Guest guest Posted February 7, 2012 Report Share Posted February 7, 2012 I don't know anything about baking soda and ammonia. The only thing I know is that baking soda lowers Ph and the lower the Ph the less toxic ammonia is. <-----this comes from having a fish tank. ;)Honestly, I've never needed to do anything other than yucca so I never bothered looking into anything else. ~ Antiviral Therapy 101~~ gryffinstail.wordpress.com ~~ @Gryffins_Tail ~ Hi alexis,I'm not cheryl but I am wondering if he is having die off from the diflucan too (didnt you just start it?)?...does his behavior improve after charcoal? Are there any changes (better or worse) with the stool? Is he currently on the vancomycin or are you on a break?...ie could the aggression be clostridia flare?I have also heard the baking soda helps with ammonia too so if you are doing that still maybe it isn't ammonia...cheryl correct me if I am wrong on that one!-- Sent from my Palm Pre Cheryl, Really interesting info on ammonia. I am confused now about what I am dealing with these days. My son has been on vancomycin since december for clostridia (clinical diagnosis with symptoms only) and was also on nystatin. But after 4 weeks of vancomycin, it felt like he had yeast flare. So now he is on both vancomycin and fluconazole. He is very silly, laughs a lot, extremely stimmy, flapping, vocal stimms but at the same time, one cannot say no to him. He gets anxious if he has to wait for something especially food. Over the weekend, he had at least two episodes where he started crying for no apparent reason and then it progressed to screaming and crying with agitation. He even becomes physically aggressive a bit which is totally unlike him. When we started vancomycin, his agitation and anxiety had gotten a lot better. Now he is mostly silly and hyper with episodes of anger and crying. Could it be something other than yeast like ammonia? The last time we checked his ammonia levels, they were in the normal range. Also he is on gcmaf and I wonder if it is his immune system attacking some chronic viruses? We do see improvements in his eye contact, his academic performance has improved but only in his comfort zone and as soon as you make him do something which is a little difficult for him, he starts a screaming tantrum. I know I am presenting a crazy picture here but is it possible for you to explain what seems more likely here? Will really appreciate your help. is > > > Cheryl, > > What would u do for ammonia causing aggression? > > > > Cassie > > Sent on the Sprint® Now Network from my BlackBerry® > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2012 Report Share Posted February 7, 2012 Thanks Cheryl! I guess I will have to give more details as I agree that from my post it does seem like I started everything at the same time. So here is the detail: - We started Longvida curcumin towards the end of august 2011 - saw immediate improvement in eye contact, regained some of his lost spontaneous speech - OAT result showed yeast markers, started nystatin towards the end of september - slow improvement, no major die off - Switched to Enhansa in early october 2011, didn't notice any further improvement - Started gcmaf in mid-october, noticed improvement after 4th shot- improved eye contact, speech, attention, focus and showed more curiosity - Towards the end of november, started having screaming tantrums with crying, complained of chest pain and epigastric pain, stomach aches, increased skin sensitivity, severe ocd, anxiety, aggression - dan suggested clostridia which made sense as my son was getting both nystatin and enhansa. He had an old oat test which did show clostridia and before he could be treated, had appendicitis. Switched dan and repeat oat showed only yeast markers. Dan suggested a trial of vanco and believe it or not, his symptoms got at least 80 percent better after two weeks course. He recommends at least 4 rounds of 2 weeks treatment. We are on the last one. - Stopped enhansa towards the end of december as it was not helping and had a feeling that a lot of his symptoms came from it. - Beginning january, started showing hyperactivity, increased stimming, mouthing, foggy. Dan started cerefolin - couldn't tolerate. Caused increased aggression, switched to leucovorin - increased stimming, decreased the dose and now stopped it - Added back Longvida curcumin in second week of january to see if I get gains again and it did wonders again with a better eye contact, focus and speech. Tried increasing the dose but it caused sleep disturbance. - Fluconazole just came into the picture 5 days ago so I don't want to attribute the anger to die off as his anger returned one day before I started fluconazole. But definitely after starting fluconazole, stimming is totally crazy now. At school he is more verbal as per teachers. Playing skills have improved and although doesn't want to sit for any therapy sessions, does a good job overall. As soon as I ask him to do anything that he doesn't want to do, he makes a grunting sound and starts getting angry. More like defiant behavior. While I was waiting for your response, I was going thru all the dates in my notes and realized that may be this is all phenol related. My son gets a lot of good results with curcumin but has phenol sensitivity. These days I am trying no phenol and epsom salt foot soaks which help but he is getting too much phenols. This friday he had too much phenol containing foods at school and anger came back. So may be it is the phenol sensitivity symptoms along with yeast. He is getting fruit chips for snacks at school and now the teacher is using them for reinforcement also plus he gets curcumin and together it is too much phenol even with no phenol enzyme. I badly need some help from all of you in suggesting some healthy snacks for school as when I cut down potato chips and fruit snacks, school started complaining that my son is always hungry and that is the cause of his inattentiveness and mouthing. We are on the last round of vancomycin and after that we will be repeating OAT which would be in a couple of weeks. I hope this post gives a better idea of what we are dealing with right now. Thanks is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 Hi is, I've been thinking about you and try put a snack list together. But my son got a cold....... So anyway, send snack to school is hard because we have to think about yeast, phenol, gfcf etc . I don't know if you visit taca website they have good ideas. http://www.tacanow.org/family-resources/gfcf-food-shopping-list/ For my son I send pretzel (glutino), bar http://www.larabar.com/, cereal http://shop.barbarasbakery.com/, enjoy life has cookies http://www.enjoylifefoods.com/, nature path has a delicious waffle http://shop.naturespath.com/, udis has white bread that you can make sandwich http://udisglutenfree.com/, kinnick has a lot of things that taste good http://consumer.kinnikinnick.com/index.cfm/fuseaction/consumer.home.html. Basically you can find all of this products at whole foods. They make easy to find because they put a stick Gluten free. WF become one of my best friend. I never tried these but you can check Andi's gfcf bars www.autismndi.com , xylitol smoothie concentrate www.naturesflavors.com . Also you always can bake muffins with ground chicken turkey..... Hope this help you Take care Grace To: mb12valtrex Sent: Tuesday, February 7, 2012 11:52 PMSubject: Re: laughing Thanks Cheryl! I guess I will have to give more details as I agree that from my post it does seem like I started everything at the same time. So here is the detail:- We started Longvida curcumin towards the end of august 2011 - saw immediate improvement in eye contact, regained some of his lost spontaneous speech- OAT result showed yeast markers, started nystatin towards the end of september - slow improvement, no major die off- Switched to Enhansa in early october 2011, didn't notice any further improvement- Started gcmaf in mid-october, noticed improvement after 4th shot- improved eye contact, speech, attention, focus and showed more curiosity- Towards the end of november, started having screaming tantrums with crying, complained of chest pain and epigastric pain, stomach aches, increased skin sensitivity, severe ocd, anxiety, aggression - dan suggested clostridia which made sense as my son was getting both nystatin and enhansa. He had an old oat test which did show clostridia and before he could be treated, had appendicitis. Switched dan and repeat oat showed only yeast markers. Dan suggested a trial of vanco and believe it or not, his symptoms got at least 80 percent better after two weeks course. He recommends at least 4 rounds of 2 weeks treatment. We are on the last one. - Stopped enhansa towards the end of december as it was not helping and had a feeling that a lot of his symptoms came from it.- Beginning january, started showing hyperactivity, increased stimming, mouthing, foggy. Dan started cerefolin - couldn't tolerate. Caused increased aggression, switched to leucovorin - increased stimming, decreased the dose and now stopped it- Added back Longvida curcumin in second week of january to see if I get gains again and it did wonders again with a better eye contact, focus and speech. Tried increasing the dose but it caused sleep disturbance. - Fluconazole just came into the picture 5 days ago so I don't want to attribute the anger to die off as his anger returned one day before I started fluconazole. But definitely after starting fluconazole, stimming is totally crazy now. At school he is more verbal as per teachers. Playing skills have improved and although doesn't want to sit for any therapy sessions, does a good job overall. As soon as I ask him to do anything that he doesn't want to do, he makes a grunting sound and starts getting angry. More like defiant behavior. While I was waiting for your response, I was going thru all the dates in my notes and realized that may be this is all phenol related. My son gets a lot of good results with curcumin but has phenol sensitivity. These days I am trying no phenol and epsom salt foot soaks which help but he is getting too much phenols. This friday he had too much phenol containing foods at school and anger came back. So may be it is the phenol sensitivity symptoms along with yeast. He is getting fruit chips for snacks at school and now the teacher is using them for reinforcement also plus he gets curcumin and together it is too much phenol even with no phenol enzyme. I badly need some help from all of you in suggesting some healthy snacks for school as when I cut down potato chips and fruit snacks, school started complaining that my son is always hungry and that is the cause of his inattentiveness and mouthing. We are on the last round of vancomycin and after that we will be repeating OAT which would be in a couple of weeks. I hope this post gives a better idea of what we are dealing with right now.Thanksis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 Awesome post,Grace. How have I never seen Natures Flavors before????! Sent from my Kindle Fire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 When my son has high ammonia he wakes in the middle of the night and is just go, go ,go for hours. Ammonia can be from die off, parasites or from clostridia. He is not really giggly from it. Sometimes he actually looks good as in social when his ammonia is high, just incredibly hyper and wakes at night an stays up for hours. Recently he has been flaring clostridia when I push too hard on the yeast, including too much biotin. He has also been known to pinch people when his ammonia is high. For my son, yeast is the giggly one. He always flares yeast when treating with flagyl or anything that kills clostridia. When he is yeasty he has trouble falling asleep, wakes early and giggles way too much and starts eating more and requesting starches. He may ignore directions and questions and may climb onto and jump off furniture. My son also gets yeasty when we are killing viruses. I agree with trying charcoal. Also, my son does better on ketaconazole than on diflucan. Herbs are often good when you are not sure you are dealing with. For my son, crying or aggression Or even poor transitions are all bacterial. He takes augmentin and bactrum and we haven't had those issues for years. make notes and a flow chart for each med he takes and record both behaviors improvements and then the negative behaviors that follow. Usually for us I can trace it to what it is killing and what it is flaring. > > & gt; > > & gt; & gt; Cheryl, > > & gt; & gt; What would u do for ammonia causing aggression? > > & gt; & gt; > > & gt; & gt; Cassie > > & gt; & gt; Sent on the Sprint® Now Network from my BlackBerry® > > & gt; & gt; > > & gt; > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 Yes, that helps a lot. Comments within: ~ Antiviral Therapy 101~~ gryffinstail.wordpress.com ~~ @Gryffins_Tail ~ Thanks Cheryl! I guess I will have to give more details as I agree that from my post it does seem like I started everything at the same time. So here is the detail: - We started Longvida curcumin towards the end of august 2011 - saw immediate improvement in eye contact, regained some of his lost spontaneous speech - OAT result showed yeast markers, started nystatin towards the end of september - slow improvement, no major die off - Switched to Enhansa in early october 2011, didn't notice any further improvement - Started gcmaf in mid-october, noticed improvement after 4th shot- improved eye contact, speech, attention, focus and showed more curiosity - Towards the end of november, started having screaming tantrums with crying, complained of chest pain and epigastric pain, stomach aches, increased skin sensitivity, severe ocd, anxiety, aggression - dan suggested clostridia which made sense as my son was getting both nystatin and enhansa. He had an old oat test which did show clostridia and before he could be treated, had appendicitis. Switched dan and repeat oat showed only yeast markers. Dan suggested a trial of vanco and believe it or not, his symptoms got at least 80 percent better after two weeks course. He recommends at least 4 rounds of 2 weeks treatment. We are on the last one. - Stopped enhansa towards the end of december as it was not helping and had a feeling that a lot of his symptoms came from it.so does that mean things got better when you pulled it? - Beginning january, started showing hyperactivity, increased stimming, mouthing, foggy. Dan started cerefolin - couldn't tolerate. Caused increased aggression, switched to leucovorin - increased stimming, decreased the dose and now stopped itSo at this point you are on vanco, gcmaf, and nystatin? - Added back Longvida curcumin in second week of january to see if I get gains again and it did wonders again with a better eye contact, focus and speech. Tried increasing the dose but it caused sleep disturbance. So now you know Longvida curcumin is better than Enhansa for you. Don't use Enhansa again. - Fluconazole just came into the picture 5 days ago so I don't want to attribute the anger to die off as his anger returned one day before I started fluconazole. But definitely after starting fluconazole, stimming is totally crazy now. At school he is more verbal as per teachers. Playing skills have improved and although doesn't want to sit for any therapy sessions, does a good job overall. As soon as I ask him to do anything that he doesn't want to do, he makes a grunting sound and starts getting angry. More like defiant behavior. So far could be anything from ammonia, bacteria, or… While I was waiting for your response, I was going thru all the dates in my notes Yay! See they're great!!!! ;)and realized that may be this is all phenol related. Aaaaaand there it is. Sounds like you figured it out.My son gets a lot of good results with curcumin but has phenol sensitivity. These days I am trying no phenol and epsom salt foot soaks which help but he is getting too much phenols. This friday he had too much phenol containing foods at school and anger came back. So may be it is the phenol sensitivity symptoms along with yeast. Are you watching to see what symptoms go *away* while on the anti fungal and taking copious notes?He is getting fruit chips for snacks at school and now the teacher is using them for reinforcement also plus he gets curcumin and together it is too much phenol even with no phenol enzyme. I badly need some help from all of you in suggesting some healthy snacks for school as when I cut down potato chips and fruit snacks, Got nothing. Diet isn't an issue in my house but it seems like you've already gotten a good response from someone else on that front anyway.school started complaining that my son is always hungry and that is the cause of his inattentiveness and mouthing. mouthing in my house is yeast. Inattentiveness - well, that's ADD in my house and no amount of biomed has ever touched it. We are on the last round of vancomycin and after that we will be repeating OAT which would be in a couple of weeks. I hope this post gives a better idea of what we are dealing with right now.You might want to get a better handle on what phenol symptoms look like in your son since he's so sensitive. That's something you might want to keep on the top of your list of things that you should know off the top of your head so you don't spend a bunch of time wondering about it before going to your notes. I had 3 things memorized as soon as I learned them: yeast, viral, ammonia. It took a while for me to figure out the ammonia but once it clicked that *that* was the problem, I made sure that that went to the top of my list of things to consider *first*.If you do think it's possible that it's ammonia - either from phenols or whatever, try giving some yucca. It won't hurt anything, no toxicity level or such.But before you do that, I would try to clear the phenol intake and see what *that* improves to get a better idea of what his phenol intolerance looks like. *Then* you can try the yucca. Yes, it's slower than just doing both at the same time. But it's more efficient to just do it now than it is to wonder what it is every single time there's a regression.I think I need to put my biomed book link into my sig like my antiviral link… Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 Thanks Tammy! A nutritionist that works w/ ASD kids told me about that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 Hi is. I forgot to mention a couple snack ideas. schar sells good stuff too http://www.schar.com/us/ Froose sells gf juice http://froose.com/ good belly a dairy free/ probiotic drink http://www.goodbelly.com/ bolthouse a gluten free drink http://bolthouse.com/our-products Vitaminwater sells a naturally sweetened one.Again you can buy everything at WF. Bolthouse juice is cheaper at Sam's club. Hope your litlle one feels better Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 Things did get better when I stopped Enhansa. Things also improved after just 3 days of vancomycin. Reintroducing Longvida gave him gains and now it is clear that he does get help with longvida but gets phenol sensitivity symptoms. But still Longvida is better than enhansa as at least I get benefits. Yes I am maintaining all the notes since we started with the current dan. But a lot of symptoms of yeast and phenol sensitivity overlap and sometimes it helps if you discuss the list of issues with someone as it helps to understand things better. Initially, I had no idea that curcumin was causing any problems and then one of our friends on the forum started having trouble with curcumin also which made me research it and thats when I found the info on phenol sensitivity. I am definitely not that experienced with the biomed and still going through learning phase. This forum has helped me a lot and each post that I read has some kind of learning potential. I believe that we all learn from each other's experiences and of course it is awesome to share our knowledge with others. I am sorry that I bothered you so much with so many questions that you feel the need to add your biomed book link to your signature. People like me will still be asking questions all the time as I know that at least I am at a level where I am still always saying " Aaaaaah! why didn't I think of it before " . Thanks is > > > Thanks Cheryl! I guess I will have to give more details as I agree that from my post it does seem like I started everything at the same time. So here is the detail: > > - We started Longvida curcumin towards the end of august 2011 - saw immediate improvement in eye contact, regained some of his lost spontaneous speech > > - OAT result showed yeast markers, started nystatin towards the end of september - slow improvement, no major die off > > - Switched to Enhansa in early october 2011, didn't notice any further improvement > > - Started gcmaf in mid-october, noticed improvement after 4th shot- improved eye contact, speech, attention, focus and showed more curiosity > > - Towards the end of november, started having screaming tantrums with crying, complained of chest pain and epigastric pain, stomach aches, increased skin sensitivity, severe ocd, anxiety, aggression - dan suggested clostridia which made sense as my son was getting both nystatin and enhansa. He had an old oat test which did show clostridia and before he could be treated, had appendicitis. Switched dan and repeat oat showed only yeast markers. Dan suggested a trial of vanco and believe it or not, his symptoms got at least 80 percent better after two weeks course. He recommends at least 4 rounds of 2 weeks treatment. We are on the last one. > > - Stopped enhansa towards the end of december as it was not helping and had a feeling that a lot of his symptoms came from it. > > > so does that mean things got better when you pulled it? > > > - Beginning january, started showing hyperactivity, increased stimming, mouthing, foggy. Dan started cerefolin - couldn't tolerate. Caused increased aggression, switched to leucovorin - increased stimming, decreased the dose and now stopped it > > > So at this point you are on vanco, gcmaf, and nystatin? > > > - Added back Longvida curcumin in second week of january to see if I get gains again and it did wonders again with a better eye contact, focus and speech. Tried increasing the dose but it caused sleep disturbance. > > > So now you know Longvida curcumin is better than Enhansa for you. Don't use Enhansa again. > > > - Fluconazole just came into the picture 5 days ago so I don't want to attribute the anger to die off as his anger returned one day before I started fluconazole. But definitely after starting fluconazole, stimming is totally crazy now. At school he is more verbal as per teachers. Playing skills have improved and although doesn't want to sit for any therapy sessions, does a good job overall. As soon as I ask him to do anything that he doesn't want to do, he makes a grunting sound and starts getting angry. More like defiant behavior. > > > > > So far could be anything from ammonia, bacteria, or > > > While I was waiting for your response, I was going thru all the dates in my notes > > > Yay! See they're great!!!! > > > and realized that may be this is all phenol related. > > > Aaaaaand there it is. Sounds like you figured it out. > > > My son gets a lot of good results with curcumin but has phenol sensitivity. These days I am trying no phenol and epsom salt foot soaks which help but he is getting too much phenols. This friday he had too much phenol containing foods at school and anger came back. So may be it is the phenol sensitivity symptoms along with yeast. > > > Are you watching to see what symptoms go *away* while on the anti fungal and taking copious notes? > > > He is getting fruit chips for snacks at school and now the teacher is using them for reinforcement also plus he gets curcumin and together it is too much phenol even with no phenol enzyme. I badly need some help from all of you in suggesting some healthy snacks for school as when I cut down potato chips and fruit snacks, > > > Got nothing. Diet isn't an issue in my house but it seems like you've already gotten a good response from someone else on that front anyway. > > > school started complaining that my son is always hungry and that is the cause of his inattentiveness and mouthing. > > > mouthing in my house is yeast. Inattentiveness - well, that's ADD in my house and no amount of biomed has ever touched it. > > > We are on the last round of vancomycin and after that we will be repeating OAT which would be in a couple of weeks. I hope this post gives a better idea of what we are dealing with right now. > > > You might want to get a better handle on what phenol symptoms look like in your son since he's so sensitive. That's something you might want to keep on the top of your list of things that you should know off the top of your head so you don't spend a bunch of time wondering about it before going to your notes. I had 3 things memorized as soon as I learned them: yeast, viral, ammonia. It took a while for me to figure out the ammonia but once it clicked that *that* was the problem, I made sure that that went to the top of my list of things to consider *first*. > > If you do think it's possible that it's ammonia - either from phenols or whatever, try giving some yucca. It won't hurt anything, no toxicity level or such. > > But before you do that, I would try to clear the phenol intake and see what *that* improves to get a better idea of what his phenol intolerance looks like. *Then* you can try the yucca. Yes, it's slower than just doing both at the same time. But it's more efficient to just do it now than it is to wonder what it is every single time there's a regression. > > I think I need to put my biomed book link into my sig like my antiviral link > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 You are awesome Grace. Right now I am so excited with all the links that you suggested. Just have a question for you. A lot of snacks that are GF have a high carb content. How would it influence yeast flare? I love the idea of chicken/turkey muffins. What flour do you use to make those and do you make it low carb? I think now I am motivated to start baking again especially some cookies and muffins so I could use them as snacks for school. I am trying to cut phenols also so I will stay away from fruit snacks. I will start exploring all the links and will let you know what options work for me. Again thank you so much for all this help. is > > Hi is. I forgot to mention a couple snack ideas. > schar sells good stuff too http://www.schar.com/us/ > Froose sells gf juice http://froose.com/ > good belly a dairy free/ probiotic drink http://www.goodbelly.com/ > bolthouse a gluten free drink http://bolthouse.com/our-products > Vitaminwater sells a naturally sweetened one.Again you can buy everything at WF. Bolthouse juice is cheaper at Sam's club. > Hope your litlle one feels better > Grace > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 Oh no, I didn't mean to give you the impression you were bothering me! Not at all. I was just stream-of-consciousness thinking that it might be helpful to others to just have it at my signature to see what I'm talking about when I say take notes. It wasn't really for you specifically. I'm sorry you felt like I was being snarky. I honestly wasn't intending that or even noticed that it sounded that way.My main thing about you knowing that he has phenol issues is this: don't do enhansa or Longvida if you know he can't tolerate it. It really doesn't matter that the Longvida helps, if he's sensitive to it and causes a physical reaction that you know you can trace to phenols, then don't give it. Don't try to treat the reaction to it just because it does somethings well. By doing that, you're just piling more stuff into the mix. Instead, find something else that does what you are giving the curcumin for that isn't curcumin. ~ Antiviral Therapy 101~~ gryffinstail.wordpress.com ~~ @Gryffins_Tail ~ Things did get better when I stopped Enhansa. Things also improved after just 3 days of vancomycin. Reintroducing Longvida gave him gains and now it is clear that he does get help with longvida but gets phenol sensitivity symptoms. But still Longvida is better than enhansa as at least I get benefits. Yes I am maintaining all the notes since we started with the current dan. But a lot of symptoms of yeast and phenol sensitivity overlap and sometimes it helps if you discuss the list of issues with someone as it helps to understand things better. Initially, I had no idea that curcumin was causing any problems and then one of our friends on the forum started having trouble with curcumin also which made me research it and thats when I found the info on phenol sensitivity. I am definitely not that experienced with the biomed and still going through learning phase. This forum has helped me a lot and each post that I read has some kind of learning potential. I believe that we all learn from each other's experiences and of course it is awesome to share our knowledge with others. I am sorry that I bothered you so much with so many questions that you feel the need to add your biomed book link to your signature. People like me will still be asking questions all the time as I know that at least I am at a level where I am still always saying "Aaaaaah! why didn't I think of it before". Thanks is > > > Thanks Cheryl! I guess I will have to give more details as I agree that from my post it does seem like I started everything at the same time. So here is the detail: > > - We started Longvida curcumin towards the end of august 2011 - saw immediate improvement in eye contact, regained some of his lost spontaneous speech > > - OAT result showed yeast markers, started nystatin towards the end of september - slow improvement, no major die off > > - Switched to Enhansa in early october 2011, didn't notice any further improvement > > - Started gcmaf in mid-october, noticed improvement after 4th shot- improved eye contact, speech, attention, focus and showed more curiosity > > - Towards the end of november, started having screaming tantrums with crying, complained of chest pain and epigastric pain, stomach aches, increased skin sensitivity, severe ocd, anxiety, aggression - dan suggested clostridia which made sense as my son was getting both nystatin and enhansa. He had an old oat test which did show clostridia and before he could be treated, had appendicitis. Switched dan and repeat oat showed only yeast markers. Dan suggested a trial of vanco and believe it or not, his symptoms got at least 80 percent better after two weeks course. He recommends at least 4 rounds of 2 weeks treatment. We are on the last one. > > - Stopped enhansa towards the end of december as it was not helping and had a feeling that a lot of his symptoms came from it. > > > so does that mean things got better when you pulled it? > > > - Beginning january, started showing hyperactivity, increased stimming, mouthing, foggy. Dan started cerefolin - couldn't tolerate. Caused increased aggression, switched to leucovorin - increased stimming, decreased the dose and now stopped it > > > So at this point you are on vanco, gcmaf, and nystatin? > > > - Added back Longvida curcumin in second week of january to see if I get gains again and it did wonders again with a better eye contact, focus and speech. Tried increasing the dose but it caused sleep disturbance. > > > So now you know Longvida curcumin is better than Enhansa for you. Don't use Enhansa again. > > > - Fluconazole just came into the picture 5 days ago so I don't want to attribute the anger to die off as his anger returned one day before I started fluconazole. But definitely after starting fluconazole, stimming is totally crazy now. At school he is more verbal as per teachers. Playing skills have improved and although doesn't want to sit for any therapy sessions, does a good job overall. As soon as I ask him to do anything that he doesn't want to do, he makes a grunting sound and starts getting angry. More like defiant behavior. > > > > > So far could be anything from ammonia, bacteria, or… > > > While I was waiting for your response, I was going thru all the dates in my notes > > > Yay! See they're great!!!! > > > and realized that may be this is all phenol related. > > > Aaaaaand there it is. Sounds like you figured it out. > > > My son gets a lot of good results with curcumin but has phenol sensitivity. These days I am trying no phenol and epsom salt foot soaks which help but he is getting too much phenols. This friday he had too much phenol containing foods at school and anger came back. So may be it is the phenol sensitivity symptoms along with yeast. > > > Are you watching to see what symptoms go *away* while on the anti fungal and taking copious notes? > > > He is getting fruit chips for snacks at school and now the teacher is using them for reinforcement also plus he gets curcumin and together it is too much phenol even with no phenol enzyme. I badly need some help from all of you in suggesting some healthy snacks for school as when I cut down potato chips and fruit snacks, > > > Got nothing. Diet isn't an issue in my house but it seems like you've already gotten a good response from someone else on that front anyway. > > > school started complaining that my son is always hungry and that is the cause of his inattentiveness and mouthing. > > > mouthing in my house is yeast. Inattentiveness - well, that's ADD in my house and no amount of biomed has ever touched it. > > > We are on the last round of vancomycin and after that we will be repeating OAT which would be in a couple of weeks. I hope this post gives a better idea of what we are dealing with right now. > > > You might want to get a better handle on what phenol symptoms look like in your son since he's so sensitive. That's something you might want to keep on the top of your list of things that you should know off the top of your head so you don't spend a bunch of time wondering about it before going to your notes. I had 3 things memorized as soon as I learned them: yeast, viral, ammonia. It took a while for me to figure out the ammonia but once it clicked that *that* was the problem, I made sure that that went to the top of my list of things to consider *first*. > > If you do think it's possible that it's ammonia - either from phenols or whatever, try giving some yucca. It won't hurt anything, no toxicity level or such. > > But before you do that, I would try to clear the phenol intake and see what *that* improves to get a better idea of what his phenol intolerance looks like. *Then* you can try the yucca. Yes, it's slower than just doing both at the same time. But it's more efficient to just do it now than it is to wonder what it is every single time there's a regression. > > I think I need to put my biomed book link into my sig like my antiviral link… > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 Caryn, How does your son take augmentin and bactrim? Is he on a few weeks on and few weeks off cycle? How much biotin are u using for yeast control? And yes my son takes activated charcoal a couple hours after fluconazole and also epsom salt foot soaks-both help. Thanks is > > > > & gt; > > > > & gt; & gt; Cheryl, > > > > & gt; & gt; What would u do for ammonia causing aggression? > > > > & gt; & gt; > > > > & gt; & gt; Cassie > > > > & gt; & gt; Sent on the Sprint® Now Network from my BlackBerry® > > > > & gt; & gt; > > > > & gt; > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 Cheryl, I didn't feel like you were being snarky. I was just too embarassed with all my questions as sometimes I feel like I need detox too!:)Especially for yeast. What you are saying about Longvida makes sense but you know this is the first supplement/remedy or whatever we can call it that brought my son back to me after two years of being lost in his world. But of course if it is harming him in any way, I don't want to use it. I am concentrating on this issue now. I will take away the high phenolic foods, add no phenol with longvida, use magnesium sulfate cream and continue with foot soaks (all these ideas from danasview). If he continues to have issues then will say goodbye to longvida. My son is in oxidative stress. He couldn't tolerate vitamin c even the tapioca source. I have thought about Pycnogenol but havn't heard much about it from parents. Alberta mentioned astaxanthin which I have to explore also. If I can get a good antioxidant for him, that would be great. Thanks is > > > > > > > Thanks Cheryl! I guess I will have to give more details as I agree that from my post it does seem like I started everything at the same time. So here is the detail: > > > > - We started Longvida curcumin towards the end of august 2011 - saw immediate improvement in eye contact, regained some of his lost spontaneous speech > > > > - OAT result showed yeast markers, started nystatin towards the end of september - slow improvement, no major die off > > > > - Switched to Enhansa in early october 2011, didn't notice any further improvement > > > > - Started gcmaf in mid-october, noticed improvement after 4th shot- improved eye contact, speech, attention, focus and showed more curiosity > > > > - Towards the end of november, started having screaming tantrums with crying, complained of chest pain and epigastric pain, stomach aches, increased skin sensitivity, severe ocd, anxiety, aggression - dan suggested clostridia which made sense as my son was getting both nystatin and enhansa. He had an old oat test which did show clostridia and before he could be treated, had appendicitis. Switched dan and repeat oat showed only yeast markers. Dan suggested a trial of vanco and believe it or not, his symptoms got at least 80 percent better after two weeks course. He recommends at least 4 rounds of 2 weeks treatment. We are on the last one. > > > > - Stopped enhansa towards the end of december as it was not helping and had a feeling that a lot of his symptoms came from it. > > > > > > > so does that mean things got better when you pulled it? > > > > > > > - Beginning january, started showing hyperactivity, increased stimming, mouthing, foggy. Dan started cerefolin - couldn't tolerate. Caused increased aggression, switched to leucovorin - increased stimming, decreased the dose and now stopped it > > > > > > > So at this point you are on vanco, gcmaf, and nystatin? > > > > > > > - Added back Longvida curcumin in second week of january to see if I get gains again and it did wonders again with a better eye contact, focus and speech. Tried increasing the dose but it caused sleep disturbance. > > > > > > > So now you know Longvida curcumin is better than Enhansa for you. Don't use Enhansa again. > > > > > > > - Fluconazole just came into the picture 5 days ago so I don't want to attribute the anger to die off as his anger returned one day before I started fluconazole. But definitely after starting fluconazole, stimming is totally crazy now. At school he is more verbal as per teachers. Playing skills have improved and although doesn't want to sit for any therapy sessions, does a good job overall. As soon as I ask him to do anything that he doesn't want to do, he makes a grunting sound and starts getting angry. More like defiant behavior. > > > > > > > > > > > So far could be anything from ammonia, bacteria, or > > > > > > > While I was waiting for your response, I was going thru all the dates in my notes > > > > > > > Yay! See they're great!!!! > > > > > > > and realized that may be this is all phenol related. > > > > > > > Aaaaaand there it is. Sounds like you figured it out. > > > > > > > My son gets a lot of good results with curcumin but has phenol sensitivity. These days I am trying no phenol and epsom salt foot soaks which help but he is getting too much phenols. This friday he had too much phenol containing foods at school and anger came back. So may be it is the phenol sensitivity symptoms along with yeast. > > > > > > > Are you watching to see what symptoms go *away* while on the anti fungal and taking copious notes? > > > > > > > He is getting fruit chips for snacks at school and now the teacher is using them for reinforcement also plus he gets curcumin and together it is too much phenol even with no phenol enzyme. I badly need some help from all of you in suggesting some healthy snacks for school as when I cut down potato chips and fruit snacks, > > > > > > > Got nothing. Diet isn't an issue in my house but it seems like you've already gotten a good response from someone else on that front anyway. > > > > > > > school started complaining that my son is always hungry and that is the cause of his inattentiveness and mouthing. > > > > > > > mouthing in my house is yeast. Inattentiveness - well, that's ADD in my house and no amount of biomed has ever touched it. > > > > > > > We are on the last round of vancomycin and after that we will be repeating OAT which would be in a couple of weeks. I hope this post gives a better idea of what we are dealing with right now. > > > > > > > You might want to get a better handle on what phenol symptoms look like in your son since he's so sensitive. That's something you might want to keep on the top of your list of things that you should know off the top of your head so you don't spend a bunch of time wondering about it before going to your notes. I had 3 things memorized as soon as I learned them: yeast, viral, ammonia. It took a while for me to figure out the ammonia but once it clicked that *that* was the problem, I made sure that that went to the top of my list of things to consider *first*. > > > > > > If you do think it's possible that it's ammonia - either from phenols or whatever, try giving some yucca. It won't hurt anything, no toxicity level or such. > > > > > > But before you do that, I would try to clear the phenol intake and see what *that* improves to get a better idea of what his phenol intolerance looks like. *Then* you can try the yucca. Yes, it's slower than just doing both at the same time. But it's more efficient to just do it now than it is to wonder what it is every single time there's a regression. > > > > > > I think I need to put my biomed book link into my sig like my antiviral link > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 I've heard nothing but wonderful things about pycnogenol. Never used it myself. ~ Antiviral Therapy 101~~ gryffinstail.wordpress.com ~~ @Gryffins_Tail ~ Cheryl, I didn't feel like you were being snarky. I was just too embarassed with all my questions as sometimes I feel like I need detox too!:)Especially for yeast. What you are saying about Longvida makes sense but you know this is the first supplement/remedy or whatever we can call it that brought my son back to me after two years of being lost in his world. But of course if it is harming him in any way, I don't want to use it. I am concentrating on this issue now. I will take away the high phenolic foods, add no phenol with longvida, use magnesium sulfate cream and continue with foot soaks (all these ideas from danasview). If he continues to have issues then will say goodbye to longvida. My son is in oxidative stress. He couldn't tolerate vitamin c even the tapioca source. I have thought about Pycnogenol but havn't heard much about it from parents. Alberta mentioned astaxanthin which I have to explore also. If I can get a good antioxidant for him, that would be great. Thanks is > > > > > > > Thanks Cheryl! I guess I will have to give more details as I agree that from my post it does seem like I started everything at the same time. So here is the detail: > > > > - We started Longvida curcumin towards the end of august 2011 - saw immediate improvement in eye contact, regained some of his lost spontaneous speech > > > > - OAT result showed yeast markers, started nystatin towards the end of september - slow improvement, no major die off > > > > - Switched to Enhansa in early october 2011, didn't notice any further improvement > > > > - Started gcmaf in mid-october, noticed improvement after 4th shot- improved eye contact, speech, attention, focus and showed more curiosity > > > > - Towards the end of november, started having screaming tantrums with crying, complained of chest pain and epigastric pain, stomach aches, increased skin sensitivity, severe ocd, anxiety, aggression - dan suggested clostridia which made sense as my son was getting both nystatin and enhansa. He had an old oat test which did show clostridia and before he could be treated, had appendicitis. Switched dan and repeat oat showed only yeast markers. Dan suggested a trial of vanco and believe it or not, his symptoms got at least 80 percent better after two weeks course. He recommends at least 4 rounds of 2 weeks treatment. We are on the last one. > > > > - Stopped enhansa towards the end of december as it was not helping and had a feeling that a lot of his symptoms came from it. > > > > > > > so does that mean things got better when you pulled it? > > > > > > > - Beginning january, started showing hyperactivity, increased stimming, mouthing, foggy. Dan started cerefolin - couldn't tolerate. Caused increased aggression, switched to leucovorin - increased stimming, decreased the dose and now stopped it > > > > > > > So at this point you are on vanco, gcmaf, and nystatin? > > > > > > > - Added back Longvida curcumin in second week of january to see if I get gains again and it did wonders again with a better eye contact, focus and speech. Tried increasing the dose but it caused sleep disturbance. > > > > > > > So now you know Longvida curcumin is better than Enhansa for you. Don't use Enhansa again. > > > > > > > - Fluconazole just came into the picture 5 days ago so I don't want to attribute the anger to die off as his anger returned one day before I started fluconazole. But definitely after starting fluconazole, stimming is totally crazy now. At school he is more verbal as per teachers. Playing skills have improved and although doesn't want to sit for any therapy sessions, does a good job overall. As soon as I ask him to do anything that he doesn't want to do, he makes a grunting sound and starts getting angry. More like defiant behavior. > > > > > > > > > > > So far could be anything from ammonia, bacteria, or… > > > > > > > While I was waiting for your response, I was going thru all the dates in my notes > > > > > > > Yay! See they're great!!!! > > > > > > > and realized that may be this is all phenol related. > > > > > > > Aaaaaand there it is. Sounds like you figured it out. > > > > > > > My son gets a lot of good results with curcumin but has phenol sensitivity. These days I am trying no phenol and epsom salt foot soaks which help but he is getting too much phenols. This friday he had too much phenol containing foods at school and anger came back. So may be it is the phenol sensitivity symptoms along with yeast. > > > > > > > Are you watching to see what symptoms go *away* while on the anti fungal and taking copious notes? > > > > > > > He is getting fruit chips for snacks at school and now the teacher is using them for reinforcement also plus he gets curcumin and together it is too much phenol even with no phenol enzyme. I badly need some help from all of you in suggesting some healthy snacks for school as when I cut down potato chips and fruit snacks, > > > > > > > Got nothing. Diet isn't an issue in my house but it seems like you've already gotten a good response from someone else on that front anyway. > > > > > > > school started complaining that my son is always hungry and that is the cause of his inattentiveness and mouthing. > > > > > > > mouthing in my house is yeast. Inattentiveness - well, that's ADD in my house and no amount of biomed has ever touched it. > > > > > > > We are on the last round of vancomycin and after that we will be repeating OAT which would be in a couple of weeks. I hope this post gives a better idea of what we are dealing with right now. > > > > > > > You might want to get a better handle on what phenol symptoms look like in your son since he's so sensitive. That's something you might want to keep on the top of your list of things that you should know off the top of your head so you don't spend a bunch of time wondering about it before going to your notes. I had 3 things memorized as soon as I learned them: yeast, viral, ammonia. It took a while for me to figure out the ammonia but once it clicked that *that* was the problem, I made sure that that went to the top of my list of things to consider *first*. > > > > > > If you do think it's possible that it's ammonia - either from phenols or whatever, try giving some yucca. It won't hurt anything, no toxicity level or such. > > > > > > But before you do that, I would try to clear the phenol intake and see what *that* improves to get a better idea of what his phenol intolerance looks like. *Then* you can try the yucca. Yes, it's slower than just doing both at the same time. But it's more efficient to just do it now than it is to wonder what it is every single time there's a regression. > > > > > > I think I need to put my biomed book link into my sig like my antiviral link… > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 is I became a little lazy baking things for my kids! I still cook a lot! But when I decided to bake I use a short cut. I use a pre mix muffin/cookie (gluten free pantry) and then I add the organic ground chicken. For yeast flares when he wakes up I give him GSE (5 drops sometimes more)+ 1 cap syntol + 1 cap candex in oj. When I started the biomed w/ DS I had a nutritionist to help me. She sent me a folder with a lot good website. At that time I had so much to learn, to do, to spend that I didn't check some of them...... like I sad I can survive w/ the thinks that I can buy at WF. I live in NJ and shop rite (live right section) have a lot of things too. Here some resourses for GFCF mixes that she sent me: www.reallygreatfood.com www.namaste.com (it's available in WF and some shop rite) www.thecravingsplace.com www.breadsfromanna.com I never used but you also can bake w/ nut flours but then oxalate.......... http://www.digestivewellness.com/subcategoryitems-digestive_wellness_scd_legal_food-nut_flours-24-11.html Good luck Grace To: mb12valtrex Sent: Wednesday, February 8, 2012 1:16 PMSubject: Re: laughing You are awesome Grace. Right now I am so excited with all the links that you suggested. Just have a question for you. A lot of snacks that are GF have a high carb content. How would it influence yeast flare? I love the idea of chicken/turkey muffins. What flour do you use to make those and do you make it low carb? I think now I am motivated to start baking again especially some cookies and muffins so I could use them as snacks for school. I am trying to cut phenols also so I will stay away from fruit snacks. I will start exploring all the links and will let you know what options work for me. Again thank you so much for all this help. is>> Hi is. I forgot to mention a couple snack ideas.> schar sells good stuff too http://www.schar.com/us/> Froose sells gf juice http://froose.com/> good belly a dairy free/ probiotic drink http://www.goodbelly.com/> bolthouse a gluten free drink http://bolthouse.com/our-products > Vitaminwater sells a naturally sweetened one.Again you can buy everything at WF. Bolthouse juice is cheaper at Sam's club. > Hope your litlle one feels better> Grace> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 quercetin is an antioxidant and anti-histamine as well. we can't go for very many days without it here. Cheryl, I didn't feel like you were being snarky. I was just too embarassed with all my questions as sometimes I feel like I need detox too!:)Especially for yeast. What you are saying about Longvida makes sense but you know this is the first supplement/remedy or whatever we can call it that brought my son back to me after two years of being lost in his world. But of course if it is harming him in any way, I don't want to use it. I am concentrating on this issue now. I will take away the high phenolic foods, add no phenol with longvida, use magnesium sulfate cream and continue with foot soaks (all these ideas from danasview). If he continues to have issues then will say goodbye to longvida. My son is in oxidative stress. He couldn't tolerate vitamin c even the tapioca source. I have thought about Pycnogenol but havn't heard much about it from parents. Alberta mentioned astaxanthin which I have to explore also. If I can get a good antioxidant for him, that would be great. Thanks is > > > > > > > Thanks Cheryl! I guess I will have to give more details as I agree that from my post it does seem like I started everything at the same time. So here is the detail: > > > > - We started Longvida curcumin towards the end of august 2011 - saw immediate improvement in eye contact, regained some of his lost spontaneous speech > > > > - OAT result showed yeast markers, started nystatin towards the end of september - slow improvement, no major die off > > > > - Switched to Enhansa in early october 2011, didn't notice any further improvement > > > > - Started gcmaf in mid-october, noticed improvement after 4th shot- improved eye contact, speech, attention, focus and showed more curiosity > > > > - Towards the end of november, started having screaming tantrums with crying, complained of chest pain and epigastric pain, stomach aches, increased skin sensitivity, severe ocd, anxiety, aggression - dan suggested clostridia which made sense as my son was getting both nystatin and enhansa. He had an old oat test which did show clostridia and before he could be treated, had appendicitis. Switched dan and repeat oat showed only yeast markers. Dan suggested a trial of vanco and believe it or not, his symptoms got at least 80 percent better after two weeks course. He recommends at least 4 rounds of 2 weeks treatment. We are on the last one. > > > > - Stopped enhansa towards the end of december as it was not helping and had a feeling that a lot of his symptoms came from it. > > > > > > > so does that mean things got better when you pulled it? > > > > > > > - Beginning january, started showing hyperactivity, increased stimming, mouthing, foggy. Dan started cerefolin - couldn't tolerate. Caused increased aggression, switched to leucovorin - increased stimming, decreased the dose and now stopped it > > > > > > > So at this point you are on vanco, gcmaf, and nystatin? > > > > > > > - Added back Longvida curcumin in second week of january to see if I get gains again and it did wonders again with a better eye contact, focus and speech. Tried increasing the dose but it caused sleep disturbance. > > > > > > > So now you know Longvida curcumin is better than Enhansa for you. Don't use Enhansa again. > > > > > > > - Fluconazole just came into the picture 5 days ago so I don't want to attribute the anger to die off as his anger returned one day before I started fluconazole. But definitely after starting fluconazole, stimming is totally crazy now. At school he is more verbal as per teachers. Playing skills have improved and although doesn't want to sit for any therapy sessions, does a good job overall. As soon as I ask him to do anything that he doesn't want to do, he makes a grunting sound and starts getting angry. More like defiant behavior. > > > > > > > > > > > So far could be anything from ammonia, bacteria, or… > > > > > > > While I was waiting for your response, I was going thru all the dates in my notes > > > > > > > Yay! See they're great!!!! > > > > > > > and realized that may be this is all phenol related. > > > > > > > Aaaaaand there it is. Sounds like you figured it out. > > > > > > > My son gets a lot of good results with curcumin but has phenol sensitivity. These days I am trying no phenol and epsom salt foot soaks which help but he is getting too much phenols. This friday he had too much phenol containing foods at school and anger came back. So may be it is the phenol sensitivity symptoms along with yeast. > > > > > > > Are you watching to see what symptoms go *away* while on the anti fungal and taking copious notes? > > > > > > > He is getting fruit chips for snacks at school and now the teacher is using them for reinforcement also plus he gets curcumin and together it is too much phenol even with no phenol enzyme. I badly need some help from all of you in suggesting some healthy snacks for school as when I cut down potato chips and fruit snacks, > > > > > > > Got nothing. Diet isn't an issue in my house but it seems like you've already gotten a good response from someone else on that front anyway. > > > > > > > school started complaining that my son is always hungry and that is the cause of his inattentiveness and mouthing. > > > > > > > mouthing in my house is yeast. Inattentiveness - well, that's ADD in my house and no amount of biomed has ever touched it. > > > > > > > We are on the last round of vancomycin and after that we will be repeating OAT which would be in a couple of weeks. I hope this post gives a better idea of what we are dealing with right now. > > > > > > > You might want to get a better handle on what phenol symptoms look like in your son since he's so sensitive. That's something you might want to keep on the top of your list of things that you should know off the top of your head so you don't spend a bunch of time wondering about it before going to your notes. I had 3 things memorized as soon as I learned them: yeast, viral, ammonia. It took a while for me to figure out the ammonia but once it clicked that *that* was the problem, I made sure that that went to the top of my list of things to consider *first*. > > > > > > If you do think it's possible that it's ammonia - either from phenols or whatever, try giving some yucca. It won't hurt anything, no toxicity level or such. > > > > > > But before you do that, I would try to clear the phenol intake and see what *that* improves to get a better idea of what his phenol intolerance looks like. *Then* you can try the yucca. Yes, it's slower than just doing both at the same time. But it's more efficient to just do it now than it is to wonder what it is every single time there's a regression. > > > > > > I think I need to put my biomed book link into my sig like my antiviral link… > > > > > > > > -- --------------------------------------------------------------------------------------------Click to find info about Vitamins and Minerals:http://www.facebook.com/note.php?note_id=10150543521682565 --------------------------------------------------------------------------------------------Click to find links to info about the Low Oxalate Diet :http://www.facebook.com/note.php?note_id=10150543495292565 ------Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 " When my son has high ammonia he wakes in the middle of the night and is just go, go ,go for hours. Ammonia can be from die off, parasites or from clostridia. He is not really giggly from it. Sometimes he actually looks good as in social when his ammonia is high, just incredibly hyper and wakes at night an stays up for hours. Recently he has been flaring clostridia when I push too hard on the yeast, including too much biotin. He has also been known to pinch people when his ammonia is high. For my son, yeast is the giggly one. He always flares yeast when treating with flagyl or anything that kills clostridia. When he is yeasty he has trouble falling asleep, wakes early and giggles way too much and starts eating more and requesting starches. He may ignore directions and questions and may climb onto and jump off furniture. My son also gets yeasty when we are killing viruses. " Maybe more focus is necessary on cleaning out tyhe ammonia by the liver, than preventing it?? recycling 2 of my old posts 1. Article in the San Diego Reader Sept 8, 2011 about a man who received a LIVER transplant. This section about his pre-transplant condition caught my eye: " Eventually, 's loss of liver function also meant that toxins such as ammonia, which are normally made harmless by the liver, began to build up in his body. This resulted in hepatic encephalopathy, a disorder of the brain that often causes confusion and altered levels of conciousness. It's like your brain waves would say, 'I'm going to have a cup of tea', and then you would do something totally different, Rita [his wife] says. 'He would use the TV remote and think it was the lamp or the phone'. " [left out text about his on-line shop-a-holic condition where he blew $80k on things like multiple sets of towels, socks and sheets. " We have so many towels and sets of sheets, I had to give hundreds away " ] [And he bought eagle-dedecked items] " 'I'd always liked them' s says. 'But before then I'd never had to have them' " 2. Just going thru my email files and looking for linkages....A followup on my previous post about a failing liver / ammonia / brain effects.... As part of this woman's gut cleanup, I gave her a new treatment pioneered by Dr. Mark Pimentel, of the University of California at Los Angeles School of Medicine.7 A nonabsorbed antibiotic called Xifaxin clears out abnormal bacteria in the small bowel. I expected her bloating and even some of her inflammatory symptoms to clear up by fixing her gut. But I was surprised by what she told me after she took the antibiotic. Overnight her OCD disappeared; after years of unsuccessful treatment with psychotherapy and psychiatric medications, she was suddenly able to clean her entire house and pick up everything off the floor. The lights in her brain had come on for the first time in ten years. A high level of ammonia in her blood caused her OCD. Ammonia is a neurotoxin that excites and damages brain cells and the mitochondria (the site of energy production in all cells). Bacteria in the gut produce ammonia, and when the liver can't detoxify it or there is just too much, it causes brain damage. http://www.ultramind.com/epidemic_ocd.php Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 Are u suggesting that improving liver function and getting rid of bad bacteria in the gut is better than to just use something that woul bind ammonia? is > > " When my son has high ammonia he wakes in the middle of the night and is just go, go ,go for hours. Ammonia can be from die off, parasites or from clostridia. He is not really giggly from it. Sometimes he actually looks good as in social when his ammonia is high, just incredibly hyper and wakes at night an stays up for hours. Recently he has been flaring clostridia when I push too hard on the yeast, including too much biotin. He has also been known to pinch people when his ammonia is high. > > For my son, yeast is the giggly one. He always flares yeast when treating with flagyl > or anything that kills clostridia. When he is I yeasty he has trouble falling asleep, wakes early and giggles way too much and starts eating more and requesting starches. He may ignore directions and questions and may climb onto and jump off furniture. My son also gets yeasty when we are killing viruses. " > > Maybe more focus is necessary on cleaning out tyhe ammonia by the liver, than preventing it?? recycling 2 of my old posts > > > 1. Article in the San Diego Reader Sept 8, 2011 about a man who received a LIVER transplant. > > This section about his pre-transplant condition caught my eye: > > " Eventually, 's loss of liver function also meant that toxins such as ammonia, which are normally made harmless by the liver, began to build up in his body. This resulted in hepatic encephalopathy, a disorder of the brain that often causes confusion and altered levels of conciousness. > > It's like your brain waves would say, 'I'm going to have a cup of tea', and then you would do something totally different, Rita [his wife] says. 'He would use the TV remote and think it was the lamp or the phone'. " > > [left out text about his on-line shop-a-holic condition where he blew $80k on things like multiple sets of towels, socks and sheets. " We have so many towels and sets of sheets, I had to give hundreds away " ] > > [And he bought eagle-dedecked items] " 'I'd always liked them' s says. 'But before then I'd never had to have them' " > > 2. Just going thru my email files and looking for linkages....A followup on my previous post about a failing liver / ammonia / brain effects.... > > As part of this woman's gut cleanup, I gave her a new treatment pioneered by Dr. Mark Pimentel, of the University of California at Los Angeles School of Medicine.7 A nonabsorbed antibiotic called Xifaxin clears out abnormal bacteria in the small bowel. I expected her bloating and even some of her inflammatory symptoms to clear up by fixing her gut. But I was surprised by what she told me after she took the antibiotic. > > Overnight her OCD disappeared; after years of unsuccessful treatment with psychotherapy and psychiatric medications, she was suddenly able to clean her entire house and pick up everything off the floor. The lights in her brain had come on for the first time in ten years. > > A high level of ammonia in her blood caused her OCD. Ammonia is a neurotoxin that excites and damages brain cells and the mitochondria (the site of energy production in all cells). Bacteria in the gut produce ammonia, and when the liver can't detoxify it or there is just too much, it causes brain damage. > > http://www.ultramind.com/epidemic_ocd.php > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2012 Report Share Posted February 8, 2012 In relation to sacc boulardi it elevated our sons clostridia our DAN at the time could not explain it and had never seen it happen before,Let your email find you with BlackBerry® from VodafoneSender: mb12valtrex Date: Thu, 09 Feb 2012 17:55:01 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: laughing Thanks Caryn! Our dan usually always uses fluconazole/nystatin or some other antifungal when he is treating for clostridia and vice versa. I read somewhere that yeast and clostridia are living in a competitive environment so when one dies, the other will have too much room to grow. It is said that probiotics may help with that a little bit. Lactobacillus in high dose may help to prevent clostridia but in my son's case, clostridia still flared up despite using 3-4 caps of culturelle. Sacch Boul may prevent yeast flare but it has something to do with causing more immune dysfunction in children who have an altered and dysfunctional immune system. I couldn't find the information on sacch boul leading to further immune dysfunction but I am gonna ask my dan (who told me not to use it) to provide some details. Caryn I remember you mentioned that alinia helped your son a lot. Can you share how long you used it and what was the dosage? I am still waiting for it to be available. I want to address the parasites once the yeast/clostridia issue is a little settled and I am afraid to use naturals as my son never did well on them. Thanksis> > > > > > > > & gt; > > > > > > > > & gt; & gt; Cheryl,> > > > > > > > & gt; & gt; What would u do for ammonia causing aggression?> > > > > > > > & gt; & gt; > > > > > > > > & gt; & gt; Cassie> > > > > > > > & gt; & gt; Sent on the Sprint® Now Network from my BlackBerry®> > > > > > > > & gt; & gt;> > > > > > > > & gt;> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 My son gets psychotic with curcumin. I try enhansa them change to a diferent brand with the same result. Ones I stop the curcumin it took like three weeks of edson sald bath plus some liquid sulphur remedy that I got from the homeopathic dr we see, for him to get back to normal. I don't know if this is your son case, but I don't tink curcumin is good for kids with phenol issues. > > Thanks Cheryl! I guess I will have to give more details as I agree that from my post it does seem like I started everything at the same time. So here is the detail: > - We started Longvida curcumin towards the end of august 2011 - saw immediate improvement in eye contact, regained some of his lost spontaneous speech > - OAT result showed yeast markers, started nystatin towards the end of september - slow improvement, no major die off > - Switched to Enhansa in early october 2011, didn't notice any further improvement > - Started gcmaf in mid-october, noticed improvement after 4th shot- improved eye contact, speech, attention, focus and showed more curiosity > - Towards the end of november, started having screaming tantrums with crying, complained of chest pain and epigastric pain, stomach aches, increased skin sensitivity, severe ocd, anxiety, aggression - dan suggested clostridia which made sense as my son was getting both nystatin and enhansa. He had an old oat test which did show clostridia and before he could be treated, had appendicitis. Switched dan and repeat oat showed only yeast markers. Dan suggested a trial of vanco and believe it or not, his symptoms got at least 80 percent better after two weeks course. He recommends at least 4 rounds of 2 weeks treatment. We are on the last one. > - Stopped enhansa towards the end of december as it was not helping and had a feeling that a lot of his symptoms came from it. > - Beginning january, started showing hyperactivity, increased stimming, mouthing, foggy. Dan started cerefolin - couldn't tolerate. Caused increased aggression, switched to leucovorin - increased stimming, decreased the dose and now stopped it > - Added back Longvida curcumin in second week of january to see if I get gains again and it did wonders again with a better eye contact, focus and speech. Tried increasing the dose but it caused sleep disturbance. > - Fluconazole just came into the picture 5 days ago so I don't want to attribute the anger to die off as his anger returned one day before I started fluconazole. But definitely after starting fluconazole, stimming is totally crazy now. At school he is more verbal as per teachers. Playing skills have improved and although doesn't want to sit for any therapy sessions, does a good job overall. As soon as I ask him to do anything that he doesn't want to do, he makes a grunting sound and starts getting angry. More like defiant behavior. > While I was waiting for your response, I was going thru all the dates in my notes and realized that may be this is all phenol related. My son gets a lot of good results with curcumin but has phenol sensitivity. These days I am trying no phenol and epsom salt foot soaks which help but he is getting too much phenols. This friday he had too much phenol containing foods at school and anger came back. So may be it is the phenol sensitivity symptoms along with yeast. He is getting fruit chips for snacks at school and now the teacher is using them for reinforcement also plus he gets curcumin and together it is too much phenol even with no phenol enzyme. I badly need some help from all of you in suggesting some healthy snacks for school as when I cut down potato chips and fruit snacks, school started complaining that my son is always hungry and that is the cause of his inattentiveness and mouthing. > We are on the last round of vancomycin and after that we will be repeating OAT which would be in a couple of weeks. I hope this post gives a better idea of what we are dealing with right now. > Thanks > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 My son gets psychotic with curcumin. I try enhansa them change to a diferent brand with the same result. Ones I stop the curcumin it took like three weeks of edson sald bath plus some liquid sulphur remedy that I got from the homeopathic dr we see, for him to get back to normal. I don't know if this is your son case, but I don't tink curcumin is good for kids with phenol issues. > > Thanks Cheryl! I guess I will have to give more details as I agree that from my post it does seem like I started everything at the same time. So here is the detail: > - We started Longvida curcumin towards the end of august 2011 - saw immediate improvement in eye contact, regained some of his lost spontaneous speech > - OAT result showed yeast markers, started nystatin towards the end of september - slow improvement, no major die off > - Switched to Enhansa in early october 2011, didn't notice any further improvement > - Started gcmaf in mid-october, noticed improvement after 4th shot- improved eye contact, speech, attention, focus and showed more curiosity > - Towards the end of november, started having screaming tantrums with crying, complained of chest pain and epigastric pain, stomach aches, increased skin sensitivity, severe ocd, anxiety, aggression - dan suggested clostridia which made sense as my son was getting both nystatin and enhansa. He had an old oat test which did show clostridia and before he could be treated, had appendicitis. Switched dan and repeat oat showed only yeast markers. Dan suggested a trial of vanco and believe it or not, his symptoms got at least 80 percent better after two weeks course. He recommends at least 4 rounds of 2 weeks treatment. We are on the last one. > - Stopped enhansa towards the end of december as it was not helping and had a feeling that a lot of his symptoms came from it. > - Beginning january, started showing hyperactivity, increased stimming, mouthing, foggy. Dan started cerefolin - couldn't tolerate. Caused increased aggression, switched to leucovorin - increased stimming, decreased the dose and now stopped it > - Added back Longvida curcumin in second week of january to see if I get gains again and it did wonders again with a better eye contact, focus and speech. Tried increasing the dose but it caused sleep disturbance. > - Fluconazole just came into the picture 5 days ago so I don't want to attribute the anger to die off as his anger returned one day before I started fluconazole. But definitely after starting fluconazole, stimming is totally crazy now. At school he is more verbal as per teachers. Playing skills have improved and although doesn't want to sit for any therapy sessions, does a good job overall. As soon as I ask him to do anything that he doesn't want to do, he makes a grunting sound and starts getting angry. More like defiant behavior. > While I was waiting for your response, I was going thru all the dates in my notes and realized that may be this is all phenol related. My son gets a lot of good results with curcumin but has phenol sensitivity. These days I am trying no phenol and epsom salt foot soaks which help but he is getting too much phenols. This friday he had too much phenol containing foods at school and anger came back. So may be it is the phenol sensitivity symptoms along with yeast. He is getting fruit chips for snacks at school and now the teacher is using them for reinforcement also plus he gets curcumin and together it is too much phenol even with no phenol enzyme. I badly need some help from all of you in suggesting some healthy snacks for school as when I cut down potato chips and fruit snacks, school started complaining that my son is always hungry and that is the cause of his inattentiveness and mouthing. > We are on the last round of vancomycin and after that we will be repeating OAT which would be in a couple of weeks. I hope this post gives a better idea of what we are dealing with right now. > Thanks > is > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 Hi alexis, my son has been on multiple antibiotics, taken every day for years. He is being treated for Lyme, Bartonella and PANDAS. Treating on constant antibiotics has eliminated anger, unhappiness, and all academic delays. We had in the past used 20 mgs of biotin 3 times daily, but now even 5 mgs kicks up something like clostridia which causes night waking. I have in the past tried to treat ammonia through mop up, however, I have since found that a I can turn it around in a single day with flagyl. The challenge here is that it also eliminates the gains that I had gotten from the anti fungal or antiprotozoal that flared the let's call it clostridia in the first place. I am still looking for the treatment that can hit both bugs at once so that one dying does not flea the other. > > > > > > & gt; > > > > > > & gt; & gt; Cheryl, > > > > > > & gt; & gt; What would u do for ammonia causing aggression? > > > > > > & gt; & gt; > > > > > > & gt; & gt; Cassie > > > > > > & gt; & gt; Sent on the Sprint® Now Network from my BlackBerry® > > > > > > & gt; & gt; > > > > > > & gt; > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 Toni, am I going to face the same phenol issue with quercetin. It does convert into a phenolic acid in the gut but I am not sure if the phenol content is significant. Do you know any details on it? is > > > > > > > > > > > Thanks Cheryl! I guess I will have to give more details as I agree > > that from my post it does seem like I started everything at the same time. > > So here is the detail: > > > > > > - We started Longvida curcumin towards the end of august 2011 - > > saw immediate improvement in eye contact, regained some of his lost > > spontaneous speech > > > > > > - OAT result showed yeast markers, started nystatin towards the > > end of september - slow improvement, no major die off > > > > > > - Switched to Enhansa in early october 2011, didn't notice any > > further improvement > > > > > > - Started gcmaf in mid-october, noticed improvement after 4th > > shot- improved eye contact, speech, attention, focus and showed more > > curiosity > > > > > > - Towards the end of november, started having screaming tantrums > > with crying, complained of chest pain and epigastric pain, stomach aches, > > increased skin sensitivity, severe ocd, anxiety, aggression - dan suggested > > clostridia which made sense as my son was getting both nystatin and > > enhansa. He had an old oat test which did show clostridia and before he > > could be treated, had appendicitis. Switched dan and repeat oat showed only > > yeast markers. Dan suggested a trial of vanco and believe it or not, his > > symptoms got at least 80 percent better after two weeks course. He > > recommends at least 4 rounds of 2 weeks treatment. We are on the last one. > > > > > > - Stopped enhansa towards the end of december as it was not > > helping and had a feeling that a lot of his symptoms came from it. > > > > > > > > > > > so does that mean things got better when you pulled it? > > > > > > > > > > > - Beginning january, started showing hyperactivity, increased > > stimming, mouthing, foggy. Dan started cerefolin - couldn't tolerate. > > Caused increased aggression, switched to leucovorin - increased stimming, > > decreased the dose and now stopped it > > > > > > > > > > > So at this point you are on vanco, gcmaf, and nystatin? > > > > > > > > > > > - Added back Longvida curcumin in second week of january to see if > > I get gains again and it did wonders again with a better eye contact, focus > > and speech. Tried increasing the dose but it caused sleep disturbance. > > > > > > > > > > > So now you know Longvida curcumin is better than Enhansa for you. > > Don't use Enhansa again. > > > > > > > > > > > - Fluconazole just came into the picture 5 days ago so I don't > > want to attribute the anger to die off as his anger returned one day before > > I started fluconazole. But definitely after starting fluconazole, stimming > > is totally crazy now. At school he is more verbal as per teachers. Playing > > skills have improved and although doesn't want to sit for any therapy > > sessions, does a good job overall. As soon as I ask him to do anything that > > he doesn't want to do, he makes a grunting sound and starts getting angry. > > More like defiant behavior. > > > > > > > > > > > > > > > > > So far could be anything from ammonia, bacteria, or > > > > > > > > > > > While I was waiting for your response, I was going thru all the > > dates in my notes > > > > > > > > > > > Yay! See they're great!!!! > > > > > > > > > > > and realized that may be this is all phenol related. > > > > > > > > > > > Aaaaaand there it is. Sounds like you figured it out. > > > > > > > > > > > My son gets a lot of good results with curcumin but has phenol > > sensitivity. These days I am trying no phenol and epsom salt foot soaks > > which help but he is getting too much phenols. This friday he had too much > > phenol containing foods at school and anger came back. So may be it is the > > phenol sensitivity symptoms along with yeast. > > > > > > > > > > > Are you watching to see what symptoms go *away* while on the anti > > fungal and taking copious notes? > > > > > > > > > > > He is getting fruit chips for snacks at school and now the teacher > > is using them for reinforcement also plus he gets curcumin and together it > > is too much phenol even with no phenol enzyme. I badly need some help from > > all of you in suggesting some healthy snacks for school as when I cut down > > potato chips and fruit snacks, > > > > > > > > > > > Got nothing. Diet isn't an issue in my house but it seems like > > you've already gotten a good response from someone else on that front > > anyway. > > > > > > > > > > > school started complaining that my son is always hungry and that > > is the cause of his inattentiveness and mouthing. > > > > > > > > > > > mouthing in my house is yeast. Inattentiveness - well, that's ADD in > > my house and no amount of biomed has ever touched it. > > > > > > > > > > > We are on the last round of vancomycin and after that we will be > > repeating OAT which would be in a couple of weeks. I hope this post gives a > > better idea of what we are dealing with right now. > > > > > > > > > > > You might want to get a better handle on what phenol symptoms look > > like in your son since he's so sensitive. That's something you might want > > to keep on the top of your list of things that you should know off the top > > of your head so you don't spend a bunch of time wondering about it before > > going to your notes. I had 3 things memorized as soon as I learned them: > > yeast, viral, ammonia. It took a while for me to figure out the ammonia but > > once it clicked that *that* was the problem, I made sure that that went to > > the top of my list of things to consider *first*. > > > > > > > > > > If you do think it's possible that it's ammonia - either from > > phenols or whatever, try giving some yucca. It won't hurt anything, no > > toxicity level or such. > > > > > > > > > > But before you do that, I would try to clear the phenol intake and > > see what *that* improves to get a better idea of what his phenol > > intolerance looks like. *Then* you can try the yucca. Yes, it's slower than > > just doing both at the same time. But it's more efficient to just do it now > > than it is to wonder what it is every single time there's a regression. > > > > > > > > > > I think I need to put my biomed book link into my sig like my > > antiviral link > > > > > > > > > > > > > > > > > > > > > > > > > > -- > --------------------------------------------------------------------------------\ ------------ > Click to find info about Vitamins and Minerals: > http://www.facebook.com/note.php?note_id=10150543521682565 > --------------------------------------------------------------------------------\ ------------ > Click to find links to info about the Low Oxalate Diet : > http://www.facebook.com/note.php?note_id=10150543495292565 > ------ > Toni > > ------ > Mind like a steel trap... > Rusty and illegal in 37 states. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 Thanks Caryn! Our dan usually always uses fluconazole/nystatin or some other antifungal when he is treating for clostridia and vice versa. I read somewhere that yeast and clostridia are living in a competitive environment so when one dies, the other will have too much room to grow. It is said that probiotics may help with that a little bit. Lactobacillus in high dose may help to prevent clostridia but in my son's case, clostridia still flared up despite using 3-4 caps of culturelle. Sacch Boul may prevent yeast flare but it has something to do with causing more immune dysfunction in children who have an altered and dysfunctional immune system. I couldn't find the information on sacch boul leading to further immune dysfunction but I am gonna ask my dan (who told me not to use it) to provide some details. Caryn I remember you mentioned that alinia helped your son a lot. Can you share how long you used it and what was the dosage? I am still waiting for it to be available. I want to address the parasites once the yeast/clostridia issue is a little settled and I am afraid to use naturals as my son never did well on them. Thanks is > > > > > > > > & gt; > > > > > > > > & gt; & gt; Cheryl, > > > > > > > > & gt; & gt; What would u do for ammonia causing aggression? > > > > > > > > & gt; & gt; > > > > > > > > & gt; & gt; Cassie > > > > > > > > & gt; & gt; Sent on the Sprint® Now Network from my BlackBerry® > > > > > > > > & gt; & gt; > > > > > > > > & gt; > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2012 Report Share Posted February 9, 2012 Thank you guys for the info on S. Boulardii....I am wondering if this is one we need to consider pulling out. It is one I started early on with a local DAN and not sure she is up to speed on the latest....may pull it soon to see what happens..On a related development, we are definitely fighting bacteria or parasites that have cropped up with my son's latest illnesses (strep was negative but i hear that doesnt mean anything). We introduced a new third dose of probiotics, Custom Probiotics (200 billion) to VSL#3/Three Lac/S. Boullardi (given twice per day) and it looked like his stool was normalizing a bit then and I reduced our VSL# down to one time per day, 1 tsp (about 400billion) and kept the CP for the second dose -- stool went back to dark and loose....so i am thinking he needs the very high dose probiotics 3x / day (including VSL)...ugh, i was hoping to reduce that one (time and costs!!)... To: mb12valtrex Sent: Thursday, February 9, 2012 1:04 AM Subject: Re: Re: laughing In relation to sacc boulardi it elevated our sons clostridia our DAN at the time could not explain it and had never seen it happen before,Let your email find you with BlackBerry® from Vodafone Sender: mb12valtrex Date: Thu, 09 Feb 2012 17:55:01 -0000To: <mb12valtrex >ReplyTo: mb12valtrex Subject: Re: laughing Thanks Caryn! Our dan usually always uses fluconazole/nystatin or some other antifungal when he is treating for clostridia and vice versa. I read somewhere that yeast and clostridia are living in a competitive environment so when one dies, the other will have too much room to grow. It is said that probiotics may help with that a little bit. Lactobacillus in high dose may help to prevent clostridia but in my son's case, clostridia still flared up despite using 3-4 caps of culturelle. Sacch Boul may prevent yeast flare but it has something to do with causing more immune dysfunction in children who have an altered and dysfunctional immune system. I couldn't find the information on sacch boul leading to further immune dysfunction but I am gonna ask my dan (who told me not to use it) to provide some details. Caryn I remember you mentioned that alinia helped your son a lot. Can you share how long you used it and what was the dosage? I am still waiting for it to be available. I want to address the parasites once the yeast/clostridia issue is a little settled and I am afraid to use naturals as my son never did well on them. Thanks is Quote Link to comment Share on other sites More sharing options...
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