Guest guest Posted February 10, 2012 Report Share Posted February 10, 2012 Omg...I have my son on Valtrex and Nystatin and only saw behavior worsen and after Cheryl told me Nystatin is not good for our kids and researched it myself i read that it only helps less then %5...we changed my son to: amphotericin 250 mg...3.1 ml 3 times a day and OMG! Only been on it two days. my sons teacher...who does not know we switched meds said, " did you do something different, your son with different today..he was attentive, engaged, talkative, social, etc.. " I am very hopeful...hard work pays off but I do believe in continuing all things esp diet, b12, and epson salt baths and keeping them in the bath for 20 min... i am very hopeful tonight!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2012 Report Share Posted February 11, 2012 Can you pls share a link to what you found? Thx. Sent from my iPhone Omg...I have my son on Valtrex and Nystatin and only saw behavior worsen and after Cheryl told me Nystatin is not good for our kids and researched it myself i read that it only helps less then %5...we changed my son to: amphotericin 250 mg...3.1 ml 3 times a day and OMG! Only been on it two days. my sons teacher...who does not know we switched meds said, "did you do something different, your son with different today..he was attentive, engaged, talkative, social, etc.." I am very hopeful...hard work pays off but I do believe in continuing all things esp diet, b12, and epson salt baths and keeping them in the bath for 20 min... i am very hopeful tonight!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2012 Report Share Posted February 11, 2012 Cami, Awesome! It feels so good when someone "on the outside" notices, doesn't it? Glad he's feeling better. It makes it so much eaiser to stay on task. Way to go! -Tammy Sent from my Kindle Fire Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2012 Report Share Posted February 12, 2012 Go to the TACA website.... Go under medical... And then it's under the document " a complete anti viral approach " it's a long entry but towards the middle end it talks about nystatin only helping less than 5% of the cases this man has worked with and Cheryl also mentioned that nystatin was not good in conjunction with valtrex. Her post to me triggered what I had read and then I asked dr sears his Dan doctor and he said many of his patients are on amphor.... So that's where we are at now and we are seeing huge gains! > > > Omg...I have my son on Valtrex and Nystatin and only saw behavior worsen and after Cheryl told me Nystatin is not good for our kids and researched it myself i read that it only helps less then %5...we changed my son to: > > amphotericin 250 mg...3.1 ml 3 times a day > > and OMG! > > Only been on it two days. > > my sons teacher...who does not know we switched meds said, " did you do something different, your son with different today..he was attentive, engaged, talkative, social, etc.. " > > I am very hopeful...hard work pays off but I do believe in continuing all things esp diet, b12, and epson salt baths and keeping them in the bath for 20 min... > > i am very hopeful tonight!!! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2012 Report Share Posted February 25, 2012 if you have a child with PANDAS nystatine is made from strep lines From: Cami Sent: Saturday, February 11, 2012 12:54 AM To: mb12valtrex Subject: thank you cheryl you were right about Nystatin Omg...I have my son on Valtrex and Nystatin and only saw behavior worsen and after Cheryl told me Nystatin is not good for our kids and researched it myself i read that it only helps less then %5...we changed my son to:amphotericin 250 mg...3.1 ml 3 times a dayand OMG!Only been on it two days.my sons teacher...who does not know we switched meds said, "did you do something different, your son with different today..he was attentive, engaged, talkative, social, etc.."I am very hopeful...hard work pays off but I do believe in continuing all things esp diet, b12, and epson salt baths and keeping them in the bath for 20 min...i am very hopeful tonight!!! Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.