting for

it to just go away on it's own..

Still eye-achy-head-ache type thing.. but the 2 Advil seems to

have taken care of that for at least the moment.. there was a

mess up with where the script for Esgic (I think she spelled

it.. oh.. memory is really really short these past couple of

days).. and it was faxed to the wrong pharmacy, but having a

narcotic as part of the combo drug.. it can't be faxed anyway..

has to be either hand carried or called in.. so she's calling it

into the correct pharmacy today..

Oh... and another tid-bit for you.. maybe.. kinda.. might not

mean a thing.. but another type of "migraine".. sounds an awful

lot like, and may actually be diagnosed as Trigeminal

Neuralgia.. and it's a migraine stemming from CNS damage.. I

need to start bookmarking these pages that I'm reading.. so that

when I start to say something about what I've read, I can point

out where I read it..

I'll try to find it and pass it along as well

HUGS

|)onna

Interesting, Donna. It sounds like you

certainly do have an excellent doctor there:) How are you

feeling today? How are your eyes feeling?

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent: Thu,

November 18, 2010 11:38:06 PM

Subject:

Now: It is actually a migraine.. Was:Another run

in with O.N.

Thanks

for the info Kate,

I was wondering about that.. However.. I am home.. no

3-5 infusion.. Did get to meet a bunch of ladies at the

infusion center, that has over 200 participants!

It was decided.. after taking me to the normal eye

chart.. and he was kind of chuckling when I got down to

line 20, and read them off with my right eye.. and to

line 15 with my left eye.. guess with my glasses, that I

keep thinking need the script changed in them, I have

20/20 in the right eye, and 20/15 in the left!

Some acuity is gone in the right eye, because of he did

see damage to the optical nerve in the right eye, no

damage to the left, but then the O.N. hasn't ever really

been bad or lasted long in that eye..

I'm not color-blind, nor have I lost, is the word acuity

for colors too?.. well in any case I picked all the

numbers out of all those dots he showed me.. some took

me a few seconds longer to identify than others.. but

since I got them all.. can't have lost anything in that

area..I guess

But it's been decided.. and he saw no signs of optic

neuritis in either eye.. that I'm having migraines...he

gave the type a name.. it was a long one (and I gotta

research backwards to find the name now), but it was

treated with a Solumedrol push today, one dose, then I

get a pill.. he didn't name it, but listed the

ingredients.. Aspirin, Caffeine & a narcotic, didn't

name the narcotic though, and the script wasn't there

for to pick up when he stopped tonight.. so I've

got to check Walgreen's tomorrow.. because I'm going to

bet that they sent that script there... so they might

have used the wrong number or the wrong part of the

company for the script.. My Copoxone comes out of

Walgreen's specialty pharmacy.. and I've got a hunch

that's where they called sent the script.

I did google the ingredients he gave me (aspirin,

caffeine & a narcotic) and came up with Fiorinal for

the ingredients.. it comes with either Butasomething or

other.. or Codeine for the narcotic.. don't know which

I'm getting.. He told me I could start out for the first

2 or 3 days, taking 1 pill every 2 to 4 hours the first

day (I think... will have to run that one by ) then

every 4 hours until this stops.. then IF it occurs, or

maybe I should say when it happens, again, then I start

the process all over again.. they will be on an "as

needed" basis.

And I guess from what I read, either in "Neurology Now"

or maybe it was a website this evening.. the

neuro-ophthalmology specialty is something fairly new..

and migraines aren't just for vice requesting people

anymore.. it looks like there are about 12 different

types of migraines.. and not all of them require a vice

for relief..

I will post links when I figure it out all, and then the

links I've found that look reliable for their info.. so

that everyone can now be aware of this development..

unless of course I'm actually the last person in the

group to become aware of the different types of

migraines... <grin>..

HUGS

|)onna

Hey Donna,

Little story for you...believe it or not, when I was

put on a 3 or 5 day infusion of solumedrol, they

hooked me up at home. A nurse came in and started the

line; showed me how to flush it with heparin and all

the other details, and left me on my own to do it.

Apparently, I can only guess, that the insurance

wouldn't cover her to come in every day, or for a stay

at the hospital. I freaked out. Fortunately, there was

a oncology nurse that lived down the street at the

time, and I kept asking her to check on what I was

doing, and give me a hand. She was shocked that they

left me to do this. So, count yourself lucky if they

admit you!

Let us know what happens, ok? I hope you are feeling

better real soon.

love and hugs, Kate

From:

|)onna

To:

MSersLife

Sent:

Wed, November 17, 2010 3:00:28 PM

Subject:

Re: Another run in with O.N.

Thanks Sharon,

And after talking to my neuro-nurse.. she said

that doc won't treat unless he's got

confirmation that it is O.N. from an

ophthalmologist.. (guess a couple of docs got

burned -- not sure what she meant, unless they

didn't verify the O.N. and the person receiving

the IV steroids was fibbing to get them.. and

that's a good possibility in that area as

well).. but once it's confirmed that it is O.N.

he will start the Solumedrol....

Turns out that a neuro-ophthalmologist just

joined the "team" recently, and he has an

opening tomorrow morning.. as does Doctor

.. so I guess I'll be seeing both.. and

once Doctor Zayden (ZY-den) confirms, guess

Doctor will be sending me to the

Infusion Center for the 1st round and then we'll

puzzle out the rest of the rounds of treatment..

Hopefully if they are going to do a three day

thing with the Solumedrol, they will keep me..

(not that I'm wanting a stay in the hospital)

and take care of the treatments that way, rather

than me having to figure out how to get in to

Pittsburgh every day for these infusions..

The bright side is that if there's inflammation

in my back causing the pain that's there between

my shoulder blades, again.. and the definite

inflammation that's in my knee.. They will all

get a nice kick in the read and be on their way

shortly..

I'll keep you posted as to the outcome.. I'll

load up my laptop and take it with me.. and that

way, since the hospital offers wi-fi.. I can

still keep in touch..

HUGS

|)onna

I'm sorry,

Donna. I hope you are better in a hurry!

hugs

Sharon

This

email is a natural hand made product.

The slight variations in spelling and

grammar enhance its individual character

and beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To:

MSersLife

Sent:

Wed, November 17, 2010 5:32:41 AM

Subject:

Another run in with O.N.

Feels like I've got

a bout of O.N. going now, in both

eyes, with the right being a little

worse than the left.. No light show,

as of yet, only the pain/soreness

involved so far. Maybe a touch of

double vision, haven't decided on that

yet.

Hopefully the nurse will have a script

called into the pharmacy rather than

turning into the guy from The Price is

Right saying "Come on Down!"..

HUGS

|)onna

--

Help Feed The Critters! Your

daily click counts at http://www.theanimalrescuesite.com/clickToGive/

--

Help Feed The Critters! Your daily click counts at http://www.theanimalrescuesite.com/clickToGive/

--

Help Feed The Critters!

Your daily click counts at

http://www.theanimalrescuesite.com/clickToGive/

[Guest guest]

I'm trying

to find, once again, the exact place I read that Trigeminal

Neuralgia is considered a Trigeminal Migraine... Not much luck,

so far.. but I know I read it somewhere...

I don't think this is the site that I actually "found" the

original stuff on.. but it's a little closer than I was 15

minutes ago.. LOL

http://www.headaches.org/education/Headache_Topic_Sheets/Migraine

and this paragraph from that page does sound(ish) about right

too:

Quote:

The pain of migraine occurs when excited

brain cells trigger the trigeminal nerve to release chemicals

that irritate and cause swelling of blood vessels on the surface

of the brain. These swollen blood vessels send pain signals to

the brainstem, an area of the brain that processes pain

information. The pain of migraine is a referred pain that is

typically felt around the eye or temple area. Pain can also

occur in the face, sinus, jaw or neck area. Once the attack is

full-blown, many people will be sensitive to anything touching

their head. Activities such as combing their hair or shaving may

be painful or unpleasant.

Unquote:

And unfortunately, the longer I look and the more I read.. The

more I become convinced that that nobody really knows anything

about any of this stuff.. Though some of the groups theorize

that Ocular Migraines may be stemming from the Trigeminal

Nerve. And when looking at the diagrams, one can see the

three branches of that nerve, and understand from whence the

theory of a Trigeminal Migraine came...

I'm trying hard, these days, to not end my sentences in a

preposition.. I'm finding this task very difficult at times..

LOL

HUGS

|)onna

I would be interested in seeing what you have

found about TN.

hugs

Sharon

This email is a natural hand made product.

The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be

considered flaws or defects.

[Guest guest]

Thanks

Kate,

I added a new bookmark folder to my browser.. for MonSter

related stuffs.. and I added that link to that folder.. Now

maybe I won't lose things, (all the while thinking that my

memory is the same as it always was.. even though I know better

than that.. and think I will remember where I saw what)..

Question remains, though, Is it MS related memory loss, or Old

Age related memory loss.. or some combination of both? LOL

I took Advil this morning for the headache.. I'm just still not

too overly thrilled with taking the pills prescribed because of

the narcotic in them.. However, if the Advil doesn't do the

trick in half an hour or so.. I'll break down and take the other

pill.. then I'll either sit around and babble.. or lay down and

take a nap..

When I'm not in BP & M mode.. doesn't mind my babbling..

other times I've found him looking through his tool box for that

rubber mallet he has.. > LOL

HUGS

|)onna

http://www.umanitoba.ca/cranial_nerves/trigeminal_neuralgia/index.htm

Hey Donna, this is my favorite site for info regarding

trigeminal neuralgia.

Just copy and paste into your browser.

Hope you are feeling better soon sister!

love, Kate

From:

|)onna

To:

MSersLife

Sent: Fri,

November 19, 2010 2:03:25 PM

Subject:

Re: Now: It is actually a migraine.. Was:Another

run in with O.N.

Sharon,

I think the new guy is pretty thorough, and I'm

happy that he joined the group.. at least I KNOW

that should I have another bout of O.N. (which was a

relief yesterday, finding out it wasn't actually..

though I'm still a little baffled on the migraine

thing) they WILL be doing something about it

immediately rather than letting it run it's course..

waiting for it to just go away on it's own..

Still eye-achy-head-ache type thing.. but the 2

Advil seems to have taken care of that for at least

the moment.. there was a mess up with where the

script for Esgic (I think she spelled it.. oh..

memory is really really short these past couple of

days).. and it was faxed to the wrong pharmacy, but

having a narcotic as part of the combo drug.. it

can't be faxed anyway.. has to be either hand

carried or called in.. so she's calling it into the

correct pharmacy today..

Oh... and another tid-bit for you.. maybe.. kinda..

might not mean a thing.. but another type of

"migraine".. sounds an awful lot like, and may

actually be diagnosed as Trigeminal Neuralgia.. and

it's a migraine stemming from CNS damage.. I need to

start bookmarking these pages that I'm reading.. so

that when I start to say something about what I've

read, I can point out where I read it..

I'll try to find it and pass it along as well

HUGS

|)onna

Interesting,

Donna. It sounds like you certainly do have an

excellent doctor there:) How are you feeling today?

How are your eyes feeling?

hugs

Sharon

This email is a natural

hand made product. The slight variations in

spelling and grammar enhance its individual

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From:

|)onna

To:

MSersLife

Sent:

Thu, November 18, 2010 11:38:06 PM

Subject:

Now: It is actually a migraine..

Was:Another run in with O.N.

Thanks for the info Kate,

I was wondering about that.. However.. I am

home.. no 3-5 infusion.. Did get to meet a

bunch of ladies at the infusion center, that

has over 200 participants!

It was decided.. after taking me to the normal

eye chart.. and he was kind of chuckling when

I got down to line 20, and read them off with

my right eye.. and to line 15 with my left

eye.. guess with my glasses, that I keep

thinking need the script changed in them, I

have 20/20 in the right eye, and 20/15 in the

left!

Some acuity is gone in the right eye, because

of he did see damage to the optical nerve in

the right eye, no damage to the left, but then

the O.N. hasn't ever really been bad or lasted

long in that eye..

I'm not color-blind, nor have I lost, is the

word acuity for colors too?.. well in any case

I picked all the numbers out of all those dots

he showed me.. some took me a few seconds

longer to identify than others.. but since I

got them all.. can't have lost anything in

that area..I guess

But it's been decided.. and he saw no signs of

optic neuritis in either eye.. that I'm having

migraines...he gave the type a name.. it was a

long one (and I gotta research backwards to

find the name now), but it was treated with a

Solumedrol push today, one dose, then I get a

pill.. he didn't name it, but listed the

ingredients.. Aspirin, Caffeine & a

narcotic, didn't name the narcotic though, and

the script wasn't there for to pick up

when he stopped tonight.. so I've got to check

Walgreen's tomorrow.. because I'm going to bet

that they sent that script there... so they

might have used the wrong number or the wrong

part of the company for the script.. My

Copoxone comes out of Walgreen's specialty

pharmacy.. and I've got a hunch that's where

they called sent the script.

I did google the ingredients he gave me

(aspirin, caffeine & a narcotic) and came

up with Fiorinal for the ingredients.. it

comes with either Butasomething or other.. or

Codeine for the narcotic.. don't know which

I'm getting.. He told me I could start out for

the first 2 or 3 days, taking 1 pill every 2

to 4 hours the first day (I think... will have

to run that one by ) then every 4 hours

until this stops.. then IF it occurs, or maybe

I should say when it happens, again, then I

start the process all over again.. they will

be on an "as needed" basis.

And I guess from what I read, either in

"Neurology Now" or maybe it was a website this

evening.. the neuro-ophthalmology specialty is

something fairly new.. and migraines aren't

just for vice requesting people anymore.. it

looks like there are about 12 different types

of migraines.. and not all of them require a

vice for relief..

I will post links when I figure it out all,

and then the links I've found that look

reliable for their info.. so that everyone can

now be aware of this development.. unless of

course I'm actually the last person in the

group to become aware of the different types

of migraines... <grin>..

HUGS

|)onna

Hey Donna,

Little story for you...believe it or not,

when I was put on a 3 or 5 day infusion of

solumedrol, they hooked me up at home. A

nurse came in and started the line; showed

me how to flush it with heparin and all the

other details, and left me on my own to do

it. Apparently, I can only guess, that the

insurance wouldn't cover her to come in

every day, or for a stay at the hospital. I

freaked out. Fortunately, there was a

oncology nurse that lived down the street at

the time, and I kept asking her to check on

what I was doing, and give me a hand. She

was shocked that they left me to do this.

So, count yourself lucky if they admit you!

Let us know what happens, ok? I hope you are

feeling better real soon.

love and hugs, Kate

From:

|)onna

To:

MSersLife

Sent:

Wed, November 17, 2010 3:00:28 PM

Subject:

Re: Another run in with O.N.

Thanks Sharon,

And after talking to my neuro-nurse..

she said that doc won't treat unless

he's got confirmation that it is O.N.

from an ophthalmologist.. (guess a

couple of docs got burned -- not sure

what she meant, unless they didn't

verify the O.N. and the person

receiving the IV steroids was fibbing

to get them.. and that's a good

possibility in that area as well)..

but once it's confirmed that it is

O.N. he will start the Solumedrol....

Turns out that a neuro-ophthalmologist

just joined the "team" recently, and

he has an opening tomorrow morning..

as does Doctor .. so I guess

I'll be seeing both.. and once Doctor

Zayden (ZY-den) confirms, guess Doctor

will be sending me to the

Infusion Center for the 1st round and

then we'll puzzle out the rest of the

rounds of treatment.. Hopefully if

they are going to do a three day thing

with the Solumedrol, they will keep

me.. (not that I'm wanting a stay in

the hospital) and take care of the

treatments that way, rather than me

having to figure out how to get in to

Pittsburgh every day for these

infusions..

The bright side is that if there's

inflammation in my back causing the

pain that's there between my shoulder

blades, again.. and the definite

inflammation that's in my knee.. They

will all get a nice kick in the read

and be on their way shortly..

I'll keep you posted as to the

outcome.. I'll load up my laptop and

take it with me.. and that way, since

the hospital offers wi-fi.. I can

still keep in touch..

HUGS

|)onna

I'm sorry, Donna.

I hope you are better in a hurry!

hugs

Sharon

This email is a

natural hand made product. The

slight variations in spelling

and grammar enhance its

individual character and

beauty and in no way are to be

considered flaws or defects.

From:

|)onna

To: MSersLife

Sent:

Wed, November 17, 2010 5:32:41

AM

Subject:

Another run in with

O.N.

Feels like I've

got a bout of O.N. going

now, in both eyes, with the

right being a little worse

than the left.. No light

show, as of yet, only the

pain/soreness involved so

far. Maybe a touch of double

vision, haven't decided on

that yet.

Hopefully the nurse will

have a script called into

the pharmacy rather than

turning into the guy from

The Price is Right saying

"Come on Down!"..

HUGS

|)onna

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