Kay, falling into walls, memory off.......(was) Re: Fw: [ ] How to identify Meth labs

[Guest guest]

KayI am sorry to hear your balance/coordination is off. How long has that been going on? Does your doc know? Your poor daughter! Did she recover from surgery quickly or did it take a while? My 20 year old grandson had his tonsils and adenoids out last year and his recovery took a full month. But as a result he has been dropping weight. His ENT said he would probably lose weight when he could breathe better. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its

individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Mon, November 22,

2010 10:30:35 PMSubject: Re: Fw: [ ] How to identify Meth labs

My memory is off the last few weeks, and have been falling into walls (thankful the walls are around to catch me:) Daughter had her adenoids out for a third time. (yes 3times) and has recovered and is doing so much better. She has had terrible problems the last two years with sinus, ear infection, allergies, asthma, etc and finally one day in mid-September it dawned on me that her voice sounded like someone who had adenoid problems. It took a while for a doctor to listen, but they finally did and they were so big they had blocked her use of he nose and had also covered/blocked the estuation tubes so that was part of her hearing and earaches she has had problems with. She also currently doesn't need to use her CPAP (she is 12) I am so happy I figured it out:)))

Now if I can only figure me out...

Kay

Re: Fw: [ ] How to identify Meth labs

How funny! Thanks Kay for the good chuckle:)How are you doing? What's going on with you these days?hugs

Sharon

[Guest guest]

The docs say it is fibro, not MS (they are 80% sure they say:) and think the falling is just a random unrelated event. It usually lasts off and on for a few weeks and then gets better. This last round is being blamed on a UTI, which may be the reason. I am three days past the medication and haven't fallen in two days. Usually it is only once or twice a day I go majorly sideways. It disturbs me because up until I am getting personally with the wall, I think I am fine....

My daughter is fully recovered at 2 1/2 weeks out. She is doing awesome. They said there is a good chance she will regrow them again, so to bring her in if I suspect she is. It is amazing how active she has become and how happy.

Kay

Re: Fw: [ ] How to identify Meth labs

How funny! Thanks Kay for the good chuckle:)How are you doing? What's going on with you these days?hugs

Sharon

[Guest guest]

Sorry to hear you are falling. You are in my prayers.

Hugs

nne

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> Re: Kay, falling into walls, memory off.......(was) Re:

> Fw: [ ] How to identify Meth labs

>

> The docs say it is fibro, not MS (they are 80% sure they say:) and

> think the falling is just a random unrelated event. It usually lasts off

> and on for a few weeks and then gets better. This last round is being

> blamed on a UTI, which may be the reason. I am three days past the

> medication and haven't fallen in two days. Usually it is only once or

> twice a day I go majorly sideways. It disturbs me because up until I am

> getting personally with the wall, I think I am fine....

> My daughter is fully recovered at 2 1/2 weeks out. She is doing

> awesome. They said there is a good chance she will regrow them again,

> so to bring her in if I suspect she is. It is amazing how active she

> has become and how happy.

> Kay

>

> Re: Fw: [ ] How to identify Meth labs

>

>

> How funny! Thanks Kay for the good chuckle:)

>

> How are you doing? What's going on with you these days?

>

> hugs

>

>

> Sharon

____________________________________________________________

FREE 3D MARINE AQUARIUM SCREENSAVER - Watch dolphins, sharks & orcas on your

desktop!

Check it out at http://www.inbox.com/marineaquarium

[Guest guest]

Kay,

Once again, I did not bookmark or notate the source or page

where I found someone or some group or some doctor alluding to

the fact that Fibro is another form/type of MS.. So I can't

point you to that source..

I do know, and it can be googled from many many sources that

once a person has been diagnosed with one auto-immune disease,

the likelihood of being diagnosed with a 2nd and/or 3rd is much

higher..

There are still other sources that state that there are a whole

lot of people that will have the Fibro diagnosis, and will later

receive the MS diagnosis, and vice versa..

I do sometimes wonder if all the pain I have, from time to time,

is MS related.. or if it's possible that I've got something else

going on as well...

Of course it could all be old-age as well.. and the abuse that I

bestowed on my body in my younger years..

My cousin has Fibro and from some of the things she tells me..

it sounds like it can be every bit as devastating and

debilitating, not to mention as, if not even more, painful than

MS... Though she's never spoken of falling into walls, or her

memory being off.

I'll have to ask her if she's ever had an UTI and if she did, if

it affected anything else with her..

It is a bit ironic, though, that you think you're doing fine and

dandy until you become personally involved with a wall.. A few

years back, my favorite cliche was "Weebles wobble but they

don't fall down!".. Because I rarely walked straight, wavered

when standing.. but never fell down while doing either of those

things.. It would be standing stock still.. or walking in a

straight perfect line.. that I'd kiss a wall or just.. PLOP..

down I'd go..

I am glad that your daughter did well with the surgery, that she

recovered nicely.. and that she's back to being happy and

active.

HUGS to you & yours

|)onna

The docs say it is fibro, not MS (they are

80% sure they say:) and think the falling is just a random

unrelated event. It usually lasts off and on for a few weeks

and then gets better. This last round is being blamed on a

UTI, which may be the reason. I am three days past the

medication and haven't fallen in two days. Usually it is only

once or twice a day I go majorly sideways. It disturbs me

because up until I am getting personally with the wall, I

think I am fine....

My daughter is fully recovered at 2

1/2 weeks out. She is doing awesome. They said there is a

good chance she will regrow them again, so to bring her in if

I suspect she is. It is amazing how active she has become

and how happy.

Kay

[Guest guest]

Wow, this is the first time I ever heard that FM was just another form of MS! I sure wish you could find that resource, but I'll do a search and see what I can find. Its true about if you have one autoimmune illness you can get others too. My SIL and my hubby both have Lupus, and FM. I have 4 other autoimmune diseases including the MS. Lucky me!! NOT! LOL....

My MS was dx'ed before FM, but I had symptoms of MS first. They just didn't believe the pain I had was MS, so they said FM. And even then it was called Fibrositis even though none of the anti-inflammatories did nothing for me because FM isn't an inflammatory illness, but when it had the "itis" at the end it was considered such. Thats why they changed it to "myalgia".

Oh, maybe it was Dr. Swank that alluded to the fact that FM/Chronic Fatigue Syndrome" was really MS? He told me that when I told him I was dx'ed with FM/CFS. I'll look it up anyhow, now my curiosity is getting to me.........lol... :-)

Also people with FM do fall, and have clumsy spells. Steve has been extremely clumsy lately and he is getting so frustrated with it, and he has FM. Several of my FM friends have talked often about falling and clumsiness too. When Steve gets up from a chair he will act like he's going to fall and catches himself. Difference between his non-falls and my falls is my brain doesn't engage fast enough to tell me to catch myself before I go down. I don't even put my hands out or arms to soften the blow. :-(

Hugs from Jackie in Oregon

The docs say it is fibro, not MS (they are 80% sure they say:) and think the falling is just a random unrelated event. It usually lasts off and on for a few weeks and then gets better. This last round is being blamed on a UTI, which may be the reason. I am three days past the medication and haven't fallen in two days. Usually it is only once or twice a day I go majorly sideways. It disturbs me because up until I am getting personally with the wall, I think I am fine....

My daughter is fully recovered at 2 1/2 weeks out. She is doing awesome. They said there is a good chance she will regrow them again, so to bring her in if I suspect she is. It is amazing how active she has become and how happy.

Kay

[Guest guest]

with fibro - think about an old fashioned pin ball game - the ball is the pain and it rackets all over

it all comes down to nerves

the fibromyalgia network is a good resource God, grant me the strength of eagles wings, the faith and courage to fly to new heights, and the wisdom to rely on his spirit to carry me there.

To: MSersLife Sent: Wed, November 24, 2010 1:33:56 PMSubject: Re: Kay, falling into walls, memory off.......(was) Re: Fw: [ ] How to identify Meth labs

Wow, this is the first time I ever heard that FM was just another form of MS! I sure wish you could find that resource, but I'll do a search and see what I can find. Its true about if you have one autoimmune illness you can get others too. My SIL and my hubby both have Lupus, and FM. I have 4 other autoimmune diseases including the MS. Lucky me!! NOT! LOL....

My MS was dx'ed before FM, but I had symptoms of MS first. They just didn't believe the pain I had was MS, so they said FM. And even then it was called Fibrositis even though none of the anti-inflammatories did nothing for me because FM isn't an inflammatory illness, but when it had the "itis" at the end it was considered such. Thats why they changed it to "myalgia".

Oh, maybe it was Dr. Swank that alluded to the fact that FM/Chronic Fatigue Syndrome" was really MS? He told me that when I told him I was dx'ed with FM/CFS. I'll look it up anyhow, now my curiosity is getting to me.........lol... :-)

Also people with FM do fall, and have clumsy spells. Steve has been extremely clumsy lately and he is getting so frustrated with it, and he has FM. Several of my FM friends have talked often about falling and clumsiness too. When Steve gets up from a chair he will act like he's going to fall and catches himself. Difference between his non-falls and my falls is my brain doesn't engage fast enough to tell me to catch myself before I go down. I don't even put my hands out or arms to soften the blow. :-(

Hugs from Jackie in Oregon

The docs say it is fibro, not MS (they are 80% sure they say:) and think the falling is just a random unrelated event. It usually lasts off and on for a few weeks and then gets better. This last round is being blamed on a UTI, which may be the reason. I am three days past the medication and haven't fallen in two days. Usually it is only once or twice a day I go majorly sideways. It disturbs me because up until I am getting personally with the wall, I think I am fine....

My daughter is fully recovered at 2 1/2 weeks out. She is doing awesome. They said there is a good chance she will regrow them again, so to bring her in if I suspect she is. It is amazing how active she has become and how happy.

Kay

[Guest guest]

I don't even realize I am falling till I am on the wall and never 'catch' myself, I just go sideways unexpectedly with no warning (always to the left side, never the right). I was'diagnosed' with Fibro by a general practioner I saw once who has a habit of diagnosing all women of a certain age with it. I begged for 'further testing' which he denigned, but after going around him to another doctor discovered my D3 level was at a 10. Severe low D can be mistaken for fibro. I never had all the pain points that fibro has. But because one doctor said I must have fibro, all doctors treat me like what I have is fibro. Since I have been able to finally after several years, to get my vitamin D level up, many of the original problems have disappeared, but I still have the weakness on left side, strange headaches, intolerance to heat, and severe tremors from time to time. I also have problems judging how far up I am lifting my legs when walking (especially left side).

I am not sold on the idea that I have 'just fibro' since the low vitamin D over lap as does my low thyroid I also had low iron at the time but have gotten it up to low normal). I do believe that other people have fibro, I am just skeptical that I do. The medications that a couple of doctors have insisted I try have done nothing but make me more sick or done nothing at all. I also have RLS and have to take medication now during the day to try to control the spasms (mostly legs). Sorry if it sounds like I am complaining, I am just rally frustrated...I live in a rural area and a couple of the doctors that work with me believe I have MS and refuse to do much till I have an actual diagnosis because they are unsure of what medications I should take , which includes at the moment that I can only take children's aspirin for pain because I am allergic to Tylenol and have had issues with my stomach and Ibuprofen.

Kay

Re: Kay, falling into walls, memory off.......(was) Re: Fw: [ ] How to identify Meth labs

Wow, this is the first time I ever heard that FM was just another form of MS! I sure wish you could find that resource, but I'll do a search and see what I can find. Its true about if you have one autoimmune illness you can get others too. My SIL and my hubby both have Lupus, and FM. I have 4 other autoimmune diseases including the MS. Lucky me!! NOT! LOL....

My MS was dx'ed before FM, but I had symptoms of MS first. They just didn't believe the pain I had was MS, so they said FM. And even then it was called Fibrositis even though none of the anti-inflammatories did nothing for me because FM isn't an inflammatory illness, but when it had the "itis" at the end it was considered such. Thats why they changed it to "myalgia".

Oh, maybe it was Dr. Swank that alluded to the fact that FM/Chronic Fatigue Syndrome" was really MS? He told me that when I told him I was dx'ed with FM/CFS. I'll look it up anyhow, now my curiosity is getting to me.........lol... :-)

Also people with FM do fall, and have clumsy spells. Steve has been extremely clumsy lately and he is getting so frustrated with it, and he has FM. Several of my FM friends have talked often about falling and clumsiness too. When Steve gets up from a chair he will act like he's going to fall and catches himself. Difference between his non-falls and my falls is my brain doesn't engage fast enough to tell me to catch myself before I go down. I don't even put my hands out or arms to soften the blow. :-(

Hugs from Jackie in Oregon

The docs say it is fibro, not MS (they are 80% sure they say:) and think the falling is just a random unrelated event. It usually lasts off and on for a few weeks and then gets better. This last round is being blamed on a UTI, which may be the reason. I am three days past the medication and haven't fallen in two days. Usually it is only once or twice a day I go majorly sideways. It disturbs me because up until I am getting personally with the wall, I think I am fine....

My daughter is fully recovered at 2 1/2 weeks out. She is doing awesome. They said there is a good chance she will regrow them again, so to bring her in if I suspect she is. It is amazing how active she has become and how happy.

Kay

[Guest guest]

I am like you, Jackie, and don't break my falls any longer. I fall like a log felled in the forest. Someone needs to yell "timber":) SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, November 24, 2010 12:33:56 PMSubject: Re: Kay, falling into walls, memory off.......(was) Re: Fw: [ ] How to identify Meth labs

Wow, this is the first time I ever heard that FM was just another form of MS! I sure wish you could find that resource, but I'll do a search and see what I can find. Its true about if you have one autoimmune illness you can get others too. My SIL and my hubby both have Lupus, and FM. I have 4 other autoimmune diseases including the MS. Lucky me!! NOT! LOL....

My MS was dx'ed before FM, but I had symptoms of MS first. They just didn't believe the pain I had was MS, so they said FM. And even then it was called Fibrositis even though none of the anti-inflammatories did nothing for me because FM isn't an inflammatory illness, but when it had the "itis" at the end it was considered such. Thats why they changed it to "myalgia".

Oh, maybe it was Dr. Swank that alluded to the fact that FM/Chronic Fatigue Syndrome" was really MS? He told me that when I told him I was dx'ed with FM/CFS. I'll look it up anyhow, now my curiosity is getting to me.........lol... :-)

Also people with FM do fall, and have clumsy spells. Steve has been extremely clumsy lately and he is getting so frustrated with it, and he has FM. Several of my FM friends have talked often about falling and clumsiness too. When Steve gets up from a chair he will act like he's going to fall and catches himself. Difference between his non-falls and my falls is my brain doesn't engage fast enough to tell me to catch myself before I go down. I don't even put my hands out or arms to soften the blow. :-(

Hugs from Jackie in Oregon

The docs say it is fibro, not MS (they are 80% sure they say:) and think the falling is just a random unrelated event. It usually lasts off and on for a few weeks and then gets better. This last round is being blamed on a UTI, which may be the reason. I am three days past the medication and haven't fallen in two days. Usually it is only once or twice a day I go majorly sideways. It disturbs me because up until I am getting personally with the wall, I think I am fine....

My daughter is fully recovered at 2 1/2 weeks out. She is doing awesome. They said there is a good chance she will regrow them again, so to bring her in if I suspect she is. It is amazing how active she has become and how happy.

Kay

[Guest guest]

I didn't realize you haven't gotten an MS diagnosis yet. Have you been to a rheumatologist? I saw when when I was going through diagnosis for MS to rule out other diseases. hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, November 24, 2010 3:51:48 PMSubject: Re: Kay, falling into walls, memory off.......(was) Re: Fw: [ ] How to identify Meth labs

I don't even realize I am falling till I am on the wall and never 'catch' myself, I just go sideways unexpectedly with no warning (always to the left side, never the right). I was'diagnosed' with Fibro by a general practioner I saw once who has a habit of diagnosing all women of a certain age with it. I begged for 'further testing' which he denigned, but after going around him to another doctor discovered my D3 level was at a 10. Severe low D can be mistaken for fibro. I never had all the pain points that fibro has. But because one doctor said I must have fibro, all doctors treat me like what I have is fibro. Since I have been able to finally after several years, to get my vitamin D level up, many of the original problems have disappeared, but I still have the weakness on left side, strange headaches, intolerance to heat, and severe tremors from time to time. I also have problems judging how far up I am lifting my legs when walking (especially left side).

I am not sold on the idea that I have 'just fibro' since the low vitamin D over lap as does my low thyroid I also had low iron at the time but have gotten it up to low normal). I do believe that other people have fibro, I am just skeptical that I do. The medications that a couple of doctors have insisted I try have done nothing but make me more sick or done nothing at all. I also have RLS and have to take medication now during the day to try to control the spasms (mostly legs). Sorry if it sounds like I am complaining, I am just rally frustrated...I live in a rural area and a couple of the doctors that work with me believe I have MS and refuse to do much till I have an actual diagnosis because they are unsure of what medications I should take , which includes at the moment that I can only take children's aspirin for pain because I am allergic to Tylenol and have had issues with my stomach and Ibuprofen.

Kay

Re: Kay, falling into walls, memory off.......(was) Re: Fw: [ ] How to identify Meth labs

Wow, this is the first time I ever heard that FM was just another form of MS! I sure wish you could find that resource, but I'll do a search and see what I can find. Its true about if you have one autoimmune illness you can get others too. My SIL and my hubby both have Lupus, and FM. I have 4 other autoimmune diseases including the MS. Lucky me!! NOT! LOL....

My MS was dx'ed before FM, but I had symptoms of MS first. They just didn't believe the pain I had was MS, so they said FM. And even then it was called Fibrositis even though none of the anti-inflammatories did nothing for me because FM isn't an inflammatory illness, but when it had the "itis" at the end it was considered such. Thats why they changed it to "myalgia".

Oh, maybe it was Dr. Swank that alluded to the fact that FM/Chronic Fatigue Syndrome" was really MS? He told me that when I told him I was dx'ed with FM/CFS. I'll look it up anyhow, now my curiosity is getting to me.........lol... :-)

Also people with FM do fall, and have clumsy spells. Steve has been extremely clumsy lately and he is getting so frustrated with it, and he has FM. Several of my FM friends have talked often about falling and clumsiness too. When Steve gets up from a chair he will act like he's going to fall and catches himself. Difference between his non-falls and my falls is my brain doesn't engage fast enough to tell me to catch myself before I go down. I don't even put my hands out or arms to soften the blow. :-(

Hugs from Jackie in Oregon

The docs say it is fibro, not MS (they are 80% sure they say:) and think the falling is just a random unrelated event. It usually lasts off and on for a few weeks and then gets better. This last round is being blamed on a UTI, which may be the reason. I am three days past the medication and haven't fallen in two days. Usually it is only once or twice a day I go majorly sideways. It disturbs me because up until I am getting personally with the wall, I think I am fine....

My daughter is fully recovered at 2 1/2 weeks out. She is doing awesome. They said there is a good chance she will regrow them again, so to bring her in if I suspect she is. It is amazing how active she has become and how happy.

Kay

[Guest guest]

I have had a neuro-psych and and MRI and they said 80% chance I don't have MS, but want to see me in a year because I had atypical number of T3 and T4 (?) but just inside of high average. They offered me a spinal tap but I turned it down for now. So I am left with a diagnosis of an unknown neurological disorder....

Kay

Re: Kay, falling into walls, memory off.......(was) Re: Fw: [ ] How to identify Meth labs

Wow, this is the first time I ever heard that FM was just another form of MS! I sure wish you could find that resource, but I'll do a search and see what I can find. Its true about if you have one autoimmune illness you can get others too. My SIL and my hubby both have Lupus, and FM. I have 4 other autoimmune diseases including the MS. Lucky me!! NOT! LOL....

My MS was dx'ed before FM, but I had symptoms of MS first. They just didn't believe the pain I had was MS, so they said FM. And even then it was called Fibrositis even though none of the anti-inflammatories did nothing for me because FM isn't an inflammatory illness, but when it had the "itis" at the end it was considered such. Thats why they changed it to "myalgia".

Oh, maybe it was Dr. Swank that alluded to the fact that FM/Chronic Fatigue Syndrome" was really MS? He told me that when I told him I was dx'ed with FM/CFS. I'll look it up anyhow, now my curiosity is getting to me.........lol... :-)

Also people with FM do fall, and have clumsy spells. Steve has been extremely clumsy lately and he is getting so frustrated with it, and he has FM. Several of my FM friends have talked often about falling and clumsiness too. When Steve gets up from a chair he will act like he's going to fall and catches himself. Difference between his non-falls and my falls is my brain doesn't engage fast enough to tell me to catch myself before I go down. I don't even put my hands out or arms to soften the blow. :-(

Hugs from Jackie in Oregon

The docs say it is fibro, not MS (they are 80% sure they say:) and think the falling is just a random unrelated event. It usually lasts off and on for a few weeks and then gets better. This last round is being blamed on a UTI, which may be the reason. I am three days past the medication and haven't fallen in two days. Usually it is only once or twice a day I go majorly sideways. It disturbs me because up until I am getting personally with the wall, I think I am fine....

My daughter is fully recovered at 2 1/2 weeks out. She is doing awesome. They said there is a good chance she will regrow them again, so to bring her in if I suspect she is. It is amazing how active she has become and how happy.

Kay

[Guest guest]

Jackie,

It might be a good thing that your brain doesn't register the

fall quickly enough for you to "brace" for the fall.. As much as

the Ker-plunk hurts and bruises and scrapes and cuts bleed..

broken bones from bracing might be worse..

I do remember, where from I have no clue, learning that the

reason that most drunk drivers can walk away with scratches and

bruises from an accident that would severely injury someone

else.. is that they don't "brace" for the upcoming impact..

I did send off an email to my cousin this morning.. asking her

about UTI's and falls and such.. I can clearly remember her

telling me, during one discussion when I said something about my

older brother always telling me that I had "cheerleader" legs

(guess cause they were muscular or something).. but I remember

playing a "punching" type game (I don't know why we did that

though).. where he'd punch me in the thigh.. and I never felt a

thing.. and then I wondered if the reason I hadn't felt that,

was because of some nerve damage way way back.. and she said

that the difference between me not being able to feel, and

thinking it was MS that caused it.. was that before she was

diagnosed, and on medicine for the fibro.. she couldn't even

touch her thighs without being in immense pain..

But there being a link between Fibro and MS.. makes a whole lot

of sense.. I understand that Fibro has something to do with

over-active nerves firing like crazy.. and MS.. well.. we

already know that it affects the nerves, but our nerve related

issues have to do with slow nerve message transmission and the

misfiring.. similar to an electrical cord that has some of that

plastic insulation missing.. it's going to spark.. and that

charge is going to jump somewhere..

Who knows.. if someone starts to think "outside the box" on this

stuff.. they might very well find that many other things are

caused by misinterpreted messages via the CNS and then be able

to connect these things back to the MonSter.. and who knows..

start adding all the information together.. come up with a

tremendously effective treatment.. or a cure.. for more than

just MS..

Hopefully it will all come about in our lifetime.. or our

children's lifetime... One can hope

HUGS

|)onna

Wow, this is the first time I ever

heard that FM was just another form of MS! I sure wish

you could find that resource, but I'll do a search and

see what I can find. Its true about if you have one

autoimmune illness you can get others too. My SIL and

my hubby both have Lupus, and FM. I have 4 other

autoimmune diseases including the MS. Lucky me!! NOT!

LOL....

My MS was dx'ed before FM, but I had

symptoms of MS first. They just didn't believe the

pain I had was MS, so they said FM. And even then it

was called Fibrositis even though none of the

anti-inflammatories did nothing for me because FM

isn't an inflammatory illness, but when it had the

"itis" at the end it was considered such. Thats why

they changed it to "myalgia".

Oh, maybe it was Dr. Swank that

alluded to the fact that FM/Chronic Fatigue Syndrome"

was really MS? He told me that when I told him I was

dx'ed with FM/CFS. I'll look it up anyhow, now my

curiosity is getting to me.........lol... :-)

Also people with FM do fall, and have

clumsy spells. Steve has been extremely clumsy lately

and he is getting so frustrated with it, and he has

FM. Several of my FM friends have talked often about

falling and clumsiness too. When Steve gets up from a

chair he will act like he's going to fall and catches

himself. Difference between his non-falls and my falls

is my brain doesn't engage fast enough to tell me to

catch myself before I go down. I don't even put my

hands out or arms to soften the blow. :-(

Hugs

from Jackie in Oregon