Re: Fibromyalgia and phone calls--sort of MS-related

[Guest guest]

Donna, my cousin Betty and I share one illness in common--not RSD norFibromyalgia--and we really burn up those phones.Love to you and to your cousin,nTo: MSersLife Sent: Sat, December 4, 2010 1:44:33 PMSubject:

Fibromyalgia

There was a

discussion about Fibro not so long ago here in the group,

and I said that I was going to email my cousin about her

symptoms.

I spoke with my cousin (for hours today.. we do that when we

get on the phone).. but we spoke about her Fibro. She's been

diagnosed for years.

She doesn't have joint pain that can't be put down to some

arthritis that she has.. She knows which joints are

definitely arthritic and the pain in other joints that

haven't been diagnosed feel the same as those that do.

She's never fallen as a result of the Fibro either, never a

balance issue of any sort, or tripping or that kind of

thing.

She does (or did) have a lot of muscle and nerve pain from

Fibro though. Lyrica works for her much better than

Gabapentin, which is what is on her insurance formulary, so

she has to go jumping through all kinds of hoops to get

Lyrica approved for her.

We were getting to something about "trigger points" that

cause pain somewhere, and she was explaining some about the

requirements as to how many of them you have to have to

receive the diagnosis, and all the other "in depth" stuff..

When we killed the 2nd phone!..

We drained the battery in my cordless phone, so I switched

to corded, called her back and then we went on like two old

hens until we drained the battery in her cordless..

So I'm off to learn about trigger points and such..

Hope this helps.. and I KNOW that I KNOW which of us was

questioning the Fibro... and I might be awake.. but the

Provigil doesn't do squat to help me retrieve the name, that

I can see bouncing round in my head and then hiding behind

whichever brain warts happens to be screwing with my memory

right now.. <grin>

Hope this helps

HUGS

|)onna

[Guest guest]

We do tend

to do that, n... I need more cordless phones in the house

so I can drain more batteries.. LOL..

HUGS

|)onna

Donna, my cousin Betty and I share one illness in

common--not RSD nor

Fibromyalgia--and we really burn up those phones.

Love to you and to your cousin,

n

From:

|)onna

To:

MSersLife

Sent: Sat,

December 4, 2010 1:44:33 PM

Subject:

Fibromyalgia

There was a discussion about Fibro

not so long ago here in the group, and I said

that I was going to email my cousin about her

symptoms.

I spoke with my cousin (for hours today.. we do

that when we get on the phone).. but we spoke

about her Fibro. She's been diagnosed for

years.

She doesn't have joint pain that can't be put

down to some arthritis that she has.. She knows

which joints are definitely arthritic and the

pain in other joints that haven't been diagnosed

feel the same as those that do.

She's never fallen as a result of the Fibro

either, never a balance issue of any sort, or

tripping or that kind of thing.

She does (or did) have a lot of muscle and nerve

pain from Fibro though. Lyrica works for her

much better than Gabapentin, which is what is on

her insurance formulary, so she has to go

jumping through all kinds of hoops to get Lyrica

approved for her.

We were getting to something about "trigger

points" that cause pain somewhere, and she was

explaining some about the requirements as to how

many of them you have to have to receive the

diagnosis, and all the other "in depth" stuff..

When we killed the 2nd phone!..

We drained the battery in my cordless phone, so

I switched to corded, called her back and then

we went on like two old hens until we drained

the battery in her cordless..

So I'm off to learn about trigger points and

such..

Hope this helps.. and I KNOW that I KNOW which

of us was questioning the Fibro... and I might

be awake.. but the Provigil doesn't do squat to

help me retrieve the name, that I can see

bouncing round in my head and then hiding behind

whichever brain warts happens to be screwing

with my memory right now.. <grin>

Hope this helps

HUGS

|)onna

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