Guest guest Posted September 8, 2011 Report Share Posted September 8, 2011 Been there talking / crying to my Virgin outside the church. I still go to my dads grave & cry to him.... Can 't take my son into church in many years. You do have to get it out and it does really help to actually talk w other moms maybe from school or local autism chapter... My son is now 14yrs old and live in NY.. we met a wonderful medicaid coordinator from NY who helped us get the Medicaid waiver program for disabled kids, that does not count parent income. after gettingthe Medicaid waiver it is openeing many doors for help at home.. respite hrs each week & help taking into community. The hard part is finding someone to fulfill the job hrs but there are people out there to help. Just getting a few hours to sit down without worrying abt them can help. If we don't take care of ouselves we are no good to anyone. I know as I am very worn down also but trying to find myself time & get healthy..Please try to take a break from all this and look into services from your state. We are in this for the long haul and need to be strong..The are cutting back on alot of services but if a child is aggressive & difficult in the community, needs special equipment ? , you should qualify.Hope today is a better one!!take carekarenTo: mb12valtrex Sent: Wednesday, September 7, 2011 8:03 PMSubject: Re: strep probiotic I'm sorry for what you are going thru. My daughter suddenly regressed a few weeks ago and things we haven't seen in awhile have all come back and I don't ever remember things being so crazy.Not sure if a strep strain in liquid q10 didn't cause it. It's also a full moon on Monday and full moons throw everything out of wack here. Our natural doctor had us use antimonium crudum 30c for full moon issues. For the first time after a dose 2 nights ago she was calm and happy. Didn't give a dose last night and things started up again. Also using parasite medicine but it didn't work on its own today. hang in there. Hope things get better. PS- sometimes I just yell in the car away from traffic on days like this. strep probiotic let me just say this is going to be more a rant then anything. my son who was doing so well these last couple months has digressed horrible since i started him on the water kefir with the strep bacteria in it. i was hoping it would work. i believe in the health properties of water kefir. but my son is going aggresive and violent on me. for the last couple days i have had my hair pulled out jumped on things thrown at me..i carry him into time out but am losing strength as the last four years has takin such a toll on my body. i am so tired to fight the old aggresive autsim that i thought was gone. i am broken. .in every way i can say. the worst part was today...i thought i could get some errands done mistake number one (with my son) then i bought him a plastic long eraser thingy that is perfect for whipping it at people. my son whipped it at my head as i put him in the car seat. then i threatened to throw it away he screamed begged me not to. i couldnt take the screaming so i gave in. he wipped it at my head one more time while i was driving. the worst part was i was got him out of the car was walking him to the store and he whipped it at a ladys bag of grocerys.. i started yelling at him he can never hit other people.. ...anyways this lady looks at me and calls out its ok its ok..he only hit my bag.....and she is looking at me like I am a crazy..I told her i was trying to teach my son not to hit people she still looks at me like some bad mother..i wanted to tell her I had been hit five times in my face and head in just the last hour alone.instead i just called out that my son was autistic. so she lookes at me like my son is autistic AND has a crazy bad mother. i was so upset i drove around trying to find a place to scream that the cops wouldnt be called but there was no place i live the city. i instead drove to a catholic cemetary and cried in front of some saint holding a baby while my son sat in the car. if you read this Jeni, you not alone in your bad days. this one really sucked for me. anyone who read this whole stinkin post bless you for witnessing my pain. worse then going thru all of this is going thru all of this alone. channa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2011 Report Share Posted September 8, 2011 Someone told me United Way offered respite. Been there talking / crying to my Virgin outside the church. I still go to my dads grave & cry to him.... Can 't take my son into church in many years. You do have to get it out and it does really help to actually talk w other moms maybe from school or local autism chapter... My son is now 14yrs old and live in NY.. we met a wonderful medicaid coordinator from NY who helped us get the Medicaid waiver program for disabled kids, that does not count parent income. after getting the Medicaid waiver it is openeing many doors for help at home.. respite hrs each week & help taking into community. The hard part is finding someone to fulfill the job hrs but there are people out there to help. Just getting a few hours to sit down without worrying abt them can help. If we don't take care of ouselves we are no good to anyone. I know as I am very worn down also but trying to find myself time & get healthy..Please try to take a break from all this and look into services from your state. We are in this for the long haul and need to be strong..The are cutting back on alot of services but if a child is aggressive & difficult in the community, needs special equipment ? , you should qualify. Hope today is a better one!!take carekaren To: mb12valtrex Sent: Wednesday, September 7, 2011 8:03 PM Subject: Re: strep probiotic I'm sorry for what you are going thru. My daughter suddenly regressed a few weeks ago and things we haven't seen in awhile have all come back and I don't ever remember things being so crazy.Not sure if a strep strain in liquid q10 didn't cause it. It's also a full moon on Monday and full moons throw everything out of wack here. Our natural doctor had us use antimonium crudum 30c for full moon issues. For the first time after a dose 2 nights ago she was calm and happy. Didn't give a dose last night and things started up again. Also using parasite medicine but it didn't work on its own today. hang in there. Hope things get better. PS- sometimes I just yell in the car away from traffic on days like this. strep probiotic let me just say this is going to be more a rant then anything. my son who was doing so well these last couple months has digressed horrible since i started him on the water kefir with the strep bacteria in it. i was hoping it would work. i believe in the health properties of water kefir. but my son is going aggresive and violent on me. for the last couple days i have had my hair pulled out jumped on things thrown at me..i carry him into time out but am losing strength as the last four years has takin such a toll on my body. i am so tired to fight the old aggresive autsim that i thought was gone. i am broken. .in every way i can say. the worst part was today...i thought i could get some errands done mistake number one (with my son) then i bought him a plastic long eraser thingy that is perfect for whipping it at people. my son whipped it at my head as i put him in the car seat. then i threatened to throw it away he screamed begged me not to. i couldnt take the screaming so i gave in. he wipped it at my head one more time while i was driving. the worst part was i was got him out of the car was walking him to the store and he whipped it at a ladys bag of grocerys.. i started yelling at him he can never hit other people.. ...anyways this lady looks at me and calls out its ok its ok..he only hit my bag.....and she is looking at me like I am a crazy..I told her i was trying to teach my son not to hit people she still looks at me like some bad mother..i wanted to tell her I had been hit five times in my face and head in just the last hour alone.instead i just called out that my son was autistic. so she lookes at me like my son is autistic AND has a crazy bad mother. i was so upset i drove around trying to find a place to scream that the cops wouldnt be called but there was no place i live the city. i instead drove to a catholic cemetary and cried in front of some saint holding a baby while my son sat in the car. if you read this Jeni, you not alone in your bad days. this one really sucked for me. anyone who read this whole stinkin post bless you for witnessing my pain. worse then going thru all of this is going thru all of this alone. channa -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2011 Report Share Posted September 8, 2011 thank you karen To: "mb12valtrex " <mb12valtrex >Sent: Thursday, September 8, 2011 10:05 AMSubject: Re: strep probiotic/ not alone Been there talking / crying to my Virgin outside the church. I still go to my dads grave & cry to him.... Can 't take my son into church in many years. You do have to get it out and it does really help to actually talk w other moms maybe from school or local autism chapter... My son is now 14yrs old and live in NY.. we met a wonderful medicaid coordinator from NY who helped us get the Medicaid waiver program for disabled kids, that does not count parent income. after getting the Medicaid waiver it is openeing many doors for help at home.. respite hrs each week & help taking into community. The hard part is finding someone to fulfill the job hrs but there are people out there to help. Just getting a few hours to sit down without worrying abt them can help. If we don't take care of ouselves we are no good to anyone. I know as I am very worn down also but trying to find myself time & get healthy.. Please try to take a break from all this and look into services from your state. We are in this for the long haul and need to be strong..The are cutting back on alot of services but if a child is aggressive & difficult in the community, needs special equipment ? , you should qualify. Hope today is a better one!!take care karen To: mb12valtrex Sent: Wednesday, September 7, 2011 8:03 PMSubject: Re: strep probiotic I'm sorry for what you are going thru. My daughter suddenly regressed a few weeks ago and things we haven't seen in awhile have all come back and I don't ever remember things being so crazy.Not sure if a strep strain in liquid q10 didn't cause it. It's also a full moon on Monday and full moons throw everything out of wack here. Our natural doctor had us use antimonium crudum 30c for full moon issues. For the first time after a dose 2 nights ago she was calm and happy. Didn't give a dose last night and things started up again. Also using parasite medicine but it didn't work on its own today. hang in there. Hope things get better. PS- sometimes I just yell in the car away from traffic on days like this. strep probiotic let me just say this is going to be more a rant then anything.my son who was doing so well these last couple months has digressed horrible since i started him on the water kefir with the strep bacteria in it.i was hoping it would work. i believe in the health properties of water kefir. but my son is going aggresive and violent on me.for the last couple days i have had my hair pulled out jumped on things thrown at me..i carry him into time out but am losing strength as the last four years has takin such a toll on my body.i am so tired to fight the old aggresive autsim that i thought was gone.i am broken. .in every way i can say.the worst part was today...i thought i could get some errands done mistake number one (with my son)then i bought him a plastic long eraser thingy that is perfect for whipping it at people.my son whipped it at my head as i put him in the car seat. then i threatened to throw it away he screamed begged me not to.i couldnt take the screaming so i gave in.he wipped it at my head one more time while i was driving.the worst part was i was got him out of the car was walking him to the store and he whipped it at a ladys bag of grocerys..i started yelling at him he can never hit other people....anyways this lady looks at me and calls out its ok its ok..he only hit my bag.....and she is looking at me like I am a crazy..I told her i was trying to teach my son not to hit people she still looks at me like some bad mother..i wanted to tell her I had been hit five times in my face and head in just the last hour alone.insteadi just called out that my son was autistic.so she lookes at me like my son is autistic AND has a crazy bad mother.i was so upset i drove around trying to find a place to scream that the cops wouldnt be called but there was no place i live the city.i instead drove to a catholic cemetary and cried in front of some saint holding a baby while my son sat in the car.if you read this Jeni, you not alone in your bad days.this one really sucked for me.anyone who read this whole stinkin post bless you for witnessing my pain. worse then going thru all of this is going thru all of this alone.channa Quote Link to comment Share on other sites More sharing options...
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