Kay, docs telling us we don't have MS....

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"They" almost always tell us there is little chance of MS. "They" think it will make our symptoms go away. Did they do all the blood work to rule out other things? Did you have MRI of your spine and brain?hugs to you SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Wed, November 24, 2010 8:17:41 PMSubject: Re: Kay, falling into walls, memory off.......(was) Re: Fw: [ ] How to identify Meth labs

I have had a neuro-psych and and MRI and they said 80% chance I don't have MS, but want to see me in a year because I had atypical number of T3 and T4 (?) but just inside of high average. They offered me a spinal tap but I turned it down for now. So I am left with a diagnosis of an unknown neurological disorder....

Kay

Re: Kay, falling into walls, memory off.......(was) Re: Fw: [ ] How to identify Meth labs

Wow, this is the first time I ever heard that FM was just another form of MS! I sure wish you could find that resource, but I'll do a search and see what I can find. Its true about if you have one autoimmune illness you can get others too. My SIL and my hubby both have Lupus, and FM. I have 4 other autoimmune diseases including the MS. Lucky me!! NOT! LOL....

My MS was dx'ed before FM, but I had symptoms of MS first. They just didn't believe the pain I had was MS, so they said FM. And even then it was called Fibrositis even though none of the anti-inflammatories did nothing for me because FM isn't an inflammatory illness, but when it had the "itis" at the end it was considered such. Thats why they changed it to "myalgia".

Oh, maybe it was Dr. Swank that alluded to the fact that FM/Chronic Fatigue Syndrome" was really MS? He told me that when I told him I was dx'ed with FM/CFS. I'll look it up anyhow, now my curiosity is getting to me.........lol... :-)

Also people with FM do fall, and have clumsy spells. Steve has been extremely clumsy lately and he is getting so frustrated with it, and he has FM. Several of my FM friends have talked often about falling and clumsiness too. When Steve gets up from a chair he will act like he's going to fall and catches himself. Difference between his non-falls and my falls is my brain doesn't engage fast enough to tell me to catch myself before I go down. I don't even put my hands out or arms to soften the blow. :-(

Hugs from Jackie in Oregon

The docs say it is fibro, not MS (they are 80% sure they say:) and think the falling is just a random unrelated event. It usually lasts off and on for a few weeks and then gets better. This last round is being blamed on a UTI, which may be the reason. I am three days past the medication and haven't fallen in two days. Usually it is only once or twice a day I go majorly sideways. It disturbs me because up until I am getting personally with the wall, I think I am fine....

My daughter is fully recovered at 2 1/2 weeks out. She is doing awesome. They said there is a good chance she will regrow them again, so to bring her in if I suspect she is. It is amazing how active she has become and how happy.

Kay

[Guest guest]

Yep, you're right Sharon. When I very first went to my doctor, he said ms was a possibility......no tests though. As time went on and my symptoms actually became more ms like, after I did the research, he said it didn't sound like ms anymore LOL

Jen H

To: MSersLife From: wobbletowalk@...Date: Thu, 25 Nov 2010 08:58:14 -0800Subject: Kay, docs telling us we don't have MS....

"They" almost always tell us there is little chance of MS. "They" think it will make our symptoms go away. Did they do all the blood work to rule out other things? Did you have MRI of your spine and brain?hugs to you

SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.