Guest guest Posted August 29, 2011 Report Share Posted August 29, 2011 Hi. My daughter is having some issues with her eyes and it is a good possibility that an MRI of her head/brain will be suggested. Of course she will have to be sedated because she would never be still enough.... I am so afraid of any kind of sedation.....I'm not sure why, I guess just because I never give her any kind of RX with the exception of an Antibiotic when ABSOLUTELY NECESSARY.....and we all know how that can affect their behaviors. I was just looking for some input as to those of you who have been down this road and have any suggestions or input in the way of sedation and/or how your child reacted. Thanks. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2011 Report Share Posted August 29, 2011 My daughter was sedated for her MRI a few months ago (she was 2 1/2) and she did great! It was definitely hard to watch her fall asleep. My husband and I held in the tears and put on big smiles so she saw happy faces as she fell asleep. The doctors suggested having her sit up on the table and we knelt down in front of her smiling. Then they came from behind and put the mask on her face. It took about 10 seconds for her to fall asleep. That part was awful, but she was fine when she woke up. She had some juice and we went home. It will definitely be tougher on you. Just try to put on the brave face and cry later. The doctors said that it is really important for kids to see that their parents are not worried. Good luck!CarolynSubject: Sedation for MRI?To: mb12valtrex Date: Monday, August 29, 2011, 8:52 AM Hi. My daughter is having some issues with her eyes and it is a good possibility that an MRI of her head/brain will be suggested. Of course she will have to be sedated because she would never be still enough.... I am so afraid of any kind of sedation.....I'm not sure why, I guess just because I never give her any kind of RX with the exception of an Antibiotic when ABSOLUTELY NECESSARY.....and we all know how that can affect their behaviors. I was just looking for some input as to those of you who have been down this road and have any suggestions or input in the way of sedation and/or how your child reacted. Thanks. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2011 Report Share Posted August 29, 2011 Hello , My son had an MRI @ lucielle Packard children's hospital at Stanford and it put him into a 24 hour coma. His fever jumped to 105 and they couldn't break it. He was constantly monitored because he was in danger of organ failure and cardiac arrest. Another mom on this list told me of a condition that our kids can have called malignant hyperthermia. I looked it up and realized it is something I have to be very careful of for all of my children for their lifetimes. Doctors never told me any of this so I was very thankful for this list as the hospital made it seem like a freak reaction. It is inherited and if anyone in the family has had a reaction to anesthesia or prone to heat stroke there is a possibility that anesthesia could be problematic. Just wanted to warn you as my experience was hell. Look it up and read up on it so you know risk factors before making a decision. Hope this helps. kleinb14 wrote: >Hi. My daughter is having some issues with her eyes and it is a good possibility that an MRI of her head/brain will be suggested. Of course she will have to be sedated because she would never be still enough.... >I am so afraid of any kind of sedation.....I'm not sure why, I guess just because I never give her any kind of RX with the exception of an Antibiotic when ABSOLUTELY NECESSARY.....and we all know how that can affect their behaviors. > >I was just looking for some input as to those of you who have been down this road and have any suggestions or input in the way of sedation and/or how your child reacted. > >Thanks. >. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2011 Report Share Posted August 29, 2011 My son needed an MRI and we scheduled with a phone lady who I thought and she thought was placing us at the center with the MRI that has the movie player projected into it...well, it didn't (that is in St. Pete, she sent us to ). but I had luckily brought melatonin and benedryl. I was comofrtable using these b/c I have used these before without issue. Melatonin wasn't enough of a kick in the butt, so we needed to use the benedryl... he fell asleep and did great. The stuff they want to use is a drug that's been around since the 1800s (Chloral hydrate) I guess but it has possible cardiac risk, and my son has low blood pressure and a heart murmur so I didn't want to take the risk with it due to his heart defect (albeit small defect) Also I was told sometimes the Chloral hydrate didn't work, so I thought that was pretty dumb, b/c I knew benedryl always knocked my kids out. Also, if they are going to do a contrast, you want to look into the name of the stuff they want to inject. Some of those are scary too. :-(We ended up not doing contrast b/c it was a pretty powerful machine that did not require. Thank goodness because that was making me stress too! Hi. My daughter is having some issues with her eyes and it is a good possibility that an MRI of her head/brain will be suggested. Of course she will have to be sedated because she would never be still enough....I am so afraid of any kind of sedation.....I'm not sure why, I guess just because I never give her any kind of RX with the exception of an Antibiotic when ABSOLUTELY NECESSARY.....and we all know how that can affect their behaviors. I was just looking for some input as to those of you who have been down this road and have any suggestions or input in the way of sedation and/or how your child reacted.Thanks.. -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2011 Report Share Posted August 29, 2011 My son had cancer as a baby and had MRI”s for years. After he turned a year old he was able to have an IV sedative called propophol ( I’m not sure about the spelling). It was amazing. They put it in the IV and he immediately fell asleep. He woke up a short while after they stopped it, a bit groggy but otherwise OK. He had to have MRI’s for years after his treatment was finished to check to make sure he was still in remission and I remember taking him to school afterwards. Before a year we did chloral hydrate and it didn’t always work. --------------- Ezorsezor@... From: mb12valtrex [mailto:mb12valtrex ] On Behalf Of Toni Marie Lombardo Sent: Monday, August 29, 2011 10:48 PMTo: mb12valtrex Subject: Re: Sedation for MRI? My son needed an MRI and we scheduled with a phone lady who I thought and she thought was placing us at the center with the MRI that has the movie player projected into it...well, it didn't (that is in St. Pete, she sent us to ). but I had luckily brought melatonin and benedryl. I was comofrtable using these b/c I have used these before without issue. Melatonin wasn't enough of a kick in the butt, so we needed to use the benedryl... he fell asleep and did great. The stuff they want to use is a drug that's been around since the 1800s (Chloral hydrate) I guess but it has possible cardiac risk, and my son has low blood pressure and a heart murmur so I didn't want to take the risk with it due to his heart defect (albeit small defect)Also I was told sometimes the Chloral hydrate didn't work, so I thought that was pretty dumb, b/c I knew benedryl always knocked my kids out. Also, if they are going to do a contrast, you want to look into the name of the stuff they want to inject. Some of those are scary too. :-(We ended up not doing contrast b/c it was a pretty powerful machine that did not require. Thank goodness because that was making me stress too! Hi. My daughter is having some issues with her eyes and it is a good possibility that an MRI of her head/brain will be suggested. Of course she will have to be sedated because she would never be still enough....I am so afraid of any kind of sedation.....I'm not sure why, I guess just because I never give her any kind of RX with the exception of an Antibiotic when ABSOLUTELY NECESSARY.....and we all know how that can affect their behaviors.I was just looking for some input as to those of you who have been down this road and have any suggestions or input in the way of sedation and/or how your child reacted.Thanks..-- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2011 Report Share Posted August 30, 2011 When my son lost the ability to walk, he had MRIs and x-rays done. He had a terrible regression we saw in the recovery area. I told 2 nurses that there was something wrong. They told me it would " wear off. " My son went from a kid who the teacher had to come up with extra work for to catanonic. He could not use the bathroom or wash his hands by himself. He could not learn. We assume it was the NO and asked our local pediatric geneticist for a test. He refused. My son did not come around until we started tube feeding and began biomed. Kirkman's SNT, CLO, and MB12 brought him back. For his other procedures, propofol has been fine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2011 Report Share Posted September 2, 2011 My son just had a dental procedure under anesthesia in an OR. I know that he has the MTHFR mutation and I'm suspicious of other genetics *things* that effect metabolism. I was very clear about my concerns with the medical team, I insisted on no nitrous, and there is a drug that is known to cause sensory hallucinations that starts with a k,(ketamine??) so I asked for none of that. Our procedure was only an hour and my son did great. He was back to himself within a few hours and now, 3 weeks later, there has been no regression like I feared. I think we were lucky, but I feared the worst and things worked out ok. there is a helpful article on the ari.com website on anesthesia and ASD. That's what I used to state my case. I hope you figure out what is best for your situation! Best wishes... > > >Hi. My daughter is having some issues with her eyes and it is a good possibility that an MRI of her head/brain will be suggested. Of course she will have to be sedated because she would never be still enough.... > >I am so afraid of any kind of sedation.....I'm not sure why, I guess just because I never give her any kind of RX with the exception of an Antibiotic when ABSOLUTELY NECESSARY.....and we all know how that can affect their behaviors. > > > >I was just looking for some input as to those of you who have been down this road and have any suggestions or input in the way of sedation and/or how your child reacted. > > > >Thanks. > >. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2011 Report Share Posted September 4, 2011 Just avoid Nitrous Oxide or Laughing Gas. There have been cases of Permanent regressions after its use. Pamela From: mb12valtrex [mailto:mb12valtrex ] On Behalf Of kleinb14Sent: Monday, August 29, 2011 8:52 AMTo: mb12valtrex Subject: Sedation for MRI? Hi. My daughter is having some issues with her eyes and it is a good possibility that an MRI of her head/brain will be suggested. Of course she will have to be sedated because she would never be still enough....I am so afraid of any kind of sedation.....I'm not sure why, I guess just because I never give her any kind of RX with the exception of an Antibiotic when ABSOLUTELY NECESSARY.....and we all know how that can affect their behaviors.I was just looking for some input as to those of you who have been down this road and have any suggestions or input in the way of sedation and/or how your child reacted.Thanks.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 I am the same way. Our son had an MRI about 18 months ago at age 5. They gave him Propofol, which is the drug that killed . Yikes, right? However, our DAN told us that it was an " easy on, easy off " IV sedative, which it was. He went down easy and came right back with no ill effects, and I would do it again without a second thought. Good luck! Sent from my iPad Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2011 Report Share Posted September 5, 2011 Propofol is safe for most patients. and his doctor totally ABUSED that medication. Pamela From: mb12valtrex [mailto:mb12valtrex ] On Behalf Of UnterthinerSent: Monday, September 05, 2011 12:27 PMTo: mb12valtrex Subject: Re: Sedation for MRI? I am the same way. Our son had an MRI about 18 months ago at age 5. They gave him Propofol, which is the drug that killed . Yikes, right? However, our DAN told us that it was an " easy on, easy off " IV sedative, which it was. He went down easy and came right back with no ill effects, and I would do it again without a second thought.Good luck!Sent from my iPad Quote Link to comment Share on other sites More sharing options...
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