Why do I have to feel embarassed at the speech therapy office??

February 14, 2012

i think people are so hateful when you suggest anything biomedical is because they are scared that maybe what they are doin may not be as good as they think it is ..if people were secure in what they were doin was right for thier kid it wouldnt bother them suggestions of diet or biomed...

and i think some folks feel guilty...maybe they know deep down they could do more..

channa

To: mb12valtrex Sent: Tuesday, February 14, 2012 4:35 PMSubject: Re: Why do I have to feel embarassed at the speech therapy office??

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February 14, 2012

Maybe you are right Channa. I also noticed that some parents don't want to make

an effort as biomed is very tiring for most of the people. It means a totally

different way of eating, fewer or no visits to Mcs, and basically changing

the whole life style. For me fighting with the school system and trying to

figure out which therapy is best for him is harder though as biomed is still

closer to the field of medicine. But the bottom line is that we all have to try

every possible beneficial treatment/therapy for our kids so they can at least

survive in this crazy world on their own as parents will not last forever. My

son's therapist is always open to ideas and he is thinking of arranging a

parents meeting so we can all discuss ideas to improve our kids and that would

give me a chance to encourage more parents to start looking into biomed.

is

February 14, 2012

Thanks Alberta! I will look into ATN. I am starting ubiquinol tomorrow. The one

that I found is 100 mg. Is it too big a dose to start? My son was previosly on

Q-best by thorne 50 mg daily which we ran out of a couple months ago. Also when

you say that you give l-carnitine with a carb rich meal, is it ok for me to give

my son at dinner time as that is his carb rich meal. And what do you mean by a

lot of fat? I thought that dinner was too late to give l-carnitine as the child

may get hyperactive. I give fish oil at breakfast time so I was thinking I will

start ubiquinol at the same time. My son gets carbs at school also but it is a

headache to get them to give him any caps. So let me know what you think about

giving l carnitine at dinner. Also, I had already purchased acetyl l carnitine

from klaire labs which are 250 mg caps. Should I start with l carnitine or

acetyl lcarnitine or it doesn't matter. After you mentioned, I paid attention

and yes my son definitely has apraxia. I hope the mito cocktail will help. As

far as Bs are concerned, my son vitaspectrum from klaire labs - 4 caps a day. If

you are not familiar with it then it contains all the b complex and other

vitamins and minerals. I also supplement P5P by thorne. I have never tried

separate b-comlex or separate minerals other than zinc. I am also planning to

start biotin. But is it possible for you to let me know what order is best. If I

am starting with ubiquinol tomorrow, what should I add next? carnitine or

biotin? And let me know if you have any antioxidant ideas. Sorry to bombard you

with so many questions. Thanks

is

>

> is, I'm in the process of trying to get someone to assess my kids for

> mito disorders. Our regular pediatricians are of no use to us for that.

> They don't know enough about whether or not to do a screening or what to

> screen them for before we're even considered a referral to a mito

> specialist.

>

> In June, we signed up with the Autism Treatment Network. They're an

> organization/arm associated with Autism Speaks and, although I don't really

> agree with a lot of the politics behind Autism Speaks, this was a service

> that could help us. The ATN involves an autism specialist at Sick Kids

> Hospital here and they are supportive of biomed, although they do not

> practice any yet right now because they don't have enough research to back

> up how they'd systematically diagnose and treat children for the different

> disorders that cause autism. The route I'm taking now is I called the ATN

> and spoke to the nurse there that is our contact person. Our involvement

> with the ATN generally involves me telling this nurse about the biomed

> we're doing (they are interested in seeing all results of all biomed we do,

> without any judgement as the agency admits that they don't have enough

> knowledge about biomed to have an opinion about it -- they just want to

> learn from it) and we give them urine samples sometimes for their different

> studies (we've submitted one on creatine already). They take the

> information and look at it as something they can possibly research later.

> In return, they give us access to what we need from the mainstream medical

> community. They can do referrals to specialists. The nurse had referred

> us to a GI specialist but at our last visit, I told her that we have all

> our digestive issues fully resolved with various components of the mito

> cocktail and I asked her if she has seen other kids whose GI symptoms are

> caused by mito disorders and she said...YES. Yes, that she has patients on

> the spectrum whose GI issues were resolved and that if I am seeing this,

> and the kids are able to be on a full and regular diet (except corn and

> soy) with mito support that, yes, we should see a mito specialist and that

> we are good candidates to do genetic testing and mito testing in that

> direction. So, she sent a letter to our autism specialist (the one whose

> team diagnosed my son and works with the ATN, but I've never even met this

> autism specialist because she mostly does research and doesn't actually see

> patients -- we've seen the psychologist and the neurologist on her team).

> After the GI specialist sent the autism specialist the letter, I also

> called up the ATN to also get them to follow up with the autism

> specialists' office -- so that we can see someone on her team and get a

> referral to a mito specialist. So I'm awaiting back from the ATN to hear

> from the autism specialists' office to see what they say but we also have

> the GI specialist now who says that we really need to see a mito specialist

> if the kids' GI issues are responding positively to the mito cocktail, and

> more specifically, carnitine. But, yes, mito disorders/dysfunction can

> cause pretty severe GI issues, which will then make the mito functions

> worse because of malabsorption -- vicious cycle.

>

> What I want from the mito specialist is to get a better tailored mito

> cocktail for my kids...more specific ratios about what we need depending on

> what's wrong with them. I know it's mito but what kind of mito problem, I

> don't know yet. I think more investigation and details would be helpful.

>

> But, for now, when treating mito, while you're in the process of finding

> someone to look at your son's mito component, I think it might be a good

> idea to increase antioxidants. The mito cocktail also involves a

> b-complex, B1, B2, coq10 and antioxidants. When there is mito dysfunction,

> I think a lot of our kids can't get rid of their free-radicals and from

> what I'm seeing now, this can affect language.

>

> But pyruvate being low...I don't know how much the actual OAT numbers

> indicate. Owens adjusts for creatinine and when she does, sometimes

> the picture changes a lot after creatinine adjustment. I find it difficult

> to believe that any of our kids have normal glutathione levels. Or,

> sometimes, it could be a deficiency in one small thing that seems so

> insignificant but that's the thing that provides some co-enzyme that makes

> or breaks all the neurotransmitter pathways.

>

> I've been using both CoQ10 and ubiquinol, trying one then the other and I

> don't really see a difference with it for my daughter. I might switch

> coq10s. The ones I have right now I haven't seen any WOWs with.

>

> Getting an appointment with any kind of specialist here is difficult.

>

> Does your son have apraxia? Sometimes when they make those " weird noises "

> -- they are actually singing or trying to talk -- the vocal cords are

> moving but their mouth isn't because the apraxia is affecting the mouth

> (and when there are no weird noises, that's sometimes apraxia affecting the

> vocal cords, too -- apraxia can affect any muscle in the body). Although

> our apraxia has gotten much much better in the last year, Maia is still

> quite affected by apraxia. And I see her trying to use proper language

> structure now, but the sounds come out strange and muddled. Funny thing is

> that the approximations are grammatically correct now and she can sound out

> words from sight -- but everything sounds " off " . That's apraxia. And she

> often makes those funny vocal noises and I think she's upset in the

> backseat, but really, it's her humming to the music on the radio but she

> cannot hum to the tune and it sounds like she's vocal stimming. But hey,

> at least she's aware of it and trying it and wants to do it, so I'm happy

> about that, even though I mistaken it for vocal stimming sometimes. The

> apraxia is still in her vocal cords, but not as strong anymore.

>

> Also, are you doing any biotin? Biotin helped us a lot, too.

>

> And if you're having trouble with carnitine, but he did well on it, lower

> the dosage and make sure to give it with a carb load so that's all

> absorbed. I find this makes a huge difference with my son. I never give

> him L-carnitine anymore without lots of carbs within 15 minutes. If I

> missed the window of opportunity, and we have to wait an hour because we

> were out while he had his carb load, I give him a lot less carnitine. But

> make sure there's lots of carbs when you give carnitine. My son must have

> eaten a grilled cheese sandwich with fries or potatoes or something before

> I give him carnitine...he gets very agitated when I don't do that and to a

> lesser degree (but it still happens) my daughter is the same with

> carnitine. With ALCAR, give with lots of fats. Huge huge difference with

> my kids. I think if you don't give it with the proper carb or fat load,

> then it doesn't absorb and just hangs around unused and that probably

> raises something else (probably testosterone, as you said) that causes the

> aggression.

>

> When my kids act up, I don't bother explaining to people about autism. I

> don't say anything anymore because well, I don't give a toot about what

> they think. They don't like it and want to stare...screw 'em. And if

> they're going to make me say that she has autism, I'm going to make them

> look like an a-hole about it to everyone. One nurse at a walk-in clinic

> did that (this was when we weren't doing much biomed) and she asked what's

> wrong with my daughter and if she always acts like that (she had an ear

> infection and was vocal stimming and scared of doctors offices) and I

> announced to the whole room that yes, my daughter has ASD and she doesn't

> like doctors office AND she's sick...hence why we're even there. She was

> pretty embarrassed about asking and went to the back to go hide until we

> left.

>

> Another time (this was about a year ago), we were at another doctors office

> and Maia was standing on a chair looking out the window. She wasn't

> particularly acting up. She pulled back the metal blinds and was standing

> behind this guy while doing that. The man tried to talk to her to tell her

> that she can't do that and Maia just " didn't hear him " or acknowledge that

> he was talking to her. He asked me, " She doesn't listen? " I said, " She

> has autism " . He felt bad and said he was sorry because he really couldn't

> tell initially (which is a good thing) and didn't know why she seemingly

> couldn't hear him. If I can tell that people honestly don't know, then I'll

> tell them. But if people are being bungholes, I don't even waste my

> breath.

>

> But strangely enough, I *sometimes* find parents of other ASD kids are the

> most judgmental. It's really weird. Not sure why. I've met a few who

> were really snotty and awful. Most parents of ASD kids aren't but some

> that I run into at therapies...holy moley, really really freaking snotty.

>

> Oops, sorry, I just realized I'm blah blah blahing on and on again...sorry

> for the long post. I'm procrastinating with work again...heh heh...

>

February 14, 2012

Hi is,

My heart goes out to you. The grocery stores and waiting room were the worst for us. (And resturants and school recitals..ugg-slow torture!)

My son is now nine and most of the time does not do verbal and physical stemming very much (anymore). This last year we have seen great improvements. When he was younger though starting at about 18 m he was non verbal and did this high pitched screamming all of the time. People always starred, sometimes in a compassionate way and sometimes not. People started saying things like "have you had him checked for Autism?" way before I ever even thought it. (that was devestating too.) Once a women said " I wouldn't blame you f you spanked him,there aren't any cameras!"

I'm not sure what is the best way to handel this stuation. We recently have have experienced a period of retracing (or regression) and Leo has been stemming and light sensitive again. We were at a resturant and he was sitting under the table or had his head in my lap. I had forgotten that this is how it was ALL of the time before. It's so hard. I do know that isolating myself at home was not the answer. Educating people seems to help. It does seem like parents at a speech therapy clinic would be more understanding!

Now that Leo is older I have found a few societly acceptable things that are approprite (gutiars, picure albums, bubbles work for him) Im not sure if this was helpful. I hope so!DOn't let them get you down. The world need people like us and our kids, we make the world interesting and beautiful!

Annie

February 14, 2012

I wanted so so much to start a local biomed support group for those reasons....but im just so scared with all the drama I have been thru..I fear people...I think it is great you are looking to help others is....it is the one thing that will help heal our hearts...by healing others hearts..sometimes the pain is so great you think it will make you hard..but it actually does the opposite if you let it....the pain makes the way for a deep well of compassion for others...you can be transformed by pain into something so much greater or diminished by it...its our choice..sometimes im not sure which way im goin....i guess it depends on how bad a night its been ..lol

channa

To: mb12valtrex Sent: Tuesday, February 14, 2012 8:40 PMSubject: Re: Why do I have to feel embarassed at the speech therapy office??

Maybe you are right Channa. I also noticed that some parents don't want to make an effort as biomed is very tiring for most of the people. It means a totally different way of eating, fewer or no visits to Mcs, and basically changing the whole life style. For me fighting with the school system and trying to figure out which therapy is best for him is harder though as biomed is still closer to the field of medicine. But the bottom line is that we all have to try every possible beneficial treatment/therapy for our kids so they can at least survive in this crazy world on their own as parents will not last forever. My son's therapist is always open to ideas and he is thinking of arranging a parents meeting so we can all discuss ideas to improve our kids and that would give me a chance to encourage more parents to start looking into biomed.is

February 14, 2012

Channa,

I wanted to do the same in my area. I only attended two support group meetings and I was so out of place. I felt like an alien. I was the only one doing biomed and when I talked about the simple things like diet, they looked at me like, lets get the straight jacket out for this broad. Also, I had arranged a doctor to come and speak to them and explain the importance of diet and their health issues, the director told me NO WAY! We are a non profit and we could lose our tax exemption if it looked like we were recommending something that is not FDA approved. I politely said "Ok" and never darkened their door again. But, as mothers who have direction and are making a stand to take charge and make our kids healthy, it is ultimately up to us to make the rest of the world realize that our children are ill and immune compromised and need dietary interventions and

supplements and medications in order to heal. It physically hurts me to see a child such as at my son's school, screaming, crying and showing aggression because I know that child is physically hurting inside. The sad thing is that their parents are not informed on how to help them. I wish I could help and heal them all!

Kerri

To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, February 14, 2012 11:00 PMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

I wanted so so much to start a local biomed support group for those reasons....but im just so scared with all the drama I have been thru..I fear people...I think it is great you are looking to help others is....it is the one thing that will help heal our hearts...by healing others hearts..sometimes the pain is so great you think it will make you hard..but it actually does the opposite if you let it....the pain makes the way for a deep well of compassion for others...you can be transformed by pain into something so much greater or diminished by it...its our choice..sometimes im not sure which way im goin....i guess it depends on how bad a night its been ..lol

channa

To: mb12valtrex Sent: Tuesday, February 14, 2012 8:40 PMSubject: Re: Why do I have to feel embarassed at the speech therapy office??

Maybe you are right Channa. I also noticed that some parents don't want to make an effort as biomed is very tiring for most of the people. It means a totally different way of eating, fewer or no visits to Mcs, and basically changing the whole life style. For me fighting with the school system and trying to figure out which therapy is best for him is harder though as biomed is still closer to the field of medicine. But the bottom line is that we all have to try every possible beneficial treatment/therapy for our kids so they can at least survive in this crazy world on their own as parents will not last forever. My son's therapist is always open to ideas and he is thinking of arranging a parents meeting so we can all discuss ideas to improve our kids and that would give me a chance to encourage more parents to start looking into biomed.is

February 15, 2012

yes and yes kerri....me too it takes all I can do not to approach every autism mom/dad in my sons preschool..but with the very real threat of children services I dare not let myself stand out as the parent doin dangerous diets/supps with her kid...

if I was married had more support around me wasnt in hiding from a monster it wouldnt make me so vulnerable to big brother..

but I got my book im writing....not as fast as i would like but still every time i write a page i know its a step foward and one day I hope it will reach a lot of people and yes it will be very politically uncorrect:)

To: "mb12valtrex " <mb12valtrex > Sent: Wednesday, February 15, 2012 1:50 AMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

Channa,

I wanted to do the same in my area. I only attended two support group meetings and I was so out of place. I felt like an alien. I was the only one doing biomed and when I talked about the simple things like diet, they looked at me like, lets get the straight jacket out for this broad. Also, I had arranged a doctor to come and speak to them and explain the importance of diet and their health issues, the director told me NO WAY! We are a non profit and we could lose our tax exemption if it looked like we were recommending something that is not FDA approved. I politely said "Ok" and never darkened their door again. But, as mothers who have direction and are making a stand to take charge and make our kids healthy, it is ultimately up to us to make the rest of the world realize that our children are ill and immune compromised and need dietary interventions and supplements and medications in order to

heal. It physically hurts me to see a child such as at my son's school, screaming, crying and showing aggression because I know that child is physically hurting inside. The sad thing is that their parents are not informed on how to help them. I wish I could help and heal them all!

Kerri

To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, February 14, 2012 11:00 PMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

I wanted so so much to start a local biomed support group for those reasons....but im just so scared with all the drama I have been thru..I fear people...I think it is great you are looking to help others is....it is the one thing that will help heal our hearts...by healing others hearts..sometimes the pain is so great you think it will make you hard..but it actually does the opposite if you let it....the pain makes the way for a deep well of compassion for others...you can be transformed by pain into something so much greater or diminished by it...its our choice..sometimes im not sure which way im goin....i guess it depends on how bad a night its been ..lol

channa

To: mb12valtrex Sent: Tuesday, February 14, 2012 8:40 PMSubject: Re: Why do I have to feel embarassed at the speech therapy office??

Maybe you are right Channa. I also noticed that some parents don't want to make an effort as biomed is very tiring for most of the people. It means a totally different way of eating, fewer or no visits to Mcs, and basically changing the whole life style. For me fighting with the school system and trying to figure out which therapy is best for him is harder though as biomed is still closer to the field of medicine. But the bottom line is that we all have to try every possible beneficial treatment/therapy for our kids so they can at least survive in this crazy world on their own as parents will not last forever. My son's therapist is always open to ideas and he is thinking of arranging a parents meeting so we can all discuss ideas to improve our kids and that would give me a chance to encourage more parents to start looking into

biomed.is

February 15, 2012

Channa,

Until now, after reading all of the posts I never worried about children services. I guess because I work my @$$ off cooking special foods and resolving situations before they occur to make things better for my child. I and many others on this group go WAY above and beyond to help our kids. Its just hard for me to fathom that being labeled dangerous. However, note taken! I will not be naive to this anymore. Channa, from what I know from your posts and unlimted information on the MB12valtrex group, you are a remarkable mother and good things will definitely come your way:)

Kerri

To: "mb12valtrex " <mb12valtrex > Sent: Wednesday, February 15, 2012 7:51 AMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

yes and yes kerri....me too it takes all I can do not to approach every autism mom/dad in my sons preschool..but with the very real threat of children services I dare not let myself stand out as the parent doin dangerous diets/supps with her kid...

if I was married had more support around me wasnt in hiding from a monster it wouldnt make me so vulnerable to big brother..

but I got my book im writing....not as fast as i would like but still every time i write a page i know its a step foward and one day I hope it will reach a lot of people and yes it will be very politically uncorrect:)

To: "mb12valtrex " <mb12valtrex > Sent: Wednesday, February 15, 2012 1:50 AMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

Channa,

I wanted to do the same in my area. I only attended two support group meetings and I was so out of place. I felt like an alien. I was the only one doing biomed and when I talked about the simple things like diet, they looked at me like, lets get the straight jacket out for this broad. Also, I had arranged a doctor to come and speak to them and explain the importance of diet and their health issues, the director told me NO WAY! We are a non profit and we could lose our tax exemption if it looked like we were recommending something that is not FDA approved. I politely said "Ok" and never darkened their door again. But, as mothers who have direction and are making a stand to take charge and make our kids healthy, it is ultimately up to us to make the rest of the world realize that our children are ill and immune compromised and need dietary interventions and supplements and medications in order to

heal. It physically hurts me to see a child such as at my son's school, screaming, crying and showing aggression because I know that child is physically hurting inside. The sad thing is that their parents are not informed on how to help them. I wish I could help and heal them all!

Kerri

To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, February 14, 2012 11:00 PMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

I wanted so so much to start a local biomed support group for those reasons....but im just so scared with all the drama I have been thru..I fear people...I think it is great you are looking to help others is....it is the one thing that will help heal our hearts...by healing others hearts..sometimes the pain is so great you think it will make you hard..but it actually does the opposite if you let it....the pain makes the way for a deep well of compassion for others...you can be transformed by pain into something so much greater or diminished by it...its our choice..sometimes im not sure which way im goin....i guess it depends on how bad a night its been ..lol

channa

To: mb12valtrex Sent: Tuesday, February 14, 2012 8:40 PMSubject: Re: Why do I have to feel embarassed at the speech therapy office??

Maybe you are right Channa. I also noticed that some parents don't want to make an effort as biomed is very tiring for most of the people. It means a totally different way of eating, fewer or no visits to Mcs, and basically changing the whole life style. For me fighting with the school system and trying to figure out which therapy is best for him is harder though as biomed is still closer to the field of medicine. But the bottom line is that we all have to try every possible beneficial treatment/therapy for our kids so they can at least survive in this crazy world on their own as parents will not last forever. My son's therapist is always open to ideas and he is thinking of arranging a parents meeting so we can all discuss ideas to improve our kids and that would give me a chance to encourage more parents to start looking into

biomed.is

February 15, 2012

awww....thank you so much for that, you brought tears to my eyes. It has left me qiute bruised havin to fight so hard to prove myself as a mother over and over again...including to myself...

sometimes a kind word...just breaks my heart but in a good way.

thank you..

channa

To: "mb12valtrex " <mb12valtrex > Sent: Wednesday, February 15, 2012 1:55 PMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

Channa,

Until now, after reading all of the posts I never worried about children services. I guess because I work my @$$ off cooking special foods and resolving situations before they occur to make things better for my child. I and many others on this group go WAY above and beyond to help our kids. Its just hard for me to fathom that being labeled dangerous. However, note taken! I will not be naive to this anymore. Channa, from what I know from your posts and unlimted information on the MB12valtrex group, you are a remarkable mother and good things will definitely come your way:)

Kerri

To: "mb12valtrex " <mb12valtrex > Sent: Wednesday, February 15, 2012 7:51 AMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

yes and yes kerri....me too it takes all I can do not to approach every autism mom/dad in my sons preschool..but with the very real threat of children services I dare not let myself stand out as the parent doin dangerous diets/supps with her kid...

if I was married had more support around me wasnt in hiding from a monster it wouldnt make me so vulnerable to big brother..

but I got my book im writing....not as fast as i would like but still every time i write a page i know its a step foward and one day I hope it will reach a lot of people and yes it will be very politically uncorrect:)

To: "mb12valtrex " <mb12valtrex > Sent: Wednesday, February 15, 2012 1:50 AMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

Channa,

I wanted to do the same in my area. I only attended two support group meetings and I was so out of place. I felt like an alien. I was the only one doing biomed and when I talked about the simple things like diet, they looked at me like, lets get the straight jacket out for this broad. Also, I had arranged a doctor to come and speak to them and explain the importance of diet and their health issues, the director told me NO WAY! We are a non profit and we could lose our tax exemption if it looked like we were recommending something that is not FDA approved. I politely said "Ok" and never darkened their door again. But, as mothers who have direction and are making a stand to take charge and make our kids healthy, it is ultimately up to us to make the rest of the world realize that our children are ill and immune compromised and need dietary interventions and supplements and medications in order to

heal. It physically hurts me to see a child such as at my son's school, screaming, crying and showing aggression because I know that child is physically hurting inside. The sad thing is that their parents are not informed on how to help them. I wish I could help and heal them all!

Kerri

To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, February 14, 2012 11:00 PMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

I wanted so so much to start a local biomed support group for those reasons....but im just so scared with all the drama I have been thru..I fear people...I think it is great you are looking to help others is....it is the one thing that will help heal our hearts...by healing others hearts..sometimes the pain is so great you think it will make you hard..but it actually does the opposite if you let it....the pain makes the way for a deep well of compassion for others...you can be transformed by pain into something so much greater or diminished by it...its our choice..sometimes im not sure which way im goin....i guess it depends on how bad a night its been ..lol

channa

To: mb12valtrex Sent: Tuesday, February 14, 2012 8:40 PMSubject: Re: Why do I have to feel embarassed at the speech therapy office??

Maybe you are right Channa. I also noticed that some parents don't want to make an effort as biomed is very tiring for most of the people. It means a totally different way of eating, fewer or no visits to Mcs, and basically changing the whole life style. For me fighting with the school system and trying to figure out which therapy is best for him is harder though as biomed is still closer to the field of medicine. But the bottom line is that we all have to try every possible beneficial treatment/therapy for our kids so they can at least survive in this crazy world on their own as parents will not last forever. My son's therapist is always open to ideas and he is thinking of arranging a parents meeting so we can all discuss ideas to improve our kids and that would give me a chance to encourage more parents to start looking into

biomed.is

February 17, 2012

Hi All,

I live in Melbourne,Australia and we have these monthly Bio-med meetings which I now am very grateful for.

A grandfather whose grandson is on the spectrum he has taken on the role. The group is amazing they have someone taking notes (a bio-med parent) someone brings tea/coffee/snacks and we have a guest speaker monthly There are also books/cd's/DVD's to loan.

This is all voluntary everyone is asked to donate a dollar to pay for cost of room to have meeting etc....

I know our speaker for this month will be from Son-Rise other issues get discussed speaking to parents who are new or have been doing this for years has been a source of knowledge and inspiration.

Even though we know not all people believe in Bio-Med just having that in common can be a source of comfort.,our meeting are spread through word of mouth.

I am very grateful for our wonderful little group

Rosetta from Australia

To: "mb12valtrex " <mb12valtrex > Sent: Thursday, 16 February 2012 12:51 AMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

yes and yes kerri....me too it takes all I can do not to approach every autism mom/dad in my sons preschool..but with the very real threat of children services I dare not let myself stand out as the parent doin dangerous diets/supps with her kid...

if I was married had more support around me wasnt in hiding from a monster it wouldnt make me so vulnerable to big brother..

but I got my book im writing....not as fast as i would like but still every time i write a page i know its a step foward and one day I hope it will reach a lot of people and yes it will be very politically uncorrect:)

To: "mb12valtrex " <mb12valtrex > Sent: Wednesday, February 15, 2012 1:50 AMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

Channa,

I wanted to do the same in my area. I only attended two support group meetings and I was so out of place. I felt like an alien. I was the only one doing biomed and when I talked about the simple things like diet, they looked at me like, lets get the straight jacket out for this broad. Also, I had arranged a doctor to come and speak to them and explain the importance of diet and their health issues, the director told me NO WAY! We are a non profit and we could lose our tax exemption if it looked like we were recommending something that is not FDA approved. I politely said "Ok" and never darkened their door again. But, as mothers who have direction and are making a stand to take charge and make our kids healthy, it is ultimately up to us to make the rest of the world realize that our children are ill and immune compromised and need dietary interventions and supplements and medications in order to

heal. It physically hurts me to see a child such as at my son's school, screaming, crying and showing aggression because I know that child is physically hurting inside. The sad thing is that their parents are not informed on how to help them. I wish I could help and heal them all!

Kerri

To: "mb12valtrex " <mb12valtrex > Sent: Tuesday, February 14, 2012 11:00 PMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

I wanted so so much to start a local biomed support group for those reasons....but im just so scared with all the drama I have been thru..I fear people...I think it is great you are looking to help others is....it is the one thing that will help heal our hearts...by healing others hearts..sometimes the pain is so great you think it will make you hard..but it actually does the opposite if you let it....the pain makes the way for a deep well of compassion for others...you can be transformed by pain into something so much greater or diminished by it...its our choice..sometimes im not sure which way im goin....i guess it depends on how bad a night its been ..lol

channa

To: mb12valtrex Sent: Tuesday, February 14, 2012 8:40 PMSubject: Re: Why do I have to feel embarassed at the speech therapy office??

Maybe you are right Channa. I also noticed that some parents don't want to make an effort as biomed is very tiring for most of the people. It means a totally different way of eating, fewer or no visits to Mcs, and basically changing the whole life style. For me fighting with the school system and trying to figure out which therapy is best for him is harder though as biomed is still closer to the field of medicine. But the bottom line is that we all have to try every possible beneficial treatment/therapy for our kids so they can at least survive in this crazy world on their own as parents will not last forever. My son's therapist is always open to ideas and he is thinking of arranging a parents meeting so we can all discuss ideas to improve our kids and that would give me a chance to encourage more parents to start looking into

biomed.is

March 4, 2012

is, I just saw this tee-shirt and immediately thought of you :"Maybe if you stare long enough, you will cure my Autism. Then we can work on YOUR social skills"ahahahahahaha......Tammy To: mb12valtrex Sent:

Tuesday, February 14, 2012 5:08 PM Subject: Re: Why do I have to feel embarassed at the speech therapy office??

,

I agree with you that people sitting together in a waiting room or elsewhere should try to communicate with each other to have a pleasant environment. I always make an effort to do that but not everyone is open to it. I think most of the times I can tell what is the reason someone is staring. There are people who are friendly and courteous and at least greet me on and off and if they stare at my child, they also smile at him and smile at me. You know then it doesn't even bother me as they try to cheer him also. But then there are parents who give me a look like "Control your kid! or "Why is he messing up the magazines in the waiting area"? I noticed that even kids who almost seem recovered or way ahead of my son in their progress, make more mess than him and are more hyper but they talk and interact with each other while my son seems to be in his own world, singing happy songs. Even if he drops one book from the shelf, I have to face staring.

Thank you so much for your post. It helped me feel better. I know I just have to be strong for my kid and ignore the stares and think positive. I wish more people were like you and would like to interact with the person sitting next to them and be supportive. Thanks

is

March 4, 2012

Must ve t-shirt.. Where did u see it will get it for the summer to wear when we go to the park...Sent from my iPod

is, I just saw this tee-shirt and immediately thought of you :"Maybe if you stare long enough, you will cure my Autism. Then we can work on YOUR social skills"ahahahahahaha......Tammy To: mb12valtrex Sent:

Tuesday, February 14, 2012 5:08 PM Subject: Re: Why do I have to feel embarassed at the speech therapy office??

,

I agree with you that people sitting together in a waiting room or elsewhere should try to communicate with each other to have a pleasant environment. I always make an effort to do that but not everyone is open to it. I think most of the times I can tell what is the reason someone is staring. There are people who are friendly and courteous and at least greet me on and off and if they stare at my child, they also smile at him and smile at me. You know then it doesn't even bother me as they try to cheer him also. But then there are parents who give me a look like "Control your kid! or "Why is he messing up the magazines in the waiting area"? I noticed that even kids who almost seem recovered or way ahead of my son in their progress, make more mess than him and are more hyper but they talk and interact with each other while my son seems to be in his own world, singing happy songs. Even if he drops one book from the shelf, I have to face staring.

Thank you so much for your post. It helped me feel better. I know I just have to be strong for my kid and ignore the stares and think positive. I wish more people were like you and would like to interact with the person sitting next to them and be supportive. Thanks

is

March 4, 2012

Shop.cafepress.com/autismawareness?page=5 & rpp=28

Third row down : )

Sent from my Kindle Fire

March 4, 2012

thats freakin awesome!!!!!!!!!!!!!!!!!

To: "mb12valtrex " <mb12valtrex > Sent: Sunday, March 4, 2012 9:40 AMSubject: Re: Re: Why do I have to feel embarassed at the speech therapy office??

Must ve t-shirt.. Where did u see it will get it for the summer to wear when we go to the park...

Sent from my iPod

is, I just saw this tee-shirt and immediately thought of you :

"Maybe if you stare long enough, you will cure my Autism.

Then we can work on YOUR social skills"

ahahahahahaha......

Tammy

To: mb12valtrex Sent: Tuesday, February 14, 2012 5:08 PMSubject: Re: Why do I have to feel embarassed at the speech therapy

office??

,I agree with you that people sitting together in a waiting room or elsewhere should try to communicate with each other to have a pleasant environment. I always make an effort to do that but not everyone is open to it. I think most of the times I can tell what is the reason someone is staring. There are people who are friendly and courteous and at least greet me on and off and if they stare at my child, they also smile at him and smile at me. You know then it doesn't even bother me as they try to cheer him also. But then there are parents who give me a look like "Control your kid! or "Why is he messing up the magazines in the waiting area"? I noticed that even kids who almost seem recovered or way ahead of my son in their progress, make more mess than him and are more hyper but they talk and interact with each other while my son seems to be in his own world, singing happy songs. Even if he drops one book from the shelf, I have to face

staring. Thank you so much for your post. It helped me feel better. I know I just have to be strong for my kid and ignore the stares and think positive. I wish more people were like you and would like to interact with the person sitting next to them and be supportive. Thanksis

March 4, 2012

U ROCK.. Thank uSent from my iPod

Shop.cafepress.com/autismawareness?page=5 & rpp=28

Third row down : )

Sent from my Kindle Fire

March 4, 2012

Love it!!!

is, I just saw this tee-shirt and immediately thought of you :"Maybe if you stare long enough, you will cure my Autism. Then we can work on YOUR social skills"ahahahahahaha......Tammy To: mb12valtrex Sent:

Tuesday, February 14, 2012 5:08 PM Subject: Re: Why do I have to feel embarassed at the speech therapy office??

,

I agree with you that people sitting together in a waiting room or elsewhere should try to communicate with each other to have a pleasant environment. I always make an effort to do that but not everyone is open to it. I think most of the times I can tell what is the reason someone is staring. There are people who are friendly and courteous and at least greet me on and off and if they stare at my child, they also smile at him and smile at me. You know then it doesn't even bother me as they try to cheer him also. But then there are parents who give me a look like "Control your kid! or "Why is he messing up the magazines in the waiting area"? I noticed that even kids who almost seem recovered or way ahead of my son in their progress, make more mess than him and are more hyper but they talk and interact with each other while my son seems to be in his own world, singing happy songs. Even if he drops one book from the shelf, I have to face staring.

Thank you so much for your post. It helped me feel better. I know I just have to be strong for my kid and ignore the stares and think positive. I wish more people were like you and would like to interact with the person sitting next to them and be supportive. Thanks

is

March 4, 2012

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Another good idea is to have autism business cards made. When you get stares, on your way out of the office, or as you go into your appointment, or when the person staring is leaving, you politely hand them the card with a smile.